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Definitely the post of the month! Funny I had the same problem but it wasn't with creatures as fuzzy looking as deer :)
However, there are "precautions" with deer or other **& but that involves a more active intervention by the deer catchers in charge.
Problem here is that some (not me)beleive that if you lay too many deer trap, some good folks may also fall in. So as you say, "there is always enough to sooth my heart to put a smile on my face" -- just be careful not to step in the deer dung too often :)
-- Jim
Bill
Many of us get involved with posts away from doing tx, such as fisheress pool party,etc. The laughter helps us foget how cr*py we feel and takes our minds off the meds, sxs and all the other h*ll treatment brings.
Beagle
I would also add, there are a couple of people here who have been really wonderful to me, but for the most, I feel like the kid that is picked last for the school yard game.
I have enough going on, I dont need head games from people I dont know, and who knows if they really are who they say they are........could be just some crack wh**e sitting around on a computer trying to feel superior. (sorry)
So why should I feel bad when I get lambasted for an opinion I have.
This site has just become another SX,............argh!
Oh, and the GURUs (gagging) I am so sick of some of the "know it alls" NYG at the top of the list!!!!!!!!!!! BLAH! BLAH! BLAH!
NOW EVERYBODY RUN TO HER DEFENSE!!!!!!!HURRY!!!!!!
PS Love ya Cando!!!
If they are ill with, say, Hep c or Diabetes....they find that more fodder to use against them....and I mean the cruelest things you could ever imagine....
Usually people like this aren't very bright (big surprise) so they are mostly just cruel and devoid of any humor in their postings... and they use every invective imaginable....
They have been around for years, and yes, most figure they are teenagers for the most part (thus...being *that* immature and hostile would have some kind of reason) but some are not teenagers.
These individuals are called *Cyber Trolls* (odd how someone here used that exact word to call a group here, wonder where they got the terminology?) I figure there a lot of very unhappy, very frustrated people, maybe they feel largely ignored in *real* life, whatever.....one could do all the amateur psychology you want speculating about their motives, they can do whatever they please behind the anonymity of their keyboards...but whatever it is, if youre not used to it and on the sensitive side (like most people) it can be very upsetting...
I was on chat at Janis....kind of late one night....joking around with a few members (late at night it's NOT moderated, the mods know what to look out for with these cyber trolls, and they just blip them off the screen fast enough, we didn't really know too much about this phenomenon and had no way to blip them off though)
So one came on and acted very sincerely and asked us questions about Hep C, said he/she had just been diagnosed, etc...so we all went about trying to be as understanding and informational as we could, but I guess while it was doing this, it was looking up our profiles, and pictures, etc....
And then came a torrent of insults re our profiles and pictures, it was soooo cruel and violating, I swear I felt dirty somehow...and yeah, it was like watching a train wreck, instead of getting off really fast like I should of done, I sat there and listened to all this garbage from an obviously imbalanced mind....
I remembered being kind of upset all night after that...the mods told us to just get off the chat when that happens again and there is no mod there, so most people are aware of this now....
Well, from what I've seen here, our Cyber Trolls have been mannerly in comparison, ha ha! And yes, there are no mods here either, so best to ignore them I guess, don't know what else we can do? Cause it's obvious if you engage them the same way, they just stay and play...ignore, and they go throw rocks at someone else's sandbox....Just thought I'd relate my little story...
I got crosswise with someone on a chat room once, for SUGARGLIDERS!! Now, how do you ask, can you get crosswise posting about small flying marsupials.... talent I suppose!! Actually, a guy posted that his were not doing well because of all the liberal environmentalists...I wasn't even on Riba then and couldn't handle that.... one last post, and I never went back...
It is always a quandry to answer questions from people here, you know they want info but if you give what you have to offer some think you are "being a know it all" so I have decided you just can't win. Best you can do is offer what you know and hope it is taken in the vein it is intended. So I hope this unsolicited info is taken as intended. It has been said here so many times that we need ALL the views on this HCV topic, the good, bad and ugly and I agree. I too worry about new people being frightened off but heck, they are adults and I have enough to worry about as it is! If they don't know to do their own research and get the best doctors, not much I can do about it.
So in that spirit, I wanted to give you this info I have here that someone shared at the docs office in case it might be of use to you. I hope you keep visiting now and again because there are many in your shoes and I am sure they appreciate the comraderie and hopefully it can be of benefit to you too, I know it benefits us all to have more people join in. It is sad that some feel left out, I wish there was a way to end that.
Anyway! In case you are interested, Phase III of the VX950 will be coming up and I heard it was for nonresponders. Maybe your doctor can put you in touch with the right folks, but if not you can try calling Dr. Nezam Afdhal .. phone 617-632-1070
they would hook you up with a line for the trial studies and possibly put you in touch with the right people. Hopefully somewhere reasonably near you if you are interested.
