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The lost of some members , a reason for concern............

by Mister beagle bailey, Jul 16, 2006 12:00AM
Just read the post by 52tele about not returning to the forum.  Since the thread was maxed out, I decided to start this one instead of taking away from someone else's thread.

Tele I'm sorry you won't be posting anymore and wish you will still return here when you need too.
I do agree that there are some here that seems to attack others, or post things that offend others.  Who knows why some members do this, maybe riba rage, maybe feeling ill or maybe it's just their personality.  
However, this forum has been a life saver for me and others, as I'm 4 weeks post tx I'm not on as much as I use to be but I'm still here to try and help those who need it, like I did.
Some times we all need to ignore those that post things we don't agree with or dislike and try to understand where it's coming from.  Some just want to hurt some here and others just want to get a rise out of us.

I just hope that we don't lose any more members because of this.  This forum has helped many and needs to continue to do so.

May the stronge continue to carry the weak through this ride of a life time called tx..........May God speed and show use away to over come this.

Beagle :)
Member Comments (46)

by jmjm530, Jul 16, 2006 12:00AM
To: TIme
"...Every year no matter what i do, what precations I take whom evers advice I follow the deer return and as always take what they want. I never get to see all of my flowers go to full bloom. But some how there is always just enough to sooth my heart to put a smile on my face..."
-----------

Definitely the post of the month! Funny I had the same problem but it wasn't with creatures as fuzzy looking as deer :)

However, there are "precautions" with deer or other **& but that involves a more active intervention by the deer catchers in charge.
Problem here is that some (not me)beleive that if you lay too many deer trap, some good folks may also fall in. So as you say, "there is always enough to sooth my heart to put a smile on my face" -- just be careful not to step in the deer dung too often :)

-- Jim

by Bill1954, Jul 16, 2006 12:00AM
To: Fishdoc
While you on the C's, you forgot castrate! Good to see you post the other day at the Aussie forum- I just mugged for the camera and sent a pic in; Lordy, I wish I was was two-faced, I would have mailed the other face in. Have a great Sunday, all--

Bill

by Mister beagle bailey, Jul 16, 2006 12:00AM
To: fishdoc/timedog
Your right, know one knows how we feel except those doing or have completed tx.  I myself seeked out advise from those who have completed tx as well as those doing tx so I knew what was instored for me and how I may feel after doing tx.
Many of us get involved with posts away from doing tx, such as fisheress pool party,etc.  The laughter helps us foget how cr*py we feel and takes our minds off the meds, sxs and all the other h*ll treatment brings.

Beagle

by lilmoma, Jul 16, 2006 12:00AM
I agree with 52Tele
I would also add, there are a couple of people here who have been really wonderful to me, but for the most, I feel like the kid that is picked last for the school yard game.
I have enough going on, I dont need head games from people I dont know, and who knows if they really are who they say they are........could be just some crack wh**e sitting around on a computer trying to feel superior. (sorry)
So why should I feel bad when I get lambasted for an opinion I have.
This site has just become another SX,............argh!
Oh, and the GURUs (gagging) I am so sick of some of the "know it alls" NYG at the top of the list!!!!!!!!!!! BLAH! BLAH! BLAH!
NOW EVERYBODY RUN TO HER DEFENSE!!!!!!!HURRY!!!!!!


PS Love ya Cando!!!

by fishdoc, Jul 16, 2006 12:00AM
To: lilmomma/everyone
Back in the day, there was a saying.  Your either part of the problem, or part of the solution.  Based on your post, which one would you say you were?

