To The Negative opions

[helpmeAbby]

At Least Iam  willing and hoping that they did find a cure and I don't give a **** if I got to stick a needle in my eye or take 50 pills a day.IAM Being postive about this and I GOT NOTHING MORE TO LOSE OTHER THEN TO GAIN

[mycoldfeet]

this is from pg 35 of my pegasys getting started manual, and paragraph 2 says" Some Doctors and nutritionalists say shell fish (which includes oysters,clams,shrimp,lobster,and mussels)should be avoided, now we get into Raw and cooked which makes no sense to me but here it is, Raw shellfish sometimes contain a virus that causes a different form of hepatitis, which can be dangerous and even FATAL to people with Hepatitis C though cooking USUALLY destroys this virus, but you may become ill if you eat contaminated shellfish raw. thats all I got for right now but thats where I got my info as doublespeak as it is lol.

[sfbaygirl]

I asked about cooked clams the other day here and I can't find the link for the study! Hopefully someone will come and rescue me, or bury me hahahah.  I love shell fish and eat it ocaisionally cooked. Raw is the one that isn't good.

[mycoldfeet]

My pagasys sheet states not to consume any shell fish while on tx, in fact my 1st go around stated no fish with scales, but its not on there this time, it may be the mercury in them or the fact that shell fish can carry Hepatitus,may not be hep c but any double geno sucks, but this is just speculation, but it does say in big letters not to eat it so, as much as I love crabs, shrimp, oysters and clams, I,ll just wait till my 72 wks are up, call em read the website, or ask the Doc, I just do what they say.

[cuteus]

what exactly is bothering you?
I am not sure why you feel like you are doing everyone a favor by posting articles that are 7 yrs old in this forum.  We are pretty much updated on the latest articles, thanks to very helpful members here, which is what you should be reading in order to get a more informed view of hep c.

Most of us have also heard of colloidal silver, thymus gland, and most other 'alternatives' out there in case you feel we should be 'enlighten' about other cures.
thank you for your input and be well.

[mycoldfeet]

I'm on week 2 of 72 and just got back from Houma and picked up 250 lbs of shrimp, (which I can't eat on the meds)and a bunch of crabs and flounder, I could scream, nuthin that taste good is good for me lol, glad your so close to finishing, I know you have gumbo in your future, have fun and good luck.

[beamishboy]

Hooowdeee !!! good to seeya post-so glad that the end(of trx) is near...i am doin shot#41 sunday--chompin at the bit to finish ....how's yur gumbo??

[tonybuck]

Thanks for the info. Yes, I am on a ad. The doctor put me on efflexor my first week of treatment, it did help me. I guess at three months into tx and feeling the sx , I am searching for that groove that will make it as easy as it can be. So if I can start with getting some good rest hopefully some other areas will get better.Thanks and best wishes

[cajunlady]

This tx does alter many things.  When I first started tx, I took tylenol before shots and usually for 1 or 2 days after.  For me, this was a steady routine for about 8 weeks.  After that time period things got milder with the sides and I did not need as many.  Every now and again, I have to take tylenol for mild headaches, but not often.  On the sleep, my doctor let me take tylenol pm and it helps.  Check with your doctor and find out.  I was also given permission that if need be I could take a sleeping medications off the shelf/not prescription.  I have used that a few times; with doctors permission, worked great, just take it early enough that you are not groggy in the morning.  I am 34/48 on Friday's shot and I seldom need to take anything for sleep anymore.  Although, if need be, I will.  
Are you on any AD's yet.  I noticed that once I went on AD's the restlessness lighted up alot. You might check with your doctor on those rescue drugs.

Good Luck,

Cajun

[Kalio1]

You are hilarious, that cracked me up. Thanks for the laughs. I hope your bothersome, aggravating skin issues are getting better and you are able to enjoy your summer a bit.

[mikesimon]

So true. Mike

[sfbaygirl]

Why can't you eat shrimp? I think as long as it's cooked it should be okay. Snook posted a link the other day about cooked seafood and how cooking it kills the bacteria. I got some tilapia today at Costco. I'm looking forward to eating that!

