Aa
allergic reaction
This is my wifes favorite site but I'm the infected one. Been on treatment for 15 wks.(interferon-Riba.) Developed rash at injection sites that don't go away and on arms neck etc. Dr. decided i'm allergic to interferon. Due shot on Saturday and was told not to inject.Going to replace interferon with Pagasis to see if I have an allergic reaction with it. itching is unbearable. Is pegasas that different that I might not get the reaction and i might not get the drug for a while.
it is actually the time release medium that Pegasus is carried in that causes more injection site trouble.
also, the rash eslewhere doesn't prove it's the INF...more likely that's the Riba.
Riba causes tons of rash, mouth sores etc.
If you feel like your skin is crawling, like ants are having you for dinner...like if someone touches you it will hurt...then it may be your Riba absorption is very good.
reason I say that is, until I statrted eating the Riba with Fat I had no reaction.....when I did U got big skin stuff..then I cut out fiber....and got even more absorbsion and more symptoms. while my viral load then went down and UND finally...the additional riba...which build up over about the first 5 months can become unbearable.
I tried evey lotion too. finally settling on just getting in a tepid bath for 5 minutes with a tablespoon of olive oil...to coat and rehydrate my skin and hair...then I used a humidifier as well...and finally..I resorted to a small dose of Ativan, since some of the skin stuff is actually agrivated nerve endings, this mild tranquilizer does more to calm my skin than all the rest. However along with the skin stuff I got a lot of anxiety and tearful stuff.
So now I'm on remeron for sleep and depression too.
You really need to take what you need to take to make the whole thing bearable...otherwise you either quit..and let the disease take it's toll..or you end up treating all over later...which many have..
but for my money...figure out how to get through it the first time..cause it ain't pretty and NObody wants a repeat performance...amen?
mb
also, the rash eslewhere doesn't prove it's the INF...more likely that's the Riba.
Riba causes tons of rash, mouth sores etc.
If you feel like your skin is crawling, like ants are having you for dinner...like if someone touches you it will hurt...then it may be your Riba absorption is very good.
reason I say that is, until I statrted eating the Riba with Fat I had no reaction.....when I did U got big skin stuff..then I cut out fiber....and got even more absorbsion and more symptoms. while my viral load then went down and UND finally...the additional riba...which build up over about the first 5 months can become unbearable.
I tried evey lotion too. finally settling on just getting in a tepid bath for 5 minutes with a tablespoon of olive oil...to coat and rehydrate my skin and hair...then I used a humidifier as well...and finally..I resorted to a small dose of Ativan, since some of the skin stuff is actually agrivated nerve endings, this mild tranquilizer does more to calm my skin than all the rest. However along with the skin stuff I got a lot of anxiety and tearful stuff.
So now I'm on remeron for sleep and depression too.
You really need to take what you need to take to make the whole thing bearable...otherwise you either quit..and let the disease take it's toll..or you end up treating all over later...which many have..
but for my money...figure out how to get through it the first time..cause it ain't pretty and NObody wants a repeat performance...amen?
mb
Sorry didn´t saw your post before posting mine.
just wanna underline what trish and flguy has said about dose reduction of any kind.
BTW I had henna in my hair a long time ago also had a gypsym plaster painted in gold of my own face thats how I did the town in the old crazy times.
And I was working in a factory and the boss called me coppertop! LOL
ca
just wanna underline what trish and flguy has said about dose reduction of any kind.
BTW I had henna in my hair a long time ago also had a gypsym plaster painted in gold of my own face thats how I did the town in the old crazy times.
And I was working in a factory and the boss called me coppertop! LOL
ca
Eliminating the riba is not a grand idea either. Tx is neither comforting nor easy. It is, however, the only way to get rid of the disease. Get rid of half the meds? I would imagine a temporary REDUCTION is a more reasonable step than the big measure of elimination. Any do who use a pcr with a sensitivity of 615, I think, makes questionable decisions in the first place. Just my opinion.
And the usual quid pro quo ... none of us are docs. We give our point of view. Take care.
Well...your doc seems to think this rash is an allergic reaction when alot of people actually get an itchy rash from taking these meds. If you posted and asked how many people, there'd be lots. I'm glad your doc called the Mayo Clinic, there's a doc who knows she's out of her field of experience and goes after a consult instead of trying to be "god". So maybe you have an allergic reaction or maybe it's her inexperience with treating HCV that's at play.
I would seriously think hard before cutting any of your doses. Your health doesn't seem to be at risk here, it's dealing with the itching, yes? The itching rash drives some people bonkers from all the posts I've read.. and really, I'd suggest you post asking if others have had rash and how they dealt with it ... I don't know how intolerable it is for you...I would just keep taking the meds as long as I can tolerate it and it's not a risk to your health.
Might just help you to know you're not alone with the itching. And.. easy for me to say cause I'm not dealing with that for the most part on my treatment. I'm dealing with it but not to the severity I've seen posted by others.
