DON'T......I REPEAT......DON'T take your antacids prior to taking Riba since they coat the stomach lining thus interfering with the absorption of other meds. Time it so that the antacids are taken an hour or so after your Riba has been taken. H2 blockers don't interfere with the absorption of meds since their mode of action is different.
Yeah, I'm pretty paranoid about the riba absorption issue myself.
So much so, that in spite of the fact that high fat meals don't agree with me, I always make sure to take the riba with a decent amount of fat because I read that a high fat meal increases riba's bioavailability by up to 70 per cent.
As far as the antacids, at this point I have no choice. Current plan is to try and keep a 2-3 hour buffer between taking riba and any sort of antacid. Hep C treatment plus reflux equals PITA.
Thanks for the info on vitamin B12. Are there any tests to tell if you're deficient? I think I'll mention the B12 shot to my doc next time I see him.
Jm,,,,I never even thought about what you are now bringing up. In the 52 weeks of tx,,,I probably took an antacid maybe 6 to 8 times and yes,,,,it was after dinner when my stomach wasn't feeling great and I always took my riba about 9 at night. So now I see that is a no no???
I wouldn't lose a wink of sleep over taking antacids 6-8 times during treatment. Between riba's long half life -- and only an incremental decrease that has not even been shown to be clinically significant--no problem.
On the other hand, I'm talking about taking antacids every day. And even w/o clinical studies, my gut tells me less riba will enter my system if I'm not prudent.
Thanks for the kind words. I am so sorry to hear you are having troubles. I can't answer your questions but am sure there are others who can. I will say a prayer the test is wrong and if it isn't, will say a prayer that your body deals with it well. Good luck to you and may God Bless.
I'm certain that Zantac is ok to take. I don't understand your physician's logic in discontinuing your cimetidine (an older H2 blocker) except for a possible drug interaction with Riba or Peginteferon of which I'm not certain.....since I haven't explored the issue thoroughly. I too have had GERD & hyperacidity issues for ages, which I believe are HCV related, since now 1 year post-Tx I'm free of hyperacidity & HCV. Thus I conclude that this problem stems from HCV, at least for me! When I was on Tx I took Omeprazole 20mg/daily & it alleviated hyperacidity & GERD & I never suffered while under this med.
What was your pre-treatment viral load, and did you have any viral load tests before week 24?
Geno 1's, stage 4's do have a higher relpase rate but the odds can often be put in your favor with extended treatment. As far as your anemia, what is your hemoglobin? If the anemia is making you fatigued, ask your doctor for Procrit, if you aren't on it already. No reason to go through treatment anemic if you don't have to.
Working under the theory that riba-induced stress is agravating my reflux, I took .5mg of xanax a half hour before breakfast along with 20mg of Pepcid AC.
Definitely too early to see if the experiment is a success, but based on one meal it seemed to work better than with the Pepcid AC alone. Only problem is I'm a big groggy. Maybe because I've never taken Xanax before.
For those who have taken Xanax, what dose do you take and soon does it act and for how long? I think I'll cut the xanax in half next time and hopefully it wil work w/o making me too groggy.
But at this point I'll take groggy over reflux.
Thanks for that valuable info. Did I understand you correctly that Zantac is in the family of H2 blockers which don't interfere with the Riba absorbtion? I take almost daily doses of Ranitidine which is the generic Zantac and just want to clarify that I'm not jeopardizing my treatment in any way. I was told by my doctor NOT to take cimedidine which was working well for me before tx. My stomach bothers me MUCH more since I've started tx: especially about 2 hours after lunch...I'm getting to the point of not wanting to eat much...now at 23/48 and have to take at least 2-3 Ranitidine a day to help with the bothersome upset stomach. I asked my doctor if the tx causes these types of problems and he said he hadn't had any other patients complain of it. No help there. I just assumed this has been caused by the tx. Has anyone else attributed tx to stomach problems? Thanks for your input and if you could please verify that Zantac is o.k. to take at any point in the day during tx and won't interfere with riba absorption.
Zantac (Rantidine) works differently from antacids (Tums, Pepcid, Mylanta, Gaviscon, etc.). According to my heptologist and everything I've read, there should be no problems with riba absorption. Same with PPI's such as Nexium, Aciphex, Prilosec,etc.
