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Avatar universal

back aches,,cramps,,hep-c,?

Hi,
I just found this site,
and the info here,and support seems really great-

I have Hep-c,and am hopfully getting on the treatment
next month-
Does anyone eles have a real sore back,about mid way down
kinda throbs,,and cramps all the time,.,??
and I have just noticed that my socks leave great,huge
dents in my shins,,,uugggg,(water retention,I geuss)
I feel like ****,.so tierd all the time,.,.,.,sore joints.....

Boy I sound like a whiner,,,but thats how goes,I geuss,

Well Thanks for the ear,,,
Oh Ya,I have geno type 1,.,.

see ya,,,Gale,.,.(Kit-c)
17 Responses
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173975 tn?1216257775
ok, I'll be in touch.

Tell your husband that only people licensed in falconry and raptor rehabilitation are legally allowed to keep falcons, hawkes or raptors.

Master falconer training takes years and tons of cash.  I have a couple of friends who have raptor centers.

And there are "manly" parrots.  Will send info.
Helpful - 0
Avatar universal
Hey thanks for the info. I should do more research on it. I bet once you get "into" birds it just becomes part of who you are, sounds like you really love your birds.
My husband of course wants some manly bird like a Falcon or a Raven but I bet I could persuade him!

I bet your birds are beauties. My email is the same name I use here and add cox.net.
Helpful - 0
173975 tn?1216257775
"Hey we were JUST talking about getting a parrot! Funny you mention that. Aren't they really noisy? I worry the parrot would outlive me!"

If you're serious, let me know, coz I can talk (write) your ear off about birds!

Birds are amazing but they are a lot of work.  (I have 6 parrots and have had as many as 9).

Noise and longevity depend on the species.  The longest recorded life span of a blue-front Amazon, for example, like my Venus, was 98 years!  And I know she's not a day over 30 so, yeah, she's in my will.  :)

As I'm writing this she's sitting on my shoulder.  She's such a manipulative little b**** that I wouldn't put it past her to be plotting my demise for the insurance).  hahahaha

Anyway (see, i told you I"ll bore you to tears)  there are some great smaller species with a lifespan of from 20 to 30 years like plum-heads, Quakers, and especailly parrotlets, which are the size of a parakeet but have the intelligencve of a parrot.

Cockatiels are also a good choice for a first, less long-lived bird.  And they're reasonably priced.  If you do want more info, let me know.  i would always try to do a rescue bird, first, and if you want a baby, which are the ones that tend to bond more with humans, make sure you get a hand-raised one from a reputable humane breeder.

OK.  I'll shut up.  Maybe we can find a way to exchange addys.

PS - my apologies to forum for taking up space here with avian issues.
Helpful - 0
Avatar universal
hi,
read your question about the sx, well i had all these mysterious things going on with me probably around 2000- or 01. frequent urinary, joint stuff, dx of fibromyalgia which i didn't buy into (not saying it doesn't exist, just wasn't satisfied they looked hard enough), RA was there then it wasn't, more recent years 2003- more recent, had health problems where they had given me prednesone about 5 times quickly gained 20 lbs. looked puffy not right, like some people look a little overweight but it looks okay on them - it didn't on me hated pictures cause it would really bring it out. since on tx. i lost about 13 lb. now at the pre-prednisone weight like to lose more but look a lot better not puffy. chiropracter hadn't seen me since i began tx he noticed i lost weight commented that the bulk which hung around my middle is gone, it is, but it is the changes to the face that are most dramatic to me. prednesone gives that moon face look and even several doses of it messed me up bad, it also can mask whatever is really going on with a person. anyway i have not had joint problem or weird aches that i once got, don't know if it was hep c related, may never know.
Helpful - 0
Avatar universal
I just wanted to say Howdy ,
and thanks for the welcome----

Also I concur with Wyn,,,
on Kelio being a huge benifit,and a purty
darn nice person too,.,.,

Its so easy to relate to what so
many people say here,,,
Like it's about my life,.,.,
I try to ignore as much crapolla as
I can,stick all my mail in a box(bills)
try to stick my head in the sand,.,.But
things do come tumbeling down-

Wyn you have been on treatment for a long time eh,.
,I am not on treatment yet,and mabe it will be worse,,
But right now I sure feel like My life ,and life force
is just getting sucked right out of me,like Kelio
I stay tucked away in my little house with my critters,
my out goingness,and love of Travel is barried(sp)
some deep down inside---

well you guys,,,Amen for the internet,meeting good people
and cheers to a sun-shinnie,and healthy tommoro--

Take care,.,.,.Gale,.,.,.(kit)
P.S,,,I am 5'8,,,size14,16,,180--
dum doctors wanting you to loose waight at 5'10,sz,8
ggeeezzzz,.,.,
Helpful - 0
Avatar universal
Well I didn't know I was overweight when I started with this disease LOL I always went by my clothing size and at just under 6 foot and a size 8 I thought I was fine. But apparently I was not! I was told to lose 20 lbs. but by that time I was already on treatment. I have dropped weight on treatment, I also changed my diet, eliminated all processed foods, saturated fats, etc. Cut out red meat except for maybe 3 oz. a week and added a regimen of immune support supplements.