Take care, I wish you well. Please keep visiting.
But I *try* to look on the bright side, if you were just looking at it from a purely statistical point of view (and I know there are some here who enjoy stats) there should be way more "cyber trolls" here and at many other places, so I think we're doing pretty good!! ha ha! What can you do? ....guess it's up to us to do our own monitoring, or ignoring, whatever, and remember all the good things to be gotten out of places like this...
Forseegood, as always, your on the money........
Take care,
Steve
Beagle
Every sping with much hope I go out into my gardens and dig in the soil turn it over add mulch and what ever, yes even in this year of treatment I still work and dig, took me a lot longer but it got done. After the garden is dug I plant and then apply something I learned on the web about how to keep deer away and then I sit back and with much attesipation I watch my garden grow, at least when i am not weeding.
Every year no matter what i do, what precations I take whom evers advice I follow the deer return and as always take what they want. I never get to see all of my flowers go to full bloom. But some how there is always just enough to sooth my heart to put a smile on my face.
If all goes as plan I will be at it again next year trying some new trick someone metioned hanging irish spring soap around.
time dog week 19 starts tonight
I figure just try to take the best and leave the rest and hopefully someday I will be SVR and this place will be somewhere to stop by occasionally and give everyone a hearty "hang in there" and remind them it does end.
It's a hard treatment to be sure, but there are lots of difficult treatments for many diseases that don't come with guarantees or 100% cure rates so I figure, hey, this is the card I was dealt and try to hack it the best way I can.
My goodness you take things I have never even heard of! Not sure if I'd swallow hydrocloric acid!
How are you handling this great weather? Just gorgeous here, has it been hot down there? I can't take the heat normally but on tx, NO WAY! My little factory that sews for me is down there off the 10 and it gets so broiling hot there I don't know how they can work in it. 8 months to go and I can be back to driving to LA in the heat and traffic again, yippee LOL
I have not frequented any board but here but it does seem like the internet is a playground with no consequences for Aholes and I agree we are lucky we don't have lots more of 'em.
Hope you are feeling good and life is pleasant.
You guys are like family and the level of understanding and compassion here is wonderful. And that is lacking big time at home.
I still have alot of questions and afraid to post because of ridicule AND getting ignored. I don't want to waste anyones time with something dumb. That is still residually left over from my first posting when spacecoast made fun of me. It wasn't just about getting my feeling hurt--it's just that I'm reluctant to be a part of something that's not real supportive, and the more love and support I feel the more I will post.
I do try to always post to a newbie asking questions that I feel I'm qualified to answer.
One other thing, food for thought and of course just my opinion. You all have been, as of late, discussing giving advice and qualifying it as such and backing it up with links to studies or whatever. I don't come here to be given a link. I think anybody who is here is probably smart enough to do a web search. I come here for the support and advice of someone that is going through or gone through it. Now if someone tells me to jump off a cliff-I WILL check with my doctor first. And BTW If I ask for a link (and I have before) it's because someone has said someone one else could perhaps provide it. And if they can't thats fine too.
I would never expect anyone here to translate my entire lab but there is such a wealth of information here that I will take advantage of from time to time -- I will post certain numbers here if I get back labs between Dr visits.
I'm getting my 4 week pcr back Friday!! So cross your fingers!!
Friday
As a wise person once said to me. If you argue with an idiot, people might not know the difference.
Ron
i also like
Save your Drama for your Mama.
Keep on posting!! Don't worry about anyone "trying" to make fun of you, it can't be done. You're my hero, just because you said you would defend the newbies. Proves you have courage!! Keep on posting!! Don't let anything or anyone hold you back.
I have seen people here allow HCV and Tx dominate their identity. I have seen "inner circles" form and get attacked here. I have seen forum "gurus" rise and fall, come and go. I have seen life-changing love and support shared here. Here I have seen homemade videos and songs lyrics that had me howling. I have seen people stomp off after not hearing what they want to hear here. I have seen people stress to newbies that there are no doctors here, then give them four paragraphs of medical advice, er, observations. I have, in turn, taken some of the suggestions I heard here and enlightened my own gastroenterologist with them! I have seen people with the guts to make tough observations about Tx and HCV and ask the tough questions. I have seen people "whistling in the dark" through Tx and HCV here while others feel the need to detail EVERY ache, pain and lost hair. I think its wonderful that some people have been here for years, whether they have cleared the virus or not. I sure do gain from their experiences. I can see too how some people want to get away from HCV and everything related to it as soon as they finish Tx, clear, or are putting Tx on the back burner.
