exteme nausea and fatigue

[dirtytown]

I was diagnosed 3 yrs ago.  geno 1a. biopsy grade 1 stage 1 and mild fibrosis.  tx 12 wks and nonresponder to pegasys/copeg.  currently a patient at mayo clinic scottsdale. stage 3 trial to start 2007 with albuferon.  what can you do to help symptoms?  currently had to leave work and seek ssi disability.  how hard is it to get ssi disability?  thanks. DT

[sfbaygirl]

Sounds like I am NOT getting disability. I have another disability besides the hep c and feel like I am not contributing. I have always worked, I hate being dependent. Thankfully, I have a great husband who has assets. It doesn't make me feel much better that I can't contribute what I paid into for 30 years!

How is it that rich people can collect SS, but not SDI or SSDI?

[Magnum]

Excellent questions...

Unfortunately yes, your husbands income is counted as "household income". As for owning a house, don't quote me, but I believe you are allowed to own a house and it will not be counted as assets. However... should you sell that house and make a profit, it will be counted as "income".

You are allowed to own only one vehicle. I don't know what the limit of the value of it is though. All this is made easier if you are poor. There may be Social Security attorneys that can help for a fee. wish I could help further...

Good luck,

Magnum

[Magnum]

Getting SSI is not easy. Unfortunately, those who ruined the traditional and timely process to get it, by lying and cheating, have abused the system, and now everyone has to jump through a lot of hoops before reaching the finish line.

I'm on SSI, but not because of Hep C. I'm considered permanently disabled because of severe hip problems. Not to say you can't get SSI because of Hep C. I just didn't get it for that reason.

You will have to call Social Security, explain your illness and work situation. You will be asked a million questions and have to give them your doctor

[sfbaygirl]

$2000. in the bank and your car model? What if you are married? Do they count all his bank accounts too? I suppose you can't own property either. Wow, what about the working people who saved for retirement and paid into SDI? Why can't they get it if they have more than $2000.

[NYgirl]

It IS one of the hardest things to accomplish in the world and Mag is right - they have to look at everyone like a criminal because of the actions of some.

They make it HARD to get, very very hard.

I have not gotten it for the Hep and have worked through treatment but I did get it once when I had broken my back and "dented" my brain (really).  They gave it to me because of the TBI and not the fractures in my spine.

It was hard to get and I had to have more documentation than I care to remember.

Recently someone was talking about applying and they had literally not seen a doctor in a year. There is NO way they could collect disability - the paperwork is just CRUCIAL in proving you ARE really disabled.

Best of luck.

[OnAPrettyPoison]

Scroll down to 8/20/06 - there is a thread on applying for SS disability posted by Hopelyn that had some good information in it.  I hope this helps you and wish you luck in seeking treatment and disability.  Sorry about the fatigue and nausea and hope you feel better soon.

[mycoldfeet]

If the Mayo clinic can't help with the nausea, ask for some phenagan patches for the nausea, As for ssi disability, I dont think my Doctors had the same clout as yours but I got my approval letter 1 mo and 4 days from applying. but there is a 2 yr waiting for medicare, unless it's for certain things like a transplant but call them and document everything, and good luck