Aa
another open thread!
Just wanted to see how everyone is feeling today :)
I'm still doing good, really no sides right now, shot #2 is Sunday at 5PM. Will see how that goes. Thanks for asking.
Kalio I have know idea why this is happening either. When some one new comes on I thought it would be a good idea to let them know what is going on, so they don't fall into the same trap we did.
BB
Kalio I have know idea why this is happening either. When some one new comes on I thought it would be a good idea to let them know what is going on, so they don't fall into the same trap we did.
BB
Welcome!
You will find this site very helpful and people with much knownledge. The people here cares and will help. the only one you need to not answer is Kalio2, he's an imposter, Kalio 1 is the real thing.
Again welcome and keep us informed to the results of your tests.
BB
You will find this site very helpful and people with much knownledge. The people here cares and will help. the only one you need to not answer is Kalio2, he's an imposter, Kalio 1 is the real thing.
Again welcome and keep us informed to the results of your tests.
BB
Got results -one enzyme is up and I have a liver scan booked for tUESDAY. GP unable to be reassuring, though he did ask if I had been anywhere interesting on holiday and did I get ill. Went to Indonesia 2 years ago but I was not unwell. Guess I will have to wait for Tuesday now. Thanks for just being there xx
Many thanks for your comments. This is the first thred I came across that was not full so sorry if I'm taking up space -not used to this forum. I'm still waiting blood results but it really helps knowing I'm in contact with someone out there.
wow! glad to see you back!
and experiencing a very familiar emotion; fear. I see you are not letting it cloud your judgement which is good.
The first shot is different for everyone. I took it at the drs, around 5 pm on a Tuesday. Don't remember it knocking me down at all that week. I thought it did not reach my bloodstream for weeks, Riba is another thing, what a trip! talk about foggy thoughts! It is doable and temporary(unlike hep c).
I don't know about others, but I wanted to stay home almost everyday and not go to work, but did not feel sick enough to take the day. How annoying is that! Sick enough to want to stay but not enough to stay. It is a long road for geno 1, and you do have to be entirely committed to finishing. So make sure you are ready. In retrospect, I can not remember the last 2 yrs much, I can not believe hep c WAS a part of my life at one point.
To me, it was worth it.
best to you
and experiencing a very familiar emotion; fear. I see you are not letting it cloud your judgement which is good.
The first shot is different for everyone. I took it at the drs, around 5 pm on a Tuesday. Don't remember it knocking me down at all that week. I thought it did not reach my bloodstream for weeks, Riba is another thing, what a trip! talk about foggy thoughts! It is doable and temporary(unlike hep c).
I don't know about others, but I wanted to stay home almost everyday and not go to work, but did not feel sick enough to take the day. How annoying is that! Sick enough to want to stay but not enough to stay. It is a long road for geno 1, and you do have to be entirely committed to finishing. So make sure you are ready. In retrospect, I can not remember the last 2 yrs much, I can not believe hep c WAS a part of my life at one point.
To me, it was worth it.
best to you
Hang in there. Like I said, I was scared out of my mind. It is definitely "doable" as NY Girl says. The anticipation is far worse than the actual event because at least once you have started tx you know what you are up against! And, I can vouche for the fact that the good people here will help you get through it! :)
oh yeah, maybe start taking the anti-d's about a month before beginning treatment, that's what I'm going to do, or even a bit sooner....i'm sure some others will have some other takes on this...
Wow!
thanks so much-all of you! i needed that! you know, i have many blessings, family, beautiful kid, etc. and i count you , all of you as another great one! thanks.
BTW- Lexipro was the med prescribed, I'm gonna fill it and take em.
Scott
thanks so much-all of you! i needed that! you know, i have many blessings, family, beautiful kid, etc. and i count you , all of you as another great one! thanks.
BTW- Lexipro was the med prescribed, I'm gonna fill it and take em.
Scott
antman, i think everyone here can understand the fear you are feeling. You have done an amazing job to get yourself detoxed and get ready to treat. Lean on this amazing group of people. It is amazing what they can do to help you. When I first came to this forum, I was adamantly opposed to treating because I was scared out of my mind. Well, shot #2 is tomorrow. It can be done! Hang in there and I am excited to see you around here :)
Kalio and BB thanks for asking! I am doing much much better. Today dare I say that I feel "normal"?!?! Don't want hubby to know though or else any helping hand will be out the window. Mentally preparing for tomorrow night's shot and PRAYING it is the same or less severe as the first :) I'll keep you posted!
BB glad you are feeling well! Ready for #2? Kalio, how are you doing?
Kalio and BB thanks for asking! I am doing much much better. Today dare I say that I feel "normal"?!?! Don't want hubby to know though or else any helping hand will be out the window. Mentally preparing for tomorrow night's shot and PRAYING it is the same or less severe as the first :) I'll keep you posted!
BB glad you are feeling well! Ready for #2? Kalio, how are you doing?
beamish- glad you had a good day and moved forward in a positive way! It's a good feeling.
Chev- Thanks for the positive post. I appreciate it!
Chev- Thanks for the positive post. I appreciate it!