Anecdotally, I cleared the virus at week #6 and am still clear at week #19. I've been on either a H2 or double PPI for most of the time, so I suppose they're OK with me.
Still, I'd prefer not to be on anything, but as you know, this reflux/gerd/LPR thing can be quite debilitating. In fact, if I had to trade side effects right now from treatment, or from my LPR (laryngopharyngeal reflux), I'd take my treatment sides. The two together make for a nasty combo.
Did you start taking the Zantac for your stomach problems or for reflux? I ask that because in my case I have what is called LPR or silent Gerd. No reflux, but errosive symptons above the esophagus such as sore throat, ear ache, head ache, hoarseness,sinusitis, fatigue etc.
What i found was that while the H2's and PPI's helped the acid suppression to some degree, they created some new stomach problems including gas. So I just wonder if you had the stomach problems before or after taking the Zantac.
As far as how treatment effects things, I developed symptons two weeks before I started tx (bad luck LOL) and they just kept getting worse.
Bad luck aside, I believe that the anxiety of the unknown may have been a contributing factor, and the stress (mental and physical) caused by taking riba and inteferon are making it much harder to treat the LPR.
As the medicines aren't working very well, I've been trying various relaxation techniques but it's tough staying in OM land while on RIBA, LOL. Next week I'm going to try taking a short acting sedative prior to meals to see if that will work. Thinking valium or xanax but am up to any suggestions. What I'm looking for is something that will calm me down while I eat and for about an hour after, to give my digestive system some relaxation. Ideally, I do not want to be sedated 24/7.
My hunch is that things would calm down if I stopped taking the riba and peg, but of course I won't have that luxury for another 51 or so weeks. ARGGG!
Sorry to butt in on this thread but could not post anything new. Just wanted to let you all know that I had my 24 week viral load test and was found undetectable!!! All my numbers are looking pretty good except for some anemia, nothing I can't handle so far. I am a genotype 1a with cirrhosis and although I know my liver is getting a break now I'm wondering what the chances are that I will remain undectable? I have been doing a lot of reading and I have a basic understanding at what I am dealing with but am so afraid that this virus will come back. I know how I felt before starting tx and don't ever want to feel that way again. I know I should be happy and I am but am being cautiously optimistic on reaching svr. Hope everyone is doing ok and that we all reach our goals....May God Bless.
That is great news!!! Congratulations to you.
Okay, once again I apologize for jumping in here, but I suddenly seem to be facing one thing after another. I have done #9 (should have been #10) of 48. First 7 weeks were a relative breeze. Next a fever that would not go away, blood tests x-rays, more blood tests, docs wouldn't let me continue tx, missed a full week of peg, 4-5 doses of riba. Finall y got a friend (ER Dr) to prescribe antibiotics (Doxycycline), fever gone w/in 24 hours, back to tx. ANYWAY, just got a call from gastro yesterday. Results from the 2nd round of bloodwork showed somewhat elevated RA factor. They've got me seeing a Rheumatologist Tuesday. Now am scared to death about having yet another chronic illness. Questions: Could the test be wrong? Could whatever bacteria caused the fever have affected the RA factor? Anyone else experience this? Have RA from tx? Know what to expect? (Interestingly, when I had the fever, my wbc count was "up" as in normal, now is back down to 3.9, closer to wahat it had been during tx. Still waiting on PCR results but liver enzymes were normal.) I do have joint pains, like many of us, but none of the other symptoms I read that are associated with Rheumatoid arthritis. Any feedback would be much appreciated. I am discouraged and worried. Miss talking to you all daily--am w/o computer for now.
I couldn't agree with you more about favoring grogginess over reflux. While on Tx I took:
1. Ambien 10mg/nightly
2. Xanax XR 0.5mg/2x daily.
3. Lexapro 20 mg/daily.
Personally, I think that a dose of Xanax below 0.5 mg for me was comparable to a placebo. However, we all have different thresholds to substances thus you can try cutting your dosage in half.
CAUTION: DON'T SPLIT A SUSTAINED RELEASE TABLET! The bioavailability of the substance will be altered.
