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What's the lowest Hemoglobin level before transfusion??
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What's the lowest Hemoglobin level before transfusion??

How low can ones hemoglobin go before a transfusion is necessary?
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Avatar_m_tn
I was down in the 8's and believe nygirl was also that low for awhile.  BeagleBaily was down much lower, and I believe in the 6's or less before getting a red-packed transfusion.  I've also heard of folks near 9 or in the 8's receiving them too though, so I guess it depends upon your doctor who may take other factors into consideration to decide what cellar should be used for their patient.
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140622_tn?1190102529
Thank you for responding.
Mine is 8. So I'm going up to 60,000iu of Procrit tomorrow and dose reducing from 1200mg Riba to 600mg.
I'm not happy about it. I'm on week 10 and will get my 2nd viral load result next week.
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92903_tn?1309908311
I was in the low sevens for a while - but my doc was unaware. Afterwards he said he would have transfused...
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264121_tn?1313033056
B-bunch - Somewhere between 8 and 8.5 is definitely the time to get your doctor involved or go to the ER (if you're doing your cbc's outside your hep doc's office).  The reason is that you can drop dramatically in a short amount of time, and more dangerously perhaps, your potassium can become very unstable causing heart arrythmias.  Those are associated with mortality in a big way.  Its dangerous at that point to kind of go it alone per se, without letting your doc know where you're at so he can check everything.

I've received transfusions twice already in tx.  This is my tenth week of tx.  I DID have a type of normocytic anemia for which I was already taking epogen prior to tx, so I knew this would be a problem, just had no idea the magnitude of it.

The first time I went in was about three or four weeks in when my blood count went to about 8.7
While at the ER, it dropped to 7.9.  They gave me two units of blood and buttload of potassium.  I was upped to 40,000 units of epogen twice per week.

I missed one dose of epogen last Tuesday.  Earlly Friday morning I went in for an endoscopy and colonoscopy.  The doc there failed to freakin' mention that my hgb was only 7.3.  I even asked the bloody man for a copy of the morning's cbc, he said it had been fine.  that they'd fax it to me later.  After we left I kept vomiting and just knew things weren't fine.  Plus the nurse was staring at me so intently while telling me to go to the ER if anything was wrong, kept saying it over and over again, that I thought either something was up, or the two of us were becoming soul sisters and I'd forgotten my lines.

In the end we had to go the ER because we couldnt make the forty minute ride back with me puking.  By the time I got there and even after they got the permission and matched and typed me and put one unit in, my hgb was at 6.3.  I got I cannot even tell you how much IV potassium, then liquid oral potassium the next day.  Then two more units of blood the next day.  My count is up to 11.4 now.  

But I would really say don't let it go below 8 without notifying your doc.  And hey, ask your doc too what he or she feels comfortable with you having as a cut off.  That's my deal with my doc, that I don't go below that without coming in.  The doc I was doing the procedure with was not my regular guy unfortunately.

In terms of technically how low someone's blood can go prior to having to have a transfusion, the answer is, it can sometimes go surprisingly low, but its very risky.  It is safer in people who frequently have low blood counts.  For instance, sickle cell patients frequently do unfotunately get into the 5's and 6's and can perhaps sustain a bit better without going into shock because their body is used to that happening.  In a man used to having an hgb of 16.4. its a different story to suddenly tank down that low.  And again, the risk frequently that is most deadly is the loss of potassium and different metabolites that comes with this loss of volume.  Docs usually will transfuse between 6 - 8 dependent upon the doc, why the hgb is low, and other factors.  They do have to transfuse with hgb sometimes if its very low because you are still taking the hemolytic agent, ribavirin, so even if they put you on procrit, it will still take some time for your body to catch up with production.  So they give you a bit of a head start.

Most of all though, so sorry you are going through issues with your blood count. Whatever we can do to help in terms of advice or support, Let us know.
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Avatar_n_tn
With a cbc showing a hgb of 7 my 81 year old mother was given a transfusion last year.  Now, almost a year later to the date, she started experiencing the same syptoms (symptoms) of fatigue, shortness of breath, painful night cramping in her legs, etc.  She has lost weight over the last year as well.. and not because she was trying.  She tested at 10 in May, within a month she is now down to 7 again.  She is a diabetic and  had open heart surgery years ago, They say she tests fine on the heart, they find no internal bleeding, and the next step is a bone marrow test which she is having done today. Any thoughts?  
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Avatar_n_tn
My doc usually transfusses at 8, but really depends on patient. I have been 7.6, 7.5 and am now 7.3, but feeling fine and not transfusing. I have had my counts dropping over such a long pd. of time (10 months), my body has adjusted and compensated.
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Avatar_f_tn
For most of my 22 weeks of tx, my hgb has been between 9.0 and 9.5. Last week it dropped to 8.5 and I got the call to reduce riba from 1000 to 800 and put the order in for procrit. I was told if it dropped further we might have to look at transfusion which pretty much freaked me out. I did not want to reduce the riba but once I began to understood the dangers associated with the very low hgb, I did it. Within 4 days of the reduced riba, my hgb went up to 9.6 and boy could I tell a difference. The 8.5 was nearly incapacitating and I did not even realize how bad I felt. Yesterday, started back to 1000 riba and took my first procrit shot, which was not too bad at all.

