Hiiii Frijole,
I have not been on the forum in several months, but am happy to see you are keeping track for so many. Your work is such a blessing and helpful tool. I will take a look at the spreadsheets when I have a bit more time, and get back to you and/or give an update in my journal.
Hugs & Best Wishes,
Bee
Triple tx w/VIC 2011-2012
UND several times
1 month post tx UND
6 month post tx relapsed
1 year post tx still detected, will post numbers later
Bean you are the best, I don't know how you kept up with the stats while on tx. I could not keep up with the paper towel roll.
I really admire you so very much. You are a sweetheart.
Gosh, I wish there was a way we could all get together and actually meet each other. I know I have images in my head of what everyone looks like.
You are the best
D
just a short note...my hgb was 9.7 when the riba was reduced. thanks for all that you've done. lots of people have SVR'd!!! belle
Wow great results. Jellyburt and TexSUnflower, I am happy to add you. It will take some time to get from me excell preadsheet to the pictures but it will get there.
Swimmer Yes, yes , yes! Are you back to long distance swimming? I am finding it to be a long road back to the physical activity I did before Tx.
ceanathus - you know how relieved I was to read about your SVR. I hope the cirrhosis is held at bay now (me too).
to bogirl, advocate and all others. It is my pleasure to do this. I am sorry I update so slowly, but the more data the better so keep it coming.
jellyburt - your SVR is especially great since you were still detectible at week 4. I guess that is why you had to do the grueling 48.
yodennis - your SVR was especially sweet. How are you holding up post tx. I know you were quite the health buff. Are you back to where you were? Like I said, I am struggling .
thanks for the prompt pooh - the biopsy I had done was before my first tx in 2007 and showed F0 - F1. Before starting tx number two in 2011 I had to have a Fibroscan in order to qualify for the free drugs from the drug company before they were licenced here. My fibroscan showed 6.7 which was equivalent to F0 - F1 and below the threshold required to qualify. They redid the fibroscan 5 minutes later and got a reading of 7.2 -equivalent to F2 which bought me the golden ticket. so I guess I count as F2. I have a new fibroscan being done in 6 months to see if things have changed now I am SVR.
As always: Thanks for your generosity. It's a super tool! d
Hi Bean,
Just want to say thank you for updating and posting these records. I am so happy to see so many have SVR'd.
Advocate1955
Just wondering what stage your liver biopsy showed? Frijole likes to add the Liver Biopsy stage also.
oops forgot to say I was geno 1A - (nearly said I am!) dont know my IL28B status
Hi Frijole
I would love to be added to your stats
previous relapser to 48 weeks peg and riba
Triple tx with Incivek - 48 weeks started 11/9/2011
Starting VL 170,000
week 2 ...40
week 4....30
week 8 UND
week 12 UND
Week 24 UND
Week 48 UND
SVR 04/17/13
No rescue meds or dose reductions - took 1600 riba for 2 weeks predose and through full 48 weeks of tx.
I made it...SVR -SVR - SVR, nice ring eh???
I think the last time you put out the call for our stats, i was still treating and feeling too sick to respond, so please add me to your spreadsheet: texsunflwr: triple therapy with Incivek started 1/11/12, undetected at weeks 4, 12, 24, and 48. Undetected at 12 weeks post treatment. I'll let you know what my status is at 24 weeks post. Thanks for charting everyone's numbers. It is interesting reading!
Hey Bean, those charts are looking great! I see you updated mine correctly and I didn't even have to tell you to put in the SVR! I don't think you need anything else from me but let me know if you do. I had a really rough time with triple tx but managed to avoid any dose-reductions and didn't quite need procrit either (my HGB went to the threshold my doctor set, but never actually crossed it).
I just want to thank you again for doing this – you are helping so many people to get a real-life perspective on the treatment.
Thank you, thank you thank you, for doing this awesome work! You are an amazing person, and I just wanted to let you know how much of a help and a comfort you were, and are, to all of us on here :)
If you are ever in the San Francisco Bay Area, dont hesitate to e-mail me here, and I will take you out for lunch! ~ Katy
hi swimmer - got you changed to CT. sorry about that. I did see that you would be getting your end VL test any day. Wow - how time flies, huh. I can't wait for the post.
gopkrs - hope you found the stats. If not, click on my name in the blue and you will go to my profile, then click on photos. I wish there was a way to upload the excel spreadsheet but there is not. I have to scan them and up load them as tif files.
Frijole ,this is so helpful what you have created for all of us now and for the future people who will be making decision to treat.How wonderful to see so many people finally achieving SVR.All the info you put about me is exactly correct.Thank you again for your time helping us,truly great job !Naya888
Wow, this is awesome Frijole. Kudos to you for your efforts in creating a snapshot of treatment outcomes. I too love seeing all the SVR, it gives hope to many. Thank you.
Hi Bean,
About to get my 6 month post any day now. Will post as soon as I get it. BTW, I am a CT (not CC).
Hope you are doing well and I admire your work here.
C
Frijole, How do I find the stats?