Aa
continued tx up in the air
Ive been on the phone for a week trying to get help w redipens . my health care is changing .Ive watched other posts on this matter .the people are very nice .but all the programs ask for income .thats where i seem to fall thru the cracks .I make too much to qualify. ive tryed compasionate care , the drug company directly , state programs .after 12 wks { UND after 4 } Id hate to stop . any other suggestions. this is stressing me big time .
I hope it works out for you!! I think it will with NY behind you LOL
My GI's office "claimed" that I could not get any assistance because I had insurance BUT we had to pay the first 2400.00 and 10% after that for everything. It is a high deductable plan because we could not afford the 900.00 per month, now we pay 535.00 Plus the rest. I am a little over a year post tx and I'm still paying for the last 2 years of meds, doctors, mri's, endoscope and labs. They can wait till I can pay I figure.
My GI's office "claimed" that I could not get any assistance because I had insurance BUT we had to pay the first 2400.00 and 10% after that for everything. It is a high deductable plan because we could not afford the 900.00 per month, now we pay 535.00 Plus the rest. I am a little over a year post tx and I'm still paying for the last 2 years of meds, doctors, mri's, endoscope and labs. They can wait till I can pay I figure.
I had an experience similar to FloridaMouse's – I was temporarily denied coverage. Often hepatologists have samples of the medication that they can help you with, since it is not uncommon to run into problems with insurance. Even if your doctor has one month's worth of samples he can help you with, it might make a big difference.
I went through a health insurance change the first of the year. I was in week 57 of treatment when Blue Cr*ap cut m y treatment off saying that there was no evidence of increased efficacy beyond 48 weeks. I was in the same situation, my husband made too much $ for us to qualify for pegassist. However, my doctor went directly to his own Roche drug rep and was able to get me my meds until I won my health insurance appeal.
If you have a good relationship with your GI see if he will talk to his drug rep for you.
Mouse
If you have a good relationship with your GI see if he will talk to his drug rep for you.
Mouse
here it is ny {by the way youve always been my rock}
You just made my day friend, I am so glad it worked out. Sometimes, you just need somebody to say hang in there it will work and that is what this forum does SO well.
I think the only time I was glad I don't make a lot of money is when I contacted Comittment to Care.....but then if I was my boss making 1mil a year, it wouldn't have been that big a deal AND I'd have had executive insurance package and probably they would have covered it anyways right?
Good deal now you can kill this thing for good and get on with life! (Just took a sub. in your honor ;) kind of like a toast hahahaha.
You just made my day friend, I am so glad it worked out. Sometimes, you just need somebody to say hang in there it will work and that is what this forum does SO well.
I think the only time I was glad I don't make a lot of money is when I contacted Comittment to Care.....but then if I was my boss making 1mil a year, it wouldn't have been that big a deal AND I'd have had executive insurance package and probably they would have covered it anyways right?
Good deal now you can kill this thing for good and get on with life! (Just took a sub. in your honor ;) kind of like a toast hahahaha.
Sounds promising, that phone call from Schering that came in today. Let's keep our fingers crossed until you hear from them again in 24 hours. If you're not approved by tomorrow, don't give up. Your case may be caught in red tape.
I have pretty decent income and a 20% co-pay. On the advice of my nurse, I documented every last painful detail of our finances (annual electricity bill, etc.). I thought it was a complete waste of time.
And Roche picked up the 20% to my COMPLETE surprise. I think the nurse arranging it had something to do with it. I didn't know squat about this stuff and never asked.
As for getting sick to your stomach about this, I get sick to mine over more minor stuff than something as critical as financing.
The other day (and you know I'm two weeks post-tx), I was ready to hammer someone at the lab who stalled about giving me my PCR bloodwork. Luckily, we were on the phone but I was very surprised at how I let her have it. Did it help my situation? No.
I'm impressed you're keeping a lid on this so well. It's not the hysterical and swearing wheel that gets the grease. At least I didn't get any grease that time. May have burned a bridge or two.
I have pretty decent income and a 20% co-pay. On the advice of my nurse, I documented every last painful detail of our finances (annual electricity bill, etc.). I thought it was a complete waste of time.
And Roche picked up the 20% to my COMPLETE surprise. I think the nurse arranging it had something to do with it. I didn't know squat about this stuff and never asked.
As for getting sick to your stomach about this, I get sick to mine over more minor stuff than something as critical as financing.
The other day (and you know I'm two weeks post-tx), I was ready to hammer someone at the lab who stalled about giving me my PCR bloodwork. Luckily, we were on the phone but I was very surprised at how I let her have it. Did it help my situation? No.
I'm impressed you're keeping a lid on this so well. It's not the hysterical and swearing wheel that gets the grease. At least I didn't get any grease that time. May have burned a bridge or two.