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647958_tn?1223750995
I'm a little concerned about my hgb levels and what we are going to go about to fix this problem. I am 31 weeks pregnant. When I was 5 weeks they drew my blood and my hgb level was 12. I went in to the doctors this last week (at 31 weeks pregnant) and it's dropped to 8. My symptoms have been vomiting, diarrhea, dizziness, terrible leg cramps (at night especially), sudden rapid heart rate, a feeling of warmth throughout my whole body, terrible FATIGUE, no energy, headaches, and constant nausea. My doctor hasnt really told me anything other than she believes I could have internal bleeding and I've developed pregnancy anemia and she is going to monitor me very closely and she is still trying to figure out what she is going to go about doing. I just think she doesnt want to worry me with the baby and everything, and I didn't ask any questions because I had NOOO idea how serious this is. I dont want to go into anything blindly and unaware of what may need to be done. Can anyone tell me what they think or what may need to be done. I just want a healthy baby, I'd love to feel better, but my little girl is my main focus!!! Thank you so much for your time.
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Avatar_n_tn
Im so scared and want to cry. my mom has aplastic anemia for the past 3 years and her hemoglobin has dropped within 1 week from 9.0 to 8.7 last night in emergency to 7.6.  she has been given procrit injections in the past but the doctor gave her a 3 week break and since then her levels are out of wack. we dont want to do a transfusion because i am afraid of the risks associated with it.  has anyone out there had this situation?  can she make it until the procrit injections kick in. scared in sj.
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144210_tn?1273092382
I don't think a transfusion is anything to worry about. Procrit takes a little while to work. Trust the doctor.
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Avatar_f_tn
Let procrit work, transfusions are  not fun,  I had mine at  8.2 I think.  yes, I think she will be ok, a lot of rest,    Our bodies can adjust to lower oxygen levels.   Try not to worry
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Avatar_m_tn
You really have to lean on the doctors here, but perhaps a consult with a hematologist is in order. Preferably one not affiliated with your current doctor or their hospital. The type of anemia most here are familiar with (none of us are doctors btw) is hemolytic anemia caused by ribavirin during hcv treatment. From that limited knowledge, yanking someone off of Procrit completely for three weeks sounds kind of like bad medicine. In the case of hemolytic anemia, the dose probably would have been reduced gradually and hgb levels monitored. How experienced is your doctor?

-- Jim
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Avatar_n_tn
When I had to have an emergency transfusion about two years ago, my hemoglobin level got down to 2.5...they said it is the lowest they have ever seen. I had anemia for a while, as you can imagine, and recently a CBC confirmed that it is now up to 12 and I've been doing pretty good. Definitely if it gets about 8/9 or lower you should take it seriously. Don't take any chances, and transfusions aren't scary. They definitely saved my life!
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547836_tn?1302836432
i don't know, but i don't like the idea of getting a transfusion bc that's the most likely reason i got hcv when i was a baby.  so try to avoid if you can help it
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Avatar_f_tn
i am 17, and since i was 13 i have been recieving transfusions. i am a notified anemic and a diabetic. i have dedicated my responsibilities to taking my iron and other meds- but for some reason they don't seem to be working- the doctors are starting to doubt that i'm taking my pills but i have damit and the lowest my blood count has gone down to was a 4.5 , now looking and reading that you've reached 2.5 scares me- because recently i am being admitted again to start taking iron iv- in which i heard there are risks but i cannot live breathless and unable to do certain things in my life- its like im a senior i want to enjoy it- but these setbacks are killing me - i have 5 doctors & im just not sure there opinon is helping out my situation, it's gotten to the point where i cannot shower without having to take breaks- so i should i have any conerns other than the many i have now?
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1117750_tn?1307390169
1200 to 600 mg  your funeral my friend drop to 1000 mg max especialy if they give you epo
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Avatar_f_tn
I collapsed at home with hgb at 7.4.  They transfused me in ER.
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Avatar_f_tn
Oh my goodness, I thought I had the lowest hemoglobin record yet, but 2.5???  You got me, I can't believe you survived it, but I'm happy you have!!!

