Hepatitis C Community
hcv test is positive-now finances?!?
About This Community:

This forum is for questions about medical issues and research aspects of Hepatitis C such as, questions about being newly diagnosed, questions about current treatments, information and participation in discussions about research studies and clinical trials related to Hepatitis. If you would like to communicate with other people who have been touched by Hepatitis, please visit our new Hepatitis Social/Living with Hepatitis forum

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

hcv test is positive-now finances?!?

dr called last night,said i have tested positive for hcv.where i had asked for liver enzyme test,he said there is hope that i may NOT  need treatment where my body has been attacking the virus on its on.THERE'S NO LIVER DAMAGE-ALL liver enzymes are in the normal range.the low grade fever is just a symptom of liver fighting hcv in its own way.he said 1 out of 5 ppl. are like this.i have to go back today and today's bloodwork will show what genotype plus if i am one of the ppl that doesnt have to do any treatment.he says there's a strong possibility where there's not been any symptoms besides low-grade fever and the extremely long time frame since being exposed.pray,pray,pray,i cannot afford financially to miss not 1 day of work.this financial crunch is what is worrying me so bad.restaurant i work for doesnt carry any insurance and i have friends that have tried to get either short-term or long term disability due to cancer and one is now dead,other was able to get medicaid but not any kind of disability(she had kidney cancer and they removed kidney)but she's unable to work so she's basically living on other ppl's charity) and food stamps but no kind of financial help at all.ALSO how bad is treatment?are others able to function @ their jobs?thx
Blank
317787_tn?1373214989
Hi I am hoping that your body was able to fight off the HCV.  If so you have nothing to worry about.  Your body will always show it was exposed but you will be ok.
Saying that my liver enzyme were only slightly elevated when I had it.  I did not know I had it until my platets were low.
My blood work did not indicate how much damage I had, I was in the beginning of cirrhosis before I found out I had HCV

I wish you the best
D
14 Comments Post a Comment
Blank
317787_tn?1373214989
Hi I am hoping that your body was able to fight off the HCV.  If so you have nothing to worry about.  Your body will always show it was exposed but you will be ok.
Saying that my liver enzyme were only slightly elevated when I had it.  I did not know I had it until my platets were low.
My blood work did not indicate how much damage I had, I was in the beginning of cirrhosis before I found out I had HCV

I wish you the best
D
Blank
Avatar_f_tn
now i have to wait til tuesday dr.wont be in office til tuesday.his fill-in said test wasnt back anyways.from my understanding this will be genotype test and if body has fought this off but i am being very negative cause i felt wonderful til a couple of months ago i started taking tylenol p.m. for a good month and my ex husband had died this past march and i kept staring @ the last picture of him,(he was slightly yellow)got nosey and called ex-mom-n-law and thats how i found out about the hcv,that he was positive.what type genotype did you have and for how long?did u do traditional treatment?how bad is treatment?dr said where enzyme test is normal he wouldnt have caught this even w/ traditional blood work where enzymes were fine,i have read alot on internet about ppl getting diagnosed w/ enzymes being elevated but mine wouldnt have caught mine.but i hope i can keep medicaid or be able to get on disability if i cant work.yes,i am full of questions but i do know its been @ least 20 years since exposure.all my symptoms are slight low-grade fever and very sore legs but since taking tylenol p.m. i do have belly pain and it feels as though something is eating my insides.anybody else out there have this feeling.what can i take over the counter for leg pain?doctor on call would nt help me cause of seriousness of disease and told me to go to an urgent care center if these weird pain keep on over the weekend.
so they will be a test for platelets too?or should i request this test?
the family doctor said if i cannot keep medicaid he will accept $1.00 a month as payment and get me into different programs to get me treatment,my mom cannot believe a dr this day and time would even consider this.isnt this great?well if anybody out there will tell me how they feel and what they think cause from friday til tuesday is a very long time when you are waiting on test results.thx-wendy
Blank
317787_tn?1373214989
Hey there I was a genotype 1A I treated with Incivek, inf and riba.  It has been 8 months since I finished and I am clear of the virus
I pray that you were just exposed and your body was able to fight it off.  It took about a week for me to get results of geno and viral load.
I understand the anxiety.  I had no symptoms for almost 30 years, then it was found my platelets were low, easy bruising red spots, fatigue.  I was tested for all, lupus, lymphoma then hep C.
I know it is easier said than done but try to hang in there.
Take care, let use know your results, tere are many many caring people on here.
Dee
Blank
Avatar_f_tn
it is the type 1 ,the fam. dr is telling me its the kind that traditional treatment only clears @ 30 %.i am gonna call fam. dr's office back tomorrow(monday)to see what i need to do.its the kind that takes 48 weeks of treatment thats what nurse said on wednesday.i couldnt wait all day wed. for dr to call but now i want more info and i should have waited for doctor to call me.is it worth wrecking my good immune system BUT dr. told nurse to tell me it is progressing and advices treatment,he's referring me to a gi dr,but dont i need a hepatologist?dr. said i had a fighting chance cause of age,38, and its been at least 20 years since exposure.i weigh 134 lbs and i am 5'4.so average weight.but what if i just wreck immune system w/ treatment and it doesnt work?my husband is saying i am doing treatment but i dont necessarliy want something if it doesnt work.
i started going to him back in march for chronic leg pain and very bad anxiety that was so bad i could not sleep more than an hour w/o waking up.
my fam. dr has me on lyrica for leg pain and zaxax for my anxiety,are these safe to take w/ the hcv?i have started taking an 81mg aspirin that the liver foundation posted article about stopping carcinoma in liver.is this safe to take?i felt really good til a couple of months ago i got deathly sick after taking tylenol pm to sleep.can i take ibuprofen?the tylenol made me run low-grade fever and upset my stomach bad.
dr. has referred me to gi. but i want the actual #'s of the tests he took.he said the liver enzymes were in normal ranges.i am so confused about all of this.it is type 1 thats all i know.
Blank
1747881_tn?1358189534
"dr is telling me its the kind that traditional treatment only clears @ 30 %.i am gonna call fam. dr's office back tomorrow(monday)to see what i need to do.its the kind that takes 48 weeks of treatment thats what nurse said on wednesday"

