Aa
Telaprevir, I love you ....
I finally got around to getting my post 1 yr PCR done. Good news, UNDETECTED !!!! Well actually it was around 1 1/2 yrs post. Since I was busy and NGI was shut down for awhile I put it off. I felt there wasn't any urgency since I was UND at 4,12 & 24 weeks during and post tx.
I think I can put this chapter of my life behind me now.
Anyone waiting to treat with the new drugs, I can personally say it will be worth the wait. The drugs work with a shorter course of therapy. I was a genotype 1a with a high viral load. I treated for around 30 weeks with Telaprevir included first 12 weeks. I could have stopped at 24 weeks but I added a few weeks for good measure plus tapered off the meds. When I looked at all my tests after they were un-blinded I saw that my 8 mil viral load was gone within a week! The dragon don't stand a chance with PI's. I hope my success can help others to hang in there. It is all worth it when you read the following.....
HCV Quant Less then 2 IU/ml
HCV log10 Unable to calculate result since non-numeric result obtained for component test
PCR Amplification + Detection Performed
NGI HCV UltraQual NEGATIVE: HCV RNA NOT DETECTED
PCR assay performed using National Genetics Institute's validated, proprietary methodology.
I think I can put this chapter of my life behind me now.
Anyone waiting to treat with the new drugs, I can personally say it will be worth the wait. The drugs work with a shorter course of therapy. I was a genotype 1a with a high viral load. I treated for around 30 weeks with Telaprevir included first 12 weeks. I could have stopped at 24 weeks but I added a few weeks for good measure plus tapered off the meds. When I looked at all my tests after they were un-blinded I saw that my 8 mil viral load was gone within a week! The dragon don't stand a chance with PI's. I hope my success can help others to hang in there. It is all worth it when you read the following.....
HCV Quant Less then 2 IU/ml
HCV log10 Unable to calculate result since non-numeric result obtained for component test
PCR Amplification + Detection Performed
NGI HCV UltraQual NEGATIVE: HCV RNA NOT DETECTED
PCR assay performed using National Genetics Institute's validated, proprietary methodology.
Wonderful news, and what an encouragement to others!!! I am so happy for you. Congratulations!!
Pos.
Pos.
Wonderful news, and what an encouragement to others!!! I am so happy for you. Congratulations!!
Pos.
Pos.
Congratulation dear.
im also 1 year and 8 months post tx. And decided to get final PCR. Pray for me.
im also 1 year and 8 months post tx. And decided to get final PCR. Pray for me.
Excellent. Thanks for the post. It gives me hope as I am high VL also and was a slow responder with SOC. Gone within a week.... Amazing!
That is such great news, congratulations!! You must feel like a complete weight has been lifted.
Thanks so much for giving the rest of us hope.
All the Best,
Katie
Thanks so much for giving the rest of us hope.
All the Best,
Katie
Great news Copyman. Yes, I think it is time to put this chapter behind you...Congratulations!!!!
Kathy
Kathy
Yea! congradulations...Wow its been awhile since your study . Im so happy you made it.
Congretulations, your good news, realy, gives a hope to us waiting for repeated therapy, or new on the list. GREAT, THIS VERE PROBABLY THE BEST NEWS YOU,VE EVER HEARD!
I don't get here much anymore, and just read your thread!! Congratulations!!! You are part of a new vanguard group of treaters that have the benefit of inhibitor combos...and hopefully will leave you with not only the fantastic SVR (CURE!!), but with far fewer after-effects and complications as compared to the standard tx. Let us know how you feel overall, and here's hoping that you feel better than ever, and just keep on getting better as time goes on. I wish you the very best. Don't those test results just make your day!!!! Celebrate and enjoy your life.
DoubleDose
DoubleDose
Great news, and even greater news for those looking to the future for better treatments.
Thanks for helping pave the way for Telaprevir -- a hearty congratulations to you.
Thanks for helping pave the way for Telaprevir -- a hearty congratulations to you.
Wow I sure wish I had seen this post sooner 'man (dont want to call you copy any longer :) I am just thrilled to death that you have your final results in with that great big SVR attached to them.
I'm so glad this thread got bumped up because i would have felt horrible if I didn't get to say CONGRATULATIONS WAHOOOOOOOOO to you on this thread. You earned it - UND by week 8 that stuff if just simply amazing..I am just so happy for you.
Dont you go disappearing now though - we need you around here to spread this good news and hope for all the folks out there who haven't yet gotten to SVR (LIKE YOU!!!!!!!!!!)
YEAH YAY YAY WAHOOOOOOOOOOOOOOOOOOOO!
deb
I'm so glad this thread got bumped up because i would have felt horrible if I didn't get to say CONGRATULATIONS WAHOOOOOOOOO to you on this thread. You earned it - UND by week 8 that stuff if just simply amazing..I am just so happy for you.
Dont you go disappearing now though - we need you around here to spread this good news and hope for all the folks out there who haven't yet gotten to SVR (LIKE YOU!!!!!!!!!!)
YEAH YAY YAY WAHOOOOOOOOOOOOOOOOOOOO!
deb
wow, I am really happy for you man!!! No more copies....!!! (pardon the pun)
Now you can truly savor each day....just pay us visits OK??
(and don't take any wooden transfusions) ; )
Now you can truly savor each day....just pay us visits OK??
(and don't take any wooden transfusions) ; )
Thank you everyone. You guys are great. Many of you long time members helped me more then you could imagine.
Bali, I really only had to get the UltraQual. But I do everything over kill. My insurance pays for them so figured it couldn't hurt to get both tests.
robo229, No problems treating with Telaprevir. Minor rash, itching.
Inf/Riba, no problems except anemia around 13 weeks and they lowered the riba for a few weeks.
VL was 8 million at start gone within a week with the triple therapy!
Stage was around 1
Bali, I really only had to get the UltraQual. But I do everything over kill. My insurance pays for them so figured it couldn't hurt to get both tests.
robo229, No problems treating with Telaprevir. Minor rash, itching.
Inf/Riba, no problems except anemia around 13 weeks and they lowered the riba for a few weeks.
VL was 8 million at start gone within a week with the triple therapy!
Stage was around 1
congratulations!
Any problems tolerating Telaprevir?
Inf/Riba?
what was your Vl at start? stage of disease?
hope to get it soon.
Robo
Any problems tolerating Telaprevir?
Inf/Riba?
what was your Vl at start? stage of disease?
hope to get it soon.
Robo
It's amazing how time flies by. Almost a year and a half!!
I remember you preparing, going thru and finishing. Thanks for all the reports and sharing the news about this drug. I think it is going to help many of us, save many of us, and drastically reduce those number of people waiting for a transplant. Just think what the landscape will look like in about 3 years.
Wishing you the best,
Willy
I remember you preparing, going thru and finishing. Thanks for all the reports and sharing the news about this drug. I think it is going to help many of us, save many of us, and drastically reduce those number of people waiting for a transplant. Just think what the landscape will look like in about 3 years.
Wishing you the best,
Willy
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