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"TX will seem like a bump in the road"

by miked, Jul 02, 2009 11:35AM
Hi guys,

Since receiving my SVR in October 2007, I've lurked here from time to time but have not posted.  There are so many unfamiliar names on the forum with a few old timers holding out (NYgirl, Merrybe...is jim still around?).  

Last night my wife and I were talking about my two tx's and how hard it was for me and the family.  During my first tx I was just about to throw in the towel when someone on this board told me that someday I'll look back and treatment will seem like a bump in the road.  It gave me strength to continue.

I'm writing to offer encouragement...these days my two txs seem like distant events, bumps in the road.  As bad as tx was, I got by it and SVR'd.  I hope and pray for the same for all of you.

For those of you who don't know me I was diagnosed in 2004, started SOC tx right away and went 32 weeks until the virus broke through.  My second tx was on Vertex' Prove 3 trial.  I was in the arm that got VX950_RBV_INF for 12 weeks followed by SOC for another 12 weeks.  I went UND between week 1-2 and have stayed that way.

Life without the worry of HCV is worth enduring the horrible treatments.  Best wishes to all of you.

miked

Member Comments (13)

by mj6000, Jul 02, 2009 12:14PM
I'm type 2b,at first I thought it would be 24 weeks,now due to other issues it's been extended to 48..It's a downer but your encourgement helps!

by nygirl7, Jul 02, 2009 12:53PM
AH Mike it's so nice to see you again!  SVR is such an amazing thing but isn't the post treatment amnesia even better? It's hard to imagine at the time that you will ever be able to forget how horrible you felt but sometimes it all seems like a dream to me...it's that distant.  Perfect way you put it.

I'm so glad for your SVR........you really deserved it and I for one am so glad you finally got it.

Enjoy your life and the wonderful things that it has to offer you.

by jdwithhcv, Jul 02, 2009 12:57PM
That post treatment amnesia is absolute bliss.  I'm SO ready to forget the whole thing.  Thanks for posting.

jd

by nygirl7, Jul 02, 2009 12:58PM
PS Jim's on a self imposed exile for a little while but I'm sure he will be back. It SO would not be the same without our Guru-Jimmy Jack would it?

by GreatBird, Jul 02, 2009 01:07PM
Thanks for stopping by and letting us txers know there is light at the end of the tunnel.

by Tippyclubb, Jul 02, 2009 03:02PM
Hi miked.  I contacted you when I first started tx because you were in the Vertex trial and did 6 months and went on to SVR.  You gave me good advice and your words helped me trough tx.   I was lucky and was randomized into the 6 month group.  I am done for 4 days now.  

Teleprevir rocks!


by Marcia2202, Jul 02, 2009 03:24PM
To: Mike
Good to see you posting! Thanks for spreading some positive vibes.

I agree with you... I am now about 13 weeks post, I think.... Feeling great!

Yes, there is a light at the end of the tunnel and the horrors and erie feeling of tx are starting to fade away slowly.

by thegypsy9164, Jul 02, 2009 04:36PM
To: All
Yes,

Any encouragement helps.  I'm at week 26 and only halfway there but still hanging. Still haven't been informed as to my labs throughout but am hopeful to be told soon.
Joey

by ArthursMom, Jul 02, 2009 07:29PM
To: miked
Thank you for the post.   Treatment becomes so all consuming.  I like the idea of it becoming a speed bump!

by miked, Jul 03, 2009 10:00AM
To: all
nygirl(Deb) - You are an angel.  SVR amnesia...that's funny.  Good to "see" you again too.  

Hi Tippyclubb - I remember you well.  Congrats on finishing tx!  I'm assuming that you are UND...right?  You'll be amazed at how good you'll be feeling now that tx is over.  

by miked, Jul 03, 2009 10:06AM
To: Marcia2202
I missed your comment.  Congrats on the end of your tx too.  I didn't realize that you are from Denmark.  World people are my hobby.  Best of luck!

by frijole, Jul 03, 2009 10:12AM
To: miked
I love the way you put that.  tx is but a bump in the road of life.
thanks
frijole

by GoofyDad, Jul 03, 2009 10:47AM
True enough. It's hard to remember what TX was like. And people's birthdays. And where my keys are. And to take out the trash on Tuesday... LOL.
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