Best of luck to all,
PS-1 year after completing Tx I'm ONLY on Lexapro at 15mg/day. I'm hopeful that I'll reduce this dosage to nil sooooooooooon & live a drug-free life!
I thought Lexapro would do the opposite of the Xanax, which is to calm you and your system down. Did you use one to counteract the other? I'm using the Xanax very specifically to counteract the stress effects of the riba while I eat.
Lexapro is a SSRI class of antidepressant. It doesn't counteract or oppose the actions of Xanax but works by inhibiting the reuptake of serotonin by brain neurons. Thus, Lexapro increases serotonin levels in the brain which in turn counteracts the symptoms of depression.
I hope I was clear.....
I had Lexapro confused with Provigil. I can understand how an SSRI and Xanax could work together. I'm still stumbling around on my first .5 mg xanax dose taken 5 hours ago, so I'm probably pretty sensitive to the drug. But still no reflux today so I'm not complaining. Probably have to experiment with dosage for a while. Just hope it keeps working and it's not a coincidence. Wonder why I had to figure this one out myself. Only been to like three gastro's and three ENT's on the problem. LOL.
Sorry to hear about all your tx troubles, but sounds like the infection & fever are under control now. As far as RA factor being elevated, well I will just share my experience with it and what happened to me.
I have had major joint pain for years. Tested negative for RA factor ( prior to tx ) The joint pain was chalked up as having osteoarthritis and also from having cryoglobulemia, which causes very bad joint pain.
At week # 16 of tx, I tested positive for RA factor, I can't remember exactly how high 68? I think. Anyway, sent to the Rheumy who informed me that I probabaly do not really have rheumatoid athritis. But that the interferon is causing the RA factor to elevate. She has several patients that test positive for RA during their tx and then negative after completing tx.
One more thing, she did say that some people are just prone to getting RA > due to their genetics and that the tx can trigger RA to begin progress. ( another words, because you would have gotten RA whether you treated or not, you will still have it when tx is over )
I decided to continue to tx regardless. I would rather deal with joint pain than liver & cryo problems. It is a trade off, but the cryo really sucks and I want to be rid of it & the Hep. Hope this helps. Good luck in your tx journey.
I think in your current state of mind you could use a healthy dose of Provigil to counter the effects of Xanax.....hahaaha. Are your walls padded, in case you should stagger the wrong way? Well at least you should have no problems in sleeping well tonight!
Keep on smiling while you're stumbling,
You're not alone w/ these digestive fun and games. I have to second Ina's comments about the effects of early treatment on the Gi tract.....the horror, the horror.
I had such severe acid stomach from the riba that I started having sharp pains behind my collarbones (!) from the very first week. That was certainly a new experience. My doc, who was used to hearing about this complaint, prescribed Prilosec. I took it for a few days, decided that it was making a negligible difference, and promptly discontinued it. For the next few weeks, I medicated myself with peppermint oil--a few drops in a small glass of water. Worked much better for me.
There is a lot to be said for Ina's recommendation, too. You might also find fermented foods very helpful right now--yogurt, kefir, sauerkraut, etc.
Thanks Dutch, but reflux/gerd/LPR comes in many strengths and flavors. I think (and please correct me) Ina had mostly stomach problems. Sometimes a different approach will work down there.
I have what is called LPR or silent reflux. No hearburn but just about everything from the throat upwards is all messed up.
First I tried the H2 blockers and PPI's and while they helped marginally, I had a lot of side effects from the drugs.
Then I stopped all meds and tried about every natural cure I could find including yogurt and fermented foods like Miso soup, and a daily umbeoshi plum. For the past month I lived on nothing but white rice porridge, boiled chicken, applesauce and white toast. Not fun. LOL.
Finally couldn't take it any more and went back on H2 blockers and some antacids. I've already had a battery of tests including an endosophy. Monday I'm supposed to have what is called a dual prope 24-hour PH monitoring plus Manomentry.
But like I said earlier, I've had the feeling all along that the stress from treatment (physical and emotional) has been a big factor.
It may be coincidence, but today I took two Xanax's and have had no symptons. If things keep working out for the next couple of days I'll probably cancel/delay the PH test which is not fun.
