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Starting Treatment with Incivek
This coming Friday I will start taking Pegasys, Copegus and Incivek to treat chronic HCV and I was wondering if anyone has already started treatment using all 3 drugs and what they have experienced as far as side effects? I'm trying to get some idea of just how sick I will be over the next 6 months from this treatment but can not find anyone who has taken all 3 drugs. Incivek was just approved and there isn't much information available except what the pharmacuetical companys list and I would just like to hear it from someone who has taken the medications together and lived through the side effects.
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I have Health Insurance and after everything they covered I would still have been paying out of pocket $1609.30 a month for all 3 medications. I am not sure what my deductible is on my plan but I can tell you that each insurance company classifies drugs into categories and depending on the "tier" the drug is in depends on what they will cover. The Incivek costs a total of about $20,000 per month, the Ribivarin around $4000 and the Pegasys around $2500 according to my insurance company. Needless to say with Incivek being a brand new drug it is one that the insurance companies are going to be more particular about covering. You can only find out what they will pay by contacting them but without insurance the 3 meds would run you around $27,000 a month.

Now with that said, obviously even after my insurance $1600 a month was out of my reach. Vertex, the comapny that makes Incivek, has their own prescription card program set up to help people cover the cost/co-pay so you can contact them and request that on Incivek only. Genentech, who makes Ribivarin and Pegasys does not have this type of program so they use non profit organizations like Patient Access Network to help people. You can go onto their website and fill out the application. They will review your application and request copies of your insurance card, paystubs, W2's and any other income verification you have. They will review that, verify your benefits and if you qualify will approve you for up to $7,000 in coverage for your ribivarin and pegasys. Once you are approved they will give you a prescription card. Just give that information to your pharmacy as well as your insurance and it will cover your cost. I have listed their website below as well as the phone number for Patient Access Network and Vertex so you can speak to them. I hope this helps and answers the questions you have, if you need anything else I will do my best to answer your questions since I have dealt with this already. Also if Patient Access Network can not approve you there are other organizations that may and Genentech can give you a list but they will refer you first to Patient Access. I also put Genentech's number below for you. As I also mentioned before if it takes too long getting answers your insuraance company provides case workers that are here for exactly these reasons and they may be able to help speed up the process. Vertex approved me the first phone call and gave me my co-pay card account information right then but Patient Access Network took me 3 weeks until my insurance company got involved.

Patient Access Network : 866-316-7263 https://www.panfoundation.org/fundingapplication/welcome.php

Vertex (Inciviek) - 800-345-5413

Genentech 888-941-3331
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I wanted to add that Patient Access Network is a free service and they are a nonprofit organization. They are there to help people like us and others going through high costs treatments for many different illnesses.
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1761834 tn?1315841426
Yaaaay I am not alone! I started aug 3rd and have had only 2 shots so far and so far my biggest complaints are the headaches and joint pain... Oh and the fact that I gained 10 lbs the first week.... Anybody else have this problem?
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1761834 tn?1315841426
Also for anyone who "hates" drinking water: I never drank water until I started this....  Drinking water now has become a constant since one of my side effects is excessive thirst...
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Thanks for all the information.  I will start the process and see what I can get done ahead of time.  I hate dealing with health insurance companies, you pay for it and then when you need it, there is always something that they won't pay for.  Again thanks!

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Wow you gained weight?  My first round of treatments, I lost 80lbs, it was the shot a night round, totally did me in.

I've already started drinking water, I quit drinking anything else a couple of months ago, not for the treatment..didn't know about the new treatment yet, just decided to quit drinking sodas and such.  So I'm a little ahead of myself then the last 2 times.  I know it was hard to even look at water for a while after drinking so much during the treatments.  

Don't know yet, but my last doc that put me on the treatments said it was an oz of water per lb that you weighed.  At that time I weighed 230lbs, so it 230ozs of water a day.

Good luck
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So, how are the treatments going?  Had you went through them before?  Hope you are handling the side effects alright.


