Traveling tomorrow other posts too

Hi there everybody.  I'm flying tomorrow to go see my parents up in the mountains of NC.  Although I'm excited about seeing them, I'm also feeling frustrated that I don't feel better for my trip and visit.  Also, the Riba is giving me major anxiety attacks about my pending trip.  Irrational anxiety/fears, about flying, etc.  I don't know why I can't just relax and think rational, except that it's the Riba doing it.  I'm feeling like **** today, too and that's part of the problem.  I just keep saying, I'm going to get through this.  I have to.  I have no other choice.  Anyway, thanks for listening.   Susan

[DH Bill]

Hey! you just tell yourself to relax and don't let the reba control you. Remember,it will be over and you will get thru it. I know how hard it is but try to take advantage of the excitement of seeing you parents. We are listening!

Bill

[Eyedeas]

I had to travel several times on treatment including having to haul the meds with.  I was as hyped as you are on the first leg and then realized after I surviced that leg that I would probably survive>  Hang loose and take some thing to calm you if you have it.

Kim

[Fubarcat]

I just got back from a cruise.  Before I left, I got myself into a real "fit" and absolutely convinced myself that they were going to search me and not let me go because I was bringing meds on board for Hep C.  I was just beside myself for at least 24 hours and couldn't even sleep I was so worried about it.  Obviously, it was the Riba making me nuts.  I ended up taking my shot before I got on the cruise, but brought my whole big bottle of Riba with me.  Our bags were inspected but nobody ever said a word about my meds.  I had a great time once I got on board and realized nobody was going to try to kick me off for having Hep C.  


Try to relax.  Anxiety can make things so much worse than what they are and you will probably have a wonderful time.  Let your parents spoil you and realize you are going so you can have time to relax and then take advantage of it.  I'm sure the weather will be wonderful for you and I firmly believe getting away from our normal routine every once in a while helps cure all that ails us!  Have fun.  It will be alright.  

[kcmichael]

Hello,
Just got back from 5 days in Manhattan,New York.I really thought I was risking it but I made it fine.Nobody said anything about my meds.The flying went fine.I came back tired and my feet are killing me,but getting away was very therapeutic.I am on week nine of Pegasys/Copeg.
Michael

[DebbieDo]

You sound like me, exactly how I was........I was so afraid of everything.......anxiety was terrible........I kept telling myself i would be fine throughout the whole trip. The night before i was to fly home, 11pm I decided to call and check flight reservations and they had been "canceled" due to plane malfunctioning or something, I was so upset......they moved the flight to 5am  but expected me to hang around all day for my connecting flight.......o i was furious.......RIBA RAGE at its best.........so they assured me things would remain the same for the connecting flight(NO CHANGES)......i decided at 2:30am to make certain.......and they had me on the flight i had to wait all day for.......gezzzzzzzzzz.........can you imagine, no sleep up to this point, nervous about everything......couldnt get bags shut, bought too much stuff.......o brother........talk about being in a complete uproar.......anyway, again i was assured the connecting would remain the same........Upon arriving at connecting ariport, waiting for the flight i happened to just look at the boarding pass.........and I HAD a.........First Class a seat...........now that really made me feel good.......Never flown 1st class before........I guess it pays to complain and rant and rave sometimes..........BUT, i was fine, not sure about my blodd pressure  :) .......I can say that i can really relate to your anxiety........JUST try and RELAX............Have a wonderful time.......Deb

[Indiana]

Knowing where those irrational fears and anxiety are comming from should help you. I always just laughed at stuff like that when I felt it comming on. I would always just start cussin' and talking to myself. Folks would ask me sometimes why and I just told them I was cussin at The Dragon. Nobody ever had the guts to ask me any more questions after that answer. hey just "Backed Away"  Hahahahahahaha
You'll be fine once you get into moving through all the motions of traveling.
Enjoy your time away.
Changes in lattitude....changes in attitude.

[woodbeegood]

i know it's easier said than done but try not to get yourself too worked up-maybe concentrate on how beautiful the mtns are- i just love them! i'm planning a trip to the beach this wknd myself-however when i mentioned it to my nurse she said to get a cbc today & "we would talk about it then" my plateletes & hbg are both low-but seem to be stable-is there something dramatic that happens in the second half of tx? wk 25 now-not complaining about the attention to my bloodwork just wondering if somehow i missed something somewhere-i "lurk" alot and really appreciate all the info i find here-even the debates-lol

[honey1616]

Susan,,,I know what your up against especially with you not feeling great today. That doesn't help as you know you are going to be away from your home. But,,,going to your mom and dads will be great if you not totally on top of things for first day or two.  Try to take it easy today and not overdo and I bet tomorrow you will be just fine!  Have fun!

Hi woodbegone,,My dr says 2nd half of tx should be pretty much smooth as by that time blood counts pretty much stabilize and if you have problems or need any boosters for blood usually its 1st half. Enjoy your trip to beach!