by suzieq2, Jul 16, 2006 12:00AM
Hi. Everyone. Yes I am guilty of not checking in, I am a nonresponder, and for some reason my thinking was that I did not want newbies to loose that positive kick butt on this disease attitude we all have at he start.  . I guess I thought I would be raining on the parade. After reading you "alls" posts on this topic, I realize I was in error of my thinking.I am a nonresponder for the new people. stopped treatment about three months ago. I was the dumb one who stayed on treatment for 44 weeks without reaching my 2 log drop. I gotten down to 75,000 and then jumped up to 375,000 at week 44 and  I stopped.I have continued to recieve my acupuncture and herbs my Chinese M.D. I feel pretty good most of the time. I have to be carefull not to go back to my superwoman ways,All my labs are within normal limits. liver enzymes 40. I am in the process of getting started in the process of a nonresponder clinical trial of vx-950, which should start in the fall. The results of this med cocktail is getting amazing results.Sorry for not being there for you all with some support. Thanks for this thread. I have missed talking with you "all"Welcome to all new people, Hope to find all well. I will have to read and get caught up.For new people. there are some uglies that somtimes rear their ugly heads here. Just don't pay any attention to their ignorance. You can get a lot of wonderfull support of very caring people here. Bless all

by way, Jul 16, 2006 12:00AM
I was part of the problem, yesterday. And I apologize. I should have just ignored "Coast" but I didn't. Sorry.

by fishdoc, Jul 16, 2006 12:00AM
To: way
we all pick scabs until we figure out its better left alone...... now was that "gurulike" or what!!  I think social anxiety is a big factor on tx, and it manifests itself in " should I have said that" or did they take that the wrong way?  Tell yourself.... its OK, its all about my perception, its not the reality of the situation..  You seem perfectly sane and well adjusted to me, so hang in there and don't turn the other cheek, just don't turn the mouse balls....

by Forseegood, Jul 16, 2006 12:00AM
To: To Everyone
I dont know how much any of you go on to other chat rooms, etc..but on Delphi and other places, there is a phenomenon of certain "people" going on to chat rooms and just insulting everyone there, no matter what *type* of chat room it is....

If they are ill with, say, Hep c or Diabetes....they find that more fodder to use against them....and I mean the cruelest things you could ever imagine....

Usually people like this aren't very bright (big surprise) so they are mostly just cruel and devoid of any humor in their postings... and they use every invective imaginable....

They have been around for years, and yes, most figure they are teenagers for the most part (thus...being *that* immature and hostile would have some kind of reason) but some are not teenagers.

These individuals are called *Cyber Trolls* (odd how someone here used that exact word to call a group here, wonder where they got the terminology?) I figure there a lot of very unhappy, very frustrated people, maybe they feel largely ignored in *real* life, whatever.....one could do all the amateur psychology you want speculating about their motives, they can do whatever they please behind the anonymity of their keyboards...but whatever it is, if youre not used to it and on the sensitive side (like most people) it can be very upsetting...

I was on chat at Janis....kind of late one night....joking around with a few members (late at night it's NOT moderated, the mods know what to look out for with these cyber trolls, and they just blip them off the screen fast enough, we didn't really know too much about this phenomenon and had no way to blip them off though)

So one came on and acted very sincerely and asked us questions about Hep C, said he/she had just been diagnosed, etc...so we all went about trying to be as understanding and informational as we could, but I guess while it was doing this, it was looking up our profiles, and pictures, etc....

And then came a torrent of insults re our profiles and pictures, it was soooo cruel and violating, I swear I felt dirty somehow...and yeah, it was like watching a train wreck, instead of getting off really fast like I should of done, I sat there and listened to all this garbage from an obviously imbalanced mind....

I remembered being kind of upset all night after that...the mods told us to just get off the chat when that happens again and there is no mod there, so most people are aware of this now....

Well, from what I've seen here, our Cyber Trolls have been mannerly in comparison, ha ha! And yes, there are no mods here either, so best to ignore them I guess, don't know what else we can do? Cause it's obvious if you engage them the same way, they just stay and play...ignore, and they go throw rocks at someone else's sandbox....Just thought I'd relate my little story...

by fishdoc, Jul 16, 2006 12:00AM
To: forseegood..
ummm, are you sure those are rocks in the sandbox?  But, I agree 100% with everything you said, and yes its easier to assume its a child, because we would like to think adults either 1) know better, or 2) have a life....