Good luck!!!
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1761834 tn?1315841426
I was actually looking forward to the weight loss... I'm thinking the gain is due to a combo of the 60g of fat a day along with water retention seeing how I went from never drinking water to drinking a gallon a day...
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Hey guys just catching up the conversations here. Took second shot Friday and felt like crapt all weekend but did manage to get up yesterday and do some cleaning. I have the rash but it's not horrible and using Aveeno body wash helps, I have sensitive skin anyway and even get rashes from certain detergents and perfumes so I figured I'd have this happen. Body aches and fatigue are the worst. I am eating the fat grams as instructed with the incivek and have still lost 4 lbs in 2 weeks. Drinking as much water as I can to. Saturday night threw up my dinner, first time I've had that happen so far. I have been queezy but was able to keep myself from puking until Saturday. I did drink a couple sodas that day and I think that had something to do with it. This is my first time doing treatment and I know I just got hep c some time between Feb 2010 and March 2010. Donated blood in feb 2011 and that's when I found out I was positive for HCV. Hoping the treatments will work first time around. Doc says I'll have to do the 48 weeks and I go in This coming Friday for my first follow up. I'm just trying to suck it up and get through this and the weight loss is a plus. Ever since I had my daughter in 2007 I've had trouble losing weight and before I was never a big person now I'm 60 pounds overweight and it drives me nuts. I know it's not how you should lose weight but if that's the one benefit I can get from these treatments then AWESOME! I just try to take it easy as much as I can, the fatigue makes it's hard to get anything done and to make my brain work. I have other health issues and suffer with pain every day so the added joint pain is horrible. It's hard to sleep with this rash but I'm using everything you can think of, Aveeno, benadryl, hydrocortisone. Will just have to cowgirl up and take it! I'd rather suffer now than wait until my liver is about done in and I'm about dead.
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Just got the call from the nurse and she will be here at my house 7:30PM tomorrow night with my first month's supply, first shot tomorrow night :(  :)  Since I went through it twice back in early 2000's, I know what to look forward to and this first shot is going to be the hardest...bitter sweet ;-)

coo19 - stick in there, just keep thinking about the weight loss on the positive side ;-)  That's what I did, first round I went from 240lbs down to 155lbs in about 3 months, but that was the shot every night round.   It seems, from what I can remember, that the first 2 weeks or so was the worse.  After a little bit, you get used to that poison in your body.   On my second round, 1 shot/week, after a couple weeks or so, I was riding my motorcycle, nothing far and overnight, but some good day trips and around town.  So it will get better and keep us posted.  What is this fat grams that I've seen people refer to?  Ah, guess I'll know about that this time tomorrow :)  

I got really lucky, insurance denied it last week, but then came back this week and approved it and will pay 100% on my treatment :-)

Ok, last week at the lab I was 205lbs.....we'll see where I am in a month or two?

Good luck all!

Coop
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1732853 tn?1366762528
Hey!  I started triple tx with incivek yesterday.  So far, my sx are mild flu-like symptoms.  My worst symptom is Tinnitis (loud ringing in ears), it's very annoying.
Good luck with everything.

christina
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Did my first shot last night at 9PM, woke up feeling pretty good.  Started my ribavirin and incivek this morning a 8AM.   So far..so good ;-)   I was worried about the fat grams until I found out what I had to eat, PB&J, ice cream, bagels and cream cheese, cheese, nuts...etc...I can handle those ;-)

Ate like a horse all day yesterday, had a big steak for lunch, a butt load of Jack in the Box tacos and some leftover birthday cake just because I know my eating habits are going to change a bit over the duration of the treatments.

CaughtOffGuard - That's great.  I have to be honest, I still have not gotten rid of my tinnitis from my treatments in 2003 & 2004, not as bad, but it's still there.

Good luck to all!
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Ok, some flu like symptoms, fatigue and aches all over, otherwise not too bad compared to my first 2 rounds ;-)   Now, I'm afraid I won't loose any weight, not having much problems eating, especially the fat portions ;-)  

Maybe the fact that I decided to give up everything except water a couple months ago, so I have been good hydrated.

