So happy to hear of successes on the Sovaldi, RIBA, and Interferon regime! I started 5/16/14 for my 3rd attempt and have my first 4 week VL this Friday.
I am thrilled for everyone who has reached SVR on every regime through the years. I'm hopeful for those of us trying again. I'm dazzled by the idea that someday it will be a snap to cure! Amazing and so grateful we are finally getting the attention and research to slay this beast!
I started my 1st tx course with Sovaldi/Olysio (Sof/Sim) on 5/23. I was in tx for NH lymphoma last year (Rituxamin only to reduce liver toxicity) or may have started HCV tx sooner. So far, only noticeable HCV 2-pill combo side effect is rash - not terrible, just itchy and mostly at night. I gained about 6 lbs over last year. You watch changes and wonder why - is it meds, some reduced activity althou I still exercise regularly, changes in metabolism from NHL tx to HCV tx, something else?
My liver function tests are close to normal range already, and my HEPATITIS C VIRUS RNA,QN,RT,PCR has come down since tx started.
I am still more tired than I used to be, but not as spent as I was before NHL diagnosis/tx and start of HCV tx. Every day since 5/23, I have felt more and more like myself. I have the added issues with the blood cancer, but NHL is in partial remission. Hope a strong liver will improve/extend remission since technically there is no "cure."
Best wishes to you in getting your health back.
jeeze lueeze.i just started my 1st!
5-10 times? on interfuron based treatment?! you guys are friggin warriors in my eyes! i don't think i could do this another 1 time,much less 5-10 times! daps to that!!!
thank goodness for all of us i think, the newer treatment will be out soon!!! i can handle those pills all day long with no side effects at all.. it's that peg injection that waxes me out for 3 whole days! i hardly even know my own name!!! it's been very trying... and im still trying to work! hard is an understatement, but fortunately i feel ok and even good at times, the other 4 days of the week! :)
10/10 for trying so many times fingers crossed for you that number 5 will indeed be your lucky charm! love Julesx
Hi Susan, I just finished the same Tx, and maintained the same weight throughout Tx. I had worked on losing excess weight before Tx, lost 20 lbs. Have lost another few pounds afterward. Lost muscle, but have recovered enough post Tx, am starting tomorrow to exercise again. I waited until my 4 week EOT blood panel when my levels were all back to the low end of normal. Tx wasn't bad at all, rash was my worst problem, but if I stayed out of the sun, that really helped. Good luck!
Good luck to the four of us! I finished my 5th tx with Sovaldi, Pegasys and Ribavirin 7 weeks ago. Was undetectable somewhere between 2 and 4 weeks and remained undetectable at 4 weeks post. My labs will be drawn again at 12 weeks post...feeling good about those results, I feel better than I have in a long time.
This is very encouraging news. I don't know if you remember but I've tried 10 times. So many different regimens, too much to repeat on here. But, I am due to try again (my choice of course, nobody's forcing me), with Sovaldi, Peg and Riba. I am not eligible to take the Olyssio due to my experience with Telaprevir, including null response, rebound on the viral load and a severe rash. But, I have been very encouraged by the reports I've heard on the Sovaldi. In spite of all that I've put my body through to try and get rid of this da*n disease, I have remained fairly healthy. I deal with the fatigue on a daily basis (as all do w/chronic hep), but I still exercise daily. My weight has never become overweight. I've never developed diabetes or high blood pressure or cirrhosis. But, I out of my 5 biopsies, 2 showed bridging fibrosis. Oh yea, and I haven't drank alcohol for 18 yrs. I do have some decrease on my lung function, but that is a case of mild to moderate asthma. Did you find that you lost or gained weight with the Sovaldi + SOC? Just asking because I'm curious. Any notable side effects, other than the GREAT ONE of undetected+SVR? Please let me know. My start date is coming up soon on 6/18/14. Susan400
Best of luck with your final numbers. You're looking good! It's been a long ride for you so SVR will be well deserved.
Cheers and Hope.
Excellent. I am hoping all UND and you achieve SVR this time!!! I respect and admire all of you have treated so many times and keep having faith... Jo
Great EOT news! Congratulations. A lot of folks are seeing their lives changed by adding Sovaldi to the mix. Looking forward to hearing your SVR12 news.
Best wishes,
Marty
Congrats on becoming undetectable at EOT, and best wishes for your 4, 8, and 12 weeks post treatment tests. Was this last treatment OK for you as far as side-effect went?. (Here one would usually say they can't imaging going through 5 treatments, but I too recently finished my 5th treatment!), No Peg for me this time, however. In one month I will take my SVR 12 week test. Good luck to both of us!! Let's hope we will soon be seeing lots of undetectable at the 12 and 24 week markers from here on now.
Mark
Here's hoping the 5th time is the charm!
Wishing you SVR.