You need to see a doc that treats hep c, gastro or hepa, most family docs have no experience in this area which is obvious in this case, new triple treatment for geno 1's, has a 70 to 80% SVR (cure) rate for treatment naive patients and can only last 24 wks or 48 wks depending on the current condition of your liver and also the response to the meds
Blank
317787_tn?1373214989
Hi Keith is right, you need a hepatologist experienced in treating HCV and one who is up to date on the latest tx.  30%? success rate?  In 2008 with the old SOC it was about 40% but as Keith said it is much higher now with the addition of the new medications
.  The only way to tell how much the HCV has damaged your liver is by a biopsy (unless something else has been discovered)
After the biopsy you can make an informed decision about when to treat.
If you have little to no damage you could wait for the newer, all oral drugs that are being investigated right now and should be in out in a few years. I have read that they are not as harsh as what is available now.  Saying that I think the more damage to the liver the harder the tx.

When it was discovered that I had HCV my bloodwork did not indicate how sick I was.  My doctor, before biopsy, told me I would have plenty of time to think about it as HCV is slow moving.
After the biopsy he urged me to treat right away as the biopsy suggested possible transition to cirrhosis.  I was told if I did not treat I could expect to need a liver transplant in 5 to 10 years.
I am sharing my experience to try to help you.  Saying that there is so much information out there.  If I were you I would do many many searches and make sure you are looking at information from 2012.  There is a lot of old information, research is changing the dynamics of treating all the time.
There is a lot of information on this forum as well and many many helpful, caring supportive people who will be more than happy to help you along the way,.

My best to you
Dee
Blank
Avatar_f_tn
well good this info gives me much better hope,i am going to call dr's office and ask when i am supposed to see gi doctor.thats what i was thinking when i heard of the newer meds that i read articles thats on the liverfoundation.org ALSO is it wise to start taking an 81 mg.aspirin?
my legs hurt me so bad that i am at a point where i wish i could saw them off,family dr said he didnt think was due to HCV but i think he's wrong on this one where my ankle joints swell so bad they look like a slighten sprang.(no joke)....so i will know what kind of dr i am going to if he doesnt reccommend a biopsy,point being,i mean he's not into the lastest treatment and i will need to shop around for new dr.thanks for all the great advice.thxwendy
Blank
4498819_tn?1357674190
I was recently diagnosed with HCV. and Im so confused about the whole thing. I have had alot of great answers and support from this website, but so many things are so iffy and riskful it seems when it comes to this virus. My husband passed away and the day of his funeral the funeral director pulled me aside and told me that she knew she wasnt supposed to do this....but she had information and didnt want or think itd be fair for me to have to wait up to a year to hear it and she told me my husband had the virus B and C. I didnt really know anything about hepatitis at that very moment, but I knew I had it when she told me that he did. I was tested for HEP A B C and HIV....was diagnosed with HEP C.

