Starting today!

[truredhead]

Meds will be here today. Yippee! I was wondering if you all had any tips for Solvaldi/Olysio treatment? Do you take yours in the evening or morning? The nurse kind of left it up to me. She said that alot of her people said that they take it in the evening before bed because it makes them so tired during the day. That is my main unknown. I do not think we have to worry about taking it with fat, like the older type treatments. And I assume you can take them together? Any feedback if you have some for the solvaldi/olysio. My doctor told me that my Q80 test was negative so I assume that I may have a better chance? I am not paying for another office call when I just seen her last week so she told me to go ahead and start.

[candyce1953]

U will do great
Stay out of the sun and use sun block
No eating grapefruits
And I was very tired on treatment
I did Sovaldi and olysio
And am now CURD
12 week EOT OFFICIAL

A miracle
43 years with hep c 1b
Now cured
Good luck!!

[Buba1962]

Glad they came ,Good luck .☺️

[flyinlynn]

Hi and congrats!

I also was on Sovaldi Olysio. I will be doing my 12 week post treatment viral load in 2 more weeks.

I took the pills in the morning together just after breakfast as the Olysio is to be taken with food. I have see some here comment on feeling like they had more energy more than commenting on fatigue. So maybe in the morning might be better. But if you find the opposite effect just shift your time to the evening over a day or two. I have heard just try to keep the dosing window in a 4 hour time frame.

Anyway good luck on treatment and the road to a hep c free life!
Lynn

[bassetgirl]

I'm gt 1a early cirhossis started S/O treatment May 8th and ended July 30th.Took the pills with breakfast every morning. Major side effect was fatigue and sun sensitivity.  Tomorrow is 3 weeks post treatment, still have some fatigue, a few muscle twitches, but nothing major. I'm still drinking alot of water
and have been told that the medicine takes at least 3 weeks to leave your body, so to stay out of the sun  awhile longer. My 12 week bloodwork is October 23rd: praying that this has worked. Good luck to you!

[georgerosie]

Been on S&O for 5 wks now. 4 wk blood came back as <15 from 2,600,000. Great morale booster. I take my meds after breakfast.Very careful in sun as in spf 100 on face,ears,etc.,long sleeved spf 50 shirts,hat,sunglasses,and with all that I try to be as careful as possible.I try to drink 100 oz of water daily. Some fatigue,getting better.Some fog,getting better. Rash on back,oh well,whatcha gonna do?Having a higher power is very important to me.Don't really see any difference before and after taking them regarding how I physically feel. Different people,different sides,no one size fits all. Good luck.

[Idyllic]

So today is officially day 1 of treatment. Yay :)

As far as replies go, it is not you. It is the forum. I have been active on and off on here since I was diagnosed in 2003 and participation has always fluctuated. On the other hand it is true there has been a marked decrease in participation since the meds to treat (and cure) the virus have drastically improved.

Plus I am not sure how many people on here have direct experience with the meds you are taking. The search feature is very good on this forum if you ever need it. I know that is not always the same as having a response tapered to you in particular tho.

Anyway I am glad you have a good rapport with the nurse since usually you contact them 24/7 and that is a reassuring contact to have.

Be sure to keep all copies of your labs and medical records and don't miss any of your viral load draws :)

[susan400]

oops just missed it, you just said you took a pic of them... glad you have it in hand.

[susan400]

I've always taken my Sovaldi at 7 am.  Since I have insomnia issues and one of the listed side effects on the Sovaldi is insomina, I chose to take my Sovaldi and 3 of my Riba's at 7 am and then, just do the other 2 Riba's at 7 pm.  I've been on some kind of sleep medication for years and have been still taking it throughout treatment and have actually not had any worsened sleep issues and in fact, actually have been sleeping somewhat better.  I hope by now, your meds have arrived. Susan400

[truredhead]

ITS here! I even took a picture of it!!

[truredhead]

Thank you for the reply, you know sometimes it seems like I do not get replies easily. Why I do not know but I thank you. I guess it will be trial and error but sometimes you can get good feedback and if the majority of people get tired and take it in the evening I would like to do that, but on the other hand I sure do not want it to keep me up half the night. I spoke with the a different nurse today from the company and she gave me some good information on her end. Experience from taking the med's can not be beat though! I am starting to get worried it is almost 3:00 and they are not here yet. Hope they make it, I am ready to start so I will know how its going! Take care and thank you again.

[Idyllic]

Hey :)  I did not take the same meds as you so I hope someone who did responds to this. If it were me and drowsiness were a factor I probably would take my meds at night. But like I said I actually have no idea. I just wanted to respond to this and wish you luck during treatment.