I was just released from the hospital last night beginning with a hemoglobin of 3.2 on Thursday morning (my mom took me to the emergency room).  It was crazy, but this is not the first time for me (it happened 2 years ago to me as well.  Anyway, they released me when it got back up to 9.2 after 4 blood transfusions.  Even though I really didn't want them, they saved my life.  My veins kept collapsing, so there were like 8 doctors in the emergency room and they finally had to stick the IV in my neck.  What a week!  I never knew that I could feel this much better, and really wish that my family and friends could understand more what I went through.  My heart palpitated uncontrollably, and my tonge was like clay.  It was like there was absolutely no blood pulsing through me, and I was so depressed.  I even lost my boyfriend over this thing and Cancer, but I think the Anemia issue was worse (though it was more curable).  Well, just wanted to share.  Glad that you are doing better, I'm home in bed right now drinking molasses, eating liver, and popping iron pills!!! :)
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Avatar_f_tn
Hello,

I just read your post, and I do understand.  Please see my last post below yours on the forum.  My lowest point was 3.2, and I had to get 4 blood transfusions between Thursday and yesterday of this week.  On my way to the hospital on Thursday, I decided to shower, but, it took everything out of me.  I have been going to work every day like this (I'm 36 years old), and everything has been a drag.  My question to you is, are you bleeding anywhere (internally), or is your stool dark?  Are you craving anything like asprin, or any other non-edible thing?  Have they done any colonoscopy's on you to see what might be going on inside of you?  Also, are you working with a hemotologist to address your issues?  If you are still fighting this, I would be interested in knowing.  I am not a doctor or anything, but I know what it feels like, trust me, it's not fun, and it's stealing your life from you.  You don't deserve that.  You are too you.  In the meantime, God Bless, and remember to take Vitamin C with your iron, and consume iron rich FOODS along with your supplements and shots.  That works well also.  Best of luck to you and God Speed!
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1412365_tn?1281716229
My hemoglobin was 10.2. I went to the ER because of dizziness. I already know I have Thalassemia Minor trait but I have been feeling so tired and fatigued lately. I fall asleep during pretty much every car ride and it's the worst. And I can't seem to keep my eyes open. Even at home sometimes I go to bed early and sleep so much. Is this a bad sign? Plus I had a patch of hair on my head fall out. I didn't know it until my stylist told me that I had a patch missing in the back of my head. That was scary. What can i eat to help give me more energy so I can at least fuction.
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Avatar_f_tn
I think it all depends on why your count was so low.  If you have a disease or illness which makes your counts low continuously, your doctor will probably tranfuse more often.  After the birth of my 1st child my count dropped to 4.5 and I refused a blood transfusion.  Took a few months, but with iron pills and a high iron diet,  eventually it was back up to the 10-11 range.  I know someone recently that had the bloodless surgery (for religious reasons) and theirs got down below 2.  She is better now, but it took a long time.  It is scary dangerous to get that low, especially after surgery.  So best bet would be to talk to your doc about it.  If you don't want blood find out how low they are comfortable with it being before forcing the issue.
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1491755_tn?1333204962
It's because of medication for Hep C. Didn't you see the post about Ribavirin reduction ? RIBA messes with your blood counts we pretty much all from low blood counts due to medication.  
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Avatar_f_tn
hi im sue and im aving lots of problems at the min ive been the docs today my hemo was 6.7 several months ago i didnt know my stools r black at times in colour now ive been back again the doc wants me to go back the hospital asap to get some test she seems to think i ave an enlarged liver ave i got that right bloods in the morning being taken at the clinic she is trying to get the consultant by phone she did say i would be dead in days but never said anything else i never asked im on champix to stop smoking but im anemic after a blood being given me in the 80s after pregnancy i also ave enlarged lungs so im only 49 some of its my fault yes i know but the other i ave no idea wait 4 ur reply nice to see some 1 else is on the other end xx
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179856_tn?1333550962
Make sure you get the PCR test to see if you have a viral load then you will know if you have hepc.  If you do and you are predisposed to anemia it is going to be a tricky thing to  manage and most likely you will need Procrit the entire time to keep your body making red blood cells.

All you can do is test then get a heptologist and move on step by step from there.

I hope you dont have it but if you do it's not the end of the world usually there is time to treat.

Good luck.
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Avatar_n_tn
We took my 20 yr old daughter to ER on Friday because iof continuous anemia, and the recent addition of night sweats and digestive issues (more bowel mvmnts than normal, diareah, stomach cramps).  her Hemog level was 9.9 on Friday. They ct scanned and unltrasounded her abdonmen and found both her ovaries have loarge mass on them, and another mass behind that. Did biopsy yesterday and now we have to wait till TUES (holiday weekend) to get results. In the meantime her hemg has now dropped to 8.4 and they are doing a transfusiion.naturally i am not very hopeful that the masses are just cysts. 8.4 seems very anemic, lethargic, seems difficult to even speak much, just laying there dozing ona nd off. I am hoping this transfusion will give her a little xtra energy. So unbelievable. totally healthy otherwise
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Avatar_n_tn
hi,
im 27,  very worried as my hb level is down to 4 and my b12 level is 86, i suffer with heavy bleeding as i have endometriosis and fibroids. im also taking warfarin due to a prevoius blood clot. i had a blood & iron transfusion abt 3yrs ago.
my gp has only given me iron tabllets 200mg.
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179856_tn?1333550962
If your hemo is in the 4s I can't imagine that your doctor isn't taking immediate action and that you are even able to type.
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Avatar_m_tn

Hi there... you have severe anemia ,which can be caused by a number of things...some of which would need immediate attention. Often this type of anemia is caused by bleeding..which you say you have.  The iron and B12 def. could also  be caused by bleeding. You need to be seen by someone to  do  a thorough work up ,,to get to the cause of this.  If your Primary  has not done this ...get to emerg and hopfully they will do the proper testsToo much warifin can also cause bleeding...

