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biopsy verry soon finally !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
by dndfunnel, Jun 20, 2005 12:00AM
FINALLY JUST GOT A APPOINTMENT AT CLINIC DIDNT TAKE THAT LONG. BIOPSY SHOULD BE SOON. HAVE LEFT THE COAL MINES AM NOW READY TO START TREATMENT. JUST WANTED TO SAY GDAY TO U GUYS. HOW HAS EVERYONE BEEN?
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I was wondering if you got lost somewhere.
How are you feeling other than dissapointed the silver did not make you wealthier. I still worry about all that silver in your body, tell them to weigh the silver in the Bx sample. ;-]
Everyone/ There is a Minnesota Hepfest in Brooklyn Park,MN on August 4-7 9am to 9pm. Details can be had from ***@****
I've never attended or been aware of it before now but am tempted to go. I'm no social butterfly.Thinking on it... frank
GO!
The way I found I had hep c, is because the rheumatologist could not find any other reasons for my arthritis like symptoms. I was tired constantly with hardly any exertion and had carpal tunnel and sciatica, could be aging, but the hep c made it worst.
My rheumatoid factor was always higher than normal.
I was hoping all the aches would be gone after clearing the virus, but my theory is that having this infection for so long, affecting the joints and such, caused irreversible damage to the tissue. Another reason to treat early, before extra hepatic symptoms have a chance to do an irreversible number on your organs. My theory only.
I had chronic fatigue prior to diagnosis... & that can be a sx... but not even knowing what hepc was back then... I never related it to that!
Ive=
I just inquired about how many had showed up... I had heard it was less than 100.... I didn't know that it was even half of that... Dang... I think the problem is.... well... probably that most are currently treating..
vic, it was dissapointing to see so few people, most are not treating, it has to be other reasons; expecting that others living closer will show up, some personal forums conflict, I don't know. There should be unity when presenting hep c where the lawmakers are, though. Numbers is what they pay attention to, but not the numbers in paper, the ones at their steps making noise, like HIV marchers did years ago.
Dr. Cecil was one of the speakers, as well as antoher dr and a VA bigwig, along with some of the forum folks. They were speaking to an already small group, that was spread out to look even sparcer.
I know some folks like to write letter after letter, but these can be trashed without reading, you can't ignore loud Marchers.
there were people from Georgia, Texas, Colorado, NY and not sure where else. People in wheelchairs, walkers and canes, they Marched. We are not going to be taken seriously until we show NUMBERS! There is one on Aug 9th in NYC, let's bus heppers in!
i wonder what would happen if i ran a metal detector down your spine? beeep beep beep...!!!! ;o)
well i'm proud of you guys for going and standing up for us...maybe i'll go sometime too. thanks cutie for what you did!!!
I meant to say that most people that did not show up, are not because they are treating, there has to be other reasons. Inertia, apathy, money, who knows? But Wahington DC is one place we want to put a face to the CDC numbers, I think.
Forum Member Conflicts!!!!
Now it’s one thing for us heppers to of-course want to speak out & be heard…. But we have families to contend with… Prior to my diagnoses, I had never been a member of a forum ANYWHERE… so I didn’t know the protocols, the etiquette, the abbreviations… NOTHING…. So becoming a member of a forum was a whole new world to explore…
I was naive to the fact that people in general could & would find power behind the almighty keyboard & be so cruel, & play hurtful games with sick folks on drugs….. From Telling you how to spell, to twisting, & elaborating on the truth… or telling just down right lies … I had such a horrible fowl experience…
That I seriously Doubt that I would ever be able to meet ANY of ya’ll personally without jeopardizing my relationship, or putting a strain on my family…
I would have LUVED to have met AKhepper while I am here…. But KNOWING That last years experience put such a fowl taste in better halves mouth…. (Which he is STILL NOT Over by the way) That there wasn’t even anyway I was Ever going to pursue that!!!! Regardless if a person is male or female, doesn’t really matter… that’s not the point…. The point is… that we need to be here to support one another, & NOT Fuss & Fight & Be Power Tripping On Others… I have seen these meds bring Grown Men Down To Their Knee’s Or In Tears When these Emotions Start Running Amuck….. & our families are stuck with having to pick us back up again!!!
