When I entered a clinical trial in July the study coordinator gave me a fibroscan as opposed to doing a biopsy. She said I was .67 and that was "good". She also referenced a colour chart that showed my score was "green" on a scale from green to yellow to orange to red. When I asked for copies of all my baseline results it said I was F3 with severe fibrosis and this was a bit of shock to me after the fibroscan. Is a fibrotest a different test than a fibroscan and why are the results different? I meant to ask at my 8 wk visit this Friday but other issues arose and I forgot (just for a change :-)
Fibroscan measures liver stiffness and is gauged in Kilopascals or Kps .. Do you have the original FS report ? Nurse might have been confused or you may have heard wrong ...It might say something like 6.7 Kps ... which would be good F1 ...
a .67 .. don't believe a reading that low is possible with FS
Fibrotest or Fibrosure is a blood test ... I personally would be more inclined to trust the Fibroscan as our blood counts move around with this virus ...
If I mixed it up and my fibroscan was 6.7 it does fit in with what I was told and shown on the colour chart but then why would my fibrotest show F3? I realize these are not 100% accurate tests but they seem far apart on stage.
Both those tests are better able to predict changes in fibrosis once a baseline is established, than they are at predicting the level of fibrosis on the first test. They work best when used over a long period of time while testing regularly.
A biopsy is the most accurate test to establish the exact level of fibrosis and even those can be off, since they sample a small tissue area compared to the entire liver. The liver is not homogenous and different areas can have different levels of fibrosis.
My original fibroscan said 19.1, then 6 mo later 9.9, then a yr later today, 6.7. all the tests have 100% accuracy, and at least 10 perfect hits. I had ONE biospy in 2001 that said I was stage 2, grade 2, (they cant bx now because I have my bp way too low), and i have 3 liver ultrasounds that say heterogenous appearance which in the comments section states that I have widespread parenchymal disease. So, the hepatologist said today that since I have had a durable SVR since 2004, that my liver might be improving, even tho I have outwards signs of cirrhosis. Palmar erthyma (sp), numerous spider nevi, terri's nails, etc..I have yet to understand any of this..I'll just go by how I feel.. mostly tired, and mostly sick, most of the time, tho I do have good days as well.. keep on everyone!
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