If my Xanax approach doesn't work out, I'll probably have to go back on a double daily dose (possibly triple) of PPI's for at least 4-6 months. They have an operation, but there can be complications, plus it really doesn't make sense to have it while I'm on treatment. I'm sure I can lick this thing once I get off treatment. But that won't be for a while.
We really should start a reflux/Hep C forum. LOL. Maybe we can call it HepCFlux. LOL.
How do I know if I have a sustanined release tablet? The .5 mg tabs I have are oblong and orange with a score down the middle. So i just assumed they could be cut in half. Actually, I'm taking the generic xanax called Alprazolam but I'm not sure that makes a difference
Thank you all for your responses to my question. I apprecaite your input as this stomach issue is getting to be my biggest challenge on this tx at this point.
Ina: I found your cabbage juice idea inspiring. You mentioned cabbage tx takes 2-3 months and the added benefit may also be less anemia! Wow, sounds great. I have to look into investing in that extractor. Thank you for that tip. Sorry you too were in such stomach discomfort for nearly 6 months of your tx.....just like myself.
jmjm: Your question regarding if I had started taking Zantac for stomach problems or for acid reflux made me stop and look at my problem. I have never been diagnosed with GERD or any acid reflux problems as I haven't seen a doctor for it as of yet. I now assume it is from Hep C and the tx. Now I am thinking I may seek professional help (not my own doctor however as he dismissed it when I discussed it and told me his other patients hadn't experienced it on tx! You all have confirmed I'm not alone with this problem! I have gotten to the point I'll take other sides over this anyday. Your words also put my mind at ease that I am not interfering with riba absorption as it is an H2 blocker. I should have put my "brain cells together" and realized this as at week 12 I learned I was undetectable! Obviously the Zantac has not interfered with the progress I'm making. Thank you for your input...I really appreciated how thorough your note was. As for your challenges I hope your idea of a Xanax will work for you. I know how challenging this HEPCFLUX issue can be!!! awful!
Ben: Thank you for your informative note: So glad you too confirmed that the H2 blockers are o.k. to take. Next time I see the doctor I'll pin him down on why I shouldn't be taking cimetidine as this doesn't make sense to me either...and it WORKED for me better than Zantac! I believe this GERD/reflux issue is Hep C related but not too much talk is out there about it. Why? I now know I'm not alone with this issue which at times is horrendous! I have to force myself to eat at times as I'm loosing too much weight on tx but it can be hard when you feel like your stomach is in your throat! If this continues I will look into Omeprezole you were on. This sounds encouraging. Thanks for your information.
I hope this finds everyone well this Sunday night...or at least less sides than normal! I'm going to do shot 23/48 right now....it feels great to be getting to that 1/2 point!
Best to all,
nanniega; how long are you treating for? as Jm suggeste, extending treatment beyond the norm might ensure SVR and some damage reversal. keep us posted.
rearfang: many things do cause elevated rheumatoid factor, a web search might give you other reasons for its elevation. I had high factor for a few years before tx and it was not checked during tx so I have no idea if it was high or not. I am definetely getting it checked this week to see if it went back to normal after all these years. Did you get tested prior to tx? what made them test you during tx? my GI never suggested it, it might not be significant while on tx if it goes up.
Ha! I'm learning from you, babe. But having those mittel / eastern european genetics myself, I'd have to say that when I'm feeling bunk, my instincts always lead me back to rye bread and cabbage and cultured milk--and a nice sour borscht, of course. I have also learned from this treatment that you can do everything "right" and still get clobbered. I do know that it took my body about six months to adjust to the ribavirin assault, but it finally has. Well, not completely--but at least the more painful aspects seem to have passed. I'm glad you mentioned the internal landscape, something that we're all too polite to talk about around here, myself included. I mean, what self-respecting femme fatale is going to go on public record about vagxxxx itchxxx and chronxx conxxxxxxxxx and really painful hemxxxxxxxx?
Maybe you've already investigated it, but stomach pain two hours after eating sounds like a classical ulcer.