I got crosswise with someone on a chat room once, for SUGARGLIDERS!!  Now, how do you ask, can you get crosswise posting about small flying marsupials.... talent I suppose!!  Actually, a guy posted that his were not doing well because of all the liberal environmentalists...I wasn't even on Riba then and couldn't handle that.... one last post, and I never went back...

by Kalio1, Jul 16, 2006 12:00AM
To: suzieq2
I am so sorry you went thru all of this and then had to deal with being a nonresponder. Our dang immune systems! Why won't they just cooperate! I can't imagine how hard that must be to deal with. Being a relapser myself I do try to realize I might go thru this and still have this virus. I just hope I feel better than I did when diagnosed, thanks for sharing your story. I am glad you are able to maintain physically and feel ok, maybe the tx did some good even if it didn't eradicate it, maybe it kicked the old immune system up enough to hold it at bay.

It is always a quandry to answer questions from people here, you know they want info but if you give what you have to offer some think you are "being a know it all" so I have decided you just can't win. Best you can do is offer what you know and hope it is taken in the vein it is intended. So I hope this unsolicited info is taken as intended. It has been said here so many times that we need ALL the views on this HCV topic, the good, bad and ugly and I agree. I too worry about new people being frightened off but heck, they are adults and I have enough to worry about as it is! If they don't know to do their own research and get the best doctors, not much I can do about it.
So in that spirit, I wanted to give you this info I have here that someone shared at the docs office in case it might be of use to you. I hope you keep visiting now and again because there are many in your shoes and I am sure they appreciate the comraderie and hopefully it can be of benefit to you too, I know it benefits us all to have more people join in. It is sad that some feel left out, I wish there was a way to end that.
Anyway! In case you are interested, Phase III of the VX950 will be coming up and I heard it was for nonresponders. Maybe your doctor can put you in touch with the right folks, but if not you can try calling Dr. Nezam Afdhal .. phone 617-632-1070
they would hook you up with a line for the trial studies and possibly put you in touch with the right people. Hopefully somewhere reasonably near you if you are interested.
Take care, I wish you well. Please keep visiting.

by Forseegood, Jul 16, 2006 12:00AM
To: Fishdoc
yeah, too bad an *individual* like this can ruin it for so many people, and they actually never come back to get what is good out of a place like this...

But I *try* to look on the bright side, if you were just looking at it from a purely statistical point of view (and I know there are some here who enjoy stats) there should be way more "cyber trolls" here and at many other places, so I think we're doing pretty good!! ha ha! What can you do?  ....guess it's up to us to do our own monitoring, or ignoring, whatever, and remember all the good things to be gotten out of places like this...

by fishdoc, Jul 16, 2006 12:00AM
Kalio and SuzieQ, yup, I am waiting on the vertex trial this fall in Alb., NM.  I do my 24wk PCR next friday, and if I am not undetect. then I at least meet the minimum requirements: failure to reach 2 log drop at 12 weeks, and failure to be undetect. at 24 weeks.....I am actually hoping for "nonresponse" not sure I can do another 9 months...


Forseegood, as always, your on the money........

by Stvski80085, Jul 16, 2006 12:00AM
I'm not going anywhere I know that much.  I hope no one else does either.  I know must of us here just want some friendly ears to listen to our problems and we feed off the success stories we here almost every week on this board.  I wish everyone the best of luck with this treatment.  It is hard but we can do this together.

Take care,

Steve

by Mister beagle bailey, Jul 16, 2006 12:00AM
To: Steve
That's how I feel and you said it "we can do it together".  That it, team work is the key to this forum working for all.