We are all too familiar with, & seen suicidal folks NOT taken seriously, we’ve seen witch hunts, relentless spell checkers, bullies, & gamers…. Ect… & as unfortunate as that is… it’s the reality… & I find that very sad to say the least… but until the heppers can get UNIFIED… how are they Ever going to become ORGANIZED????
Just A Thought…. Any Solutions????
Your fatigue can very well be a symptom of HCV.
Cuteus, Vick,,,,That is so disappointing to hear that the numbers were so small and yes,,,,can't say much as I wasn't there. As far as the forum conflicts,,,,Its stupid stuff that sometimes goes on at different forums. As far as not showing up because of that,,,,would be crazy! We need to look at the big picture and just having the numbers. I would have loved to heard Dr Cecil talk also.
Yea… you are right…. I know of several folks in here that got to do the “meet & greet” … I think that is GREAT, & is as it "Should Be"...
Goes to show you can’t go categorizing folks due to anothers actions either …. That would be about like saying all Southerners are Baptist, & Hospitable… & that simply isn’t so, I have seen some southerners that would flat just assume shoot ya, than to look at you….. LoL… So certainly not the cause… but possibly could have an effect on a minute few…
If anything I guess I’m a little envious because unfortunately I will probably never get that opportunity, & sad but true, I seriously doubt that I’ll ever get to attend a march...( kind of why I never discussed making a commitment even though “I do feel obligated” ) ……
I have to be realistic, & with my Not working, I am very limited & depend on my better half… & I am not naive enough to think that he’d ever fund such a trip… much less be supportive (even if it were 100% paid for, & free)… I'd still catch grief
However that doesn’t mean that I am not supportive of the cause…
It just limits me to doing little things like making a small donation here & there, & attempting to bring community awareness locally… wish I could do more, but that’s about all I CAN do….
I always hate that too, because regardless of conflicts… it’s nice to relate with others that are experiencing, or have been thru the same difficulties… Even if it’s only to say.. Hi, How was your day! So I guess he just doesn’t realize how we all “can’t help but somewhat bond” simply trying to get thru this!
When several of us were talking about children the other day, I was thinking .,.. well, how are we to supposed to get our children to understand… when we can’t even get our loved ones whom are adults to understand? How do we get to their level?
Well, anyways… I guess this makes Ive the official representative from medhelp… & I am glad she went…. I personally feel like crawling under a rock!!! Those #’s are embarrassing, & I expected so many more…. I am obviously feeling guilty cause I have been up here living the high on the hog pretending that I am normal with my better half for the past 3 weeks instead of Marching in DC where I should of been …
Guilt, Guilt, Guilt….
Starting to stress a bit too as my heart is torn between Alaska, & Georgia…
To me home is where ever HE hangs his hat… & the last few years without that, have put me & my dog thru Culture shock…
I’m gonna be so LOST when I get back on east coast time… but my puppy is sure gonna be happy to see me,,,,,,,,,,
My daughter called awhile ago & said… aren’t you ready to come home… I said.. Yes & No… Kind of sort of yea... & I'll be happy when I get there.... but then I am gonna miss him...just like I do with them when I am here … Sux being torn & needing to be in two places at once
Ummmm…. I think I hear my ROCK calling me… Ha!
:) Vicki
(Actually I need to start packing & get ready for dinner) I’ll catch up with ya’ll soon…. I might have to pout a few days after I get home… Whaaaaa!!!
*************************************************************
jtjmack=
Depends what you are looking for...
Try This...
http://forums.delphiforums.com/n/pfx/forum.aspx?nav=index&webtag=delphicomz&query=hepatitis+c
There is a whole community over there...
If you go to the second one on the list, I'm sure you'll find some familiar faces!
Mee Too....I found this one to be the most informative one on the net, & I am so glad it was the first one I ever stumbled across!
Rev¡K
HARPOON¡K. LoL¡K it is rather large isn¡¦t it!
Dean...
Good Luck, & if it makes you feel any better... I want to tell you that I had a BLAST undergoing my Biopsy Procedure...
