Aa
Treating hep C and Tsh levels from .06 last month to 45.85
I've been treating hep C for 13 weeks now.
On the 6th week my TSH levels were less then .06
I saw an endo and was diagnosed with thyroiditis and hashimoto's and was told she didn't need to treat me now...
Around week 10 Effexor was added to the mix...I was way to weepy and way to nasty...
Week 11 my blood pressure was dropping 40 points, so the doctor (internist) lowered my toprol, and then took it away completly the following week.
A blood test done on Monday brings my TSH level at 45.85
Does anyone have a clue what could be happening here...
I just got this info and won't be able to get the endo or my internist til tomorrow.....
Thanks for any and all help!
Donna
On the 6th week my TSH levels were less then .06
I saw an endo and was diagnosed with thyroiditis and hashimoto's and was told she didn't need to treat me now...
Around week 10 Effexor was added to the mix...I was way to weepy and way to nasty...
Week 11 my blood pressure was dropping 40 points, so the doctor (internist) lowered my toprol, and then took it away completly the following week.
A blood test done on Monday brings my TSH level at 45.85
Does anyone have a clue what could be happening here...
I just got this info and won't be able to get the endo or my internist til tomorrow.....
Thanks for any and all help!
Donna
================================================================
Quote from Califia______
NY, noted your comment about how relatively benign hypothyridism is. Well, maybe not. For starters, low thyroid puts us at serious risk for heart disease, a higher percentage of risk, in fact, than high cholesteol, etc. I'll stop there with the grimness, but you might want to check out this collection of medical articles, mostly from The Journal of Clinical Endocrinology and Metabolism, posted at
http://www.hormoneandlongevitycenter.com/thyroidtreatments1/ .
I'm in the process of changing endos and trying to upgrade treatment options, not easy in HMO land, and I found this research really eye opening.
==================================================================
Has anyone been treated at this center for inf thyroid disorders ?
http://www.hormoneandlongevitycenter.com/thyroidtreatments1/
Is this legit info on hypothyroidism ?
If so, thats very disturbing info for any of us suffering from inf induced thyroid problems.
Had no idea thyroid disorders caused so many other very serious health problems.
My tsh has gone high and low... now back to 2.94 at wk 18 of tx.
From reading info on the above site, it seems proper thyroid testing is a lot more complicated than just tsh, f3, f4.
What are Tissue levels of T3?
Has anyone after tx, with normal TSH, ever had rT3 and the T3/rT3 ratio tested ?
apache
Quote from Califia______
NY, noted your comment about how relatively benign hypothyridism is. Well, maybe not. For starters, low thyroid puts us at serious risk for heart disease, a higher percentage of risk, in fact, than high cholesteol, etc. I'll stop there with the grimness, but you might want to check out this collection of medical articles, mostly from The Journal of Clinical Endocrinology and Metabolism, posted at
http://www.hormoneandlongevitycenter.com/thyroidtreatments1/ .
I'm in the process of changing endos and trying to upgrade treatment options, not easy in HMO land, and I found this research really eye opening.
==================================================================
Has anyone been treated at this center for inf thyroid disorders ?
http://www.hormoneandlongevitycenter.com/thyroidtreatments1/
Is this legit info on hypothyroidism ?
If so, thats very disturbing info for any of us suffering from inf induced thyroid problems.
Had no idea thyroid disorders caused so many other very serious health problems.
My tsh has gone high and low... now back to 2.94 at wk 18 of tx.
From reading info on the above site, it seems proper thyroid testing is a lot more complicated than just tsh, f3, f4.
What are Tissue levels of T3?
Has anyone after tx, with normal TSH, ever had rT3 and the T3/rT3 ratio tested ?
apache
Wyntre- I have to be honest I don't have a clue to the answer to your question...maybe someone with some knowledge will have a better insight...I'm so sorry I can't answer.
Califia- thanks so much for the link, I did read it, but with the meds and the brain fog....lol...it's a little moot at this point, so I bookmarked it for a time that I could comprehend what I'm reading....I appreciate that you took the time to post it for me.
The endo called me back last night, and told me not to worry, she wants me to get retested in a month and then go back to see her. She said with the hashimoto/thyroiditis that the TSH goes low and high...she's looking for a trend right now. She said she may have to put me on Synthroid, but we'll know more when I take the next blood test or 2.
Thanks everyone for your insight and your knowledge!