Good luck...

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Avatar_n_tn
My mom is currently getting one. She was at 4.7!!!! But shes been receiving them weekly at about 7.5. That seemed to be the magic number (anything below 7.5). And shes been 7.1 6.3 5.9 etc. She was on hep c treatment drugs. Ribaviron will do it!
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Avatar_m_tn
I was 7.0 and stopped tx and kept taking procrit but did not transfuse.

I have ex-jw inlaws who knew people who went into the 4-6 category because they don't allow transfusions. some of them died as a result and those who survived were completely incapacitated until their hgb recovered.
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Avatar_f_tn
my hemoglobin stays low due to my heavy periods monthly ive had two transfusions already im suppose to take iron it makes me so sick my level is 7.9 now it was in the fives when i had my last transfusion my doctor call me and said he wants me to see a blood specialist.
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Avatar_f_tn
I had a problem with heavy bleeding and then I started counting days andI had been bleeding heavy for over a month! I think I was down below 8 and they transfused but it took a week for it to go up to 10. I have an enlarged spleen and I think that has alot to do with. I haven't started any treatment for Hep c because I think they are to worried that my count will plummet. Not sure what to do besides take iron capsules three times a day that my GP perscribed.
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Avatar_n_tn
My sister is in the hospital with a very bad wound related to her autoimmune disorder.  Her hgb is 7.5 and the doctor has talked to her about a blood transfer. She has never had a transfusion before and the doctor and facility seem incompetent, which has my family worried.  They were going to release her even though she said that she wasn't feeling well.  During the the discharge process her temp was taken (temp 103) and they checked her labs and her hbg 7.5.  So I'm on this forum looking for answer because I love my sister.  So please any answers would be helpful.  With love.  
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190885_tn?1333029491
thats too bad....i'll bring this to the top ..maybe someone can help....billy
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Avatar_n_tn
Thank you Billy
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Avatar_f_tn
I'm 19 years old and have had 28 blood transfusions to date. The lowest I  have been is 2.3. Fortunately I have stopped bleeding in my intestines (I have crohns's disease) and My normal is now around 9 because I am very small. It's very scary to be anemic and my family and the doctors didn't know if I would live when I was 2.3. The doctors  gave me blood too fast without enough hydration which caused a blood clot in my leg. A piece of the clot broke off  during a difficult four hour surgery. It travelled through a hole in my heart up to my brain and cause a stroke. I woke up from survey and could not speak or use my right side. So the lesson to be learned is even though it is not good to be below an 8 you can still live if you get a blood transfusion . And make sure they run the blood SLOWLY!! And with lots of fluids!
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Avatar_f_tn
I'm 19 years old and have had 28 blood transfusions to date. The lowest I  have been is 2.3. Fortunately I have stopped bleeding in my intestines (I have crohns's disease) and My normal is now around 9 because I am very small. It's very scary to be anemic and my family and the doctors didn't know if I would live when I was 2.3. The doctors  gave me blood too fast without enough hydration which caused a blood clot in my leg. A piece of the clot broke off  during a difficult four hour surgery. It travelled through a hole in my heart up to my brain and cause a stroke. I woke up from survey and could not speak or use my right side. So the lesson to be learned is even though it is not good to be below an 8 you can still live if you get a blood transfusion . And make sure they run the blood SLOWLY!! And with lots of fluids!
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Avatar_m_tn
Hi - I just found out my Hb is 8 and I feel dreadful. My doctor told me to take 600mg Ferrous Sulphate a day and to go  back to her in a month. There was no mention of a possible transfusion. Should I be asking for one?
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1280753_tn?1367761532
you might want to start a new thread with your question. i went down to 7 and i had to get 3 pints. did they lower your riba? are you going for weekly blood tests?
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Avatar_f_tn
My 5mth old baby boy had a hgb of 2.3
Doctors actually redrew. They were for sure this was a lab error,but to everyones surprise IT WASNT!
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Avatar_f_tn
Hi wonder if anyone can help?

My wife is 31 weeks pregant and Iron levels are low (8.7) the midwife said 11 is normal. She said if she was in hospital she would need a tranfusion but they have just given her iron tablets.