If your doctor won't take it seriously, find another gastro who will. Usually for dx they do an upper GI series and/or an endoscophy. Depending on what they find, they may change your meds or even put you on antibiotics.
You really want to check out all the possiblities. I don't have to tell you how bad gastro problems are along side the hep c treatment.
Califia: I apologize I didn't thank you for your comments. I reread the whole thread to be sure I didn't miss anyone and of course I did....sorry.....not blaming brain fog but it is a good excuse!...or maybe it was B.F.!? I will try the peppermint oil...I love the idea of natural aids to help instead of more meds...but I just can't give up Zantac yet.....I'd be even more miserable I'm afraid....I'll try the combo.
Ina: You are so kind! My diet has been fairly healthy for many years...could be better however I'm sure. 80's I was macrobiotic....90's vegitarian....2000....eat only organic foods and now eat organic meat. My typical diet is a.m.: whole grain cereal with bananna and yogurt, keifer, or occassional cottage cheese with blueberries....or a fruit salad I pull together. Of course with my Riba. I seem to never have a problem in the early a.m. with the stomach. Lunch: miso soup often, tuna salad sandwich on whole wheat bread, fruit, toasted arugula/ asagio cheese sandwich, sometimes organic turkey breast on a bed of lettuce or in a sandwich, bean soups and lots of fruit. my reflux/ stomach pains are the worst about 2 hours after lunch EVERY day. I usually feel very nauseated by 4:00p.m. every day. I take Zantac BEFORE it starts but it always flairs up terribly just as my fatigue starts to hit me in addition from the days energy spent. I usually end up taking 3 Zantac every afternoon...sometimes helps, sometimes doesn't. Dinner is my most dificult meal...I have lost alot of my dinner appetite (and weight now..20lbs!) as I don't think I'm eating enough 'little' meals through the day. Dinner is typically pasta with fresh veggies, or grilled chicken breast with brown basmati rice with a side veggie, or a large mixed green salad with avacodo,lots of grilled fish too. On rare occassions I make myself eat some red meat like a lean steak or sometimes a small pork chop but this is really unappealing to me right now and I feel nauseous often afterwards. I do cook with butter alot as weight isn't a problem and things are so much tastier. I have a terrible craving for sweets which I didn't have before tx, but refrain as I don't want THAT kind of weight gain! I don't drink ANYTHING but water and LOTS of it all day long. Doctor told me I should start drinking Ensure to help keep my weight up. I seem to not notice any difference how my stomach/reflux feels based on what I'm eating (except for those rare times I suffer after attempting a Mexican meal "treat"....very very bad idea!...certainly NOT a treat afterwards.) So that is a generalized list ....so what do you think? I appreciate your input and suggestions. Maybe I need more yogurt, keifer, buttermilk, cottage cheese etc?...I do eat these but only about 2-3 days a week. Thanks again..you are very kind as always! This is the worst side I'm facing right now and until you go through it one wouldn't know how bad it is!
"I don't think you started out with stomach problems, nor did I , but I think jimjim did..am I correct? "
I started out with ear pressure, then ear aches, then swallowing problems, lump in my throat (globus), sore throats, hoarseness, sinus pressure, headaches and generally feeling lousy from the neck up.
I did have some stomach problems but it turned out most of the stomach problems were related to the the double Aciphex (PPI) that I took for a couple of months. Now that I'm temporarily off PPI's, my stomach is fine. Sometimes it growls a little but I think that is due to the Pepcid AC, which is like Aciphex Light. LOL.
What I have is called LPR (laryngopharyngeal reflux). It's when the acid or bile rises past the esophagus and into the vocal cords and throat. Sometimes even into the lungs.
It was hard in the beginning to figure out which problems were from the LPR and which from the hep c treatment. But by intentionally varying my diet, and stopping and starting various medications, I was finally able to isolate those symptons to the LPR. In addition, I've had a endoscophy and my larynx scoped that confirmed reflux activity.
My new approach (I'm on day 3) is to wean off the reflux drugs and try a sedative/muscle relaxer like Xanax to counteract the physical effects of the ribavirin which often has me tighter than a drum. Stress is a known factor for all types of reflux.
