Aa
extra pills
I started in march today I figured out I missed 27 pills since then all from the early month's when I tried to remember on my own since then have gotten pill case any reason to catch up or just forget about them have been clear since july
Now that you are in week 30-something, forget about them. Just use your pill-box going foward. When you get to the end, dispose of them like they were toxic waste.
It's very very very important that we are compliant with the medication instruction - if we aren't it really hurts our chances of SVR.
Make sure that no matter what you have to do you take them on time all of the time. Figure something out so that that med box is right where you simply cannot miss it!
For now though I surely would NOT make them up. Take it from someone who took extra (had it approved by the doc) for 46 weeks...you can have really BIG anemia problems if you take more than you absolutely have to.
Let them go and try like hell to not miss one more pill. To do treatment but not do it right...it's like all that agony for no reason at all!
Good luck. When I first started the AM/PM pill box helped me TONS!
Make sure that no matter what you have to do you take them on time all of the time. Figure something out so that that med box is right where you simply cannot miss it!
For now though I surely would NOT make them up. Take it from someone who took extra (had it approved by the doc) for 46 weeks...you can have really BIG anemia problems if you take more than you absolutely have to.
Let them go and try like hell to not miss one more pill. To do treatment but not do it right...it's like all that agony for no reason at all!
Good luck. When I first started the AM/PM pill box helped me TONS!
Got a call from %#@&%$$^##&%!!!! yesterday and due to a snag, blip, error, exception, flub, misstep, snafu, glitch, dropped ball, gap or process flow anomaly the meds would not be delivered as expected on Tuesday. But, they will arrive today (Wednesday). We'll see.
But I did receive an odd-sized air conditioning vent/register thing that came exactly when promised in the condition that I expected.
Just have my priorities screwed up.
But I did receive an odd-sized air conditioning vent/register thing that came exactly when promised in the condition that I expected.
Just have my priorities screwed up.
Will take Shot 1 on 10/27, but will begin riba a week before that that. I have a biz trip next week and need to have my brain (not Brian) working for that, that's why putting off 1st peg. Thanks for the wishes Beamer. Looking forward to where you are right now - looking backward to a done 48.
Hey Buddies:
It is like horses going wire to wire. We have gone winter to winter together. Waking up this saturday and not having to face the riba's and the thumping in my head that occurs thirty minutes later will be a treat. I guess I can make it through the one more week of the after affects of the Peg. Before I start feeling better let me repeat this "what a miserable drug induced treatment this is". I was afraid that when I felt better I might use the term "piece of cake". I wouldn't have made it to this final week without so many of you pulling and pushing me along. Thank you. Dale the whimp:)
It is like horses going wire to wire. We have gone winter to winter together. Waking up this saturday and not having to face the riba's and the thumping in my head that occurs thirty minutes later will be a treat. I guess I can make it through the one more week of the after affects of the Peg. Before I start feeling better let me repeat this "what a miserable drug induced treatment this is". I was afraid that when I felt better I might use the term "piece of cake". I wouldn't have made it to this final week without so many of you pulling and pushing me along. Thank you. Dale the whimp:)
Oh Dale boy do I know what you mean....the longer you go the harder it REALLY does get. I don't know how I'm going to do the 72 I really dont but you are RIGHT...without this board and it's support I don't think I could have (and I certainly would have not known that I should either!)
When I go to the doctor tomorrow I am going to have a SERIOUS talk with him. He ridiculed me and rolled his eyes the first time I mentionned this support group but tomorrow (after over a year of treating) I am going to let him know EXACTLY what is has done for me not only mentally in terms of support but PHYSICALLY. He would NEVER have brought up Berg or Tapias. he would never have thought of 72 weeks. I wouldn't have known that I had such a drastic drop in my anemia when he sent me for a chest x ray because I couldn't breathe (LOL) for just a few examples.
Without the knowledge in here I wouldn't have made it and without the support I wouldn't have kept with it. No Way.
Hey...........he didn't even advise me to try Commitment to Care...Kalio is the one that did!
When I go to the doctor tomorrow I am going to have a SERIOUS talk with him. He ridiculed me and rolled his eyes the first time I mentionned this support group but tomorrow (after over a year of treating) I am going to let him know EXACTLY what is has done for me not only mentally in terms of support but PHYSICALLY. He would NEVER have brought up Berg or Tapias. he would never have thought of 72 weeks. I wouldn't have known that I had such a drastic drop in my anemia when he sent me for a chest x ray because I couldn't breathe (LOL) for just a few examples.
Without the knowledge in here I wouldn't have made it and without the support I wouldn't have kept with it. No Way.