Beagle

by SnoWav, Jul 16, 2006 12:00AM
I would like to think that those that clear the virus will be too busy living life to hang around here.Leave the board to those that are treating and the non responders and relapsers.They will be the ones doing the research and staying on the cutting edge of the latest news from the front on the war on hep C. Any member that leaves this board never to return more power too ya.Hope I am one of those some day.Later

by fishdoc, Jul 16, 2006 12:00AM
To: twotonedog
Hey B, I agree with you completely.  I must say, I came very close to dropping out because of the same offensive individual, but in the terms of today, that is enabling: enabling them to control others, so I choose to not engage, ignore, walk off.  However, tele52s post had two MAJOR components, both of which we are all familiar with.  Perhaps the most important was the feeling that he was becoming obsessive.  When I was diagnosed in 94, I started grad school in 95, and found I was spending hours and hours on line focusing on my disease.  I had to choose to put down the mouse, and focus on the tasks at hand, rather than obsessing about my condition.  Now however, as I am tx, I don't view it as obsessive, but a support mechanism.  I don't want to talk to anyone and tell them one more time, yup, I still feel like sh!t, why do you ask?  Here, those that are tx know I feel like sh!t, but we focus on other things a lot, like laughter.  The objectionale individuals, I choose to ignore.  I posted a very teeny tiny joke last week, and a newbie "felt it necessary" to tell me that jokes were not appropriate.  I ignored it, which I deserve a medal for, because for some reason, ribarage really kicked in, and I dearly wanted to berate, belittle, castigate, denigrate.... its a long alphabet..!!  But walked off instead.  IF we all NEVER resonded to jerks, perhaps they'de jerk off somewhere else.........personally, I think the one I am thinking of is a teen that comes on line every now and then to stir up trouble, doesn't have a disease other than angst, and probably visits a lot of sites doing the same thing..

by timedog, Jul 16, 2006 12:00AM
I live in the north east and have a pretty big yard. I love growing flowers and vegatables mostly tomatoes really. Where I live there are a lot deer who seems like everything, well almost, I grow. Every winter I go on line and do research on how to stop the deer, there is so much advice everything from building a fence to keep them out to pouring coyote urine around the gardens.

Every sping with much hope I go out into my gardens and dig in the soil turn it over add mulch and what ever, yes even in this year of treatment I still work and dig, took me a lot longer but it got done. After the garden is dug I plant and then apply something I learned on the web about how to keep deer away and then I sit back and with much attesipation I watch my garden grow, at least when i am not weeding.

Every year no matter what i do, what precations I take whom evers advice I follow the deer return and as always take what they want.  I never get to see all of my flowers go to full bloom. But some how there is always just enough to sooth my heart to put a smile on my face.

If all goes as plan I will be at it again next year trying some new trick someone metioned hanging irish spring soap around.

time dog week 19 starts tonight

by Kalio1, Jul 16, 2006 12:00AM
To: forsee
Lots of the back and forth I think is created because people want to get their intent across and not be misinterpreted but on the net it is nearly impossible to do that, it's like trying to type with your hands tied behind your back!
I figure just try to take the best and leave the rest and hopefully someday I will be SVR and this place will be somewhere to stop by occasionally and give everyone a hearty "hang in there" and remind them it does end.
It's a hard treatment to be sure, but there are lots of difficult treatments for many diseases that don't come with guarantees or 100% cure rates so I figure, hey, this is the card I was dealt and try to hack it the best way I can.

My goodness you take things I have never even heard of! Not sure if I'd swallow hydrocloric acid!
How are you handling this great weather? Just gorgeous here, has it been hot down there? I can't take the heat normally but on tx, NO WAY! My little factory that sews for me is down there off the 10 and it gets so broiling hot there I don't know how they can work in it. 8 months to go and I can be back to driving to LA in the heat and traffic again, yippee LOL
I have not frequented any board but here but it does seem like the internet is a playground with no consequences for Aholes and I agree we are lucky we don't have lots more of 'em.
Hope you are feeling good and life is pleasant.

by way, Jul 16, 2006 12:00AM
To: Fishdoc
I read this forum everyday and probably spend too much time here as some others feel they are. I do feel like so early in tx and I have so  much to learn... it's "homework" for my tx.