[jonihs]

Enjoy yourself and relax and come home refreshed! Maybe if your anxiety is too bad, get your Doc to give you xanax for the trip. It helps alot. I got to where I had to take it to leave the house. Let us know as soon as you get back.   Joni

[Ella Mackenzie]

What a great thread. I am leaving next month to go visit parents in Honolulu and have to take neupogen and procrit shots with me. I don't know how many times I have gone over and over the many different things that could go wrong at the airport, etc. I am so glad to know others have traveled safely and have had a good time as I am sure you will too.
Enjoy yourself

[cindee]

Hey...the mountains of NC...great smokies!!!! I love it there! I live about 2 hours away. The Biltmore House is in Asheville. Have you ever been there? It's absolutely beautiful! SO much history in that castle!!!! And just think, while you are there...no humidity!!!! The air is so fresh and clean. The mountains of NC, you couldn't be going to a more beautiful place! My Aunt has a house in Little Rocky MT. It's between Blowing Rock and Boone. You can hear the whistle of Tweetsie Railroad. It's 5 miles straight up the mountain...my uncle used to say, "you can't drive too fast going up here, cuz you could run into the back of your own car!" LOL There's also a house close by...it's named "HO-HUM". The story behind that is...they where trying to name the mountain house, and they couldn't decide..so it was way up in the wee hours of the morning, they all decided, that the next thing anybody said, they were going to name it that! With that, one of the brothers leaned back in his chair and sighed....."Ho-Hum". So that's the name of the mountain house! My Aunt's is called "THE HIGH LIVING BARKLEY'S". I think that is cute! Well girl, you have a wonderful flight and a wonderful visit with your parents!!!! I'm sure you will both be so happy to see each other!!!!!! I envy YOU!!!!! LOL Wish I was going!!!!! I will keep you in my thoughts and in my prayers!!!! Much love, Cindee

[rsterling]

Sorry to cut in on thread but the one above was full.

Welcome Wrench,

I have just gone through all this in CA regarding FMLA, SDI(State Disability Insurance), and SSI(Social Security Insurance).  The Corporation I worked for has locations all over the United States.  I thought I would get to stay quiet about my illness through protection of the law, but that wasn't the case.  Not when you request your FMLA.  If you're in CA, you will see why when you see the forms.  I believe it's a great idea to inform your employer, simply for the protection of your job.  THEY are bound legally to protect your privacy from your co-workers.  Because my job was very physical the doc put me on disability which paid 60% of my wages.  What a nightmare!  The Short term disability the company pays, and the long term disability I pay for, are pretty much waste as it is offset to your SDI.  If you go on disability or work part time and then collect partial disability, you will earn no more than the 60% the state allots.  Anymore than that will be deducted from your disability.  I was told that I would have to wait 1 week for my benefits to begin.  NOT that I wouldn't get paid for that week at all.  Nor that since there is no direct deposit for disability, that due to Sundays, holiday's etc.. it would be over a month and half before I received any income at all.  Not only that, but relying on the mail, meant most of the time so far, it's 3 or 4 weeks sometimes between checks.  Didn't have a clue.  There is so much more.  This began at the end of April, and is barely becoming more stable.  I have gone through this so far knowing that there should be a program or services for people with disabilities, to help walk them through all the red tape, and be able to tell them with certainty, what to expect to be able to plan for themselves and their families.  Many times I was given the wrong information from the SDI, or HR, or other government agencies.  Especially, between agencies.
Anyway, if you have any questions you feel aren't answered by certain  agencies, please feel free to ask if you're in CA.

Thanks Robin

[DH Bill]

OK... I'm getting jealous... Will someone take me taveling with them... cruise, Honolulu hey Arizona will do, I'll even go to Canada if they will let me in : )

[cindee]

Hey girl, I am so proud of you! I can't tell you how happy I am that you are starting to feel better each day. I love you so very much too. I don't care if we sound Mushy!!!! LOL I have e-mailed Sandi a couple of prayers, but I haven't heard back from her. I will email her right now and ask her to get in touch with you. I think she was having trouble getting "out" on her "puter", but she can receive e-mail. I'll find out. Right now. She was talking about putting it in the shop for repairs. Last I read, she had taken that fall down the stadium steps! OUCH! But said she was okay. I will talk with you soon. And YES YOU will always be one of my best friends....and always in my thoughts and prayers. Helen and I are going to meet somewhere in NC after Christmas. She has family there and I'm not but an hour away from NC. I can't wait to meet her. I WISH you and I will meet someday. I will pray for that too! You keep feeling better now...ya hear? I can't wait until a yr from now when I hear the word "cleared" from you!!!!! And maybe with my next tx I will be svr!!!!! Honey posted to me...did ya hear about my back???? Read it! I was in bad shape this am and all day, but since I've taken all my morphine for the day, I am feeling MUCH better! Hugs and kisses, Cindee

[Dorothy and Toto]

