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Serious side effects to pegetron injections

Are there any real bad side effects besides the norn example brain fog and the flu syptoms. Could taking pegetron injections have regretable effects, Im starting injections soon and want to know as much as possible about these injections. My doctor just gave me brochures about the injections and the info is basic at best. I want to know can the stuff kill you possibly put you in a coma things to this nature. I know the up side to taking the medication, but I would like to know if there are any down side to the injections. thank you Steve
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Avatar universal
hi, im doug, im blessed due to complete surrender.....sept. 2007..6ft4in...95lbs..cant stop...any of it...50,..days left only..into a typical 12step.... then...THEY...ATTACKED...all of em..treatment, doctors,hospitals,....and my most favorite...her name is CHERYL, she is.....umm..a therapist...yup, crazy head type...I..told CHERYL, YUP...EVERTHING....and its now Jan.2012, 1 injection left......never had pain that was so enjoyable, CHERYL prepared me, helped my mind tolerate swings..mostly towards self and earthly awareness..Advice.....1-Get talking to your resources at your care center....B4! you even consider this..then get your scrip...go2.. Safeway(7 times airmiles!).retreat from conflict..ALL of it...cant do this/? took 3 years 2 decide to go on to live(r)..in the meantime..DO NOT DRINK..its fuel for the virus..In closing..ive seen the effects of not being prepared and also doing nothing...IF i kin do it after 40yrs of hard drinkin..well i believe so can all..giver4liver.enjoy the exp erience..its worth it in the end....Good life to All....douglaseugene..Jan,2012..God bless.
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179856 tn?1333547362
You should be just fine you are only treating for 24 weeks so you have it very lucky.  For now, just eat what you can you can always work on eating healthy again later when this is done.  Make things as easy as you can for youself and it will be over before you know it and you can move on with your life.
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Avatar universal
i just started my interferon treatment 2 weeks ago i need to be on the treatment for 24 weeks my side effects consist of headaches, loss of sleep loss of appetite, im really tired. i have a hard time eating healthy. i was a drug addict for 12 years. im very nervous and hope that this treatment will work for me. i have been able to work my full time job during my treatment so far but as for energy i have none.
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1318996 tn?1274282910
I have been taking interferon for a high platelet problem and mostly experience bad headaches and muscle aches.  It also makes me really tired all the time, although my platelet count has improved and is back to normal.  
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220090 tn?1379167187
My doc allowed me to take a small amount of Tylenol and it helped.  The fever and chills don't last long (a few days), so hang in there.

There are other sx that you might or might not experience that occur later on.  Hopefully, it won't be too bad for you.
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Avatar universal
Himmy,
I had the same experience.
I just Started treatment the day before yesterday. I was fine for about 8 hours after the first shot and pills (Riba/Peg). (Was even considering going for a run). Then in about a half hour time after that, I very rapidly developed a 102F+ fever!
I was shivering and freezing in a warm room, fortunately the worst was short lived. I have had a low grade fever about 100F since, very achy muscles, frequent urination at night. I am afraid to take anything for the fever as I don't want to interfere with any of the meds I am taking.

Thanks
JamesRoop
late 40's, and in good health.
HCV+ type1 for about 30 years, (just found out I had it 6 months ago)
light to moderate drinker that whole time, but somehow my Liver is realtively healthy according to biopsy.
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Avatar universal
I started my treatment 8 hours ago and had no side effects at first ...about 6 hours into it I begain to shake and my joints were very sore .. hot bath really helped and then I covered up on the couch and the shakeing subsided . the worse was over in 3 hours and now im able to sit here and type this post .. small price to pay to be hep c free :)