My doctor sent me to another doctor to test my antibodies and I did the bloodwork and was told that I could come back for the results when he returned from vacation (after i was treated like a POS and was spoken down to etc.) well when I returned I saw another doctor and she said that the previous doctor never sent off for that kind of testing. I was furious,  because just like you I was and am still anxious about everything and I was spending money for it out of pocket. I dont have insurance....I lost it when my husband passed, because i was on his insurance.

Ive had the virus for maybe 3 years, give or take a few months. Or maybe even less than that, but no more. The first doctor told me that he didnt FEEL and swelling or anything around my liver and that with me only having it for three years and it being such a slow progressing virus that I shouldnt do treatment. That it was very expensive and wouldnt necessarily work and itd be 20 plus years before I even had symptoms and etc.

but isnt it alot easier  to cure if you catch it early? I know that most DONT catch it early and thats unfortunate, but I did and I think itd be in my best interest to go thhrough treatment ASAP. Am I wrong? I know I dont have insurance and its very expensive, but Im just.....i dont know what I am..

Youre VERY lucky to have a doctor that actually cares and is willing to do a sort of payment plan, because here in AL the only doctors ive dealt with have been very cold.

I have HEP C bc I was an IV drug user...I quit cold turkey on my own at home and have been clean ever since..I understand I made mistakes, buut is that really a reason for a doctor to look down and belittle anyone?
Blank
Avatar_f_tn
i have been feeling the same as you and totally freaked when my dr said it can also be a STD.my dr has been very caring but the more i am finding out from the internet,(not little chatrooms) but actual organizations i am finding out there's more hope than i thought for my type,which is type 1.there's a 3rd drug thats mixed w/ the present 2 that makes treatment 70-80%curable w/ markers left in yr blood.and yes,i did look this up so its not just 1 person on website saying ,but its the truth.before i found this out i was ready to just lay down and not get back up.but if you know you were only 3 years into this,maybe it would be in yr best interests to wait and see what new technology come up with.but how's yr bloodwork come out?is it good?could yr body wait for treatment?
also i have been doing much digging and i do mean digging,a low salt diet is best w/ drinking at least 64 oz of water daily if you can.i am going to stop by an herbal store to already start milkthistle and also colloidal silver.look up both before you try.
the only reason i pushed for HEP. testing was when i was w/ my 1st husband,he died this past march was the last pic of him which was last christmas he had a bad yellowish-tinge to his complexion.we were into drugs but he was the heavy user i got out of it very quickly and divorced him but we never shot up.he died from a blood clot and liver failure @ the age of 42.he never quit using whatever drug was available.
you need to find another doc.obama just signed no -pre-existing conditions and if its not accepted then by state ,that state loses federally-funded programs.but i do know i have to start treatment.my side has been killing me BUT my liver enzymes are GOOD.I AM SCARED BUT I HAVE TO DO TREATMENT.i dont have a choice.is yr health good?how will you be in say,5 years?these are things you need to think about.
p.s. everybody makes mistakes,some are seen,many are hidden,thats what makes us human.
Blank
1747881_tn?1358189534
"i am going to stop by an herbal store to already start milkthistle and also colloidal silver.look up both before you try."

From HCV advocate website.

  
Making Money Off The HCV Community
Show Me The Money

One Huge Warning
Colloidal silver
.
Marketing Claims for Colloidal Silver
Colloidal silver products are often marketed as dietary supplements with various unproven health-related claims. For example, advertisements may claim that the products benefit the immune system; kill disease-causing agents such as bacteria, viruses, and fungi; serve as an alternative to prescription antibiotics; or treat diseases such as cancer, HIV/AIDS, diabetes, tuberculosis, syphilis, scarlet fever, shingles, herpes, pneumonia, and prostatitis (inflammation of the prostate). And HCV.
.
http://nccam.nih.gov/health/silver/
.
Colloidal silver can cause serious side effects. One is argyria, a bluish-gray discoloration of the body. Argyria is not treatable or reversible.
,
Thymus extract and colloidal silver are sometimes marketed for the treatment of hepatitis C, but there is currently no research to support their use for this purpose. Colloidal silver products can cause serious side effects (for more information, see the NCCAM fact sheet Colloidal Silver Products).
Blank
1747881_tn?1358189534
Key Points
Colloidal silver is not safe or effective for treating any disease or condition.
Colloidal silver can cause serious side effects. The most common is argyria, a bluish-gray discoloration of the skin, which is usually not treatable or reversible.
The FDA and the Federal Trade Commission have taken action against a number of companies (including some companies that sell products over the Internet) for making drug-like claims about colloidal silver products.
Tell all your health care providers about any complementary health practices you use. Give them a full picture of what you do to manage your health. This will help ensure coordinated and safe care.

