Remodelled website

Hello everyone.

Our <a href="www.hcop.org">website</a> has been newly remodelled with software that allows us to provide information in a much better (more organized) way than we ever could before.

Below is a link to the information most often asked for by patients, treating or not, and some issues we think patients need to be aware of, like food saftey and immunizations.

Just as important is keeping up with what the new strategies patients are using (that help) to address symptoms and side effects. That's where you come in.

Lots of you post great suggestions here regarding the precriptions and advice that work for you.

If you have suggestions that you think would be helpful to others for quick reference (that we haven't put into the <a href="http://www.hcop.org/hcvinfo/category/index.cfm?categoryid=37">database</a>), please let me know.

We have no desire to replace or to compete with sites like this one. There is no message board on our site, though you can comment on "blog" entries.

Most people who have emailed us have requested a quick reference place for the information, rather than having to go through numerous postings to find the basic information they are looking for or "saw somewhere." That is what we are trying to accomplish.

I plan on linking to this message board, too. It is terrific.

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[honey1616]

Hi Thanbey and so glad you found your way to this medical board! I have often wanted to tell you about it but then again did not think it would be a good idea maybe to cross the line.  We certainly could use your wonderful expertise to this board and of course I always love checking into the other one also.  I don't think going through this disease...there could be enough support!  There is alot of wonderful, caring people out there and so ready to help and support everyone!

[thanbey]

Thanks so much!

I do get invited to boards, but have not (until recently) had the time to do the type of research into what's out there that I would like.

Might say I have been in a rut that way.

There is a lot of wisdom and good advice here. I have learned a number of new things just by visiting here today.

Warmly,

thanbey

www.hcop.org

[thanbey]

Thanks, I'm still learning. You can travel around the website from the database link.

Our webguy left for the day. I am not sure I can fly solo yet.

thanbey

www.hcop.org

[LvdByGod]

who is thanbey? a doctor? GI? patient? i like to know who is giving me info before i know if it's good or not. what "other" web site is he affiliated with? is his info his "opinions" or is there testing behind it? if there is testing it would be great to site the various tests and places where the info was gathered so we know who or what the source is. we all need to be careful to what we read from anyone. i went to the site but did not notice an explaination of who he is. and like you said the first link did not work. i'm deffinately not wanting to offend anyone but, i'd like to know where he gets his info. thanks

[thanbey]

He is a she. I am not a physician but I have taught CME programs for physicians and act as a consultant to a number of doctor around the country, as many do for us.

I am a medical social worker who founded the Hepatitis C Outreach Project about 12 years ago. It is the first organization dedicated to Hepatitis c in the world, as far as I can tell. We also submitted the first successful service connected diability application to the VA in 1992 on behalf of a Vietnam veteran. Since then, we have served on a number of advisory boards, task forces and have travelled the United Staes giving presentations to organizations such as the American Public Health Association, the National Institutes of Health Consensus Management Conference (the link to the presentation on the NIH site is available for viewing on the site)Congress on Women's Health, Appalachian Health Education Council, and many more. Here's an <a href="http://www.numedx.com/readstory.phtml?story=v3n2side_swim">article on us</a> from NUMEX magazine

I have attended many classes for the doctors at the American Association for the study of liver diseases and organized the first conference on hepatitis C for patients in 1994 (I think it was)

We took a delegation of patient thought leaders to Digestive Diseases Week and had a paralell conference for them there.

I agree with you. It is important to know where the information is coming from and to read even data critically. We also provide scientific abstracts and articls on the website for those interested in them.

Thank you for asking.

thanbey

<a href="http://www.hcop.org">Hepatitis C Outreach Project</a>

(I hope these links work!)

[LvdByGod]

THANKS FOR RESPONDING! with all your experience it's great to have you on board. hope ya know i was just lookin out for the fellow heppers. i have been able to get to your home page and have been able follow some leads to help me know where you're comming from. i just wasn't sure at first who you were.  

do you take suggestions?  on that page with the questions and answers on them it would be great at the end of each answer to have a link so people can go to your source if they want to learn more. just an idea, i was kinda looking for that kinda info. THANKS AGAIN.

p.s. Thanks for all your work and for the resource too!!! sandi

[thanbey]

I think your suggestion is an excellent one.

It will take some time to get used to doing that in the old ones, but I have started to do it in the new ones.

Some of the articles do have links in them to the articles supporting the information.

Are there any specific ones you think need immediate attention?

thanks again,

thanbey

<a href="http://www.hcop.org">Hepatitis C Outreach Project</a>

[LvdByGod]

you know none comes to mind, but i only looked at a few questions/answ. thanks for your hard work it's a great site!

[utjean]

http://www.wbir.com/news/local/story.aspx?storyid=160543  I am one of the ones that was fortunate enough to do the Pegasus/Ribaviran treatment and successfully rid myself of this disease.  11 months of hell, but so what.  Now, THE SENATE is calling Hep C an STD.  As I recall, from Janis & Friends and a LOT of research, there is less than a 1% chance it's sexually transmitted.  It's not body fluids, it's blood to blood.  I cannot believe the senate passed something like this on the advice of one quack.  Open for comments folks

[James10500]

The Tenn. State Senate passed it.  Has nothing to do with the rest of the country.  Bible belt ignorance.  

Also multiple threads on this topic