bleeding

[newco]

For the ladies, After starting treatment I have had low platelets for clotting. last test was at 87, I will get my latest results tomorrow. Has anyone had a problem with excessive bbleeding on their period as well as continuing non stop (some light days) I am afraid it is from the low platelets and they are going to take me off of treatment.
Treatment has been rough, I had a bout of pnuemonia so I am on antibiotics for a month, clarinex and now on an antidepressant Lexapro. As well as the boyfriend leaving this is getting unbearable for me.
Newco

[Tallblonde]

I think your post somehow got lost in the shuffle.  People here are normally much more welcoming of new folks, so please allow me to say "welcome" on behalf of everyone.  This is a good place for support.

Due to the severe nature of your liver damage, I strongly suggest you start a new thread and re-tell your story (or just cut and paste it) so it doesn't get overlooked. There are a number of people here who I'm sure can offer you some very useful advice.

I'm only at Stage 1, so my situation isn't quite as urgent as yours.  However, I'm doing a number of things to keep my liver as healthy as possible until better treatment options come along.  You'll find a list of those things on the thread above titled "Q for Tallblonde".

Good luck to you, Rick.  

Susan

[rsterling]

Dear chev,
Just sorry I didn't pop back sooner and see your message.
You're very sweet, and thank you.  I have a fear of telling some things to the doc for fear of ending treatment.  That's why it's always great to search through here and see others experiencing the same things.
Thanks Chev, Robin

[rsterling]

The first wild period I had like that I thought I was going to bleed to death if I didn't go to the hospital too.  Of course I didn't, but it was scary.  I had a few like that and then it subsided.  My platelets lowered too and my doc put me on a reduced dose of Pegysus.  I wondered if the heavy menses had anything to do with the lowered platelets, so now I make sure that I get my lab work done before my period hits.  A few weird things have happened while on treatment(just finished week 28), that made me wonder if I was going to die.  Scary enough to make me put my little one in his room because I didn't want him to wake up with me dead.  Just goes to show how we can work ourselves up when something different and strange is going on with our bodies.  But so far all lab work is still fine.
Take care and God Bless. Robin

[layla]

I experienced hmuch heavier bleeding than normal then nothing and the times were inconsistent. Normally I was like clockwork and very short and very light. I was on tx for 18 montha and didn't have any period for the last 6 or 7 months. My hepatologist office informed me this is very normal. Tx also cause me to have thyroid probolems which will only exaggerate these probloems since that also affects your hormones. I am 6 months post tx and things are closer to normal now. I was kind of hoping maybe they were over. Oh well. I hope you feel better. LL

[Rickobar]

Hi everyone, Im Rick and I was diagnosed with HepC about 3 or 4 years ago. Had a biopsy immediately, and the doc said in all his years of service, he had never seen such a badly deteriorated liver for a person of my age. I am now 49, then I was like 45 or 46. he said I was real close to having Cirrhosis. I tried interferon treatment for about 6 weeks. 1 injection in the fatty tissue every week. By week 6 I was so anemic and weak I could scarcely get from the bedroom to the living room. I told the doc I have a 3-4 yr old girl to raise, so I cannot see continuing treatment, as I would just not be physically able to raise her. So I discontinued treatment, and about 2-3 weeks later, my energy level came back and about 2-3 weeks after that I felt great. Great compared to what the interferon made me feel like. I too have a problem with nosebleeds. Sometimes frequent, sometimes not. Most times they come for no apparent reason. Like about 2 weeks ago. Im driving down the road, everythings fine, then BAM! it starts. Had to pull over and stuff a wick in it.   LOL!
    I know that by discontinuing the treatment, my chances for survival are diminished, but I would rather BE there for my daughter and my wife for the next say 10-15 years rather than do the treatment for 1 year complete, 52 weeks straight, and miss out on that entire year because I would be tooo anemic to function. The way I see it, my time here on this planet is limited no matter what I do or dont do. Thats just life. Its all a matter of perception. I dont know about the rest of you people, but I KNOW how I contracted this godawful disease. I was an active Alcoholic Drug addict and didnt really give a hoot what happened to me at that time. Well, how things change. I now have 11 years clean and sober, have a wife, a child, and a wonderful life to live. I just have to live it within the constraints of this disease for as long as I can, to the best of my ability. Anything past that is up to God, or Whomever there is at the helm of all reality. If they come up with a treatment that  does not put me outta commision completely for the duration of the treatment, then I will most certainly consider taking the treatment. I am happy this forum is available to us for communicating with each other.
    If you have anyhting to contribute please do so. If you prefer private communication with me, you amy write me at ***@****

[newco]

God you guys I feel so relived to know that it has happened to others. (not glad it happened just knowing I am not alone) I was so petrified that I would bleed forever. I know it's a little difficult to ask these questions because guys read it but I just had to see what is going on. Thank God for this Forum it has helped me immensely.
I guess the holidays can get us down too with all this going on. You guys have the best Christmas ever.
Love Newco

[Laika]

Newco, my heart goes out to you.  I was hoping with the boyfriend leaving, that you would at least have an easier time on treatment.  So we

[honey1616]

Sorry to hear you are having a rough time.  Sounds like you are definitely ready for a break and turn about.  I know for me being on tx,,,about the time I get really sick of it,,,something good happens and then I'm back in the game LOL  I'm sure it is double hard for you now with your boyfriend leaving and I'm really sorry.  As far as my period on tx,,,,I started my tx in January and skipped Feb & March and then had a period for a month in April.  That was the last LOL  So that is good and I will be finishing up here soon and sure the period will start back. This tx can really mess up your system!  Hang in there Girl,,,,Life is weird at times and we don't always understand everything at the time but I have a feeling you will be doing really good after finishing up tx!  Come here to Shout when things are getting bad!

[eztagger]

I can't help you because I've been post menopausal since 1990, however, my heart goes out to you.