Donna
Califia- thanks so much for the link, I did read it, but with the meds and the brain fog....lol...it's a little moot at this point, so I bookmarked it for a time that I could comprehend what I'm reading....I appreciate that you took the time to post it for me.
The endo called me back last night, and told me not to worry, she wants me to get retested in a month and then go back to see her. She said with the hashimoto/thyroiditis that the TSH goes low and high...she's looking for a trend right now. She said she may have to put me on Synthroid, but we'll know more when I take the next blood test or 2.
Thanks everyone for your insight and your knowledge!
Donna
Thank you 2 for your answers...it has at least eased my mind til I get to speak with the doctors today...
I have been very fatigued and short of breath but assumed it was from tx so I really never thought about it...
I also have had trouble sleeping, and hands have started shaking too...and assumed it was tx too, wonder if it's the thyroid too...
This is so screwy, not knowing which organ to blame...lolol
Thanks again your input has been much appreciated...I'll try to keep you updated....hopefully I'll remember to come back and write!
Donna
I have been very fatigued and short of breath but assumed it was from tx so I really never thought about it...
I also have had trouble sleeping, and hands have started shaking too...and assumed it was tx too, wonder if it's the thyroid too...
This is so screwy, not knowing which organ to blame...lolol
Thanks again your input has been much appreciated...I'll try to keep you updated....hopefully I'll remember to come back and write!
Donna
Sorry to interrupt the thread but I'm dying to know if high HgB levels are an indicator of thyroid malfunction?
Someone said (sorry can't remember who) that it can cause loss of oxygen - i'm pretty dense about these things - and what i'm trying to find out is whether thyroid problems are associated with high hgb, low hgB or neither?
Angels, did you get your results yet?
Wyntre
Someone said (sorry can't remember who) that it can cause loss of oxygen - i'm pretty dense about these things - and what i'm trying to find out is whether thyroid problems are associated with high hgb, low hgB or neither?
Angels, did you get your results yet?
Wyntre
Good luck with your tests wyntre, and yes, this is one hell of a ride...I hope it's to SVR for all!
Donna
Donna
And Donna, the following info is not necessarily what you need to read right now--you have enough on your plate! Best of luck to you. (Btw, I'm curently on 200 mcg of Levothroid. During tx my dosage had to be raised to 275 mcg.)
NY, noted your comment about how relatively benign hypothyridism is. Well, maybe not. For starters, low thyroid puts us at serious risk for heart disease, a higher percentage of risk, in fact, than high cholesteol, etc. I'll stop there with the grimness, but you might want to check out this collection of medical articles, mostly from The Journal of Clinical Endocrinology and Metabolism, posted at http://www.hormoneandlongevitycenter.com/thyroidtreatments1/ . I'm in the process of changing endos and trying to upgrade treatment options, not easy in HMO land, and I found this research really eye opening.
NY, noted your comment about how relatively benign hypothyridism is. Well, maybe not. For starters, low thyroid puts us at serious risk for heart disease, a higher percentage of risk, in fact, than high cholesteol, etc. I'll stop there with the grimness, but you might want to check out this collection of medical articles, mostly from The Journal of Clinical Endocrinology and Metabolism, posted at http://www.hormoneandlongevitycenter.com/thyroidtreatments1/ . I'm in the process of changing endos and trying to upgrade treatment options, not easy in HMO land, and I found this research really eye opening.
Thanks for all the info NYGirl I really appreciate it...I left a message this morning with the endo so hopefully she'll get back to me soon...she's one of those bigwig's and sometimes it takes a little time for her to get back, but she's supposed to be the best around...sometimes I'm not sure if the best is good or mediocre is good, at least the mediocre ones get back to you faster..lol
Thanks again, it's always good to hear from someone who's been there and done that!
Donna
Thanks again, it's always good to hear from someone who's been there and done that!
Donna
The interferon wrecked my thyroid as well. First it went insanely hyper and then in only three weeks it went completely hypo. This is very common and most likely exactly what happened to you.
I take Synthroid on a daily basis. One pill 88mcg (started on 75 and he upped me later).
You will go for a nuclear imaging scan to find out what the exact real deal is. The first day you take two of the iodine pills then exactly 24 hours later they will do the imaging scan. You just lay there and take a nap and the machine is sort of like an open MRI.
Then the endo will prescribe you a pill to fix the problem.
This is known as an autoimmune disease. For some reason your body thought that the thyroid was bad bad bad like the virus and so it used the meds to not only kill the hep but also kill the thyroid.