We all feel just like you are feeling before a trip.  It is amazing how these meds can wind you up.  I have traveled a dozen times the past 6 mos. on treatment and the only way I keep sane is pack way ahead as it takes me twice as long to do so.  I can't even decide what to pack and walk around talking to myself that I can't think clearly enough to pack!  But it always gets done and you can buy almost anything you forget.  The main thing is to get enough sleep and keep calm and that is where the Xanax comes in real handy.  Have a great trip both of you.  I am going back to the Smokies to see my mother in law (my 5th trip in 6 mos) in Oct.  Dot

[DebbieDo]

Just found out I will  be traveling again to my sons engagement party..........Nothing like the announcement of my sons engagement to perk me up  :)~    He proposed to her in an alpine meadow while hiking the "Wonderland Trail' at Mt Rainier in WA.......how romantic.......can't wait to hear the details.....I have been waiting for this moment for several years.........Never thought it would happen now....maybe in another couple of yrs, but not now..Good News always happens when you least expect it........IM sooooooooo excited....
                    Deb  :)~

[oldhippiechick67]

All threads are in use, not able to start a new one, so thought I would post one here.  There is a new movie coming out about The Band, The Grateful Dead, and Janis Joplin called the "Festival Express" which is funny cuz I always called this treatment for Hep C the "Pegasys Express".  Anyhoooo, go to this site and check it out!  www.festivalexpress.com   I guess they need our interest to keep it showing so it can come to a town near you.

[cuteus]

I can't get into your site to check stats and update mine. Says page can not be displayed. what is the direct url?
when is your next pcr? Hope you are well. you sound GREAT.

[pjxak]

Hi - I'm an old hippie chick too.  I checked out the website you suggested.  I definitely want to see the movie.  I have mixed feelings about that era but mostly look back with fond memories of the characters I knew then.  Many of my best friends today I met then.  Yes, amazingly, most of use are still alive to talk about it... I guess my attitude then--- I should try everything at once - and love of life got me into the pickle I'm in today, but I can't turn back time so I just try to take the good and the bad and learn from it.   Pam

[ringeding]

hey auggie, yup...i was a janis wantabe for ever.....still get up from time to time to sing a few....tried that site, but they want you to download some program first, of course being synical, i didn't...but i would definately see the movie....it would almost be like watching old home movies i am sure hahaha

hope your feeling good these days....stay cool
kimmy

[cindee]

Hey girl....Congratulations on your son's up-coming wedding! That was very romatic how he proposed!!! It was precious! I know you are so proud of him. I meant to post to you earlier, it just slipped my mind.....what's left of it!!! LOL I am so happy for you and you're "new" family! I hope you are doin good these days. You are always in my thoughts and prayers! Much love @ many prayers, Cindee

[oldhippiechick67]

Cuteus - I dont know why you cant get to the page to add your info, sometimes they have glitches and it acts up like that.
I tried to put stuff for a few ppl so they could have their personal story by clicking on their name.  But I ran into troubles and a lot of them wouldnt link/connect.  You still have my email dontcha.  Cuz I can update your stuff...also try "contacting webmaster" and I will get it that way also.
My PCR test is in mid Sept.  Yes I am anxious.!!  I am feeling much, much better.
Ringers - you goof ball! You should download it anyways. The site has short film clips about some of the folks/bands who were on the train for that concert across Canada.  They said they drank the train dry and stopped across the tracks from a liquor store and bought them just about out of stock...lol, those darn kids !!  Anyways, also there is talk of Hollywood making another movie of Janis Joplin played by Rene Zellwigger (can you imagine that? she's a good actress though) or Pink.
Ta ta 4 now!

[cactus jack]

Just be careful....I live here northwest of Asheville, and I'm dangerous.   I ended tx over a year ago , but still have RibaRage.   Once while on tx, I rammed a flat lander for not going when he was supposed to at a green light. Be afraid.
   By the way......the temperature is 76 right now.  2:30 pm.

[Showboat]

Thanks for the site....very cool....Hey, I cannot get into your site either...I have tried on and off for at least one and a half months..........okay...back to Janis:::::::

When I lived in Los Angeles I saw a play/musical about Janis based on the book her sister wrote about her. (Janis's letters to home were printed in this book...it was such a revelation to "see" the homegirl, Janis..very sweet, but needy soul)  It chronicled Janis's life as she continued in the music world.  I have the book also.  The play utilize a "first" person (Janis) as a "front" person talking (in first person) to the audience.  She is actually repeating or verbalizing (quoteting) letters that she wrote home to her family about her life "on the road" and on the rode of life.  As she recites these words to the audience, a "background" begins behind the "talking" Janis, and scenes are played out with a "singing" Janis and the different people she interacts and sings with through out her life.  Hard to explain, but was AWESOME....the girl that played the singing Janis was fantastic, sounded very close to Janis's voice ........It was like being thrown back in time......the band(s) and "Janis" gave "mini concert performances" at least 50 per cent of the "play".  It was mind blowing.....what a great performance. Gave me goose bumps and tears and a lump in my throat.........Hope Janis is singing now in her Paradise.  Thanks again for the site.