Except for dealing with HCV and for some, the Tx experience, we're all quite different. Guess thats what makes this a public forum and NOT a therapy group, chat room, medical advice board, mutual admiration society, courtroom, or place to flame others. Or at least, so it seems to my slowly de-fogging brain - Lee
For a mostly unmoderated board I'm surprised this does as well as it does in terms of "going smoothly" - whatever that means...the managers here provide a good service, and I guess it's up to us to prevent total civil chaos, ha ha!
But my funniest story of all in cyber space is once when I was first diagnosed, and I thought, why are these people talking about hep c and dragons all the time? After awhile I thought hep c meant dragon "in code", I can be soooo thick sometimes...
So one night I was pretty upset after reading some hep c experiences, and I went to this Dragon site on Delphi, and they all said hi, how are you? (now I know they were probably rapidly reading my profile) and I started in whining about just being diagnosed, I was soooo scared, blah blah, all the usual, and they all started talking about sexual stuff and whips and chains .... (and I thought, whoa, where am I?) and that being submissive might help out my weird disease....I'm like WHAT????
So they saw my pic, and they told me, even though I was soooo old, they would let me stay cause I looked a lot younger in my pic, ha ha! (how generous of them!!) I couldn't get out of there fast enough!!! I had stumbled on to some SadoMasochism site that was named Dragon something or other, ha ha ha ha!!!!And I thought the dragon meant it had something to do with hep C!!!!!ha ha! Now I just stay with a few political blogs that have some film talk, they are mostly 35 to middle aged and mannerly....
It's really pretty wild out there in cyber space, these kids nowadays! As they said in Bye Bye Birdie!...I've often told you youre lucky to live in Santa Barbara, I'm glad youre enjoying it...yeah, wicked hot here, 87...take really good care of yourself and keep out of the sun if need be...
Way: please don't let certain individuals keep you away if you really need this site, belive me, the people who manage to stay and gather the good stuff....become really adept at letting things go when they need to, you have to develop a pretty tough hide, especially on a site like this with little to no moderation....there are a lot of helpful people here if you need them....what's that saying, take what you need and leave the rest behind? that applies doubly to websites...Be well and take care...the pooch wants out! gotta go...
Beagle
Thanks,
Beagle
It is VERY difficult to avoid the second type. I don't know what happened but personally I found 52 TELE to be a GREAT addition to this forum and it really bothers me that without even reading I can assume it's the same old same old.
TELE don't let ANYONE chase you off this forum! We NEED YOU as much as you need US.
You have to nkow and understand that.
Please talk to me or my evil twin Beagle...we don't want ;you to go!
(PS I didn't even read the rest of the thread because once I read Beagles post my eyes turned so RED that fire started shooting out!)
Beagle
The times I just felt like giving up = how easy it was to look to a few special people and say wow...after all they've done for me how could I do that?
There will always be problem people on forums...we just have to ignore them (which for girls like you and me is almost impossible...we are sure not shy wall flowers are we?)
Debby
My hemo might be down to 9 again but my spirit is high so that is what matters. :) I didn't mind coming to work today because with the heat outside...it's much better to be here in the morgue freezing to death!
Mental illness (and in some cases a good case of I Know It ALL) is a very sad thing.
Please anyone who was offended by what was posted the other day, know it's not something that happens here much. Those that care will always be here to help all, so please think about returning to the forum. You all are needed here.
Beagle
I still feel that I have to carefully word everything -- especially since I accused "coast" of not being able to spell, now I spend more time than I care to at dictionary.com.
Beagle:)
I like to read everything on this board, side from the negative personal comments. Those that have treated and gone on, those who are treating and those who have just stopped treating are all very important information for me. I hope all stay around and realize that it is easy to get fired up if you have personal issues to deal with. God Bless!
This is what you have to look forward to my friend.
Beagle:)
Tele:
When this happened to me I left the board for awhile and I took the same outlook you did. I have got to keep my life going and can not let it get overwhelmed by HepC. I know exactly where your head it at right now.
Coast:
I see you showed up with a vengance this weekend. I would think you would know by now, that if you are hurting and are angry with life, this is the place to be consoled by friends. We all have the problem of this disease and some of us have more that just tx and hepc. We have alot of new people on this forum and the last thing they need in their life is more DRAMA! Try and seek some help for your anger. As long as you are angry with life; you will never be happy in life. Anger and hate destroys you to the point you are not a whole person anymore.
Newbies:
Sometimes we get conflicts here, especially from a certain few. Just ignore them and do not let them discourage you from coming back. This place if very important to tx and being able to vent.
CAJUN
All the newbies please listen to what we are all saying and please post when ever you want and don't worry about what a few angry people have to say. We are all here to help.
BTW-- Where is FLguy and cando man? Hey guys where are you, been looking for ya's.
Beagle
Skin Cancer Post TX - ALGERNON 07/17/2006