Hepatitis C Community
Restless leg Syndrome... driving me mad!
About This Community:

This forum is for questions about medical issues and research aspects of Hepatitis C such as, questions about being newly diagnosed, questions about current treatments, information and participation in discussions about research studies and clinical trials related to Hepatitis. If you would like to communicate with other people who have been touched by Hepatitis, please visit our new Hepatitis Social/Living with Hepatitis forum

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Restless leg Syndrome... driving me mad!

As no doubt you are all aware the hep C meds tend to highlight/exacerbate pre-existing conditions. I have at times over the years had episodes of restless legs but lately it has become worrisome, disturbing my sleep and taking longer to go, I am on week 27/48 meds. Has anyone else had this problem and does anyone know how to deal with it... one very tired Jane!
Related Discussions
13 Comments Post a Comment
Blank
Avatar_n_tn
Very tired Jane,
Take a cruise by : http://www.projectsinknowledge.com

look through the titles on the right side of this page and you will find a link to a 4 part series dealing with the treatment of restless leg syndrome.  I have not read these yet so I do not know the exact content.....however the site is a good one and the info provided will be reliable.

good luck,
BobK
Blank
Avatar_m_tn
While I was on tx, I had restless leg so badly I couldn't sleep. I tried Benedryl and Chlortrimeton, but neither worked. My PA prescribed some sleeping pills--trazodone, 25 or 50 mg. That finally let me sleep. Good luck.
Blank
Avatar_n_tn
my wife takes dopamine which is normally used for parkinson's for her restless leg syndrome --- does the trick but maybe not for everyone. It was almost impossible foe me to be in the same bed- leg would kick the dickens out of me about 4 times a minute-- and her sleep was not restfull. (she does not have parkinsons)

Now to sorta quote what was in last weeks paper in DR Peter Gotts column " for restless leg syndrom (syndrome) and/or leg/adominal pain put a bar of soap under the bottom sheet of your bed (at the foot) do not use dial or dove - for some strange reason -- other than placebo effect it takes away or diminishes the problem.

Do I beleive it? Well it was from his column that I lerned to put vicks on my toe nails to kill the every plauging fungus that many have --- NOW -- after about 6 months of 3 to 4 times a week -- NO FUNGUS -- the VA Podiatrist said he had heard it before and seen it work.

SO what the heck? how much does a bar of soap cost? -- just don't sleep on it! Nothing ventured -- nothing gained! (Yepper there is one under our sheet now!
Blank
Avatar_n_tn
i have the problem (long-standing) and treat it with a dopamine agonist normally used for parkinson's: requip.   here's a great site with a wealth of info and a section where you can ask questions of medical professionals (i think the whole site is free and accessible by anyone).   neurologists are probably best equipped to deal with the condition.

http://www.rlshelp.org

stan
Blank
Avatar_f_tn
Believe it or not, Vit. E and antihistamines aggravate my restless legs.  The treatment itself doesn't seem to cause this in me, but if I add either of the above, my legs are jumpy all over the place.

Susan
Blank
Avatar_m_tn
HI,
I take 600 mg  coral calcium about an hour before going to bed. It has helped my leg thrashing alot.
Blank
Avatar_n_tn
I'm on Trazadone as well and it's worked wonders.  I can't imagine that I would have made it more than a couple weeks without it...I was literally up every 30 minutes at night.  It was awful!
Blank
Avatar_n_tn
I have a footbath, massage in oils, have a cup of red tea-no caffine-and smoke a joint.  Works grreat.
Blank
Avatar_n_tn
Stand facing a wall with your feet 12 to 15 inches from the wall. Lean your body forward until your shoulders are leaning on the wall. Stay this way for 30 to 40 seconds. Helps me tremendously. Joni
Blank
Avatar_n_tn
I just read that RLS can be a symptom of both hypo and hyper thyroidism. Maybe you should get yours checked if you haven't. Joni
Blank
Avatar_n_tn

As you know there is no know cause for RLS. I have had it off and on for many years. The best tx my Dr and I found was 1 vicodin at bedtime, also clonapin and trazodone work well together. You just have to keep the trazodone to a very low dose.
Talk to you Dr, there are many meds that help RLS, if you have any narcotic pain meds, try taking 1/2 to 1 at bedtime and see if it helps.


                      God Bless

                            TonyZ

Blank
Avatar_m_tn
restless leg is from pooling of blood in the tiny veins in your lower leg.  They may not be very visible, but they are like vericose veins.  When I am in the shower or bath, I take the scratchy end a loofa sponge and I lightly scrub my ankles, tops of my feet and calves to help with circulation.   When you go to bed, put pillows at the foot of your bed under the covers, to elevate your ankles above the level of your heart.  This helps the heart to pump the blood from your lower legs
Blank
545538_tn?1295995617
What works for me and also my mother who suffers from the same ailment is tonic water. The ingredient in tonic water that works is quinine. This is the same thing that is used in the treatment of malaria. At one point my mother had a prescription for quinine to treat the RLS, but the doctor said it interfered with another of her prescriptions. Anyway, I've used it and it works. Just gulp a glass down and it really works. I use the diet tonic water because the other has too many calories. I hate the taste but hold my nose and choke it down. Give it a shot....(pun intended).
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Hepatitis C Community Resources
RSS Expert Activity
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
Top Hepatitis Answerers
446474_tn?1404424777
Blank
HectorSF
CA
163305_tn?1333672171
Blank
orphanedhawk
Rural Mural, CA
1815939_tn?1377995399
Blank
pooh55811
Avatar_f_tn
Blank
patra_
DeLand, FL
Avatar_m_tn
Blank
can-do-man
IN
Avatar_f_tn
Blank
susan400
FL