Hey there- Congratulations on Did the detox thing a lot one year. It was the emotional pain and stuff that helped me get there if that makes since. I felt like that (depressed, emotional)in there. And when I got out. Takes a while like Courgareyes said to get some balance just from going through withdrawals. Doesn't really matter what it's from, drugs, loss, change, dissapointment. Does get tough with physical addiction added. When anything hurts enough that we address it and seek help- I figure all of us in this world are the same size when we're flat on our face emotionally.
I got a letter months after one of those detoxes, informing me I may have hep. I didn't handle it too well. Just when I thought I was gonna get back on track. Did get better for mew after I put some work into addressing the booze and drugs. Particularly it taught me a lot about how to ask for and receive help. Hey, your here looking for support, you stopped drinking, you realized there was more to look at with the pain killers. That's some great moves lately. Spend a little time workin on yourself(with help maybe?). Just a suggestion but it helped me takin time to try gettin the head a little straight before jumpimg into tx. Beteverybody here has been where you are. I don't mean the substance stuff. I mean the fear, the anxiety and doubts, the depression.... be openminded, but it isn't a race.
And talk to your hep doctor honestly if they aren't fully aware of whatever depth the addictive stuff had, this journey can be a roller coaster.
Be well and rest-there's people here been on both sides of the doors you've been through and may yet be facing,
Don
I got a letter months after one of those detoxes, informing me I may have hep. I didn't handle it too well. Just when I thought I was gonna get back on track. Did get better for mew after I put some work into addressing the booze and drugs. Particularly it taught me a lot about how to ask for and receive help. Hey, your here looking for support, you stopped drinking, you realized there was more to look at with the pain killers. That's some great moves lately. Spend a little time workin on yourself(with help maybe?). Just a suggestion but it helped me takin time to try gettin the head a little straight before jumpimg into tx. Beteverybody here has been where you are. I don't mean the substance stuff. I mean the fear, the anxiety and doubts, the depression.... be openminded, but it isn't a race.
And talk to your hep doctor honestly if they aren't fully aware of whatever depth the addictive stuff had, this journey can be a roller coaster.
Be well and rest-there's people here been on both sides of the doors you've been through and may yet be facing,
Don
To put a note on what strator said, you might want to take a little time to get your head staight and strong before making a decision on treatment. I'm in week 27/48 and I believe the biggest part of the decision is being ready mentally and emotionally. It probably took me a year after I quit drinking to feel strong enough to make the decision about treating. Peace
sorry if i wasn't clear. the Lexipro was prescribed by the shrink in detox. but, anyway, the one big thing i needed to hear was from "amommy" about that first shot. you know, it's always, that first - fill in the blank. quitting this, starting that, etc. also, i did level completely with my hep DR. a few weeks before entering rehab. they know all. what a relief that was ,too. the nurse, who communicates everything to the DR. was very sympathetic and told me she understood. her sister was a druggie and brother in law an alkie! me i'm both! but, like someone said, the year is gonna pass either way. i can let my liver get worse, or treat it and God willing beat it. i think that's the smart thing to do. also, i'm going to seek good support in everything that bothers me. my way just never seems to cut it. maybe that is a lesson i'm learning here. i'll be back here soon for another dose of encouragement. have a great day everyone.
I'm right there with you ant honey, we'll get through this, what I'm so glad for you is that the Gods seem to be smiling on you, with your history and you still have mild inflammation, that's a great positive! I think that's wonderful and it'll hold you in good stead as you go into treating. Look at all these good people, if they can do it, we can!!!!
Mikesimon: youre an inspiration to the rest of us, be well my friend, so glad about your svr! (and I'm whining about treating once, sheeesh!!!)
Mikesimon: youre an inspiration to the rest of us, be well my friend, so glad about your svr! (and I'm whining about treating once, sheeesh!!!)
Dont worry too much about first shot and side effects. I know that sounds IMPOSSIBLE To do but you can't. Most people dont have it that bad. Really. You hear of the horror stories cause they stick in your head! It's the boring I felt fines......that you can't even REMEMBER anymore!
First night I did my shot and laid in bed and was asleep at 9pm after two tylenols and drinking LOADS of water all day. I woke up at 12pm the next day very very tired but that was it. NO chills or flu symptoms or anything.
Treatment is DOABLE. You just really need to watch out for your CBC hgb numbers around weeks 3 - 5. The anemia is really the ONE thing that can get a person to quit from what I've seen. Make sure your doctor is going to get you Procrit or Epogen.
I went from 15 to 9 in a little over a week and was DYING. Got the script and did the shot and it stabilized. Added the second shot a week into the mix and in a few weeks bing bang boom no more problem with that!
Put your head in a great place. Plan on getting in to bed with the remote and water and whatever munchis you might like. Click around the channels till you fall asleep. Wake up the next day - find that clicker and start all over again.
It's a mini vacation from the regularl world duties we all have and if you get that Saturday to rest .... by Sunday I am up and about and doing what I have to no problem. Tired yes...but capable!
Remember Antman it's not fun but it's DOABLE. You will be fine I know it!