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Avatar universal
Hi there-

First i would like to say im from canada... i cannot find any rescources online for ontario... everything just keeps refering me back to the US :( I am a 21 year old female.My boyfriend that i have been with for 5 years has just been diagnosed as HCV Positive Genotype 1. Ever since i met him we have been looking into his health. He is turning 24 on May 11th. He is 6 feet and about 120 pounds. He eats alot...Since i  have met him i  knew something was wrong. He get severe stomach pain, Chest pains, Soar legs, diarrhea, constipation. No matter what we have done to make him gain weight absolutly nothing works. He is on a healthy diet. We have tried suppliments to fatty foods to everything. I would constantly force him to go to his dr. all his dr. ever said was that he had a fast metabolism and was experienceing growing pains. Back in 1989 he recieved a blood transfussion because he was very sick. which his family doctor was aware of. Last month he had a friend that works for a gastro (something dr. im sorry i forget the proper name) She booked him for an appointment to get a second opinion. When he went in there and was discussing his past history as soon as he mentioned blood transfussion in 1989 the dr immediatly sent him for a Hep C test which unfortunatly came back positive. This is all very new to me and him and right now he  is really depressed about the situation so im the one trying to do all the research. Im just so angry inside because no matter what website i go to it states about the high risk of infection with blood transfusions prior to 1992. I cant believe that his family doctor would never even consider giving him a test.20 years later this exact year he just found out. He went for his Liver biopsy on April 7th. We have not recieved the results yet because he set up an appointment with the liver specialist right after his birthday because its so close. (which may i add his family dr. had no part in the referal to either Dr.'s) I have so many questions and I do not know anyone with Hep C to help me. I went out and bought a book, but the lady who wrote it had genotype 2 and it was acute hepatitas. I believe he has had it for so long and untreated it is probably chronic by now if not something worse :( the last appointment he went to the Dr had told him that he wanted to get him ready for pre-treatment as soon as possible. I dont know much about it other than he is Genotype 1 and its most likely Chronic by now and that is viral load was over 3 million. Would this be considered Patient negligence? We dont even feel like we can go to his family dr. because he is really useless. we went in his office for an appointment one day and was reading us another patients file until my boyfriend stated that he had never gone for any of the tests he was talking about. Is there certain things he should avoid eating? is Liv-52 and Milk Thistle any good? Does anyone in here have Genotype 1 and treatment has worked for them? how bad is treatment? thank you all so much for the time to read and respond to this i really have no one else and i need to help him as much as i can.
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Avatar universal
Hi, I'm a 24 year-old seminarian and I will be undergoing treatment soon. Thanks for soothing my fears. As for the negative side effects and the horrible experiences posted, I'm simply trusting and believing God for healing, by any means necessary!
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87972 tn?1322661239
Repost this in a new thread, rather that ion a new thread :o)
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87972 tn?1322661239
Hi there,

I’m sorry to hear about your experiences. You probably want to re-post this ion a new thread, by clicking on the ‘post a question’ green button near the top of the page. Your message might get lost mixed in with others in this thread.

Welcome to the message board, and take care—

Bill
Helpful - 0
Avatar universal
I have been off the "poison cocktail" for nearly 2 months and I was only on it for two months.I thought I had done my homework as far as side effects and figured I would give it a try.I have never been that sick, experiencing nearly ever physical side-effect possible. I was so sick I didn't realize what was happening to me psychologically.
I am  bi-polar but for the most part have had that under control for a few years now. There was no way I could have foreseen what this would do to me.
How serious? This serious I am waiting my first appearance in Court for "Unlawful Confinement" and "Assault"
I am a woman 56 years old with no history of violence or any other kind of aggression.
I was in the hospital for suicidal ideation when I snapped, I followed a nurse into the medication room and threatened her with a pair of scissors, demanding enough medication to kill myself.The whole incident only lasted
a few minutes but it has certainly traumatized the hospital staff and myself. No one knows quite how to treat me now as I am a very likable, friendly person and I don't know what will happen with my charges, if a judge will understand this was a residual result of my "chemo"
I spent nearly 3 weeks in the hospital in the psych ward getting me balanced and ready to tackle the world again.
I was delighted to find this sight, I wish I had known about it before my treatment.
I am anxious to find out if anyone has had this serious a consequence.
CDCANADA
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Avatar universal
After my first shot i got so angry i was that guy in the news that stole a army tank and went on a rampage in the street and flatten homes and cars.
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Avatar universal
Welllll....you might grow excessive body hair, get a liking for raw meat and howl at full moons...Oops! Wrong site...I thought this was the curses and hexes forum! JK JK LOL

Seriously, its okay to be concerned and weigh your options. I almost didn't follow through with treatment. I tried anything and everything before hand, just to be sure that the only thing that would/ might truly fix it was the Ribavirin/ interferon combo. It is pretty horrible stuff, but it worked for me. I am now clear of the virus and have been undetectable for a year, and I finished treatment 8 months ago. I feel really good and only had a problem with my thyroid that took a while to return to normal. Good luck with your decision and may health be yours...(((((HUGZ))))))~Melinda
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717272 tn?1277590780
The fearful questions about peginterferon take me back.  I've been on tx 20 weeks and my beginning fears seem silly now.  The very worst thing that peg can do to you is not brain fog (odd term...you really just feel 'weird' and self-preoccupied.  Everybody has dumb moments and we probably had them before tx, too).  The worst thing that peg can do to you after continuous use for a month or 2 is destroy all of your neutrophils, the bacterial infection fighting white cells.  Below 500 you are in trouble.  Lower still you'll get a bone marrow infection, be hospitalized for weeks and dropped out of treatment.  Always, always go for your bloodwork.  Neutrophils can be easily brought back up with rescue meds but not unless you get the bloodwork to find out where you are.
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Avatar universal
I know what you mean by everyone looking at you as tho you are a drug user because you have Hep C. I am in the medical profession... I am not sure how I got hep C and at this point, I really don't care. I have it and I have to deal with it. My husband and I have been married for over 5 years and together for close to 8 and he is HEP C NEG.