If your doc is consulting with Mayo .. maybe you want to go to Mayo for a second opinion before reducing dosage. Just tossing that out there.
Good luck.
Trish
I would seriously think hard before cutting any of your doses. Your health doesn't seem to be at risk here, it's dealing with the itching, yes? The itching rash drives some people bonkers from all the posts I've read.. and really, I'd suggest you post asking if others have had rash and how they dealt with it ... I don't know how intolerable it is for you...I would just keep taking the meds as long as I can tolerate it and it's not a risk to your health.
Might just help you to know you're not alone with the itching. And.. easy for me to say cause I'm not dealing with that for the most part on my treatment. I'm dealing with it but not to the severity I've seen posted by others.
If your doc is consulting with Mayo .. maybe you want to go to Mayo for a second opinion before reducing dosage. Just tossing that out there.
Good luck.
Trish
Go to the farao (doc) say that I am (Comeagain) has sent you and tell him let my people (medecin) go ( come back to me, you).
This is serious to, you seem to respond very well to the meds f...ck man you gonna clear,
don`t let anything spoil that!!
Make sure you dont miss a shot, if its a day or two maybe but preferably not more.
I´m not a doc but know a little about how tricky this virus can be.
I`m a relapser did first tx on peginterferon had a lot of ugly itching spots after the neddle.
This time on pegasys non whatsoever, ok my head itch sometimes and legs but it was much worse when taking peginterferon and also I`m taking more riba this time with pegasys, 1200 instead of 800 first time.
.
I think its a good idea to switch to pegasys , due to my own experience of both meds.
But one more shot, you probebly can take if its not a risk for allergic chock or something?
If you have run out of meds try to get hold of one as soon as possible .
just my nonprofessional opinion .
take care and con to that very good week 4 result!!
ca
This is serious to, you seem to respond very well to the meds f...ck man you gonna clear,
don`t let anything spoil that!!
Make sure you dont miss a shot, if its a day or two maybe but preferably not more.
I´m not a doc but know a little about how tricky this virus can be.
I`m a relapser did first tx on peginterferon had a lot of ugly itching spots after the neddle.
This time on pegasys non whatsoever, ok my head itch sometimes and legs but it was much worse when taking peginterferon and also I`m taking more riba this time with pegasys, 1200 instead of 800 first time.
.
I think its a good idea to switch to pegasys , due to my own experience of both meds.
But one more shot, you probebly can take if its not a risk for allergic chock or something?
If you have run out of meds try to get hold of one as soon as possible .
just my nonprofessional opinion .
take care and con to that very good week 4 result!!
ca
FIGuy and all,
This is Mose58's wife. I talked to the Dr. PA this afternoon and the Dr. reconsidered her decision regarding the pegintron (after a consultation with Mayo Clinic). She now thinks it might be the Ribavirin, which is what I suggested to her last week. She now wants him to continue with the pegintron, and stop the riba for a week and see what happens. I told the PA that I understood the Peginterferon and Pegasys were the same thing, so I did not understand why changing from one to the other would make any difference. I told her that if it was the Ribaviron causing the servere inflamation, maybe just cutting the dose would help. I understand that the tx works best with both meds. She did have some good news, that his AST/ALT were going down and were almost normal again and his VL is still <615.
I suggested to her that the next time they check the VL, that they request a more sensitive test. He has monthly BW, but probably won't do another VL until 24 wks.
I must admit that I have learned more about HEP C and TX from this website and you guys than I have from the doctor.
Thanks for your support,
Regards,
Mose58 wife (calls me Coppertop cause I dyed my gray hair red)
This is Mose58's wife. I talked to the Dr. PA this afternoon and the Dr. reconsidered her decision regarding the pegintron (after a consultation with Mayo Clinic). She now thinks it might be the Ribavirin, which is what I suggested to her last week. She now wants him to continue with the pegintron, and stop the riba for a week and see what happens. I told the PA that I understood the Peginterferon and Pegasys were the same thing, so I did not understand why changing from one to the other would make any difference. I told her that if it was the Ribaviron causing the servere inflamation, maybe just cutting the dose would help. I understand that the tx works best with both meds. She did have some good news, that his AST/ALT were going down and were almost normal again and his VL is still <615.
I suggested to her that the next time they check the VL, that they request a more sensitive test. He has monthly BW, but probably won't do another VL until 24 wks.
I must admit that I have learned more about HEP C and TX from this website and you guys than I have from the doctor.
Thanks for your support,
Regards,
Mose58 wife (calls me Coppertop cause I dyed my gray hair red)
I totally agree with what FlGuy says, I would not risk throwing 4 months of treatment out the window, because the Pegasys hasn't arrived. Good luck, Marcia
It's just a likely that the riba is causing the itching and rashes, other than the injections site stuff. 'Riba Rash' is very common. So, the doc could be off in the cause too.