I just can't figure how much money SSDI provides that you can possibly be over with your wife out of work - that is the household and I just don't see SSDI paying over 100,000 a year. I don't make 500,000 a year but I do earn a decent enough salary.
Did you call Comittment to Care patient assitance program? Generally all they have asked others here for was the denial letter from the insurance compay and that was about it, others have definitely even made more than I have and been approved.
something isn't quite right - I'd call them again and double check on this!!!!!!!!!!
Did you call Comittment to Care patient assitance program? Generally all they have asked others here for was the denial letter from the insurance compay and that was about it, others have definitely even made more than I have and been approved.
something isn't quite right - I'd call them again and double check on this!!!!!!!!!!
they make it very hard w deductables and copays . yes your missing that Ive just enrolled , have had state care for the first two yrs of SSDI . I gonna make it . just when it comes to interferon i dont have a problem begging . no but serious bill i would stress out a very thin household . its my fault ,i knew the switch was coming in march when i started tx . i think the problem is for 12 weeks i havent had to pay and now its like sticker shock , ontop of all the other stuff that i feel w this medicine . might be time to "man up "
Just wanted to throw in more encouragement. Stopping is just not an option. Everyone understands this economy and many are scrambling for basic needs. Don't even think twice about doing all that you must to finish tx. You're looking so good.
Glad Shering is in touch. They know what is at stake. I'm confident they won't let you down. Do you have enough meds to get you through this red tape?
Glad Shering is in touch. They know what is at stake. I'm confident they won't let you down. Do you have enough meds to get you through this red tape?
Hi Bob,
I’m just curious; if you’re currently on SSDI, why doesn’t Medicare pick up the tab? Do you have a Part D policy? Seems like a ‘duh’ question, so I’m probably missing something—
Bill
I’m just curious; if you’re currently on SSDI, why doesn’t Medicare pick up the tab? Do you have a Part D policy? Seems like a ‘duh’ question, so I’m probably missing something—
Bill
Im just sick to my stomach over this .I will not give up , i didnt go thru 12 wks of this hell for the fun of it .im seeing dr friday , we need to talk ! alot of brick walls for sure !! thank you for this little extra p*ssed off "push" im feeling right now . here it is ny {by the way youve always been my rock} please include following documentation medicare eligiblity denial letter copys of insurance cards w2 forms 3 months checking statements pay stubs etc lol Id say they want to know how many nickels I rub together . I only wish i could pay ,like orleans said .yes my life is worth everything to me ! I had to stop typing and answer phone .shering people just called and did a second look at my "situation" will know in 24 hours Im not a begger I worked hard all my life . but in this economy im just dead in the water . alright thank you all bob
First, I want to thank you for bringing my attention to this forum:
http://www.medhelp.org/forums/Health-Insurance/show/13?personal_page_id=457170
I hope the doctor can help with a real and practical solution.
Second, I want to urge you to not give up. You're having amazing results and somewhere out there, there's a financial solution to this. I don't see why your coverage shouldn't be grandfathered given you're twelve weeks into tx with RVR.
Do you think you could ask your nurse or doctor to make calls for you? My nurse arranged everything before I started tx. It's tough to arrange this without knowing the ropes before tx, let alone during tx.
This running into brick walls is awful but please don't give up now. RVR is your ace.
Port
http://www.medhelp.org/forums/Health-Insurance/show/13?personal_page_id=457170
I hope the doctor can help with a real and practical solution.
Second, I want to urge you to not give up. You're having amazing results and somewhere out there, there's a financial solution to this. I don't see why your coverage shouldn't be grandfathered given you're twelve weeks into tx with RVR.
Do you think you could ask your nurse or doctor to make calls for you? My nurse arranged everything before I started tx. It's tough to arrange this without knowing the ropes before tx, let alone during tx.
This running into brick walls is awful but please don't give up now. RVR is your ace.
Port
oh yeah they ask ,It seems im just a bit over . Im on ssdi and wife is out of work . Im glad you were able to pay like that orleans ,not the case here .
You know when I applied for the Comittment to Care program so I could extend treatment, they never even asked me for proof of income, I just told them what I make (which isn't really THAT little, since I have no spouse it was I think half the state average and CT has a high average comparitively) and they said cool fine. Nothing more than that. Did they ask you for proof of income - we've had lots and lots of members in here use that program and I think only one person that I can remember who was an executive or doctor or something was denied on the $$$ issue.
Hey, If you are at week 12, UND at 4, the out look is very good. If you go 24 weeks you will have a great chance of SVR .You may have to buck up and buy what you need. The price is around $2000 a month. 3X$2000 = $6000. Certianly your life is worth that. My tx cost me over 20k, WITH insurance!! (10k deductable) Kind of a beg, borrow or (not!) steal situation. good luck, jerry
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