You guys are like family and the level of understanding and compassion here is wonderful. And that is lacking big time at home.

I still have alot of questions and afraid to post because of ridicule AND getting ignored. I don't want to waste anyones time with something dumb. That is still residually left over from my first posting when spacecoast made fun of me. It wasn't just about getting my feeling hurt--it's just that I'm reluctant to be a part of something that's not real supportive, and the more love and support I feel the more I will post.
I do try to always post to a newbie asking questions that I feel I'm qualified to answer.

One other thing, food for thought and of course just my opinion.  You all have been, as of late, discussing giving advice and qualifying it as such and backing it up with links to studies or whatever. I don't come here to be given a link. I think anybody who is here is probably smart enough to do a web search. I come here for the support and advice of someone that is going through or gone through it. Now if someone tells me to jump off a cliff-I WILL check with my doctor first. And BTW If I ask for a link (and I have before) it's because someone has said someone one else could perhaps provide it. And if they can't thats fine too.

I would never expect anyone here to translate my entire lab but there is such a wealth of information here that I will take advantage of from time to time -- I will post certain numbers here if I get back labs between Dr visits.

I'm getting my 4 week pcr back Friday!! So cross your fingers!!

Friday

by Upbeat, Jul 16, 2006 12:00AM
Hum
     As a wise person once said to me.  If you argue with an idiot, people might not know the difference.

                                                   Ron

by amirtracy, Jul 16, 2006 12:00AM
To: upbeat
i like that.

i also like

Save your Drama for your Mama.

by amirtracy, Jul 16, 2006 12:00AM
To: strator
Just checking to see if you're doing alright. haven't seen ya in awhile...

by Myown, Jul 16, 2006 12:00AM
To: way
Hey Way,
Keep on posting!! Don't worry about anyone "trying" to make fun of you, it can't be done. You're my hero, just because you said you would defend the newbies. Proves you have courage!! Keep on posting!! Don't let anything or anyone hold you back.

by wMich, Jul 16, 2006 12:00AM
Hello, I am now 2 weeks post Tx (48 wks) and feeling a little more spry and a little less achy:) I have been around as an infrequent poster for about a year now and have seen a lot of things go down here too.

I have seen people here allow HCV and Tx dominate their identity. I have seen "inner circles" form and get attacked here. I have seen forum "gurus" rise and fall, come and go. I have seen life-changing love and support shared here. Here I have seen homemade videos and songs lyrics that had me howling. I have seen people stomp off after not hearing what they want to hear here. I have seen people stress to newbies that there are no doctors here, then give them four paragraphs of medical advice, er, observations. I have, in turn, taken some of the suggestions I heard here and enlightened my own gastroenterologist with them! I have seen people with the guts to make tough observations about Tx and HCV and ask the tough questions. I have seen people "whistling in the dark" through Tx and HCV here while others feel the need to detail EVERY ache, pain and lost hair. I think its wonderful that some people have been here for years, whether they have cleared the virus or not. I sure do gain from their experiences. I can see too how some people want to get away from HCV and everything related to it as soon as they finish Tx, clear, or are putting Tx on the back burner.

Except for dealing with HCV and for some, the Tx experience, we're all quite different. Guess thats what makes this a public forum and NOT a therapy group, chat room, medical advice board, mutual admiration society, courtroom, or place to flame others. Or at least, so it seems to my slowly de-fogging brain  - Lee

by Pdilly, Jul 16, 2006 12:00AM
To: BB and All
I agree with what BB and others have said more ways than one.  When someone Like Coast posts and is trying to start trouble I know it is wise to just not respond and not fuel the fire.  I also understand what Tele52 said as to getting reconnected with family and friends.  Many times I am reading and am truely amazed of the friendship that has been forged by this site.  I also realize my husband more than once has made a comment that I have been on the PC to much lately.  In that respect I understand Tele completly.  I do hope that Tele52 reconnects with his family and friends and that he finds us again when the time is right to let us know that he is doing just fine.  All....thanks for being there.  As you know this beast makes you feel like you can not connect with others that do not have this disease even if they try and understand.

by Forseegood, Jul 16, 2006 12:00AM
To: Kalio/Way
Kalio: yeah, I just try to look at the bright side of all of this mish mash...to get a bunch of individuals with their own individual personalities and backgrounds to agree on a whole lot would be like trying to herd cats...

