The research coordinator received a fax saying that I am eligible to continue treatment beyond 24 weeks. So, as I suspected, I am in arm A or B. I am positive I am in B though. That means I have taken Telepravir for 24 weeks.
The wording of the fax did not indicate whether I am in A or B, just that I will continue taking Interferon and Riba for the next 24 weeks. It implies that I was still undetectable as of 20 weeks.
I'm sorry about the cog feeling. I wish there was something I could say ....all I can say is that someone(s) understands what you are saying.....and is there for you. Not just me and that's for damn sure. I get the sense that you ...hahaha....Captain Your Own Ship and this must be beyond the pale for you in terms of feeling like you are running your own life.
This is good news...you are still und..!!!
As I mentioned last week we got a fax having Amanda repeat her 20 week VL, which we did on Friday...going crazy awaiting the results...although we wont really get results...not sure what we will get...I wonder if everyone gets some sort of fax from their 20 week visit...her 24 week visit is Monday...we already know she is in group C...just praying the repeat was not due to suspected breakthrough.
miked: I am in week 23 now. I have very mixed feeling about continuing. There is no data to indicate how that will change the probability of SVR for me. Intuitively, we all probably feel it will improve it, but no one knows by how much and if it is worth giving up another 24 weeks of life.
Deb: I just saw the etymology for "beyond the pale": during the 17th century, it meant beyond the jurisdiction of the local government. The pale being the town. I hope I didn't bore you with that - LOL.
TravelMom: I think the people in Groups C will not get a fax, since they already know they will stop at week 24. I really hope things work out for Amanda.
he only data we have is that SOC did not work at least once. Biotech ain't high tech and that you are a beta site sucks but we all signed up for this.
I have no idea of how 12 or 24 really effect SVR, but I do know much more than simple logic is needed to understand what is rally going on. I am ambivalent abut B or D. What I am sure of is that I want the beast dead.
Good luck with whatever happens.
You should start feeling better soon if you're in Arm B.
Do you have to wait until your 26 week appt. or will your clinic concact you when they get the results?
It will be interesting to see how your Hgb responds to no more Telaprevir.
I can't wait to see what our VL's have been doing the last 6 mos!!!
Congratulations - sounds like good news to me. I give you alot of credit going thru tx 7 times. I don't think I will tx again unless there are more studies with geno 2's. Unless they can try to figure out why 10 per cent of my geno type don't svr, when 90% do, then I don't want to bother. If my damage was more than what it is (0) I would then I guess.
I hope and pray you achieve svr this time. My heart truly goes out to you and others that have relapsed so many times. That's too much disapointment for me to deal with, thats another reason I probably wouldn't tx.
I was using High tech in the colloquial sense to refer to the computer technology industry and its practices where alpha was beta and beta was release 1.
in any event it is super news that you are doing so well.
Congratulations! It sounds like 8 times is the charm!
Knowing what my husband went through going through treatment twice, I dont' know how you're doing it.
You've mentioned that this is your hardest treatment yet, and I suspect it's the telepravir that's making the difference. If I'm understanding you correctly, the next 24 weeks will just be SOC. If that's so, I'm hoping that your side effects lessen and that you "sail" through the rest of treatment.
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