Starting second round of treatment

Question

I used this forum in 2001 when I did a one year run with peg/ribo and the virus came back when I was done. Then in 2008, we found that my daughter had it too. I got her into the Phase II Telaprvir drug trial and she is now virus free!. I am starting the treatment with Telaprevir on 7/5/11. I used this forum a lot during my first treatment and am wondering how active the forum is currently?

joemc34606 · Answer

Your question about the fat intake, the correct amount is 20 grams of fat with each dose. Maybe just a typing error. I just started making a protein shake with whole milk and add 1tablespoon of peanut butter I figure about 30 grams. Much easy to drink it down then eat that much. Also a stouffers French bread supreme pizza 21 grams.
Good luck
Joe

roostermom · Answer

The Incevik seems to be working great for geno type 1. Good luck

Karmasbest · Answer

I am starting on 8-19-11 and am a bit nervous myself. I am the single Mom of triplet boys age 9 and am pretty much on my own with no family. I am a fitness coach so my work keeps me active. I hope I can still function because I am counting on this protocol working and ruse to quit if it is working. I have genotype 1A.Any insight on the severity of the rash would be appreciated as well as any help /advice of preparing!

his3707 · Answer

I just started week eight.  My hgb dropped back down to 8.7 and I am on procrit.  It went up to 10.0 a couple of days ago from 8.5 but went down again.  I think if i go below 8.5 they can make me stop.  Im just hanging in there right now.

roostermom · Answer

Thanks for that. I am something of a vitamin junky and take 2000 mg of D a day, along with magnesian, B complex Omega 3-6-9 calcium, milk thistle (which my doc say to stop during treatment), C and a multi vitamin. I like to say I am in the cone of vitamin safety, and truth be told, I don't get all the colds and bugs that get passed around the office of at my house!

coeric · Answer

as you may know relapsers have great success with telaprevir.   adequate serum vitamin D levels seem to be important for SVR. take a look at the following.  http://www.natap.org/2010/EASL/EASL_26.htm
blessings
eric

roostermom · Answer

My daughter did it for the 12 weeks and while she had to go out on disability, her red count stayed up ok. She did feel nauseous a lot, and it is hard to eat the 2 grams of fat reguired for each dose three times a day. So if any one has good options for that aspect, please let Roostermom and pcds know - we could use the advice.

pcds · Answer

I starting teleprevir in 2 weeks.  scared to death of the rash.  But hopeful to get through this once and for all

roostermom · Answer

Thanks for checking in. How long have you been on? I did 48wks with peg/ ribo in 2001 and it too was a rough ride. I am stressing about work. very political times, and although they say they will be supportive - hey - you never know. I had to take neupogen after week two of the first round because the interferon wiped out my neutorphils and wbc. The teleprvir is supposed to wipe out your red count - will they treat that side with procrit? All I have seen is that if you get severe anemia they may take you off the incivek.

his3707 · Answer

Hi this forum is very active with lots of knowledgeable people with lots of support. Im treating with incivek and have had a rough ride but have not been bucked off yet.

roostermom · Answer

Thanks - I will need it. I am trying to work and do this at the same time. My first round I worked for 7 months, but went from 125 down to 88 and had to stop working. This time I thought I would be more sensible and just go out on disability, but the stars don't always align properly, and I will have to be in next week because my boss is on vacation. I am a bond trader, and we are down a person, so I will be the only trader in next week. I am really hoping I can hang in there. The first time I did it I was ok week one, but my daughter was sick as a dog the first day. Can't wait to see what happens? What is your story triggertime, if you don't mind me asking?