Not all Doc¡¦s will do it¡K but if they give you a choice¡K ask to be anesthetized first¡K You won¡¦t feel a Thing¡K I Promise¡K
The Staff & I were goofing off, & cutting up so bad, That the hardest thing for me, was to hold my breath for a brief second cause I was laughing so hard.
My Doc was running late so they kept re-upping my Anastasia¡K. I told em go ahead, that I had a designated driver¡K.
I¡¦m a tad bit warped when I am on ANY kind of drugs, cause I am so hypersensitive to EVERYTHING!
I got to play with all the instruments & the remotes to the cat scan¡K & then when I got done they rolled me out into the hallway & even let me play with my liver¡K. I was shaking it around like a one of those glass snow crystals¡K.
It was three little squiggly things in a jar of liquid that looked like little pink goldfish turds¡K. later they tried to feed me¡K & I said I wasn¡¦t hungry¡K but as soon as she left I snarfed down everything on my plate ¡K the nurse said she¡¦d hate to see how much I eat If I were really hungry¡K
I had a little shoulder pain¡K(so I said).. & got even MORE Drugs¡K. Yippie!
I can only imagine how I silly I looked out there on a gurney in the hallway being amused with my guts.
Anyway¡K you can¡¦t ever be as annoying as I am, & am looking forward to the Zest you¡¦ll add¡K I know that not everyone can make such an enjoyable experience out of something as traumatic as a biopsy¡K but I¡¦d do it again in a heartbeat!!
Best of Luck, & let us know how it goes!!!
ļ~ {{ I was trying to make a wink there} Ha
Vicki
Scared Ya HuH... LoL... Yea Right..
Something about those hinges behind the knees tells me there is a story behind that....LoL... HUmmmm... I bet that was wicked... probably looks pretty wicked too!!!
I always wanted one... but I was too chicken due to my needle phobia.. plus I always knew that my mother would Kill Me.
My granny used to always say.... Don't ever get a tattoo of a rose stenciled on your chest... because when you get older it will become a long stem rose... that was enough to scare the heck out of me!
Hey... here's a scary one for ya.... But You probably already know this…
I am assuming that you acquired these tattoos over many years.... Well they did a random Study in San Francisco of people with Tattoo's only.. didn't matter what race, or creed... out of 800 some odd tested... 80% of them had HCV... & they discovered it was NOT lack of proper sterilization of instruments.... but that the virus could actually live in the INK for up to two weeks... Anytime I have ever told anyone with Tattoo’s about that… they get all defensive on me… so I just quit telling them
Anyway, wish I could have had some shoulder pain yesterday when I had to give my blood draw… those dang folks blew out 3 veins & took 4 pokes… Grrrrr…They do that again, & they WILL have to sedate me!!! Ha…
I’m a late bloomer I guess, cause had I of discovered all these drugs when I was younger… I probably would have abused the hell out of em, & been an addict… cause I LUV my drugs… My Family is not to fond of the way I handle them when I get all goofy & stuff… but man… what a way to pass the time away… not like I am doing anything better for another year…. Heck… they recently upped my Xanex too… Go Figure… that one is supposed to be addictive… & the Ambien is not… I think they got it all backwards myself…. But what-ever!
As per surprises…. LoL…. Everyday on TX is a drug induced adventure… I am just blessed that I haven’t gotten half the sides that most do… & that I can find humor in all this (although that sometimes within itself is a struggle) Having a warped sense of humor seems to save me!
Hey… my first Husbands name was Dean… still don’t care much for him even though I haven’t seen or heard from him in well over 23 years… but I have always liked the name.
He was a Shrimper… & that marriage only lasted about a year&1/2
Named my only Son “DEAN”…. But unfortunately that was the miscarriage that I had 6 weeks before due date & where I “think” I contracted my HCV via transfusion when I about hemorrhaged to death.
There was a poem called the “Sea Gypsy” by Richard Hovey that always made me think of him….
I AM fevered with the sunset,
I am fretful with the bay,
For the wander-thirst is on me
And my soul is in Cathay.
There ’s a schooner in the offing,
With her topsails shot with fire,
And my heart has gone aboard her
For the Islands of Desire.
I must forth again to-morrow!
With the sunset I must be
Hull down on the trail of rapture
In the wonder of the sea.