I have updated our statisitics at long last. For those of you that don't know me and that is probably most, since I haven't been on much in the past few months, I completed 48 weeks with VIC last summer and received my official status as SVR in January of 2013. I have been keeping spreadsheets on members since I started the PI and post them in "My Pictures" I tried to keep up with everyone who started in 2011, shortly after the PI's were approved. Mostly this chart is for triple therapy but there is some information on other meds.
If you are on the chart, please look at it to make sure I have your info right, and let me know what I am missing or need to change. If you would like to be added, please put the information on this thread or send me a pm. Mainly I want those who have completed tx. I have found that the spreadshhet is too big if I include members who have not finished. If you would like a more legible excel spreadsheet, send me a pm.
I think the relapses and treatment failures are just as important as the SVR's.
I love seeing all the SVRs. So much nicer than the old 50% chance we Geno ones used to have. Congratulations to all who have achieved SVR and hang in there if you are treating.
Frijole ,this is so helpful what you have created for all of us now and for the future people who will be making decision to treat.How wonderful to see so many people finally achieving SVR.All the info you put about me is exactly correct.Thank you again for your time helping us,truly great job !Naya888
hi swimmer - got you changed to CT. sorry about that. I did see that you would be getting your end VL test any day. Wow - how time flies, huh. I can't wait for the post.
gopkrs - hope you found the stats. If not, click on my name in the blue and you will go to my profile, then click on photos. I wish there was a way to upload the excel spreadsheet but there is not. I have to scan them and up load them as tif files.
Thank you, thank you thank you, for doing this awesome work! You are an amazing person, and I just wanted to let you know how much of a help and a comfort you were, and are, to all of us on here :)
If you are ever in the San Francisco Bay Area, dont hesitate to e-mail me here, and I will take you out for lunch! ~ Katy
Hey Bean, those charts are looking great! I see you updated mine correctly and I didn't even have to tell you to put in the SVR! I don't think you need anything else from me but let me know if you do. I had a really rough time with triple tx but managed to avoid any dose-reductions and didn't quite need procrit either (my HGB went to the threshold my doctor set, but never actually crossed it).
I just want to thank you again for doing this – you are helping so many people to get a real-life perspective on the treatment.
I think the last time you put out the call for our stats, i was still treating and feeling too sick to respond, so please add me to your spreadsheet: texsunflwr: triple therapy with Incivek started 1/11/12, undetected at weeks 4, 12, 24, and 48. Undetected at 12 weeks post treatment. I'll let you know what my status is at 24 weeks post. Thanks for charting everyone's numbers. It is interesting reading!
I would love to be added to your stats
previous relapser to 48 weeks peg and riba
Triple tx with Incivek - 48 weeks started 11/9/2011
Starting VL 170,000
week 2 ...40
week 8 UND
week 12 UND
Week 24 UND
Week 48 UND
No rescue meds or dose reductions - took 1600 riba for 2 weeks predose and through full 48 weeks of tx.
thanks for the prompt pooh - the biopsy I had done was before my first tx in 2007 and showed F0 - F1. Before starting tx number two in 2011 I had to have a Fibroscan in order to qualify for the free drugs from the drug company before they were licenced here. My fibroscan showed 6.7 which was equivalent to F0 - F1 and below the threshold required to qualify. They redid the fibroscan 5 minutes later and got a reading of 7.2 -equivalent to F2 which bought me the golden ticket. so I guess I count as F2. I have a new fibroscan being done in 6 months to see if things have changed now I am SVR.
Bean you are the best, I don't know how you kept up with the stats while on tx. I could not keep up with the paper towel roll.
I really admire you so very much. You are a sweetheart.
Gosh, I wish there was a way we could all get together and actually meet each other. I know I have images in my head of what everyone looks like.
You are the best
I have not been on the forum in several months, but am happy to see you are keeping track for so many. Your work is such a blessing and helpful tool. I will take a look at the spreadsheets when I have a bit more time, and get back to you and/or give an update in my journal.
Hugs & Best Wishes,
Triple tx w/VIC 2011-2012
UND several times
1 month post tx UND
6 month post tx relapsed
1 year post tx still detected, will post numbers later
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