Hey...........he didn't even advise me to try Commitment to Care...Kalio is the one that did!
piece of sh!t cake,more like it...!..if yu ever hear me say- "no problem'..'walk inthe park'...kick my butt...please!...so glad knowing you are almost there-DONE- last week suks,trx suxs!!! but SVR is forever !!!!!!!!! GOODLUCK Bro...
dyce man is right behind;closing in on the final furlong....look it him go
nygirl- how yu doin this fine day m'lady ?
dyce man is right behind;closing in on the final furlong....look it him go
nygirl- how yu doin this fine day m'lady ?
FLGuy: "dispose of them like they were toxic waste"
LOL, does that mean I need to call in the HazMat team? I thought I only needed to do that if I dropped any blood somewhere ;-P
LOL, does that mean I need to call in the HazMat team? I thought I only needed to do that if I dropped any blood somewhere ;-P
You sure don't want it in the runoff to all those lakes up there. Geesh, giant mutant catfish could take over the state.
Beamer I am just like you this has been a humbling crappy experience and if should wonder off into denial about how harsh it was please kick my butt. Dyce is closing the gap on us and you have no gap to close:) I think I will get up Saturday morning and put my **** in a vise and clamp them down real hard so I will remember what being on treatment is like. My daughter was in Buffalo last Wednesday for training, snow, no power and not dressed for it is that not funny. She was so excited to go and so happy to get back home.
Debbie: You are the queen of kings with the course you have ran and still running. If you were from the south you would be Foresty Gump. It's bad when you have to educated your doctor or at least make them act like they give a hoot. I guess that doctors feel threatened by any information coming in from other sources. He couldn't cure my itchy outbreaks but you did. Best to you. Dale
Debbie: You are the queen of kings with the course you have ran and still running. If you were from the south you would be Foresty Gump. It's bad when you have to educated your doctor or at least make them act like they give a hoot. I guess that doctors feel threatened by any information coming in from other sources. He couldn't cure my itchy outbreaks but you did. Best to you. Dale
NY girl-You are so right, if not for the forum I never would have spoken up to the hemo dr like I did. I did it because of you and the rest here on the forum. I don't give a sh*t what these doc say any more and I would believe those here on the forum before any medical staffer.
Dyce/dale/beamish- Glad to see some of you guys are done with tx and that your all still here with us. The sxs do get better after tx is done, it just takes time.
Hope you are all well and sorry I haven't been posting much. When I relapsed I took it really hard and that's when the depression started. Can you believe that, not depressed on tx but depressed at relapse.
Beagle
Dyce/dale/beamish- Glad to see some of you guys are done with tx and that your all still here with us. The sxs do get better after tx is done, it just takes time.
Hope you are all well and sorry I haven't been posting much. When I relapsed I took it really hard and that's when the depression started. Can you believe that, not depressed on tx but depressed at relapse.
Beagle
Bob, those of us who know you - know. After what you went through if you DIDNT have some form of depression...something would be wrong with you. Really. I was just saying yesterday that treatment meds haven't depressed me one little bit - but looking like sh*t for so long and feeling even WORSE than I look...has depressed me big.
You aren't alone my friend and EVER ANYTHING I can do to help...all you need EVER do is ask and if it is humanely possible I promise, you've got it.
My thoughts are always with you and this new trial just sounds like THE golden ticket for you. Your case is so different than most of ours in here...wait until the day somebody else with Thal comes in and you advise them and tell them "it was worth it".
THEN you are coming back to NY for a drink with the crazy girl....even if it's a soda! :)
You aren't alone my friend and EVER ANYTHING I can do to help...all you need EVER do is ask and if it is humanely possible I promise, you've got it.
My thoughts are always with you and this new trial just sounds like THE golden ticket for you. Your case is so different than most of ours in here...wait until the day somebody else with Thal comes in and you advise them and tell them "it was worth it".
THEN you are coming back to NY for a drink with the crazy girl....even if it's a soda! :)
I know I'm not alone, your a great friend and I to will always be there for you. I can't wait to hear what your dr has to say. Your going to beat this thing, I just know it. When I get to NY again we will have that SODA and celebrate your SVR.
Beagle
Beagle
Sorry you are having to deal with this after all you have been through. I have had to take the mental approach that relapse is a strong possibility and should not be a surprise (41%) chance of clearing. However my doctor explained to me that even if relapse occurs it is a medically proven that relapsers move forward in better condition and seem to better. I'm not going to question him I like the story. I am starting to believe that ignorance is bliss. Best of luck to you and I hope things pick up for you soon. Your a champ! Dale
Thanks for the update on how you are doing. I know how difficult it is to post when you feel like roadkill but we're thinking of you.
As the old guy downtown said, "The End is Near".
