Aa
Will everyone be off tx before I even start?
I have been reading the posts since I found my viral load was way high, while I wait to get in to see a dr.(July 31) Everytime I hear good news I am thrilled and when I hear about the torture some people are going through with treatments, I feel bad for them. I am amazed at the courage and camraderie displayed here and I have actually tried to ration my time on this website becuase it is so-o-o-o addicting! Guess u all can tell how I got the disease! Since I am a "newbie" how long do you all stay in contact with the forum? I am afraid/HOPE all the current members will be off treatment and well before I even get my liver bx. (did i use the right acronym for biospy?)I wish you all well and am getting definite feels for some of the personalities displayed here, it's been fun.
Amen!!! I'm 8 weeks in. - viral load (VL) just this side of 25 million at diagnosis (DX)- I'll be with you, too.
Hi Ladybug, I am a newbie also. I begin tx on Aug. 3rd. I am so glad to see others like myself just begining this. Please feel free to see me as a freind in this although we don't know eachother, but are in this together and obviously will become close as the "shots roll on" from what I can tell from the other posts from "old timers"..lol.. we have been blessed by God to find such a wonderful site!!
Don't worry there girl, from the way it's sounding so far for me, I may just become a tx junkie. Ironic since I found out about my infection as I tried to kick one habit.
At this point, I'll hopefully be lifting my Rip VanWinkle beard to give my next injection or to make another post to this group. Of course by then, maybe voice dictation of thought projection capabilities will be available to make internet posts ;-P
At this point, I'll hopefully be lifting my Rip VanWinkle beard to give my next injection or to make another post to this group. Of course by then, maybe voice dictation of thought projection capabilities will be available to make internet posts ;-P
Just want to wish you GOOD LUCK with starting tx today. Hope all goes smoothly! Have an extra blanket handy seems may get the major shivers on the first shot. Also have water, pai med/sleep aid handy to ride it out. Keep in touch.
"I'm another one w/Genotype 1A/1B so it's a really stubborn virus in me. NYGirl is another one with a dual genotype. "
Yup I'll likely be around for quite a while still as I am on like week 44/45 and have to do 72 weeks.
There unfortunately are WAY too many relapsers and non-responders in here looking for help. It's sad but true that 50% means 50% so every one out of two people with Geno 1 (and Susan and I have TWO strains) will NOT achieve SVR and will STILL be here.
Not to be a bummer but just so you know...you won't be alone LOL.
Plus..as new people come in you find that you make MORE good friends and you look forward to talking to them just as much as your old friends...that's the beauty of it.
Yup I'll likely be around for quite a while still as I am on like week 44/45 and have to do 72 weeks.
There unfortunately are WAY too many relapsers and non-responders in here looking for help. It's sad but true that 50% means 50% so every one out of two people with Geno 1 (and Susan and I have TWO strains) will NOT achieve SVR and will STILL be here.
Not to be a bummer but just so you know...you won't be alone LOL.
Plus..as new people come in you find that you make MORE good friends and you look forward to talking to them just as much as your old friends...that's the beauty of it.
I may not still be treating when you do but I'm not the type to cut and run either. I'm sure I'll still be around for a long tme after I finish treatment.
Hi, I will be starting tx in October. I too received quite an education from this site. We have quite a journey ahead of us but we will get thru. This site is a great place for us to be. Good Luck on your tests.
Hiya ladybug. Sure hope you're doing well today. I just did shot 23/48 so i'll be around 'till january and i'm sure after that just to check in w/my peeps. This place has saved me. I knew nothing in October about this disease. absolutely nothing. and i got an education here. it made lots of things possible for me. so don't worry, you'll never be alone. and besides, Bobbyullc will tx again just to keep you company! LOL... take care, tracy
I was told that I had actually been infected twice once with the 1A type and once with the 1B type. It's probably because of the lifestyle that I was living 23 years ago with the drugs/needles and stuff. I'm not proud of myself for what I did, but I can't change it either, all I can do is except God's forgiveness and get to a place of totally forgiving myself. I've lived a much different lifestyle since that time.
Take care.
Susan
Take care.