That fatigue just wiped me out.I have weakness dizziness and weird medication induced side effects but that is not as bad as before to me. Lots of issues resolved in the first few months of treating. Before I started treating, I felt like my " life force" was fading and fading fast. It took me quite a long time to realize I was actually sick with something and not just having health fires I had to keep putting out due to stress, which is what I was sure it was. I was super busy starting a company at the time that involved lots of commuting and meetings and lawyers and workers so I just blamed that and ignored it as much as I could until it overtook me. The doctors had told me I had a "drug reaction"  which I later found out was completely bogus, the virus had crippled my immune system to the point I was just getting bacterial and viral infections left and right.
Finally, I was diagnosed and began this journey of trying to recover my health.
Many people can cohabitate with this virus virtually unscathed, but that was not the case for me.
The meds have been rough on me, but not nearly as rough as being sick was before I started treatment.
It's so hard to try to exercise when you feel so tired and weak, you are a real trooper to keep up walking.
It's hard to lose at my age! Im at a good weight now and did drop the 20 lbs. I can't wait to feel strong enough to walk all the time again.
Please keep us updated as to what you learn at the doctors.
Helpful - 0
Avatar universal
Hi,,
I live On Vancouver Island,I have a little place
just me and my critters,just left a long time relationship,time to consentrate on me..
I am 45,lady,and think I have had hep-c for about
20 years,.,

These last few years I feel like the hep-c is really
starting to kill me,,know what I mean-
I know I have Geno 1,I know my Viral load is high,
But I must get the numbers from my doctor,.,
I will next week.

I am about 30 pounds over waight,I feel all puffy,
No Booze,,,I used to party,but it hurts too much now,
so for the last 2,or 3 years I have had no Taquilla,.,.,

Doctor would like me to loose 20 pounds,,I am trying,,ugg
he also says I will most likly loose 10,20 pounds
when I go on treatment,witch he says should be for about 48 weeks,,long time eh,,but I guess you know being on it for 50 weeks,,Yikes.
How do you feel on it,,?did you loose waight,?
do you take shots,?how about Hair loss,.?
Do you get real tierd,,,?

Well you have given me some good things to ask my Doctor,
I have an apptment next wensday,.,

Take care,,,and nice talking with you,,,Gale,,,(kit)
Off to take dogs for a walk on the beach,gotta try
to get a few pounds gone,and the mutts love it--
some days I am just to beat to do anything,hate it,
and people just don't understand,.,.,.,
good one day,,,,,**** the next---------
Helpful - 0
173975 tn?1216257775
Welcome to the Forum, Kit.

Good luck with your TX plan.

You came to the right place.  Kalio and LB and some of the others know (almost) everything and if they don't, at least you'll get support and understanding.
Helpful - 0
Avatar universal
Im in California, how about you? Im geno 3a.
51, female, liver damage stage 3-4 /early cirrhosis. I treated for 24 weeks, failed therapy and relapsed and began another round of therapy 2 weeks later. I've done 50 some weeks on this second round now. I either have 6 months more or Im just about done, the doctor is supposed to let me know next week.

It is great when you find others going through this, it is a tough thing to have. There is a lot of stigma attached to it which makes it even harder on us. Especially if the stigma comes from your health providers.
There are important things to have your doctor look at to try to determine the status of your liver condition since you already are going to treat and you are not having a biopsy.
Do you know what your ALT/AST readings were? Your platelet count? Are you overweight? I hope the doctor explained to you that drinking alcohol with Hep C can escalate the progression, good idea to not drink if you do happen to drink. I'd be sure and start right now and get copies of all your bloodwork results so you can keep a record. It may all become important down the road.

Once you begin therapy, it would be a very good idea to have your viral load test (PCR DNA) test the 4th week of treatment. Many doctors are not doing that test yet, but that is the newest recommendation so push for that test. Hopefully he is up on the current protocols and is planning to do that test already!

Helpful - 0
Avatar universal
I wanted to thank you for your sweet compliments here and the other day but I really don't know half what many here do about Hep C. I do remember when I was first diagnosed how scary it was and how lost I was. People here got me started on what questions to ask and links to studies and info. I love Clinicaloptions.com and have found a wealth of knowledge there and at PubMed.
For me in the beginning I was so grateful to find someone else who had this that that alone was a huge benefit to me.

It's always best for everyone to do their own research and check with their doctors and not depend on what you read from me or anyone here as gospel. I found I would start with something I read here, then research about that issue from there. It was hard initially to know what questions to ask! Plus usually with Hep C there are differing opinions on what is "right" so it's important to be able to apply the info to your own individual situation.
I have benefitted greatly from the knowledge I have gained from this forum and all those that helped me when I was first diagnosed.

It's weird when you treat a long time and see people beat this disease and move on while there is a steady stream of people new to the disease or treatment arriving all the time. It just never stops, it seems to me there are more and more diagnosed all the time. I have noticed more younger people being diagnosed this year. Who knows if that is reflective of the real statistics, but Im afraid it is. Im afraid more people have this than they realize, sadly.
I thank heavens for my computer in getting through all this. If Im feeling horrible I can crawl in bed and research Hep C and a million other topics, it's really saved me from going crazy this last year and a half and to focus on something besides my side effects. Normally Im very social but this treatment has made me sort of a hermit, I dread dealing with people period! Between the antisocial weirdness it causes and the over the top fatigue from having my Hgb be just barely livable, I don't know what I would do without my trusty internet or the people here.