Now that the first shot is over, it's all down hill ;-)   I found that it's easier to say 23 or 47 left, seemed to work out better then "oh crap this is only the 2nd shot ;-0

Coop
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939577 tn?1319639899
on week 3 - feel like crapola all the time.  chills, sweats, headache, tired, nausea, vomiting, raced heart beat, dizzy - and the list goes on.  I am ok hemoglobin wise, it actually increased LOL go figure, but the additional drug is making me sicker than the 1st time I treated.  It won't be an easy ride
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Can I ask what dosages you are taking?  I'd been through it twice and was expecting the worse after my first shot, kind of afraid they are not giving me right dosage on meds....really expected to get a lot sicker.

This sounds like a very high chance of kicking it.  It'd be nice to kick it and not have to worry about the ones around you all the time.
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939577 tn?1319639899
I take 180 peg, 1000 riba, 375 Incevik 3 times a day
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Cool, same dosage I'm doing.   Well tonight, in about 20 minutes, I do my 2nd shot, so I have my first week down.  Today, I actually felt pretty good, we'll see how tomorrow is after my shot.   After going through it twice and having severe side effects, it just doesn't seem right that I'm not feeling worse.....just hope it's a good sign ;-)

Hope you're feeling better!

Coop
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Just checking in to see how you're doing, feeling better I hope!
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Hey! Sorry havent been on here in the last week I haven't been feeling so great. Week 3 and 4 were rough but since yesterday I've actually had some energy and the throwing up stopped thank god! Have managed to like tear in cleaning my house and stuff. OF course had to take my 5th shot this morning so we will see how I feel this weekend. Had my 2 week check up and go back today for my 4 week blood work. Doc gave me phengren and lortab to help with my symptoms but the phengren is giving me some sinus problems so I only take it when I need it. They gave me zofran to but I couldnt afford to fill it with the other stuff at the time, hoping to get it filled today. Feel like a walking pharmacy right now! I don't have to much time right now gotta get ready for my appointment but I'll make sure to update this. Thanks for checking on me and I hope you are doing okay!  
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1674874 tn?1332721274
Hi, I've been on TX for 8 weeks now and I am actually feeling a little better -I started out over 8 million PCR and went undetectable in 2 weeks! Sides made me feel really crappy and I've been drinking Kaopectate 3 times a day. I went for my 8 week tests yesterday so I am hoping I am still undetec when the results come back. Stay strong - we can all do this - it will be worth it... Be well - Fred
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coo19, sorry that the past couple of weeks for bad for, just think though, it will only start to get better.  Yeah, was starting to wonder, haven't seen any posts lately. Hope the other meds make you feel better.  Good luck on your 4 week labs.

fredpacc, 2 weeks, that's great.  Good luck on the 8 week labs, it'll be clear!

I haven't felt too bad, couple of bad days.  Took my 3rd shot last night, got up this morning and have cleaned my house and feeling pretty good, really surprised.  Really have to watch what I eat, something a little too spicy and I regret it for the next couple of days, thank goodness for Imodium and tucks ;-).  Haven't weighed in yet, but my pants/belt are getting looser.   Appetite is not too good, but having to do the 4 meals/snacks a day to take the meds, is getting easier.

I only missed one dosage of the incivek the first couple of days, but am on track now and have been on track every since.   When I did my shot last night, I forgot to push the air out, called the on call nurse and she said it was not problem, just got a little more dosage.

This will be great to be virus free and not have to worry about the loved ones around me...my grandsons.  That's been my biggest fear is infecting someone else.  Know it's hard to do, but I've been trying to get my grandsons into fishing and with fishing is hooks and it's really easy to poke yourself with a hook, so I take extra precautions.
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Well just got the call from my doc and my viral load is undetectable! YAY! That is the best news I've gotten in a long time and thank god I'm not going through all this for nothing. Took my 5th shot Friday and haven't been feeling too horrible so far. It seems to come and go as it wants to in general. Hope you are doing okay and feeling okay. Keep my posted!

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That's awesome, I'm glad for you. Wow this is great seeing/hearing about the results they're having with this new treatment. I'm glad it's getting better for you, especially with the good news, that should make it even better knowing it's working.

I'll get my first viral test next Friday (fingers crossed).   I'm doing ok, like you said, it comes and goes.  I've only missed one day of work.

To everyone out there, keep posting your good news for everyone, it'll help to make it through the treatments.