As the old guy downtown said, "The End is Near".
Hey my friend. Thanks for thinking of me. In my foggy brain I think I remember that you are from Ala. If I am remembering correctly between Alabama and Auburn I thought I would have to turn the TV set off Saturday. My dad is from Tuscaloosa so he was running touch downs in his recliner. I hope you are doing well. Man my memory is really bad isn't Dyce from Carolina and Beamer from NY. If not I have really sent some confusing notes to them. Great thing is that none of us will remember how stupid it was or who said it:) I never have been that bright anyway. I lost my email address at yahoo and you had told me you sent me a joke. I've had no success finding it at all. I just set a new one up and it's vettehead1951 at the same place. After my brain trasplant I will be much better even if it isn't successful. Best to you. Dale
This forum is great for information and support. I am tossing a serious decision around right now. Just don't know if I can complete tx. 6 more to go and I don't know if it is worth the cost of my family. I mentioned awhile back that my youngest son begged me to stop tx, he did not want me sick anymore and that he wanted his real mom back. I am now discovering that he is failing in school this semester all around. He is also getting more mouthy and sassy. I have no focus to assist this child and the guilt is eating me up. I see a hugh change in this child and I am not liking what I see.
I get up every morning get my kids breakfast, off to school, work 5 days a week, pick kids up from school, sporting practices, events and games. Come home and try to focus so I can assist with homework and I just have no focus anymore. Then I cook dinner, grocery shop. I do it all and I am so, so, so tired right now.
I see my doctor tomorrow and I am going to have a serious talk with him. I am very confused and very torn between my treatment and my family. If it were just me I had to worry about, no questions asked I would finish tx. But, now that it is taking a toll on my family life and I am getting tired of seeing the devastation in their faces. I am seriouly considering stopping tx. Just don't think I can keep going. Not Now.
Cajun
I get up every morning get my kids breakfast, off to school, work 5 days a week, pick kids up from school, sporting practices, events and games. Come home and try to focus so I can assist with homework and I just have no focus anymore. Then I cook dinner, grocery shop. I do it all and I am so, so, so tired right now.
I see my doctor tomorrow and I am going to have a serious talk with him. I am very confused and very torn between my treatment and my family. If it were just me I had to worry about, no questions asked I would finish tx. But, now that it is taking a toll on my family life and I am getting tired of seeing the devastation in their faces. I am seriouly considering stopping tx. Just don't think I can keep going. Not Now.
Cajun
I don't know what age your son is but we boys hit a certain age and the smart mouth appears. We can't do anything about it. Our mouth takes off, especially at the ones we love the most and the brain never gets a chance to catch the stupids before they are out there.
Stay with your treatment. You've come so far and you have to look at the long term. I know that I am preaching to the choir but give yourself every possible opportunity to be done with this stuff. When I would hit those times of being down on myself for not being there at times for the family I would just have to realize it was a good case of the blues coupled with a big ole pitty party. You sound like a very strong and good person with what you have been through and your hectic schedule. Put mom first for the kids. Best wishes, Dale
Stay with your treatment. You've come so far and you have to look at the long term. I know that I am preaching to the choir but give yourself every possible opportunity to be done with this stuff. When I would hit those times of being down on myself for not being there at times for the family I would just have to realize it was a good case of the blues coupled with a big ole pitty party. You sound like a very strong and good person with what you have been through and your hectic schedule. Put mom first for the kids. Best wishes, Dale
My youngest is 11 and he is also trying to make the transition into junior high; so I am sure that my tx and not being there does not help him.
I have never in my life had so much guilty in me. The funny thing is I would just like to have one long good cry, but the medications seem not to let me cry. I have felt like a time bomb waiting to explode lately. I have days where I feel like I am just an empty shell walking around with noting inside of me. Horrible, Horrible feeling.
I will try and take it day for day; but for today I just don't know.
Thanks for your kind and considerate words, I will keep them in my thoughts.
Cajun
I have never in my life had so much guilty in me. The funny thing is I would just like to have one long good cry, but the medications seem not to let me cry. I have felt like a time bomb waiting to explode lately. I have days where I feel like I am just an empty shell walking around with noting inside of me. Horrible, Horrible feeling.
I will try and take it day for day; but for today I just don't know.
Thanks for your kind and considerate words, I will keep them in my thoughts.
Cajun
dale said it well-you are doing trx for yourself AND your family!!...being off trx meds won't stop your son from being a teenager ( tough years for All concerned,parents & kids)...try a little tenderness on yourself...ask for help (maybe a xanax ?? ) ..and tell the family -'give me just a little more time"...You will beat this nasty virus by finishing trx..GOODLUCK
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