Helpful - 0
173975 tn?1216257775
I concur!

BTW, almost 6 feet tall and a size 8 and you had to lose 20 pounds?????

What are you now, a size 0 or a )?

Yeah, I looooove my pc, too.  it's my best friend right now (besides my parrots, i mean).

Helpful - 0
Avatar universal
Well I was suprised to be called "overweight" by some charts I found on the net. I am now still a size 8, just have a lot more room LOL
Hey we were JUST talking about getting a parrot! Funny you mention that. Aren't they really noisy? I worry the parrot would outlive me!

We used to have a neighbor with a big old parrot, he was funny. He used to call the kids and sounded JUST LIKE the Mom, it was hilarious, the kids would come a runnin' only to find out it was the dang bird. He also had various other entertaining quirks, like cussing a blue streak and sounding like a ringing telephone.
Helpful - 0
Avatar universal
Thanks,,,
What part of the world are you from,.??
What kind of Geno did you have ,or do have,.??

God it feels great to have some folks to talk to
about this Hep-Stuff,,,

See ya,,,Gale,.,.,.,.kit
Helpful - 0
Avatar universal
I know the feeling of wanting a biopsy but it is not uncommon for doctors to forego one if you are planning on treating already, they don't need to take the risk. although the risk is small of complications with liver biopsies they do happen. Any added risk that isn't necessary is, well, risky LOL

It is quite common for genotype 2 and 3 to start treatment without a biopsy as they are encouraged to treat due to their increased chances of success.

Geno 1's are often biopsied to determine where the patient stands and determine if treating should be attempted now or if the person has some waiting time left. We are within a decade of simplier more effective treatments and since this is a slow moving virus in most, many geno 1's chose to "watch and wait" rather than do treatment since their odds aren't that great and the treatment can be a challenge.
You can enhance your chances of success by being your ideal weight, I don't know if you have extra weight but if you do it's a good idea to lose it before treating to increase your chances of success.

It is not uncommon for people to be told it's in their head or they are depressed or middle aged or something.Often they are given some nebulous diagnosis like "fibromyalgia" which really means "we have no idea why this is happening to you"
Then you go around thinking that is how everyone feels! But as you finally found out, it wasn't in your head at all you have a viral disease.
I hope you handle the treatment well and breeze right through it! Glad you found the forum.
Helpful - 0
Avatar universal
Its just so nice to find people that understand,
and know whats what with this Hep-C stuff,.,

I can't remember how many years they(docs) told me it was in my head.,.,
My brother was going thru a heart transplant in the late 80's,.,.
and thats when I stated feeling differant,.,
You know,,Like the Flu all the time,,,joints hurt,
my back hurt even back then.
After going to every speceilest(sp)-

They finally came up with ,It was all in my head,.
cuz I was feeling sorry for my brother,.,aahhhhhh o.k
I'll just shut up about everything and carry on..

I had  an ectopic preg 5 or 6 years befor,and had
been given blood,.,.84,.,.hhhmmmm.

anyways ,,,I finally got told it was hep-c in 2000......

I live in Canada,,west coast,,
My Doctor has not told me my numbers,but says they are high,and he showed me the graf he has been keeping on me for the last year,and it shows my line going up ,up,up-

I have had an ultra sound ,and my liver is enlargerd.

So my doc says with my high numbers,and thigs just keep going up,and the ultra sound,,I don't need a bi-opsie,I
kinda would like one tho,.,.?

Well enough of my yaking,,,
again thanks eh,,,I hope to hear your stories
I hope your health is good now,
and learn more about how the treatment was for you,.
how long ago,,how long on it,,,could you work?
Do you feel normal,like be Hep-c ,,Oh that would be nice.

take care Gale,,,(kit)
l
Helpful - 0
Avatar universal
I had similar complaints and after starting treatment many of the problems started to subside. I also had "charley horses" all the time that about drove me crazy, they too have gone away. The meds bring their own set of problems but the severe aches. joint pains and muscle spasms improved dramatically. The fatigue is so debilitating and colors your whole life, sorry you are going through that. Treatment is different for everyone, but in my case many of the problems I was having that were seemingly unrelated all were helped by treatment.

Have you had a biopsy? How about your stats in general? Did you just decide it was time or are you starting treatment due to symptoms?
Hang in there, things will get better and you will be on the road to killing this virus soon! Glad you joined us here, keep us posted.
Helpful - 0
146021 tn?1237204887
Have you had a biopsy yet? I have back aches and cramps but always thought it was osteoarthritis. Wear and tear arthritis due to aging. I'm not sure. As for as the swelling in your ankles, Wal-mart carries a sock for diabetics with a loose top so that it won't leave indentations. My father has kidney failure, mother-in-law had a stroke, and the socks work great for their ankles. Good Luck.
Bug
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