Is this right?! Or should she be in hospital?!
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Avatar_m_tn
Hello my, my wife is 16 weeks pregnet and her test was 9.2 is that bad or of concern, now that is what she tested at the OB's office but she was sent for more futher blood testing.
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Avatar_f_tn
this is a hep C forum, pregnant questions would be a different forum, whole different set of rules
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Avatar_m_tn
I am not a doctor but my GI became alarmed 19 weeks into treatment and my hmg continued to drop to 9.2.  The guidelines he told me was below 9.5 weakness becomes a Quality of Life issue and either Riba should be reduced (or stopped); below 8.5 it could be a Quanty of life issue.  I started Procrit which helped it climbed back to 9.7 and has at least stabilized.
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Avatar_f_tn
First thank you all for telling your story. They have helped me very much!!
My doctor told me today to go to ER my hemoglobin is 7.5. I knew I was animic  for years. I went to him because I have swollen painful heels. He thinks maybe Lupus or Arthritis. I am the sole provider for myself and my mother. I'm working 24 hour shifts for 3 more days. My plan is to go to the ER in 3 days. Last night I had heart palpatations . I eat a banana! And have been eating red meat for weeks.
Anyway, again thanks to all of you for sharing your story. If you think you have anything to share with me that may be helpful please do share. This is all very new to me. I'm scared because I'm the sole provider for my house hold. "Errrrr scary!
BTW I'm 58, Female, single for 13 years, without health ins. "Again ERRRRR Scary
Jerri Ellen
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1746242_tn?1318213302
I was in the 7.s and 8's I have had two. Feels so much better after, It seems as soon as I drop below 10 I crash fast!
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Avatar_f_tn
After having my fourth c section at 23 years old with all of them being under a year in part, my last c section i had my hemoglobin went down to a five till i finally got a blood transfusion because i collapsed on the floor cause dr friedman stated i should be healthy as a horse cause i was only 23,  untill a nurse tested me then thats when i got a transfusion at five.
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Avatar_f_tn
my hemoglobin is really low ive been to a bunch of drs and i finally found a good dr who says it could be me bleeding enternally or my liver what do i do
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Avatar_m_tn
Yes ..bleeding internally can be a definite cause of "severe anemia" however this site is for those dealing with HCV and the subsequent treatments of such. Do you have HCV? If not you may want to go to the "Liver Disorders " forum here at Med Help to discuss your problem

Good luck..
Will
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Avatar_m_tn
Yes ..bleeding internally can be a definite cause of "severe anemia" however this site is for those dealing with HCV and the subsequent treatments of such. Do you have HCV? If not you may want to go to the "Liver Disorders " forum here at Med Help to discuss your problem

Good luck..
Will
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Avatar_m_tn
hi, my wife went to her doctor last Wednesday but was told to wait 2 weeks for an apointment. Lucky she had a pre  arrangened apt at the hospital from months before to have a medical procedure. It was at this time they discovered her level was 3.0 and started to give her blood. BUT what would have happened if she had a waited fro the docotors aot next week?
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Avatar_f_tn
You should do something about low blood count at 10.0  If you wait for
8.0 its to low.  Walk into any hospital emergency room with a 8.0 and
you will be transfused on the spot.  I spent many years having a close
family member transfused.  8.0 is to low.  
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Avatar_m_tn
I have to agree. I was rushed to the hospital last week with a hemoglobin count of barely 3. I was told it was the lowest they had ever seen. I am not a weak person and I was able to function with levels around 6/7 for weeks.

However once I got down to the 3, I could not stand without blacking out. Not sure if I actually fainted, however it was how I would describe a blackout, everything just turned black.

I can not imagine a doctor allowing her to be at home with a 3. I was not allowed to leave the hospital until I received enough blood to get to an 8.
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Avatar_f_tn
The lowest hemoglobin before a transfusion is normally 8, but it depends on the doctor. My hemoglobin got down to 6.6 a couple months ago, and I received two units of blood. I was terrified at first, but honestly, it wasn't that bad at all. I think the most irritating thing for me was going to the bathroom with the huge IV pole, and the amount of time it took. I was in the hospital for 12 hours. Sad thing is, I'm only 19. They tested my thyroid, and it was hypo. The hormones caused me to have a three month long period, bleeding through a tampon, pad, underwear, and pants every hour. My doctor wouldn't do anything about it, other than put me on the pill or have me take provera. Neither of them did anything. When I went to get my labs drawn before my tonsillectomy, they wouldn't take them out. They referred me to a hematologist immediately. I got my transfusion the same day. I'm very happy I got the transfusion. I have so much more energy than before and feel so much better.
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Avatar_f_tn
I have been dizzy, nausea headaches racing heart fear of fainting tired etc and found out today my hemoglobin is 7.3. My doctor ordered a 2pint transfusion and I will get that on Sunday. They hope the 2 pints will get me up to the 9 area for my hemoglobin level and then I'll be on a high dosage of iron and hopefully no more transfusions.
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Avatar_f_tn
Hi Yes I have been ibn the low 7's I have 3 blood transfusions. Has anyone with low HB experienced memory loss?
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Avatar_m_tn
I just read your comments. I am sorry to hear about you mom but hoping she is doing better now. You should do whatever doctor tells you to do. Please don't take a chance. Low hemoglobin is a serious business and you should not take it lightly.