I'm not crazy about taking sedatives, but if it will help the LPR so be it. If that doesn't work, it will probably be back to the PPI's which I don't tolerate very well. They do have an operation, but it doesn't make any sense to have it during treatment.
Just for the record-After years of acid reflux and an ulcer-various dietary approaches and lots of antacids I moved from the city to the country and found that well water(untreated) versus treated city water made a hugh difference in how I reacted to the various foods that used to cause heartburn.If you drink treated city water take this into consideration also. Also used the cabbage juice approach which helped quite a bit when I was still using city water. frank
Ina: Thank you so much for your interest and support. I appreciate it so much espeicailly since my docotr seems to be dismissing my issue and just telling me to pop Zantac as needed. First to clarify....I don't mean to be completely ignorant about these stomach issues but I have not been diagnosed with any of the specific problems you all have mentioned....as this is all new and has crept up on me during tx. My description of the problem is after eating..usually about 2 hours I feel nauseated, churning in my stomach, and kind of an acidic taste in my mouth with a constant pressure pushing 'UP' from my stomach which can last for hours on end. It isn't a burning pain as I suspect an ulcer would produce...more of a constant pressure and churning that makes me feel very sick. I usually try if possible to nap as it takes my mind off the discomfort...although this is difficult when I'm busy working. (self employed textile designer...LOTS OF FABRIC everywhere!) Regarding other questions: I don't use canned/jars of tomato sauce. I'm obsessed with preparing my own foods from scratch so I make my own....easy to do...tomato's, garlic, basil, onion, and simmer away...toss with pasta and voila! Salad dressings are the same...I whip it up on my own....olive oil, vinegar of some sort and usually herbs mixed in like french Herbs de Provence or something similar. I hope this info helps. Please take your time in getting back to me...I understand you are very busy right now as well! Once again your kindness is so overwhelming...Thank you.
jmjm: Thanks for your advice! Yes, I've thought it may be an ulcer but the symptoms have not seemed right to me by the reading I've done. My partner has had an ulcer and the symptoms are different from mine. I WILL however pursue this matter with a different doctor if I don't get relief soon as it is getting to be a BIG problem....my most stressful side effect at the moment: but as you ALL know....they change like the weather! I'm hoping this will phase it's way out like other challenging sides I've gotten through on tx.....Thank you again jmjm....always helpful to MANY here on the forum.
In the meantime I'm going to try Califia's recomendation: Peppermint oil and if that doesn't help I'll try Ina's and Scruffy's advice on the cabbage juice....I love veggies so this could be a treat(although dread the extrator clean up!!)
Thanks to all and I hope this tues. finds you all well with few sides and beating this virus down or keeping it at bay!
Your apron has my name on it! One little tip on the arugula sandwich.....roast some red peppers and a yellow one in the oven or under the broiler, then scrape off the blackened skin and put these on the sandwich as well...if you have pesto (basil or arugula pesto) on hand a little of that too will make that sandwich sing! As you can tell I'm a "foodie"....love it when I HAVE an appetite. (less and less lately however)
Now for Ina's great idea of having latex gloves on hand which is an admirable commitment to hygiene in public places: this may be advisable to help those NOT on tx understand our various days.
red latex gloves: yet ANOTHER blood test day.
blue latex gloves: Depressed today. Hugs needed ASAP.
green latex gloves: Surprise: another nauseous day!
yellow latex gloves: MORE water? I'm peeing my brains out day!
orange latex gloves: WARNING: riba rage day. Beware!
purple latex gloves: Confused "hazy" day......BRAINFOG.....? UGH.
white latex gloves: Don't get me sick! Low WBC counts!
black latex gloves: Can't see the light at the end-day.
This list could go on forever........... Hope you all are well today!
Scott, you've really gotten me going with that arugula sandwich bit. I want you to know that there's an apron waiting for you in my kitchen any time. (Italian, screenprinted with hyperrealist neon colored fruit--think you might like it.) It's a wonderful diet you've got going there, and it's just not fair that you're STILL having trouble. Heck, I consumed a moderately sized walnut, apple, spinach and goat cheese salad for lunch yesterday and a half hour later became completely nauseous--was adequately hydrated, the whole works, and still the riba gleefully pounced. Queen of the Quease, I am, in spite of my organic habits and lovely little kitchen garden and the whole works. Some people just have all the fun, you know.