First, almost everyone gets 'injection site bruises' and lots of people get itching. For me, the injection site bruises looked like I got hit with a baseball. At the time I was alternating thighs weekly. By the time I got back to the other thigh the bruise had subsided - but not dissapeared. You say "Otherwise, I am doing ok" and you seem to have been undetectable since week 4 (or at least down to 615).
Point is that skipping a dose of Peg when you've made so much progress is probably something you should avoid at all costs. If it were me I talk to the doc and see what the risk is if you were to continue with the current meds until the Pegasys arrives. You lived with this stuff for 4 months, what's another week of bruises and itching? Small price to pay to keep on a good track.
Point is that skipping a dose of Peg when you've made so much progress is probably something you should avoid at all costs. If it were me I talk to the doc and see what the risk is if you were to continue with the current meds until the Pegasys arrives. You lived with this stuff for 4 months, what's another week of bruises and itching? Small price to pay to keep on a good track.
FIGuy,
I am waiting on the Dr office to call back to reconfirm my conversation with the Dr. on Wednesday night regarding the injection. Dr. told me not to take shot but to continue with Riba. It was late and I was half asleep when she called. Since today is Friday and I take my shot on Saturday, it is looking like it may not get the Pegasys in time.
Mose58
I am waiting on the Dr office to call back to reconfirm my conversation with the Dr. on Wednesday night regarding the injection. Dr. told me not to take shot but to continue with Riba. It was late and I was half asleep when she called. Since today is Friday and I take my shot on Saturday, it is looking like it may not get the Pegasys in time.
Mose58
Sounds like you have been using PegIntron and will be switching to Pegasys, both pegylated interferon and both dose once a week. PegIntron (Schering) and Pegasys (Roche) do the same things and have similar results. The thing I'd be careful about is not missing a weekly injection at this point. Your treatment has shown results but a break in meds may not be a good thing. Will you have the new Interferon in time so that you don't miss a shot?
Meki,
Thanks for response. I am Hep C 1b. I was UND (or <615) on wk 4, & my ALT/AST were back to normal. I started with a low VL of 72,815 and AST/ALT were102/217. Did have a spike in AST/ALT at wk 12 in to 50's. Don't know why, except possible exposure to some pesticide. Anyway, re-tested and do't have results yet. Also retested for VL..
Otherwise, I am doing ok. Don't have any energy, but that is due i guess to low Hemoglobin, 11.6, and RBC 3.17. Also, low WBC of 1.2. Dr. a little concerned about WBC but no talk of any rescue drugs yet. My main problem is with this itching. I have tried just about everything in the drug store, Goldbond, Aveeno Oatmeal (lotion and soaking), Sarna, etc. They might help for a hour or so, but the itching come right back. Startted last week on Atarax, and it helps a little, but there again.
Will keep you posted on Pegusys. Maybe it will work and my itching will subside to a manageable level. My wife asked the Dr. about the Riba itch, but she seemed to think that it was just the peg-interferon.
Best to all,
Mose58
Thanks for response. I am Hep C 1b. I was UND (or <615) on wk 4, & my ALT/AST were back to normal. I started with a low VL of 72,815 and AST/ALT were102/217. Did have a spike in AST/ALT at wk 12 in to 50's. Don't know why, except possible exposure to some pesticide. Anyway, re-tested and do't have results yet. Also retested for VL..
Otherwise, I am doing ok. Don't have any energy, but that is due i guess to low Hemoglobin, 11.6, and RBC 3.17. Also, low WBC of 1.2. Dr. a little concerned about WBC but no talk of any rescue drugs yet. My main problem is with this itching. I have tried just about everything in the drug store, Goldbond, Aveeno Oatmeal (lotion and soaking), Sarna, etc. They might help for a hour or so, but the itching come right back. Startted last week on Atarax, and it helps a little, but there again.
Will keep you posted on Pegusys. Maybe it will work and my itching will subside to a manageable level. My wife asked the Dr. about the Riba itch, but she seemed to think that it was just the peg-interferon.
Best to all,
Mose58
Welcome!
My itching and rash is from the riba. Did the docter mention that could be the cause.
My injections sites are red and sometimes swollen, but it goes away.
good luck with Tx
peace
rita
My itching and rash is from the riba. Did the docter mention that could be the cause.
My injections sites are red and sometimes swollen, but it goes away.
good luck with Tx
peace
rita
Some people handle infegen and some people tolerate pegasys.
The way each person handles things is like favorite foods... some people don't like some things - and others do.
Welcome to the forum - good luck with the new shot --- I think if you don't have a reaction to it - you should be fine...
How are you doing otherwise?
What genotype do you have?
What was your 12 week PCR?
are you currently UND?
Meki
The way each person handles things is like favorite foods... some people don't like some things - and others do.
Welcome to the forum - good luck with the new shot --- I think if you don't have a reaction to it - you should be fine...
How are you doing otherwise?
What genotype do you have?
What was your 12 week PCR?
are you currently UND?
Meki
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