I would also suggest that while continue to follow the instructions of doctor, try
some alternative treatments which may eliminate the root cause of Anemia.
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2004810_tn?1365157211
I was in the low 7 and 8 throughout tx and had about 13-15 transfusions 2 units per time. I think it's sad to read some of the posts in here, warning about bt. It is a matter of focusing on the treatment and trying to go through it without to much trouble. It was always a great feeling after getting the bt and I couldn't have done it without them. Here in Norway, were I treated, my doctor did not want to give any procrit/epo (that's a looong story).
The short version, and what I came at ease with - is that we have to trust that they now check the blood very carefully. It's sad to know that some of us got hcv from bt, but I believe we are much more save these days.
What can be problematic with the bt's is that we develop antibodies..but no danger.

I'm truly happy that I did wat I did - and am still UND 5 months post tx.
And I don't have any problems related to the bt's - not that I'm aware of. Couldn't have done it without..

Good luck - make your tx journey as comfortable as possible. It's hard enough as it is.
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Avatar_m_tn
3 weeks ago I went to the ER and discovered my HG level was 4.8. I spent 4 days in the hospital and had everything scanned and scoped and found no cause. After 4 units of blood my HG level was up over 7 and I was released as an outpatient. Now, 3 weeks later my HG level is back over 12 and I feel great. When I went to the hospital, I was convinced I was dying. turns out I was. I didn't realize how bad I was feeling until I felt better. apparently it had been a slow progression over months, or maybe a year.
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Avatar_m_tn
3 weeks ago I went to the ER and discovered my HG level was 4.8. I spent 4 days in the hospital and had everything scanned and scoped and found no cause. After 4 units of blood my HG level was up over 7 and I was released as an outpatient. Now, 3 weeks later my HG level is back over 12. When I went to the hospital, I was convinced I was dying. turns out I was.
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Avatar_n_tn
Loss of memory could be due to lack of oxygen to the brain. My short term memory is nonexistent.
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Avatar_f_tn
My levels are normally 6- 7 . They fell to 5 b4 my doctor done anything about it
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Avatar_f_tn
My levels are normally 6- 7 . They fell to 5 b4 my doctor done anything about it
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Avatar_n_tn
My short term memory is also gone!!!!  I have suffered long term memory bouts too. I have wondered what causes this memory problem. My hemoglobin has been in the 10 range.......anyone want to chime in on this please do.
Thanks



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Avatar_f_tn
Mine dropped to 2 and I was going about my normal daily business.  Lucky (which is really not)  my face swelled up...I had an abcess (abscess).  The Dr. grabbed my face & said I don't understand how your able to stand up right now.  He said you should be passed out somewhere and sent to the ER with a note.  He told me that they would have to keep me.  I told him I couldn't stay in the hospital cause I had no one who could care for my daughter.  He said if you don't go you wont be around at all to care for her.  They kept me for two weeks.  I was on 1000 mg of naprosyn daily for 5 years and it caused bleeding ulcers in my stomach.  Getting that abcess (abscess) litteraly saved my life.
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Correct me if I'm wrong.  I think you have to be at least a 5.0 to be alive.  Are you sure you got that number right?  

DWBH
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Avatar_m_tn
Hi, I was researching lowest hemoglobin recorded and came across this conversation. I've noticed a few people are questioning whether others on here are telling the truth about the low numbers. In april of last year my hemoglobin dropped to 1.6. No that is not a typo. 1.6 was my low. I was in icu for 3 months and received 74 blood transfusion and 68 platelet transfusions. It started out as itp (idepopathic thrombocytopenia purpura) and the treatment they gave me caused hemolytic anemia.All of my organs were failing and the night it dropped to 1.6 they told my family to say goodbye.  
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Avatar_f_tn
Glad to see that you survived that incredible event.  I looked on Guinness World Records and couldn't find anything.  I don't think anyone should wait
for there hemoglobin levels to go below 8.   I do think that is when transfusion
are recommended.   There are many life threatening events that can occur if
you let your blood levels get to low.  Clearly, you could have died and we
are sure glad you didn't.

Don't Worry Be Happy and don't let your blood levels go below 8.0.
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1815939_tn?1377995399
There are many different causes for anemia and there are many different types of anemia. Not all of them are treated with blood transfusions.

As far as people with low Hemoglobins, I cared for one who had a Hemoglobin of 2. He was up, walking around, fully oriented, looked healthy. His only complaint was chest pain. He had Pernicious Anemia and he was NOT treated with blood transfusions.

Guinness World Records is probably not going to have the data on the lowest hemoglobin.
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Avatar_f_tn
The normal for transfusion in at an 8.0.  And yes low hemoglobin levels can effect your health.  No the Guinness Book of records doesn't have data for the lowest hemoglobin.  The person was looking for records on the lowest hemoglobin on record.  So, your claim the person you took care of said he had chest pain.....would say that was a concern no matter what this person had.  So pooh... the answer I gave was to a person researching the lowest hemoglobin recorded.  I really didn't expect to find the answer in the Guinness Book of records...and didn't.  The fact that the normal time for a transfusion stated on this forum is an Hemoglobin of 8.0.  This is my opinion which majority of medical professionals would find accurate.  You can always
find exception to the rules somewhere.  But it's not the norm.
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1815939_tn?1377995399
"Correct me if I'm wrong.  I think you have to be at least a 5.0 to be alive.  Are you sure you got that number right?"
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My response was partially to your statement above. So, no, you do not have to have a hemoglobin of 5 to be alive. I cared for one patient who had a hemoglobin of 2. Two people in the above thread had hemoglobins of 1.6 and 2 respectively.