For a mostly unmoderated board I'm surprised this does as well as it does in terms of "going smoothly" - whatever that means...the managers here provide a good service, and I guess it's up to us to prevent total civil chaos, ha ha!

But my funniest story of all in cyber space is once when I was first diagnosed, and I thought, why are these people talking about hep c and dragons all the time? After awhile I thought hep c meant dragon "in code", I can be soooo thick sometimes...

So one night I was pretty upset after reading some hep c experiences, and I went to this Dragon site on Delphi, and they all said hi, how are you? (now I know they were probably rapidly reading my profile) and I started in whining about just being diagnosed, I was soooo scared, blah blah, all the usual, and  they all started talking about sexual stuff and whips and chains .... (and I thought, whoa, where am I?) and that being submissive might help out my weird disease....I'm like WHAT????

So they saw my pic, and they told me, even though I was soooo old, they would let me stay cause I looked a lot younger in my pic, ha ha! (how generous of them!!) I couldn't get out of there fast enough!!! I had stumbled on to some SadoMasochism site that was named Dragon something or other, ha ha ha ha!!!!And I thought the dragon meant it had something to do with hep C!!!!!ha ha! Now I just stay with a few political blogs that have some film talk, they are mostly 35 to middle aged and mannerly....

It's really pretty wild out there in cyber space, these kids nowadays! As they said in Bye Bye Birdie!...I've often told you youre lucky to live in Santa Barbara, I'm glad youre enjoying it...yeah, wicked hot here, 87...take really good care of yourself and keep out of the sun if need be...

Way: please don't let certain individuals keep you away if you really need this site, belive me, the people who manage to stay and gather the good stuff....become really adept at letting things go when they need to, you have to develop a pretty tough hide, especially on a site like this with little to no moderation....there are a lot of helpful people here if you need them....what's that saying, take what you need and leave the rest behind? that applies doubly to websites...Be well and take care...the pooch wants out! gotta go...

by amirtracy, Jul 16, 2006 12:00AM
To: way
I sure hope you post any questions about anything here. nothings too dumb, believe me. i've asked lots of "stupid" questions. but that's the beauty of it. you can ask anything you want. to people that know what you're going through. so feel free and take care.   tracy

by Mister beagle bailey, Jul 16, 2006 12:00AM
To: this is to all
I opened this thread and had know idea that something had happened here on the forum.  I was just up set that 52tele was leaving and was trying to keep everyone here together for the same cause, to beat this virus.  Could someone please tell me what I missed as I haven't been on much, what has been going on that so many are up set about.

Beagle

by Mister beagle bailey, Jul 16, 2006 12:00AM
To: pdilly/way/tracy/all
I opened this thread to help and now realize something happened here on the forum.  Could someone please tell me what's going on.

Thanks,

Beagle

by way, Jul 16, 2006 12:00AM
To: BB
There was some name calling on a thread below by someone nicknamed "coast". I think it was really "spacecoast" who was rude the first time I posted. The name of the thread is "Explanation" and it continued to another thread above that one but breifly. It was getting pretty ugly and now maybe hes been kicked off again.