Ina, you could dangle those latex gloves from your back pocket, either as enticement or warning...on the left for the former, right for the, uh, latter.....
And a random thought: Is it possible that this tx could especially vex the gallbladder?
Jm: Eeeeeerrrrrrrrrp. And thanks for the many good laughs today.
Ina, if you are not a nutritionalist by practice you SHOULD BE!! Your information you so willingly shared with me was so thorough and so HELPFUL!!! I am amazed at how much knowledge you have gleened by going through your problem stomach "journey" as well!! There is alot in your letter to "digest" so I have printed it out and will be analyzing what my approach will be. I was very interested in so many tips you gave me that are simple changes to diet...such as tomatoes being too harsh, no vinegar (I hadn't thought of this) with my salads, milk/ cream a potential problem, too many oranges/strawberries (my favorite)etc. I don't purchase any non-organic meats to eat so I know the additive problem isn't an issue for me..thank goodnes for organic farms!...otherwise those meats in the stores are deadly!
I will discuss compazine with my doctor.....I prefer the oral but no problem if I have to take the suppository....whatever helps! I suspected onions and garlic were a problem...thank you so much for confirming this for me. I am interested in the cabbage juice route but will try this after I adjust some of my eating habits now with your suggestions. I guess I'm avoiding it a bit as I seem to not have enough time in a day now to accomplish all I have to and can't imagine the daily "clean up" of the extractor....however I will do what I have to if this doesn't let up soon. I'm so excited to take your dietary suggestions and see if they help. I will of course spend time reading through your letter very carefully and making the adjustments TODAY! Since we had correspondence I decided to eat much less at breakfast and lunch to see if this helps. I usually don't have an appetite at dinner so I was eating more at breakfast and lunch to compensate as my weight loss is a problem. Now that I've conciously been eating less at breakfast and lunch I've noticed my stomach is aching less and the nausea seems better in the late afternoon. I've also noticed an increase in my appetite at dinnertime which I'm pleased about. Possibly I was forcing myself to eat too much (small meals by standard diets however) at the first two meals. I have also stopped eating oranges as I suspected this was a problem and you confirmed it as well. I have made another change since we had contact....I am now forcing myself to walk 1.5 to 2 miles everyday even when feeling not good and I have noticed my stomach is much less painful and less nauseated. I'm sure there is a relation there and will continue to see if I find relief also with more activity.
On a different note I got my blood work done this past friday and it wasn't good so I now have to deal with this new issue so I will take your advice listed and make changes to my diet while I deal with my blood problems. I am on Procrit every week but my Hemoglobin has now dropped to 7.7 and my white blood counts also suddenly dropped to 1.7 for the past 4 weeks. The doctor is very concerned and I just had more blood work done this a.m. to be sure there wasn't an error. For several months I've been holding steady with Hemoglobin at 9.3.(with Procrit weekly)and wbc at 3.2 so the shift has them concerned. I have to go to a hemotologist and get started on Nuepogen if todays tests come out in the same range. Still overall doing very well, remaining optimistic as I am now undetectable....I just have to hang in there through all the various sides that have decided I was thier next viable candidate to bother! I only have 5 months to go which seems like only tomorrow!
Thank you SO MUCH Ina for all your support and knowledge and great CARE! I got more from your support than I did when I discussed my stomach issue with my doctor....once again I have learned to play my own doctor! I think it is too early to tell but the small changes I've already made to my diet are helping as well as the increased excercise (hard to do however with hemo at 7.7!). I look forward to making more changes starting today on the diet as you suggested and I will keep you posted. Thank you again Ina ....you are wonderful and the forum is so lucky you are HERE!
I hope you are doing well. How are YOU?
Best to you, Scott
Scott,,,,I agree with Ina,,,,With your HGB at 7.7,,,That is getting low. I don't think at this point,,the walking 1 to 2 miles is a great idea. I'm wondering if your procrit needs to be increased as it is surprising that your HGB has dropped so low. Let us know what the doc says and please take care of yourself! Keep your eye on the prize Scott and you will win!
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