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Stage 4 72 weeks SVR!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Just got the news early this morning -
Hi Pam, CONGRATULATIONS!!!!!!! HOT OFF THE PRESS. NEGATIVE PCR AT 6 MONTHS.GOOD JOB!!!! One more check in June but this is the important one!
Component ResultsComponent Your Value Standard Range Units
HEP C RNA PCR QN Undetected IU/mL
HCV RNA is not detected.
Result in log IU/mL= Undetected
Quantification range of this assay is 43 IU/mL to
69,000,000 IU/mL (1.63 to 7.84 log IU/mL).
Testing was performed by the COBAS AmpliPrep/COBAS TaqMan
HCV Test (Roche Molecular Systems, Inc.).
Test Performed by:
Mayo Clinic Dpt of Lab Med and Pathology
200 First Street SW, Rochester, MN 55905
Laboratory Director: Franklin R. Cockerill, III, M.D.
My odds weren't great going into tx, so they had me double dose the Peg for 12 weeks with the Riba at 1400, then 1 1/2 does of Peg per week and 1200 Riba until EOT. Needed Procrit from about the 9th month on..... Cleared at 12 weeks and have remained virus free since then.
At 6 months post, I am feeling better with each passing day. My thyroid seems to have gone hypo after remaining stable throughout, but that's so manageable. Vit D very low and just started on 50,000 IU's per week for 4-6 weeks. Cholesterol good at 150, but Glucose creeping up again (112). Hgb 13.7 and rest of labs looking good. MRI shows no lesions or tumors. Next test at 1 year post, but the rest of labs and US or MRI every 6 months due to the cirrhosis.
I am so very happy and grateful for the guidance of this aggressive Dr. and staff and for the collective knowledge and support here.
Pam
Hi Pam, CONGRATULATIONS!!!!!!! HOT OFF THE PRESS. NEGATIVE PCR AT 6 MONTHS.GOOD JOB!!!! One more check in June but this is the important one!
Component ResultsComponent Your Value Standard Range Units
HEP C RNA PCR QN Undetected IU/mL
HCV RNA is not detected.
Result in log IU/mL= Undetected
Quantification range of this assay is 43 IU/mL to
69,000,000 IU/mL (1.63 to 7.84 log IU/mL).
Testing was performed by the COBAS AmpliPrep/COBAS TaqMan
HCV Test (Roche Molecular Systems, Inc.).
Test Performed by:
Mayo Clinic Dpt of Lab Med and Pathology
200 First Street SW, Rochester, MN 55905
Laboratory Director: Franklin R. Cockerill, III, M.D.
My odds weren't great going into tx, so they had me double dose the Peg for 12 weeks with the Riba at 1400, then 1 1/2 does of Peg per week and 1200 Riba until EOT. Needed Procrit from about the 9th month on..... Cleared at 12 weeks and have remained virus free since then.
At 6 months post, I am feeling better with each passing day. My thyroid seems to have gone hypo after remaining stable throughout, but that's so manageable. Vit D very low and just started on 50,000 IU's per week for 4-6 weeks. Cholesterol good at 150, but Glucose creeping up again (112). Hgb 13.7 and rest of labs looking good. MRI shows no lesions or tumors. Next test at 1 year post, but the rest of labs and US or MRI every 6 months due to the cirrhosis.
I am so very happy and grateful for the guidance of this aggressive Dr. and staff and for the collective knowledge and support here.
Pam
So good to hear that you're feeling better every day, glad that your tests and labs are all clear, ESPECIALLY the viral load!
You laid down your bets against tough odds, it was a long shuffle, but you cleaned HOUSE!
Congratulations on such wonderful news! Happy liver days are here to stay!
All my best. ~eureka
You laid down your bets against tough odds, it was a long shuffle, but you cleaned HOUSE!
Congratulations on such wonderful news! Happy liver days are here to stay!
All my best. ~eureka
I started tx with a hgb of 13.7 and didn't see a decent drop until March when I went UND at 12 weeks thereabouts. I had a drop into the 9's rather quickly, a brief Riba reduction from 1400 to 1000 ( maybe a week) then back up to 1200 where I stayed. Stayed pretty much in the 10's with a few dips into the 9's until about Sept when I started Procrit. By Dec. dx'd with megaloblastic anemia and felt pretty crappy for the duration. Still worked and all, but was straight from work to bed. Stayed in the low 9's until the very end when I got into the 8's for a short time. NOT a fun place to be!
Where are you at with your Riba dosing and Hgb?
Where are you at with your Riba dosing and Hgb?
CONGRATULATIONS! what a fight... Very happy to hear about your success and about your good recovery.
Interesting about the Hgb holding up till month 9. How much of a drop did you see early on? I'm on tx and have been pushing the rbv but wondering how much reserve to leave for downstream drops.
