Aa
Transplant info
I received a new liver it is HCV positive but cant be worse than what i have cause i'm number 1. It feels great i am so thankful to my Doctors, Surgeons and the nursing staff for all their help. The only way i can truly repay them is to live as long as possible.
My question is for anyone with genotype 1 and had a liver transplant how long after did you wait before you were able to undertake treatment for HCV. If you are undertaking it now what is it like?
My other question is can you describe how long it took for you to feel like you where not thinking about the new liver and that you were out rand about back to normal or do you still find that hard to get back to?... thanks.
My question is for anyone with genotype 1 and had a liver transplant how long after did you wait before you were able to undertake treatment for HCV. If you are undertaking it now what is it like?
My other question is can you describe how long it took for you to feel like you where not thinking about the new liver and that you were out rand about back to normal or do you still find that hard to get back to?... thanks.
My question is for anyone with genotype 1 and had a liver transplant how long after did you wait before you were able to undertake treatment for HCV.
I was type 1b and was transplanted in June 2000. The virus recurred rapidly and very virulently and, because of that, I started treatment with Peg-Intron and Ribavirin about 2 months post transplant.
My other question is can you describe how long it took for you to feel like you where not thinking about the new liver and that you were out rand about back to normal or do you still find that hard to get back to?...
That took me a while for a couple of reasons. The most significant reason was that I treated 3 times over a 4.5 year period and, of course, treatment was tough so I never felt back to normal until I cleared the virus in 2004. About 6 months after stopping the treatment drugs I began feeling a lot better.
Good luck,
Mike
I was type 1b and was transplanted in June 2000. The virus recurred rapidly and very virulently and, because of that, I started treatment with Peg-Intron and Ribavirin about 2 months post transplant.
My other question is can you describe how long it took for you to feel like you where not thinking about the new liver and that you were out rand about back to normal or do you still find that hard to get back to?...
That took me a while for a couple of reasons. The most significant reason was that I treated 3 times over a 4.5 year period and, of course, treatment was tough so I never felt back to normal until I cleared the virus in 2004. About 6 months after stopping the treatment drugs I began feeling a lot better.
Good luck,
Mike
Oh, I re-read your original post, and I see that you're genotype 1. The new treatment after the first of the year will include Interferon, Ribavirin, and a new medication. Even though it will still include Interferon, it will be easier and shorter than the triple txs, so you are in a good place.
Advocate1955
Advocate1955
Congratulations on your new liver! We're so happy for you!
I have no idea when you'll be able to begin treatment for your Hep C, but I'm pretty sure it won't be triple tx (with Incivek, Riba, an Interferon), with the new drugs that are soon to be approved coming out hopefully in the first part of 2014. The new treatments should be easier (less side effects, less risk, and shorter), so you may be able to start treatment sooner than you would have if only triple tx were available. What is your genotype?
In the meantime, don't even worry about it, just enjoy your new liver and your new life!
Advocate1955
I have no idea when you'll be able to begin treatment for your Hep C, but I'm pretty sure it won't be triple tx (with Incivek, Riba, an Interferon), with the new drugs that are soon to be approved coming out hopefully in the first part of 2014. The new treatments should be easier (less side effects, less risk, and shorter), so you may be able to start treatment sooner than you would have if only triple tx were available. What is your genotype?
In the meantime, don't even worry about it, just enjoy your new liver and your new life!
Advocate1955
I think when it comes to post transplant treatment of Hep C, doctors evaluate the individual patient. There is no set rule as to when it is appropriate to treat.
My husband received a new liver 17 months ago and because of billary tree complications and a portosystemic shunt that never cleared, treating his recurrent Hep C virus was placed on the back burner. We should find out in January when a liver biopsy is planned what the status is of his new liver is and whether treating him for Hep C at this time is a bigger risk than not treating him.
Congratulations on your transplant! You are one of the blessed ones. Make the most of every day.
My husband received a new liver 17 months ago and because of billary tree complications and a portosystemic shunt that never cleared, treating his recurrent Hep C virus was placed on the back burner. We should find out in January when a liver biopsy is planned what the status is of his new liver is and whether treating him for Hep C at this time is a bigger risk than not treating him.