by mikesimon, Jul 17, 2006 12:00AM
I have been coming to this board since 2002. Some of the things that were said back then would make what goes on today look like a love-in. Yea I know, I've been here a long time. I can recall back in the day a guy telling sick folks that they must not love Christ or they would be healed. This stuff went on daily as well as vulgar crude insults and name calling. He finally got bared or just went away. The point I am making is that when you get a lot of people together there are going to be creeps, "know it alls", kind and intellegent people and scared and uninformed people. Our job here, as in life, is to sort the good from the bad. While I hate nastiness it doesn't trouble me nearly as much as misinformation does. Nastiness is obvious and we can simply ignore it but misinformation is not as obvious and it can influence members to act in ways that are detrimental to their health. When it comes to solid information this board is far and away the best forum I have found. I have learned so much from my experience here and I continue to learn. Back in 2002 and 2003 and even early 2004 people here didn't know a fraction of what most of what our current members know and I felt is was my responsibility back then to educate. But now, there are so many well informed members that I know I am not needed for educational purposes except in very rare circumstances, and maybe not even then. But, I come here to learn and add support and share in our triumphs as well as our dispair. Some people will leave and new members will come but this place will endure because it is essentially the best place we have. I, for one, am so glad I found Medhelp and I can deal with the occasional creep or "know it all" as long as the information is sound and it is for the most part. Mike

by NYgirl, Jul 17, 2006 12:00AM
To: Beagle and 52TELE
I just want to say that as long as I"ve been here there have been two very different types of arguments.  One where it is a disagreement and the people involved would NEVER take it personally at ALL - and the 'other' where people ARE condescending and mean spirited know it alls.

It is VERY difficult to avoid the second type. I don't know what happened but personally I found 52 TELE to be a GREAT addition to this forum and it really bothers me that without even reading I can assume it's the same old same old.

TELE don't let ANYONE chase you off this forum!  We NEED YOU as much as you need US.

You have to nkow and understand that.

Please talk to me or my evil twin Beagle...we don't want ;you to go!

(PS I didn't even read the rest of the thread because once I read Beagles post my eyes turned so RED that fire started shooting out!)

by Mister beagle bailey, Jul 17, 2006 12:00AM
To: way
Thanks for the info and I think your right about who it is.  Everyone here needs help, some more then others and when someone like that posts it turns people away.  Now I understand what is going on and it's sad.  I hope the newbies don't stop posting questions because of this.  How are you doing?

Beagle

by way, Jul 17, 2006 12:00AM
To: BB
i am doin fine thx for askin. Gonna go off to bed here --gotta get up early for work. Hope you are doin ok as well...Good night!

by NYgirl, Jul 17, 2006 12:00AM
To: Chevy55
And how do you think we would have learned anything if not for folks like you and Jim and Cuteus...?  It's our turn as the "new old timers" to pay back what you so GENEROUSLY gave to us.

The times I just felt like giving up = how easy it was to look to a few special people and say wow...after all they've done for me how could I do that?

There will always be problem people on forums...we just have to ignore them (which for girls like you and me is almost impossible...we are sure not shy wall flowers are we?)

Debby

My hemo might be down to 9 again but my spirit is high so that is what matters.  :)  I didn't mind coming to work today because with the heat outside...it's much better to be here in the morgue freezing to death!

by Dale_Ray, Jul 17, 2006 12:00AM
If you leave and don't return over some people with mental problems - they win! Just recommend they go to the mental health section of Medhelp. That is obviouly where several need to be. Just don't fuel and idiot's fire. Tele52 you've been a good addition to the forum and shown great compassion for people. We lose if you go. Dale

by NYgirl, Jul 17, 2006 12:00AM
We've certainly had some looloo's that have tested our patience in the past huh?  I wonder how some of them made out with treatment (especially the one who was sure us stupid people could cure ourselves with herbs...and that all skinny people SVR LOL).  I think some of the people DO have real mental problems that are aggravated by the tx or the stress of the treatment and it's sad that not only do they cut themselves off from tx but...they hurt the others who really WANT to be here.

Mental illness (and in some cases a good case of I Know It ALL) is a very sad thing.

by Mister beagle bailey, Jul 17, 2006 12:00AM
To: NYgirl/Chevy/Dale/forseegood/Mikesimon
I agree with you all, and it's sad that some will leave because of what the mental case has said.  Us old timers are use to this but I fell for the newbies and the young ones coming on in their teens and twenties that will not come back and really need to be here for help.  This is a virus that knows no borders or age group.  
Please anyone who was offended by what was posted the other day, know it's not something that happens here much.  Those that care will always be here to help all, so please think about returning to the forum.  You all are needed here.