Coop
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Well I hope your test come back with some great news! It definately helps dealing with the side effects when you know the meds are working! This week hasn't been too bad, a little fatigued and having to force myself to get stuff done but other than that not horrible. Just took shot 6 this morning so we will see how this coming week goes. I've learned to take it one day at a time and try not to over plan things or have too many things scheduled in case I don't feel good. Sometimes that is hard since we only have one car and my fiance' works Monday through Friday. A lot of times I have to schedule 2 or 3 doc appts all in one day which can be very hectic for me especially when I have to pick him up at 4pm on those days. Please let me know how you visit to the doc went and if the meds are working for you to! I'll pray they are!

Rachel
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1761834 tn?1315841426
I haven't been on here in a while, haven't been feeling good... but it was great to read and catch up with you all!!!!  I'm also on my 6th week and have a feeling that what I'm feeling is from a low blood count... I'll find out Tuesday... I had to stop working and had to call in help from my family/friends with my 4 year old daughter... but....

IT'S BEEN WORTH IT SO FAR!!!!!!!!!!!!  Just got my 4 week results and went from viral load of over 69,000,000 to under 1,000 (822 to be exact!)   Yaaaaay!!!!!!!
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Thanks, I am keeping positive about it, hearing all the good news on here helps.  I took my 4th short last night (Friday) and not feeling too bad this morning.   I actually felt pretty good yesterday, took off work and got a lot of errands done.  It's like you said, don't make any real plans..just in case.  I told my boss if I woke up Fri feeling good I was going to take off so I could have one good day off to get some stuff done.   I bet it can get hectic with your schedule and one car.  Luckily (unluckily ;-) ) I'm divorced and don't have any conflicts.  My daughters live close so they are around to help me if needed.   Thanks for the prayers and I'll return the favor as to keeping your count negative.
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Sorry to hear you have been feelling good, but good news on the viral drop.  Hope you get to feeling better.  I had to do long term disability my first 2 times, but this one hasn't hit me too bad yet.  

Hum, from the sound of you and coo19, I assume y'all are young.  I thought that it was mostly people my age with this disease.  Good news is for y'all though, is you couldn't have had it long, I pretty much tracked mine back to the stupid days in the 80's, so I'm in my 20+ yrs of it.

Anyway as they say, heads up, grin and bear it and we'll all get through this.
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It is so good to hear that so many people are wipeing this pesky viris out on there 2-3-and4th goes ,I have had 1 try and i will be trying again when telipravir is appruved in Australia next year 2012 and then hopefully i will have some good news to spread on hear as well thanks for your time and all of your great feedback.
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Thanks all for the encouragement.  The cocktail is tough but the results are fantastic: 4 mill down to 4000 in 2 weeks of treatment.

I just started 3 weeks ago and the doc prescribed lexapro to combat my sense of aloofness and detachment.  Doc thinks I will be a 6 month candidate, we will see.  Had the disease well before they knew what to call it, bloodwork back to 1994 detected high enzyeme levels.  Stopped drinking in 86 and stopped smoking in 1991, which I'm sure helped.

Anyway this is a one day, one treatment at a time thing for me as my days are filled with sleep an dmore sleep.
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1758136 tn?1318275805
In my 8th week of triple therapy.  Saturdays are a bust because I inject the interferon on Friday night.  Spend the day blacked-out sleeping or otherwise very low energy.  Each day, the energy picks up.  Mornings are tough.  Lots of side effects but none of the worst.  My personal worst has been severe anemia that wipes me out and makes me breathless.  By adjusting my dose of ribaviron and adding Procrit, that's now under control.  Lots of nausea, itchy rashes, dry cough and headaches.  Another discomfort they really don't mention is the  irritation in unmentionable areas - these are strong drugs and they go through the body and out!  Have tried sitz baths, prep h, Vaseline, medicated pads, cortisone creme - all help in intervals.  

Haven't missed a day of work.  I run my own business and we're at a critical juncture in its development and seasonality.  I'm not always there until 10 or 11, but I don't miss a day.  Frequently, I work late... I think the distraction of the work is a real benefit.