Keep your chins up!!! God loves you and so do I.
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Avatar universal
I began treatment in September '08 and have probably had every side effect imaginable.  I have had chills, fever, aches, fatigue, migraines, rashes - including one around my eye that had the doctors totally confused - losing my hair, body hair growth has almost stopped, sores on my tongue, things taste funny - sweet things and cold things burn my tongue - itchy skin, very erratic mood swings - one minute I'm laughing uncontrollably and the next I want to kill everyone I see then i start to bawl my head off over stupid things like t.v. commercials (my kids laugh about that) - I also have become extremely anemic - took folic acid for a few months - didn't help - am now on eprex injections once a week.  I also have a really bad dry cough that doctors don't do anything about because there is no fluid in my lungs that they can hear.  Right now the cough seems to be the worst side effect - the others are tolerable and somewhat manageable - but the cough makes me short of breath and most nights I can't sleep from coughing - I go through about 30 cough drops a day - anyone else have this problem?  Oh I also have extreme vertigo off and on - had to quit my job because of it.  I have found that the side effects come and go - sometimtes they aren't so bad but at other times they feel like the first week.

my viral load was over 2 million when I began treatment - at 6 weeks it was down to just 12 and at week 12 it was undetectable so all the side effects in the world are worth going through treatment and getting rid of this virus.  I think that there are worse things than the side effects - one being the way people treat you.  I have "friends" that don't speak to me right now.  I don't do drugs - my ex became a user got abusive with me and I bit him - however, on a daily basis if I tell people that I am on treatment for hep c they automatically jump to the conclusion that I am some big drug user - even my own doctor told me to stay off of the IV drugs from now on - wow did he ever get an earful from me.  I'm tired of being treated like I should be in hiding, I'm tired of being judged - I have nothing to hide and I have nothing to be ashamed of.
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Avatar universal
Bill is absolutely correct... you can play with your kids and work. I have a 4 year old. I took my injections at night so I would sleep through the worst of side effects. After being on treatment for a few weeks I noticed that if I didn't drink A LOT of water I got migraines that were so unbearable. ONLY then did I need help caring for my child.

I had to stop treatment due to a side effect that is rare but I lost my eyesight. Plus I also have notable hearing loss. My eyesight loss from what a few Doctors have agreed upon was the interferon. So have your doctors keep watch of any swelling in your eyes. I noticed my eyes watering and red...  Like I said, I would still be on treatment if it wasn't for my loss of sight. FOR ME, the treatment was working.

I wish you the very best.....and drink a lot of water!!!!!!!
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87972 tn?1322661239
Hi Tiffany,

Are you serious that your doctor said you couldn’t play with your children while on treatment? C’mon! You’re joshin’, huh? Of course you can play with your kids! You might get a little tired, but jeez…

The majority of the folks that undergo treatment continue to work; although a lot of them work on a reduced schedule.

Yes; the manufacturers can help with the cost of drugs if your income qualifies you. Tell us a little more about yourself; there are people here that can help you navigate through the maze.

Welcome to the forum—

Bill
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806323 tn?1238116301
Did anyone have to quit working due to this treatment? Was there any help to pay for this treatment? Will someone have to care for me? Will I be able to care for my two childern?
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806323 tn?1238116301
I start this treatment on Monday March 30th. I am scared to death. I know I have to quit my job because I will not be able to move my Cancer clients around due to the possible body aches and mind foggyness. I can't help but to wonder if I will be able to still care after my 1 yr old and 2 and half month old. My doc. told me today that i probally won't be able to play with my childern for a while. I know the treatment is worth the side effects. Maybe I should be greatful my childern are young enough to not remember this. I have prayed like I have never prayed in my life that my side effects are minor and that neither of my childern have to go through this. My hep c wasn't found until my second pergnacy. I have been clean for almost 9 yrs now, and also learned today that my lungs are on the verge of cancer. This scares me even more.
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Avatar universal
I am new to this support community. I've never heard of brain fog.... however, I did loose my eyesight at 10 weeks of treatment. that was NOV 08. It is Mar 09 and my sight isn't near normal.  I am on predizone to keep the eye swelling down but every time they try to wean me off.... I go back 5 steps.

I know the harsh side effects of this treatment and if it wasn't for my loss of sight I would have completed my treatment. Since I got off the treatment my Thyroid is out of wack and am on pills for that. My virus load is higher then pre treatment.  I tried and it just didn't work for me.  

What's next for me??? Who knows, wait for a new treatment with no interferon.
I wish all the best and good luck.

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751342 tn?1534360021
The brain fog really scared me. I am working on a combined BS/MS and really did not want that particular issue while working on my degrees.  I decided to get it over with while I'm still an  undergrad. Of course I will be taking my last 2 courses at the Masters level while I'm still on treatment if I make it that far.  So far, I'm doing OK in my classes. Brain fog not an issue so far 4 weeks into it...
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Avatar universal
"so i actually cleared at week 6."

correction to my above sentence
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