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Relapsed

I just found out in the past hour that I tested positive for the 3 month PCR.  More challenges with this virus are ahead of me.  
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Avatar universal
I have been on a "denial" vacation from the forum and wondered how you were doing and then saw your post. I am so sorry. I won't see my Dr. and discuss tx. again until March. Right now my homework is to try and lose 20lbs. duh I am stuggling to keep off the weight I lost on Tx. It's a New Year, we can beat this time
hugs
Teri
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233616 tn?1312787196
so sorry to hear this.....keep the tests may be wrong idea going....it happens.
good you are Gish, who is Misha Cohen??
I hope they can turn it around, if you are grey, shouldn't they  procrit/ transfuse you...that would help!!
mary
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Avatar universal
I just took the test again today. I need to make an appointment with the specialist. I hope I can wait for the new meds and just do 24 weeks in 2011. Thanks for all your kind words, support, information  help and prayers. I appreciate it very, very much. I still feel better every week now. I'm taking lots of things to get rid of the rest of this brain fog, but exercize helps a lot too.
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179856 tn?1333547362
Grandma please remember I too tested positive for the virus - and yet - it was a good old fake out on me and I was SVR in the end.

I pray to God in Heaven this is just a small viral bump, fake positive whatever it is that seems to happen to some of us after stopping treatment.  Nobody knows why but it DOES happen.

I'm sorry regardless though that you got this news.  One doctor told my sister she was dying of malignant cancer and the next day called her and said "sorry we mixed up the results".  Yup ... gotta love that one.

I'll be praying yours too is a count of 60 or something stupid and it GOES AWAY NEXT MONTH WHEN YOU TAKE IT AGAIN!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Debby
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Avatar universal
my deepest condolences...You are one rocking grandma and surely this will be resolved..i'm hoping false/positive....GOODLUCK
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Avatar universal
I am so very sorry to hear this. You lost the battle not the war!! I will hear my results today. My dr was away and I wanted to wait for his return. Whatever my news is I hope I can be as positive as you.  Merlino
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131817 tn?1209529311
Oh yuck, yuck, yuck!  Sorry to hear this.  Really, really sorry. You went through a lot and have always been here for everyone. I am so sorry to hear this!
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264121 tn?1313029456
I am so very sorry :(

Like you said, maybe at the very least this has given your liver some respite during the time you've treated.  I'm so upset for you though.  It's just not fair!
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248382 tn?1274938634
I am sad to read your news.  You have been an inspiration and great help to me.  You are in my prayers.  Jenn

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Avatar universal
Grandma, I'm sorry to hear the news. My prayers are going up for you.  :)  Janet
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Avatar universal
Sorry to hear about the relapse grandma, that's just awful. But you sound like you have a very positive attitude and I know you live a very healthful lifestyle. Hang in there, better treatments are coming. In the meantime check out the antifibrotic substances that HR has been discussing, these substances sound very promising for helping to retard and possibly even reverse fibrosis.
Helpful - 0
256220 tn?1210935462
I am so sorry for the news..keep your chin up...If you can give tx a break I would consider it. Theres new things in the horizon..hugs :) shelly
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Avatar universal
I had lots of nausea and vomiting where I all my riba came up. I never missed a shot. I switched doctors after 11 weeks. So I wasn't tested at my new clinic (Gish) until week 15 when I was UND. Eventually I learned to keep the riba down with fat. I was very gray looking the last month or 6 weeks of treatment and there is no way I could have gone 72 weeks. I'm 65.

frijole: Biopsy is quite old now but said between stage 2 and 3.

I'm going to get Gish's and Cohen's revised book. Maybe I can go to S.F. and see Misha Cohen.
Helpful - 0
167203 tn?1280692080
I am so sorry for your news...you have an awesome attitude, and your faith will get you thru...know you are in my prayers, and may you be totally blessed in the new year!
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223152 tn?1346978371
I am so sorry.  Another case of slow responder = 48 weeks is not enough. The good news is that you were a responder and according to the experts, you can clear by changing strategy.  I can't remember what your liver biopsy indicated -- do you have to treat again?  

Good luck to you.  Regroup and take it easy
frijole
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Avatar universal
hey Grandma,
so sorry for this setback. i know it's disapointing and frustrating but you can retreat again and beat it. so many have!
now i just finished a few days ago. i did 48 weeks Peg/riba (180/1200 mg). can you think of anytime during tx when there may have been a chink in the armor? perhaps low dose, skipped doses due to sx? how about your reponse rate throughout? did you clear at 12 weeks and stay clear? don't mean to burden you with questions, just looking for answers or patterns. thanks,
ant
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212705 tn?1221620650
Always when reading your posts, I think of you as such an example for all of us. I am so sorry to hear this crappy news...
Your strength and faith just shines through....and fortunately it is and will continue to get you through this.
Whatever you decide to do I know it will be the right thing.
You are in my prayers and I am so thankful to hear that your liver is better.
Sincerely,
Yvonne
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315996 tn?1429054229
:-(
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Avatar universal
  So sorry  to read your news.   I hope you have been feeling better being off the meds.
                                                                        Take care,   -Libby
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148987 tn?1287805926
DAMM !! I haven't been over here lately so didn't see this post. I'm so sorry. Hang in there.
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Avatar universal
...it will all work for the best...please read Romans 8:28...and keep your faith...
Pitter
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Avatar universal
Yes, my liver is much better thanks for your kind words. I'm so sorry you relapsed also.
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Avatar universal
Very sorry to hear that you received bad news. So, so sorry.
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Avatar universal
Sorry to hear about your relapse.  I got the same bad news a couple days ago, with 3.7 iu/ml viral load four weeks after doing 72 weeks.  Hope that at least your liver got better from treatment.
Helpful - 0
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