Interesting about the Hgb holding up till month 9. How much of a drop did you see early on? I'm on tx and have been pushing the rbv but wondering how much reserve to leave for downstream drops.
I looked at your stats and so your results are all the much sweeter. A particularly tough course of treatment - you've been quite the warrior. Your treatment regimen has been interesting. Very happy for you that you get to celebrate an SVR - enjoy your well-earned celebrations!!!
Trish
Trish
Sincerest congratulations.
72 weeks, I can't imagine that. You have earned and deserve every minute of everyday from now on. I am very happy for you.
72 weeks, I can't imagine that. You have earned and deserve every minute of everyday from now on. I am very happy for you.
Thanks again everyone. It's finally starting to set in - I was kind of in a daze yesterday.
Diamando, This was my first tx. I took one shot of Procrit per week - maybe could have done with more, but it kept my Hgb in the 9's and I felt pretty good there (considering). Towards the end, it barely kept it in the nines and I could have done with more perhaps, but the end was so close I decided to hold off. In retrospect, I should have taken it. I did rebound fairly quickly post tx.
My hgb was slow to drop early on, even at the high doses of Peg and Riba. At 4 weeks, I had only dropped to 38,000 from 848, 000. Would a pre-dosing of Riba helped? I thought so prior to tx, but the Dr. thought not. And I do agree that it's important to hit it hard early on, especially at Stage 4, but not to jeopardize tx and our health.
Initially, I was only supposed to do the enhanced tx until 48 weeks and then SOC until 72, but they wanted me to stay the course at the 48 week point. I remember crying (alot) then, but it all worked out in the end.
Two things that have changed since I began tx, at least in this office. Everyone gets their Vit. D tested and no tx until it's over 50. Also all Geno 1's have an IL-28 gene test. Things are changing so quickly and finally looking better, even for us cirrhotics.
Diamando, This was my first tx. I took one shot of Procrit per week - maybe could have done with more, but it kept my Hgb in the 9's and I felt pretty good there (considering). Towards the end, it barely kept it in the nines and I could have done with more perhaps, but the end was so close I decided to hold off. In retrospect, I should have taken it. I did rebound fairly quickly post tx.
My hgb was slow to drop early on, even at the high doses of Peg and Riba. At 4 weeks, I had only dropped to 38,000 from 848, 000. Would a pre-dosing of Riba helped? I thought so prior to tx, but the Dr. thought not. And I do agree that it's important to hit it hard early on, especially at Stage 4, but not to jeopardize tx and our health.
Initially, I was only supposed to do the enhanced tx until 48 weeks and then SOC until 72, but they wanted me to stay the course at the 48 week point. I remember crying (alot) then, but it all worked out in the end.
Two things that have changed since I began tx, at least in this office. Everyone gets their Vit. D tested and no tx until it's over 50. Also all Geno 1's have an IL-28 gene test. Things are changing so quickly and finally looking better, even for us cirrhotics.
Wonderful news !!! A real inspiration to all who are waiting in line.
You deserve your success
You deserve your success
CONGRETULATIONS , this is great, one more question, is it your first therapy, or repeated?Second question, how much Procrit is taken,in case of anemia (which is common and seriously can affect the outcome of the therapy.Thank you in advance, I am about to repeat the therapy (I am geno 1, stage 3, and previously treated, partial responder)!
AAAWWWEEESSSOOOOMMMEEE,
congratulations.
I am SVR 12 headed now to the six month test. Great for you. Feels good, right.
Wow, you really went through massive TX, but you beat the beast.
Live your live and enjoy every minute of every day.
Paen is inspiration to those that don't think they can do this. YES we can.
congratulations.
I am SVR 12 headed now to the six month test. Great for you. Feels good, right.
Wow, you really went through massive TX, but you beat the beast.
Live your live and enjoy every minute of every day.
Paen is inspiration to those that don't think they can do this. YES we can.
SOOO very happy for you!!! Congratulations to you!! Thank you for posting your wonderful news with all here so that we may share in your happiness. :)
~Pos.
~Pos.
I LOVE IT !!!
Even people with cirrhosis are beating the dragon down !!!!
Congrats. Go and enjoy life.......you earned it
Even people with cirrhosis are beating the dragon down !!!!
Congrats. Go and enjoy life.......you earned it
Thanks so much for your well wishes - they mean alot. May this upcoming year and new drugs bring more of these posts for all of us!
Pam
Pam
CONGRATULATIONS!!!!!!!You beat the odds!
What a holiday present.You have your whole life ahead of you! Awesome!
Remember to still get scans for HCC as you are at higher than normal risk.
Best -
hectorsf
What a holiday present.You have your whole life ahead of you! Awesome!
Remember to still get scans for HCC as you are at higher than normal risk.
Best -
hectorsf
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