No one has said that low hemoglobins are not a concern. Of course they are. However, there are many different causes for anemia and there are many different types of anemia. Not all of them are treated with blood transfusions. You need to find out what type of anemia they have and then decide on the correct course of treatment.

Neither of the two most recent posters on this thread had anemia due to Hep C meds. Their anemia was from other causes, as was the anemia that the patient I cared for had.
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Avatar_m_tn
I'm not sure there is a "normal", of course this info comes from Doctors and not this site....
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The fourth recommendation is that transfusion decisions should be influenced by symptoms as well as hemoglobin concentration, although again, this was a weak recommendation with low-quality evidence.

According to the panelists, other guidelines have proposed that transfusion is generally not indicated when the hemoglobin concentration is above 10 g/dL, but is indicated when it is less than 6 to 7 g/dL. "However, none of these guidelines recommended a specific transfusion trigger," they write.

http://www.medscape.com/viewarticle/760919
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Avatar_f_tn
How low can ones hemoglobin go before a transfusion is necessary?
_________________________________________

I believe this was the original question.  

We aren't doctors and analyzing ones type of anemia and then deciding on the correct course of treatment is a doctor's job.   Persons with unrelated anemia should contact their doctor.   8.0 is the normal hemoglobin before a transfusion is necessary.
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Avatar_f_tn
  I am still kind of in shock, form having my HGB at 8.8, for my EOT labs.
I will never forget trying to ride my bike with my level that low, my bicycle seat felt SO hard and uncomfortable, and I was too weak to ride even half a block!
It's been a year,and my stomach muscles are still lookin flabby.
   I just keep trying to pay impeccable attention to my nutrition. My new ingredient I am grinding up with my vitamix is sesame seeds. I made a cucumber, plain yogurt, sesame seed and flax-seed smoothie, to build myself up, and still feel like I'm recovering, 1 yr post Hemolytic Anemia.
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Avatar_f_tn
  Yes, I have a friend with ITP, and she does Procrit shots, but if her HGB dips below 8, she goes in and has the Transfusion. She has struggled with this disease for 15 yrs now,and it is very difficult.
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707563_tn?1395081210
Hey everyone -

How about we all agree that if someone has a low HgB level, they should be discussing treatment options with their doctors? It seems that many factors should be taken into consideration for a transfusion, and discussing these with a doctor is the best plan.

Enough with the fighting. It's against the Terms of Use, and distracts from the incredible knowledge you all share.

Emily
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Avatar_m_tn
    I just got home from the hospital, was put in the Critical Care unit because by level was 5.4. They did two transfusions and now I am at 7.2 and at home. Next Wednesday I start iron infusion. I will be at the doctors office for 5 hours a day once a week for 5 weeks. Same symptoms of rapid and heavy heartbeat, dizziness, shortness of breath and leg cramps at night.
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Avatar_n_tn
I am very concerned about what is going on and would love some feedback- I had a lg. mass removed from my chest in June and have recovered from that and a paralyzed vocal cord. So 2 weeks ago when I went in to have surgery on my vocal cord my hgb was 7.6- they told me I needed to follow up with my doctor- o my symptoms for the last three months- bad leg cramps at night, headaches, dizzy, passed out twice this past weekend, tired, warm feeling throughout my entire body, heart races if i do anything physical, shortness of breath, nausea, and I crave ice so bad- thought this was all related to me recovery. ( o also had a heart attack a month after my surgery. So I go see my primary care and it is now 7.4 and I can barely walk- he puts me on iron pills twice a day and they redrew the labs today- now it is 7.8- after two weeks of being on iron pills- so it is going up but I feel worst than I did weeks ago-------So my big question do I wait and see if it continues to go up or should i go into the ER and see what their thoughts are ???  I am scared I have been through a lot and just feeling so worn out :(
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Avatar_m_tn
Hello Andrea,
You are AWESOME!!! That is sooo scary, you must have felt horrible. I learned through study people can exist at a level of 2. The quality of life is limited but the body lives through all sorts of horrors. The body adjusts and gets used to functioning at low levels some people move at a snail like pace others continue to do what they do while suffering horrific symptoms. Well they have no choice but to go on working and living paying rent etc. Yes it is really real.
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I'm so grateful to have found this list of reports, as my docs all try to avoid committing themselves to what specific low hb values imply. Thanks everybody!