It sucks but at least a daily pill for the rest of your life will control it.
You are extremely hypo right now so make sure you stay on top of this and make appointments as quickly as you can.
One thing - it's better to be hypo rather then hyper. When you are hyper they generally radiate the thyroid to kill it and then remove it. With hypo...they don't. It happened to my cousin and she couldn't even touch her children for 3 days because she literally was 'glowing' from the radiation if you get what I mean. Also hyper can cause in addition to drastic weight loss and hair loss (what happened to me) it can screw up your heart and give you what they call thyroid storm...and you have a massive heart attack.
So if you have to be either - at least the one you have it safer.
Good luck Angel...there are plenty of us on here who have gone through this and will be more than glad to help talk you through it.
I take Synthroid on a daily basis. One pill 88mcg (started on 75 and he upped me later).
You will go for a nuclear imaging scan to find out what the exact real deal is. The first day you take two of the iodine pills then exactly 24 hours later they will do the imaging scan. You just lay there and take a nap and the machine is sort of like an open MRI.
Then the endo will prescribe you a pill to fix the problem.
This is known as an autoimmune disease. For some reason your body thought that the thyroid was bad bad bad like the virus and so it used the meds to not only kill the hep but also kill the thyroid.
It sucks but at least a daily pill for the rest of your life will control it.
You are extremely hypo right now so make sure you stay on top of this and make appointments as quickly as you can.
One thing - it's better to be hypo rather then hyper. When you are hyper they generally radiate the thyroid to kill it and then remove it. With hypo...they don't. It happened to my cousin and she couldn't even touch her children for 3 days because she literally was 'glowing' from the radiation if you get what I mean. Also hyper can cause in addition to drastic weight loss and hair loss (what happened to me) it can screw up your heart and give you what they call thyroid storm...and you have a massive heart attack.
So if you have to be either - at least the one you have it safer.
Good luck Angel...there are plenty of us on here who have gone through this and will be more than glad to help talk you through it.
You surely have my sympathy on this one. This current TSH level means you've gone really hypothyroid. Your endo will put you on replacement hormone and will keep adjusting the dosage so you stay somewhere within normal lab range. Interferon treatment frequently causes the immune system to go into overdrive and developing thyroid antibodies (Hashimoto's) can be one result. When you're hypo you tend to be terribly fatigued and short of breath because the circulation of oxygen has decreased. So take it as easy as you can.
I am going through the thyroid hell at the moment too, but I am not as advanced as you.
It may seem that my doctor is a little more informative though.
That is of course if your thyroid problems are a result of the tx and not just a nasty coincidence.
My TSH level was .05 a couple of weeks ago and my T4's and T3's quite elevated. I was told that it was the interferon that causes it. Last week the TSH was still .05 but the T4 and T3 was half that of the week before.. I have ANOTHER test next week which also includes thyroid tissue antibodies ~~~~ we ( the doc and I ) are expecting higher TSH levels and much lower T4's and T3's. Or if not a dramatic change a following of that trend so to speak.
My doc said we would monitor my bloods and add medication as needed. She also added that I was to be aware that this is quite common with tx AND it is most likely that the problem will swing the other way soon enough.
It looks like yours has swung the other way and you are now suffering from HYPOthyroidism rather than the previous HYPERthyroidism.
I could be totally wrong here but I would suggest you talk to your doctor as soon as you can and ask what the hell is going on - they need to keep you informed.
good luck :)
It may seem that my doctor is a little more informative though.
That is of course if your thyroid problems are a result of the tx and not just a nasty coincidence.
My TSH level was .05 a couple of weeks ago and my T4's and T3's quite elevated. I was told that it was the interferon that causes it. Last week the TSH was still .05 but the T4 and T3 was half that of the week before.. I have ANOTHER test next week which also includes thyroid tissue antibodies ~~~~ we ( the doc and I ) are expecting higher TSH levels and much lower T4's and T3's. Or if not a dramatic change a following of that trend so to speak.
My doc said we would monitor my bloods and add medication as needed. She also added that I was to be aware that this is quite common with tx AND it is most likely that the problem will swing the other way soon enough.
It looks like yours has swung the other way and you are now suffering from HYPOthyroidism rather than the previous HYPERthyroidism.
I could be totally wrong here but I would suggest you talk to your doctor as soon as you can and ask what the hell is going on - they need to keep you informed.
good luck :)
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