Susan
Hi Lady and welcome to the forum. I too am a newbie and will start my teratment tomorrow. 48 weeks, So I will be here for at least the next year as long as my puter holds outlol. And I have seen so many people here that are post TX and yet still come back to answer our questions and just check in. So we will not be left on our own. Also I know there are masny who have just started or will start soon. I'm sure I'll see you
Nicki
Nicki
I am 3a and my liver is in great shape (stage 1) so I am going to focus on my current health to see if I can 'train' to get in shape for tx. (and to see how these other tx drugs evolve for a while). Im going to wait for 6 month intervals, so I could be tx by January if I just get jealous by people like you who will be sooooo SVR by then.
But I still come here, and I will probably come here for the rest of my life or as long as it's operational. This forum has helped me so much. Gaining the knowledge from the people on the forum has given me a lot of respect from my doctor and has ceased a lot of my manic panic. I feel I owe it to the newcomers to return that help when I can.. before tx, during tx, and after.
But I still come here, and I will probably come here for the rest of my life or as long as it's operational. This forum has helped me so much. Gaining the knowledge from the people on the forum has given me a lot of respect from my doctor and has ceased a lot of my manic panic. I feel I owe it to the newcomers to return that help when I can.. before tx, during tx, and after.
Welcome to the forum. I too am a "newbie". I went to the doc today to learn how to use the meds. WOW! I was with the nurse for 1 1/2 hrs. Lots of info. I'm feeling better now, more so than yesterday.
The people on this site are the best. I can't begin to tell everyone how blessed I feel to be a part of the "group". There is such a wealth of knowledge and caring from all here.
Ladybug, just know that you are definitely not alone here.
I hope your bx goes well for you. I had mine a month ago and had no problems whatsoever and for that I am thankful. Good luck to you in your "journey". Seems we will be treating together.
The people on this site are the best. I can't begin to tell everyone how blessed I feel to be a part of the "group". There is such a wealth of knowledge and caring from all here.
Ladybug, just know that you are definitely not alone here.
I hope your bx goes well for you. I had mine a month ago and had no problems whatsoever and for that I am thankful. Good luck to you in your "journey". Seems we will be treating together.
LOL Bobby. WOw now that's solidarity! Hey how is your skin issue doing? Better I hope.
Hello I am in my 7th wK of tx. I got my diagnoses(dx)around the end of march and started Tx in june. The hardest part about it was the waiting for the different tests and dr appts. I knew I wanted to tx. When I finally saw my GI he scheduled my bx for the next monday and I was on tx a month later. I have no patients.
I am genotype 2. Glad to hear I got bx right, just can't spell! (biopsy instead of biospy) Thanks for your input.
Hello
I go to the Dr again Aug 4 and will hopefully know when start treatment.. Im trying to get in a VX950 study... So we will probably be in tx at the same time.
I go to the Dr again Aug 4 and will hopefully know when start treatment.. Im trying to get in a VX950 study... So we will probably be in tx at the same time.
Welcome to the forum. Many people who have Responded to treatment stay around and help others (bless them for doing that). so you will not be alone here. What genotype are you? By the way, bx is for biopsy. I just finished treatment but will continue on the forum. There are so many things to learn. You are in good hands.
Thanks so much for your reply. I feel guilty asking such a selfish question but I have no idea what's ahead or who will still be connected. I'm sorry to hear you have such a complex genotype, that's something I had never heard of before you replied. Why do we have different genotypes? I know it's a virus that mutates but how can some people's virus mutate twice? Is there any info on this? I really feel guilty for the innocent victims who might have gotten my blood before I knew I was infected. Actually I should buy dinner for anyone who is on this forum because of a blood transfusion. Sorry everyone.
Don't worry, somebody here will still be on treatment, HEP C is not totally cured in lots of people and there's still lots of people that have never even been diagnosed that are walking around with it, who will eventually treat. I'm an old pro at it w/8 times around. DON'T go by my experience though because MANY others treat and get SVR and never have to treat again. I'm another one w/Genotype 1A/1B so it's a really stubborn virus in me. NYGirl is another one with a dual genotype. There may be others. Anyhow, I'm not on treatment now, but I've been keeping in touch with this board now for a LONG time, probably longer than 5 years (if it's been here that long). I wish you well and having few side effects as you take on this treatment.
Susan
Susan
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