Beagle

by way, Jul 17, 2006 12:00AM
To: BB
I'm not leaving (can you tell) even though I initially said I was. I did get my feelings hurt from the very first post, but even that didn't really stop me from posting. I think I'm capable of ignoring the bad apples. And maybe even not reacting.

I still feel that I have to carefully word everything -- especially since I accused "coast" of not being able to spell, now I spend more time than I care to at dictionary.com.

by Mister beagle bailey, Jul 17, 2006 12:00AM
To: Way
LOL, don't worry about the spelling, just be here.  We had the same person over the Memorial Day week end upset many here but we decided to stand down and he just faded away.;)  Glad your staying, you'll find most here will help whenever they can.


Beagle:)

by anise, Jul 17, 2006 12:00AM
To: Mr BB
Mr.  BB, so how have you been doing?   I am going on my 23/24 shot this wednesday.  I can hardly wait.  Just getting through treatment was an experience, but now I am wondering what after treatment is like.  My NP says it will take another couple of months to feel better.  What has been your experience?

I like to read everything on this board, side from the negative personal comments.  Those that have treated and gone on, those who are treating and those who have just stopped treating are all very important information for me.  I hope all stay around and realize that it is easy to get fired up if you have personal issues to deal with.  God Bless!

by Mister beagle bailey, Jul 17, 2006 12:00AM
To: Anise!!!!!!!!!!!!!!!
Wow, your almost done.  Well, I'm 4 weeks post tx and feeling really good.  Yes, I was told to that it would take a few months to feel better but for me it started to get better by the second week.  My HGB is 11.5 now and I have no problem eating, going in the sun, doing things around the house, etc.  It's a great feeling and your'll be there soon.  I've been off the procrit almost 2 weeks so I bet this week my HGB will be around 12.5 or close to it.   I was down to 145lbs while on tx and now I'm 162lbs and it feels good, now I have to slow down on eating. LOL
This is what you have to look forward to my friend.

Beagle:)

by cajunlady, Jul 17, 2006 12:00AM
To: ALL/coast
I too was snapped by someone when I first entered this board.  I thought the way it was handled was rude and childish.  I did not get into a conflict over the matter.  I did not want to go to that level.  I also left the site because of that for awhile, before I came back to post.  Now, I only respond to what I think will help anyone and to the people that respect me, and I just ignore the rest.

Tele:

When this happened to me I left the board for awhile and I took the same outlook you did.  I have got to keep my life going and can not let it get overwhelmed by HepC.  I know exactly where your head it at right now.

Coast:

I see you showed up with a vengance this weekend.  I would think you would know by now, that if you are hurting and are angry with life, this is the place to be consoled by friends.  We all have the problem of this disease and some of us have more that just tx and hepc.  We have alot of new people on this forum and the last thing they need in their life is more DRAMA!  Try and seek some help for your anger.  As long as you are angry with life; you will never be happy in life.  Anger and hate destroys you to the point you are not a whole person anymore.

Newbies:

Sometimes we get conflicts here, especially from a certain few.  Just ignore them and do not let them discourage you from coming back.  This place if very important to tx and being able to vent.

CAJUN

by Mister beagle bailey, Jul 17, 2006 12:00AM
To: CajunLady!!/newbiescan do man/FLguy
Well said my friend, how are you doing?

All the newbies please listen to what we are all saying and please post when ever you want and don't worry about what a few angry people have to say.  We are all here to help.



BTW-- Where is FLguy and cando man?  Hey guys where are you, been looking for ya's.

Beagle

by can-do-man, Jul 17, 2006 12:00AM
To: beagle/all
Glad your hgb is better. I posted above to you.

Skin Cancer Post TX - ALGERNON 07/17/2006
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