[sfbaygirl]

I didn't know the CDC was saying that. That is ridiculous! Without the testing of young people, how do they know this? As we know it takes some 30+ asymtomatic years before they discover they have it. With the CDC saying this, it seems like we don't stand a chance of anyone taking this virus seriously.

[tonybuck]

Howdy, I picked up some tylenol pm tonight. Going to give it a try, sure hope it helps me sleep better. I have turned a 180 from my old sleep habits, my head use to hit the pillow and I was out like a light, not now I toss and turn for it seems like two hours. Well thanks agian for the advice. Do you have to take the tylenol pm everynight or just the first few nights following the shot.

[NYgirl]

I tried it for a couple of days before it worked. AT first it didn't look like anything was happening at all and I was like oh no...I'll have to swab on some peroxide but at least that will kill it for a little while (GOD that hurts to do) and when I got home that day and looked it was just gone.

I swabbed it on again with a qtip last night and I put it all over my tongue as a preventative. I HATE those bumps so MUCH UGH!

I was just shocked that it worked. I hope to God it works for you.  I did it several times each time sort of like rubbing so it would get in there and not just be laying on top. Equal parts of each.

[roaming]

Did you swab multiply times during the day or just morning and night? Also did you get dry eyes? If so what did you use.

[Dale_Ray]

Why do you give yourself shots in the eye my doctor said it was best in the stomach and thigh. I would suggest you seeking a more qualified doctor. Dale

[roaming]

thank you for your reply. Glad you are feeling better.

[sfbaygirl]

Hey, maybe you'll get royalties!

[Kalio1]

I use a mouth cure that is basically the same ingredients as what you are using but with some added numbing agent thrown in that I have a prescription for. It works great with the added benefit of offering immediate relief because of the numbing agents. If I have a sore, I use the stuff every few hours and it clears up in a day or two. If your sores are persisting and the goop isnt working it could be that their cause is herpes or some other viral agent. I know many use Lysine to help them. I'd speak to your doctor and make sure he asertains what they are caused by so you an treat them appropriately. See if lysine is ok to take on tx ( I was told it is) you a purchase it OT I believe. Good lucck finding a solution. I know the mouth sores can be a REAL bummer on tx. Mine have completely cleared up now so hang in there.

here is what my pharmacy makes for me it is called " Magic Solution or Michael's Magic Solution"

lidocaine 120ML
Nystan  240ML
Benadryl 80ML
Decadron 40ML

[mycoldfeet]

Speaking of negative stereotypes I posted a thread on Cryoglobulinemia a few days ago and one of the sx of this is rash and they showed a picture of the rash on a mans hand with a huge marijuana leaf tatoo under the rash, then stating that cryo is normally associated with hepatitus. Needless to say I was a bit miffed.

[bobbyullc]

i am going to sue them people for using my photo without paying me. it ain't fair...no wonder i do dope.

bobby

[GrandOak]

sfbaygirl: Not many people realize you can catch hep c from fights or abuse.

Perhaps that's why most studies reporting on what percentage of the population is infected always exclude those in prisons, where surprisingly the ratio of infected to non-infect inmates is much higher than the 2-3% which the CDC claims is ratio in the USA.

Our own local support group has also done testing at many gay pride events and found that the results indicate at least a 4% infection rate amoung professed homosexuals.

As far as I know, no one has tried sampling the homeless, which like the incarcerated is another group excluded from all studies I've seen, to see that the ratio is there.

Yet despite all the large untested segment of the population, coupled with the infected portion which will not acknowledge their infection for various reasons (which seems to be mostly due to the fear of being judge based upon the IVDU stigma), the studies by the CDC and others still claim that the infection rate is on the decline and will eventually become a non-factor as those from the Make Love Not War hippy era die off.

[GrandOak]

Or that 50% of the deaths attributed to HIV/AIDS are also people who are co-infected with HCV.  Which begs the question as to the cause of death: Was it because of HIV/AIDS or because HIV/AIDS allowed HCV to destroy the liver?

[sfbaygirl]

I totally agree. Although we are preaching to the choir on the forum.

Not many people realize you can catch hep c from fights or abuse.