My enzyme levels are down from a one time high of 650 and average of 300-500 to about 65.  My latest viral load is at 140!  I'm a little worried about why it's not "undetectable," but I'm still encouraged.  They say that if it's not at zero by week 12, they might not continue the balance of the treatment..... one step at a time.  I'm mentally prepared for the 48 weeks.

Bring it on!
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i didint type that post under my profilre,that was my friend who typed that,he has hep c and he was logged on under me,he forgot he was on my profile lol.
great to see all the good news,all the best to everyone
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Just go the call from the doc today about my 4 week labs.......undetectable.  Wow, what a feeling, I can relax a little now.  This makes the side effects more bearable ;-)   Then I get home and take my incivek 3 hours too early ;-(~

I hope the same news to the rest of you out there!!!
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I to have a 4 year old daughter and had to get help, I haven't worked since 2009 due to some other health issues but I was in college and had to put that on hold until I finish treatment so I understand completely how your feeling. Best of luck to you!

Rachel
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Sorry I haven't replied in a couple weeks, stupid computer crashed and didn't have the means to fix it right away but it is working again now thank god. You don't realize how dependant you become on these until you don't have one!

Anyway I've gotten some great news since my last login. My viral load is undetectable as well! I wasn't told my original viral load until I found that out but apparently it was only 158,000 because I caught the virus so early (only had it about 1 year). They said I am doing optimal and could possibly finish early. Tomorrow is my 8 week check up so hopefully I will find out more then. I also, like you, started feeling better around the 4th week. It seemed the 3rd week was my worst and the last couple weeks I have been doing very well. Only had a couple days my energy was low but wasn't feeling bad overall just tired.In fact this morning I purchased tickets to see Bob Segar in November! YAY love that man! Also my daughter turns 4 Oct 20th so I have arranged to have her a big birthday party at a place called Puzzles Fun Dome. I know she's young and probably won't remember it but as long as she has fun that's what matters. It will also be the first time since her father and I divorced in a year and a half that we will be at the same place. Decided to invite him and his family because I know that would be so important to her. I know it's hard and she can't understand why we are never in the same place but it was a nasty divorce and were court ordered to not have contact until July this year and we divorced June 2010 so it's been a mess needless to say. But life goes on and I want her birthday to be very special and now that I've felt better for a few weeks I can start getting back to things I enjoy doing. It's nice to be able to planning things again. I'm even volunteering at her school now. Hope tomorrow they may tell me I can get off treatment earlier but even if not I won't be to upset it would just be nice. I will now be able to keep this updated and will let you know what they say. I am so glad to hear you have gotten that news as well and glad you are starting to feel better. If you do like I did after week 4 each week gets better and better. Always praying for you! Keep in touch and I will talk to you soon!
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1761834 tn?1315841426
what have you told your daughter, if anything, about your treatment?
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Well with her being 4 its hard for her to get the details obviously. She has seen me taking medication and giving the shots and what I have told her is Mommy is sick but this medicine will make me all better. She's kind of used to me taking medicine because I have epilepsy and she's seen a seizure before and is familiar with that cause we had to explain that to her a year ago when she saw it. I do not tell her I have a virus or anything cause she will just ask what is that and why and why and why like most 4 year olds do. Of course I keep the Incivek and Ribo in the top of my closet even though they are sealed good and the pegasys she knows to not touch under any circumstance. I do involve her in doctor visits mainly because I have no one to watch her so she is used to me going there and getting the blood work and stuff. She's a curious child but seems to understand when I say Mommy is sick I guess because like all children she's been sick and knows meds help her get better. I have found too much detail just turns into me trying to explain way too much and it confuses her so I keep it simple so she can understand it. What's really cute is she says a prayer at dinner and at the end she says "and baby jesus help mommy" It's absolutely adorable! Best advice I can give on that is keep it simple so they can understand and so you won't end up in a long series of What and Why's from them.