I'm just at my third set of transfusions, the latest hospitalization occurring at 4.5 hb from interferon triple (w/boceprevir); but at other times I've been referred to the ER at 6.6. Because it dropped over time, it was not so bad, as long as I didn't have to climb stairs (and temperature regulation was bad). Actually, it was a slightly euphoric state, below, say 5.5 or so.
Here in Germany, the guideline is now not to transfuse above an hb 7 for fear of complications. I have a researcher doc and he says, you really don't want it below that for long because vital organs are not supplied properly anymore.
Apparently, adaption is the key to how low you can go and how you feel it. One thing I found is that docs in hospitals don't properly check your past hb to determine how fast the drop is, so I would recommend keeping track of that yourself, if in doubt. It's a huge difference to lose 1 point in two weeks regularly to losing 2 points a week or (as with bleeding) in a few minutes.

May all beings be well!  
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Avatar_f_tn
hi all, i NEED HELP VERY BADLY... my mother is 48 years old, she have very low hemoglobin 3.1 :( , dr. suggested to adimt het for blood transfusions but she is not ready for this.. she is doing all household work daily.. having only cane juice twice and had vely little food in dinner... i am helpless please suggest what to do????
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1283730_tn?1271550458
hi poonamdesigner,
3.1 is crazy! the original standard i was given was 8 transfusions, 6 ER, 4 non-returner (brain-damage or death). in reality, everybody will tell you that it doesn't work that way because people who slowly adjust can handle far lower hb levels.
i had an hb just over 4 last year and many other low points between 5 & 6 to get transfusions (probably 2 dozen in 6 month). i found hb below about 5 to be somewhat deceptive. i managed to walk the 2.5 km to the hospital and was in a very euphoric state. it's a condition close to death, though, where nurses and docs will come to visit because they haven't seen that before. :)
you can get an ambulance to pick your mom up with that kind of hb and i would; a nurse told me that that is the fastest way to get transfusions (otherwise you may hang around for ages in the ER).
tranfusions themselves are not unpleasant or dangerous at all. i'm not sure what your mom's concerns are but there is really nothing to worry about. i asked the docs whether they ever had any problems with them (because they give you this legal thing to sign) and they said 'no.'
if her hb is really 3.1, i'd tell her that you're calling an ambulance now and then the rest is up to her but you've done your best. maybe the doc in the ambulance can convince her...
let me know if i can be of any other help, eg by talking to your mom or anything else. good luck!
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8714138_tn?1399471028
My sister ve only 6.7 Hb level , but she have Type 1 Diabetes also when nurse try to take blood for sister's nerve its too difficult to identify nerve so anybody please help me its little bit urgent ***@****
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Avatar_f_tn
Do you know why your sister has a low Hb?  Does she have Hepatitis C?
Is she on Hepatitis C treatment?  
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1283730_tn?1271550458
i don't understand what 'take blood for sister's nerve' could possibly refer to, nor what 'too difficult to identify nerve' could mean. however, hb 6.7 means that she should find a way to get transfusions now.
it is really important to find out why her hb is so low. if there is no obvious reason, like the side effect of hcv medication (esp ribavirin), the hospital should try to find out, for example, by checking for internal bleeding etc. you can do something yourself, though, and that is to find out how quickly the hb has been falling to where it is now. if you can find records of previous bloodwork, let's say 2-3 months ago and the hb was at 8 then it looks like it's falling really slow and there is no need to panic. if it was a week ago at 14, however, you should look for immediate hospitalization. i'm telling you this because hospitals tend to neglect this back-check in my experience, even here in germany.
good luck and let us know if there is anything that you don't understand.
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Avatar_f_tn
I have severe iron diff anemia! My hgb is 7.6. I had a blood transfusion a year and a half ago when my hgb was 6.5. I haven't had any treatment since my transfusion! I feel horrible and drained all the time! I had to go to the ER over the weekend for severe back pain and my anemia. I was hoping that I could get a blood transfusion as well! They said that I wasn't low enough at 7.6! I am so frustrated and depressed! Any suggestions from anyone?
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1283730_tn?1271550458
hi koaster, sorry to hear about your challenge.
i had your situation recently. current policy is apparently not to transfer below hb of 7. however, i recently got one with something slightly above 7. i went to the ER, said that i came for my transfusion and that they had told me to come when i wasn't feeling well. understand that these policies are somewhat flexible. i have repeatedly gotten good unusual deals in the ER because i was able to project a certain confidence about my case (and i wasn't a pain in the neck, i guess :)).

try going there in a good frame of mind (i.e. mood) and use the terminology they use (for example here in germany i'd say: i've come to get 'two EKs' because that's what they call the transfusions here and that would be the typical amount.) even tell them, that you know it's ususally 7 these days but you have a pretty good radar when you need them.

from the sound of your message, though, i feel that it's more important for you to come to terms with the psychological challenges of your condition. two packs of packed cells don't make that much of a difference  - personally, i always told myself & others that i respect pain but that this little bit of weakness is nothing. but in whatever way you do it, take it on, i'd say because there is going to be a lot more challenges like that coming our way. this is just the warm up... :)
good luck!



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Avatar_f_tn
Bet you have Kaiser.  If you do... start demanding early.  You don't want to get under 7.0.   I texted a close associate who works in the ER at a large University Hospital in California.  The current policy is 7.0 in that ER.

Best to you
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