Debby
First night I did my shot and laid in bed and was asleep at 9pm after two tylenols and drinking LOADS of water all day. I woke up at 12pm the next day very very tired but that was it. NO chills or flu symptoms or anything.
Treatment is DOABLE. You just really need to watch out for your CBC hgb numbers around weeks 3 - 5. The anemia is really the ONE thing that can get a person to quit from what I've seen. Make sure your doctor is going to get you Procrit or Epogen.
I went from 15 to 9 in a little over a week and was DYING. Got the script and did the shot and it stabilized. Added the second shot a week into the mix and in a few weeks bing bang boom no more problem with that!
Put your head in a great place. Plan on getting in to bed with the remote and water and whatever munchis you might like. Click around the channels till you fall asleep. Wake up the next day - find that clicker and start all over again.
It's a mini vacation from the regularl world duties we all have and if you get that Saturday to rest .... by Sunday I am up and about and doing what I have to no problem. Tired yes...but capable!
Remember Antman it's not fun but it's DOABLE. You will be fine I know it!
Debby
With such a positive outlook you are bound to succeed. Congratulations on getting where you are now. It took a lot of courage to go through detox. One nice thing about this forum - you will find people at all levels of treatment, pre-treatment, and post-treatment and those choosing to wait until better meds come along.
I, like you have mild inflamation - I was grade 1, stage 1 with a beginning viral load of 1.52 million. I too was scared to death before the first shot, but the good people here held my hand, and now I am 25/48 and am clear. The anxiety leading up to the decision to treat and the first shot, should you chose to treat is horrendous. I guarantee, it gets better after you start.
So, welcome to the forum
frijole
I, like you have mild inflamation - I was grade 1, stage 1 with a beginning viral load of 1.52 million. I too was scared to death before the first shot, but the good people here held my hand, and now I am 25/48 and am clear. The anxiety leading up to the decision to treat and the first shot, should you chose to treat is horrendous. I guarantee, it gets better after you start.
So, welcome to the forum
frijole
honestly the process of the tx might make you jones and get angry that the resultant feeling isn't a familiar one. But you get over it.
Because this treatment is the most important thing we can do for ourselves right now. Have you see a picture with a liver in it's different stages and grades? THAT was hte think that made me say........oh hell no I am never drinking again if it's going to give me THAT.
Use whatever you can find to keep your mind on the positive. That's a big portion of the game.
Oh PS I went o paxill BEFORE I started treatment. What a lifesaver I tell you
Because this treatment is the most important thing we can do for ourselves right now. Have you see a picture with a liver in it's different stages and grades? THAT was hte think that made me say........oh hell no I am never drinking again if it's going to give me THAT.
Use whatever you can find to keep your mind on the positive. That's a big portion of the game.
Oh PS I went o paxill BEFORE I started treatment. What a lifesaver I tell you
i'm week 8 of 48--this is doable..Young with a reasonably healthy liver makes it easier( often) i am using lexapro also--extremely BIG help--the meds can make ya surly,the reality can be depressing...explain All this stuff to family & friends beforehand---Congratulations on your program : A new & improved Antman gonna be Rocking!!! GOOD LUCK
Feeling great..thanks for asking. Finished my treatment about 10 days ago or so. My doctor thinks I cured this thing because I am a 2a genotype who was a evr at 4 weeks. I think I am fixed, also. The interferon treatment sucked. It was hell for sure.
I read your post. You sound like your liver if fine and that you are going through some tough times. Please don't be scared as hep c is a slow moving illness. In regards to treatment.. I was scared before treatment and used treatment as a reason to stop drinking. It worked.. I stop drinking but did not handle the treatment well as I had not really given myself enough time from the party to hell. Don't be scared.. but be emotionally ready .. for treatment.
AWWWRight...Congratulations..If yu know yu cleared,i know yu cleared..Great to hear about your sucess.....Please stay tuned in & turned on...i like so much hearing your special perspective on life ,the universe & brownie recipes--
Aw man Beam ! Brownies! I wsa just figuring I'd make it past the leftover holiday treats on my way upstairs to ZZZZ-land. I only sleep an hr at a clip as it is . Now during one of those wakings I'll hear this little voice wafting upstairs.......Have a brownie, don, cmon you'll get back to sleep faster...browniiieeeeeeeeeesssss don...
Hi Scott. You are acting just like most of us did when we started this rough journey. I found out I had Hep c after throwing up 4 units of blood and undergoing emergency endoscopy to stop the bleeding. It was Jan. 1995 when I was diagnosed. I was told I was too far gone to treat eventually I was transplanted in June 2000. The Hep c came rushing back so I started TX. I treated 3 times for a total treatment time of 3.5 years. I finally cleared in June 2004 and am still clear. Yes, without a doubt it was worth it. I really didn't see any choice other than to treat because the hepatitis returned quite virulently and it didn't look too good for me if I didn't treat. People here can really help you in all kinds of ways. Don't be reluctant to ask any question that occurs to you. There are many wonderful people here who are only to happy to help out. Good luck. Mike
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