Rachel
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Sorry I haven't replied sooner, as I told HDCoop my computer went caput took 2 weeks to get it fixed. I am taking shot 9 today and usually don't feel too bad anymore, Sundays tend to be my lowest energy day but Saturdays have never gotten to me except the first 3 weeks. I take my shots on Friday mornings and am fine now so that's really nice. As far as the discomfort in unmentionable places I TOTALLY understand! It's probably the most annoying and embarassing side effect of them all. What I have found works good is Aveeno body wash every day, it has oatmeal and is very gentle. Walmart has their brand generic and its about 4 bucks cheaper and works just as good. Although I still get the occassional issue that can't be helped with anything most the time this works. Another thing that I have noticed helps is diet, avoid any greasy foods and of all things don't eat a lot of processed foods, try to buy fresh meats, veges and fruit. Every time I have eaten processed stuff I end up on the potty a lot. Of course the more natural foods are better for you anyway and keep meats limited and try to stick to white meat it digest easier, of course having a steak or burger sometimes is not bad as long as it's not greasy or seasoned heavy. Corn and Peanut Butter are hard to digest and can give you probelms to. I have been very lucky and not had the issue of anemia, in fact my level only dropped from 12 before starting treatment to 11 on my 4 week blood work. I do know the shorntness of breath can be a pain, I have that and it doesn't help that I'm a smoker and don't exercise enough and have allergy problems, which living in Kentucky doesn't help that at all. It's one of the worst states for allergy sufferers. I do hope you get feeling better, it does help having things to keep you busy and just get a lot of sleep at night. I have a 4 yr old so I'm busy with her and my home mostly. I don't work. I hope you get the undetecable news soon, it feels awesome to hear and makes you think at least I'm not going through all this for nothing. Best of luck to you, please keep me posted!

Rachel
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1844667 tn?1318886469
Thanks for your comments yes you sound so positive that's what I like.
I'd like to be a friend if I may and keep in touch and go this journey of new treatment w the incivek talking to strong postive people.
I started this around Oct 4,2011 so I'm barely on my second wk of treatment and it's going ok.The most side effects are at nightime.I have to put up w these horrible red bumps and rashes in all different spots but the doctor says it's ok.
Good Luck to you anna and everyone here!If you or anyone would like to chat and go through this treatment together please email me at ***@****  my name is Lindsay Lisa Thankyou.
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Had a bad couple of weeks, so haven't even be online.  Got a call from my Dr. Friday, I have to go in for the results on my 8 week lab, this can't be good.  They told me over the phone that I was clear at my 4 week lab????????   Wish they would have just told me, now I have to wait a week to find out.  I wouldn't freak out any more on the phone then I will when I leave the doc's office ;-)    

Well I hope all you out there are still seeing good results and good luck to you just starting your treatments.  

Coop
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Hi, I really hope all turns out okay. I know my doctor told me after week 4 that the only time they will call me is if somethings wrong so I hope that's not the case with your doctor. I haven't been on the last couple weeks been very busy with my daughters 4th birthday on the 20th then halloween which she had 3 different trick or treats over the weekend. My town and her school do a lot of activities during the holidays. I just got off incivek last week and will have blood test today so I hope I am still undetectable. They have said I'm the optimal patient because I had it a short time and my viral load wasn't large at all. I'll keep you in my prayers and please make sure you keep me updated. I really hope they give you good news!

Rachel
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Hi, the word was good, still clear.  The doc apologized for the new nurse not giving me my results over the phone, said it wouldn't happen.  He told me if it was bad news, he would call me himself.   Wow that week was worse than waiting for the first 4 week result ;-)   Yesterday was my last dosage of Incivek :)   Hope this takes away the irritating sides so I don't need to buy any more tucks and Immodium ;-)   We're still talking about whether it will be 24 or 48 wks yet.   If I'm not doing too bad, I think I'll go for the full 48.  I was the first patient, at my Dr, to ask about this treatment.  Since my 4 week result was so good, he has start about a dozen more patients he said.   Well curious to see how things go after a couple of weeks of no Incivek....hope it's all good for all of us.   Keep up the good work and the good updates!