Congratulations on your transplant! You are one of the blessed ones. Make the most of every day.
I had a transplant in 2004 . Then ending up having treatment in 2005. I just had treatment again 2013 and stoped 2 days ago.I only take 1 rejection pill. and vitamins. Its all in the mind how you will bounce back. I contacted hep c from blood at a hospital.Eat right and live good and keep smiling. If you should ever have to go on any treatment there are some new drugs coming out in 2014.
Hi there, first congrats. Second we have several here that have been there done that. I hope they bop in and see this and respond. One thing I know is a few are now hep free and doing fine..............Only the best
I'm aware of the post op treatments ie anti rejection, bloods. I want to know the time it takes to get to the stage of treating HCV. Do you really think they would give a new liver and then wait until stage 2 before treating? I am aware new meds are being tested but there is no long term results yet. I am not worried if its telaprevir ribavirin and interferon. I'm just curious as to when they might want to start treating as they mentioned it before the op and now I don't hear about it. That is ultimately the goal because they say new treatments are getting better all the time. That's their words not mine and they want to treat me that's their goal.
Congratulations on your transplant!
Uf you are looking for responses from others knowledgeable about liver transplant you should post in the Liver Cirrhosis Community or to the doctor in the Liver Transplant Community if you want answers about liver transplant. This community is for those who are trying to cure their hepatitis C and avoid the last resort, a liver transplant.
Treatment periods vary depending on the transplant center. So there is no set time to treat. Many centers here in the US will wait until the patient develops stage 2 liver disease and then treat them. Also most centers are waiting for data from new non-interferon based treatments in post transplant patients as response rates are low post transplant (30% with peg-interferon and riba) and doctors need to be cautious to not create any new problems in post transplant patients.
There is no statistical difference between a hep C infected liver and one that is not infected in patients with active hepatitis C undergoing liver transplant as far as prognosis is concerned. So there is nothing to be concerned about. Many hep C infected choose hep C infected livers in order to get a liver sooner.
Recovering for a liver transplant is different for each patient. Patients who are sicker before transplant usually take longer to bounce back then healthier patients. Sometimes years if they were bed ridden before transplant. But there are no set rules as to how long it takes to recover. Post transplant patients achieve a new normal. There is no going back in time. You will always need to manager your liver's health for the rest of your life. You will always need meds to prevent rejection and will need to have blood tests to monitor for any issues that your liver may have in the future. The best way to learn about others and their experiences post transplant is to attend a transplant support group which most transplant centers have. You will find that everyone has their own path to and after liver transplant.
Best of luck to you!
Hector
Uf you are looking for responses from others knowledgeable about liver transplant you should post in the Liver Cirrhosis Community or to the doctor in the Liver Transplant Community if you want answers about liver transplant. This community is for those who are trying to cure their hepatitis C and avoid the last resort, a liver transplant.
Treatment periods vary depending on the transplant center. So there is no set time to treat. Many centers here in the US will wait until the patient develops stage 2 liver disease and then treat them. Also most centers are waiting for data from new non-interferon based treatments in post transplant patients as response rates are low post transplant (30% with peg-interferon and riba) and doctors need to be cautious to not create any new problems in post transplant patients.
There is no statistical difference between a hep C infected liver and one that is not infected in patients with active hepatitis C undergoing liver transplant as far as prognosis is concerned. So there is nothing to be concerned about. Many hep C infected choose hep C infected livers in order to get a liver sooner.
Recovering for a liver transplant is different for each patient. Patients who are sicker before transplant usually take longer to bounce back then healthier patients. Sometimes years if they were bed ridden before transplant. But there are no set rules as to how long it takes to recover. Post transplant patients achieve a new normal. There is no going back in time. You will always need to manager your liver's health for the rest of your life. You will always need meds to prevent rejection and will need to have blood tests to monitor for any issues that your liver may have in the future. The best way to learn about others and their experiences post transplant is to attend a transplant support group which most transplant centers have. You will find that everyone has their own path to and after liver transplant.
Best of luck to you!
Hector
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