Coop
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1984069 tn?1326468367
I went through the alpha 2 series Intf.&Rib. treatments in 2004. It was terrible!! My red blood cell bottemed out and was put on shots of epogen then, the white blood cell and they put me on nupogen. I was also put on paxil, celebrex, and ended up having panic attacks, where they put me on adavan. I could remember anything short term and had to put sticky notes on my arm. Breathing got tough, and the flu symptoms kept me in the house most of the time. I didn't have many good days at all. I'm concidering this new treatment but am really leary. I have a place to stay inside if  need to. Last time I had a hard time doing anything and it sucked!! I do need to do something cause the over-all symptoms are driving me crazy. I'm in pain with the joint aches, the headaches, the stomach problems0--ect....... I need some feedback y'all. I really want to get better but this stuff scare'e the s*** out of me. Mike D.
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Hi-I'm sorry you had such a hard time with tx in the past.  My husband is on week 7 of triple tx, and the sfx have really not been terrible, he hasn't missed any work and had an especially good week this week.  Sfx seem to come and go.  Hoping that is the case for you.
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1815939 tn?1377995399
I am on the triple med treatment with Incivek. I completed the Incivek 4 weeks ago and am on Inf. and Riba now for another 32 weeks.The first 12 weeks was no picnic and I had some side effects, but it was doable. Now that I am off Incivek, I feel better. I still have fatigue and malaise and aches and some nausea and no motivation. I am not doing much except being on the computer, watching educational DVDs, and doing a few errands. Plus I go to clasical music concerts about once a month. If I had it to do over again, I would stil take the meds. I want to be free of this virus before it harms me more.

If I were you, I would discuss your concerns with your MD and see how any problems will be handled if they come up. Your doc should be willing to treat any sides that come along (at least, the treatable sides). I know many sides really cannot be treated and I just put up with them, but sides like nausea, rash, rectal problems, and blood abnormalities can and should be treated, in my opinion.

You will get lots of support on the forum and many here have experienced side effects and have remedies that work.
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My husband has treated twice before, and now he is on triple therapy with Incivek.  He finished the 12 weeks of Incivek on Dec. 22nd, and he is in week 16 now.  His VL dropped to 78 at week 4, UND at week 8, and UND at week 12, so Incivek is a strong but effective drug.  The side effects have been somewhat difficult, but manageable.  He missed one day of work due to extreme chills, and he missed one day of work due to symptoms of anemia, but his NP has managed all of side effects very well.  He had a dose reduction of ribavirin (from 1200 to 800) for two weeks because of the symptoms of anemia (last two weeks of December or so), but is back up to the full dose now and doing fine.  Talk to your doctor or your nurse practitioner about your worries.  There's no doubt that therapy is tough, but your chances of curing Hep C are better now with triple therapy, and that makes it worth it.
Advocate1955
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Hello I not start yet my gastro appt is Dec 4th my bestfriend started dis Friday she telling me how she feels it getting me scared I have not much support
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Going on 2nd week of triple treatment. took my 2nd injection if it doesn'tget much worse im sure i can do this. depression is kicking in aching, chills at night. This is my first time posting on here. im guna need all the support i can get. my name is shawn.
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2059648 tn?1439770265
Post a question like about treatment like " What do you all do for depression?" or maybe " Night chills and Incivek".  Let people know you
need support.  Triple treatment needs all the support you can get.  There
are many people here who have treated with triple treatment.  Let them know your here.
Best To You
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1280753 tn?1367761532
welcome to the forum shawn. you will get plenty of good support here from people that are experienced and willing to share. as dontworry suggested, it's a good idea to start a new thread as you will get more direct responses to your question.

remember you are not alone on this journey. most of us are either in tx or have completed it. nothing like getting advice from someone that is living it.

take each day and side effect as it comes. you can do it. good luck.
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1815939 tn?1377995399
Welcome to the forum.

If you are getting depressed notify your doctor right away. If you are not already on anti-depressants, you may want to get on one. The medications make you depressed and many of is took anti-depressants while on treatment. If you have a psychiatrist, give him/her a call. If not, either your PCP can order something, or preferably, you can be see by a psychiatrist on an urgent basis and get started on anti-depressants.

For the chills and aching, you can take Tylenol if it is okay with your doctor, no more than 2000 mg in a 24 hour period. I usually took two 325 mg tabs of Tylenol when I took my shot and then another one in the morning after the shot. It help.

In the future, if you have a question, click on the orange "post a question" bar near the top of the page, add a subject title or heading, and ask your question. More people will see it and respond.
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