Background

Silver is a metallic element. People are exposed to silver, usually in tiny amounts, through air, water, and food, and in certain activities such as jewelry-making, soldering, or photography.

In 1999, the FDA prohibited the sale of over-the-counter drugs containing colloidal silver or silver salts because they had not been shown to be safe and effective. However, colloidal silver products are still being sold as dietary supplements or homeopathic remedies. Consumers should be aware that unlike some homeopathic remedies, which are so diluted that none of the original substance is present, some colloidal silver products marketed as homeopathic may not be extremely diluted.

A few prescription drugs containing silver are still in use; for example, silver sulfadiazine is used to treat burns. However, of the few prescription drugs containing silver, all are for topical use; there are no FDA-approved prescription or over-the-counter drugs containing silver that are taken orally.

Scientific Evidence

Reviews of the scientific literature on colloidal silver have concluded that:
Silver has no known function in the body.
Silver is not a nutritionally essential mineral or a cure-all and should not be promoted as such.
Claims that there can be a “deficiency” of silver in the body and that such a deficiency can lead to disease are unfounded.
Claims made about the effectiveness of colloidal silver for numerous diseases are unsupported scientifically.
Colloidal silver can have serious side effects.

Side Effects and Risks

Silver builds up in the tissues of the body. This buildup of silver can lead to a side effect called argyria, a grayish or bluish discoloration of the skin, conjunctiva (the clear membrane that covers the white part of the eye), nails, and gums. In 2009, the FDA issued a warning to consumers about the risk of argyria associated with the use of dietary supplements containing silver, including colloidal silver.

Argyria is usually permanent and may discolor large portions of the body, especially those exposed to the sun. Attempts to reverse the discoloration have usually been unsuccessful, except in instances where only small areas of skin needed to be treated. Cases of argyria have occurred in people who drank homemade colloidal silver liquids as well as in people who used commercial colloidal silver products.

Although argyria is the most common adverse effect of consuming colloidal silver, some cases have been reported where colloidal silver may have caused kidney, liver, or nervous system problems. Colloidal silver may interfere with the body’s absorption of some drugs, such as certain antibiotics, thyroxine (used to treat thyroid disorders), and penicillamine (used to treat conditions such as rheumatoid arthritis and metal poisoning).

If You Are Thinking About Using Colloidal Silver
There is no scientific evidence for effectiveness and a severe risk for serious side effects from colloidal silver.
The FDA does not consider colloidal silver to be safe or effective for treating any disease or condition and has issued an advisory regarding its safety.
Complementary products or practices that have not been proven safe and effective, such as colloidal silver, should never be used as a replacement for conventional medical care or as a reason to postpone seeing a health care provider about a medical problem.
Tell all your health care providers about any complementary health practices you use. Give them a full picture of what you do to manage your health. This will help ensure coordinated and safe care. For tips about talking with your health care providers about complementary and alternative medicine, see NCCAM’s Time to Talk campaign.

http://nccam.nih.gov/health/silver
Blank
Avatar_f_tn
well there's way too many studies being done on the milk thislte,the silver my husband has been using OTC  for over 4 months for immune systme and he's yet to get sick,but like ALL herbals they have to be monitored and whats good for the patient.whats good for them may not be good for the next person.i did call liverfoundation.the lady talked about how much water should be drank.she said take yr weight and divide it and stop w/ big meals period ,eat less red meat and alot of fish.(1-800-go-liver.)she said if i couldnt get state insurance to call them back.they would ratherfind the money than this horrible disease keep spreading.i have type 1 A.AFTER I FOUND CURE RATE I WAS READY TO LAY DOWN BUT NOW I REALIZE EVEN FAMILY DR'S CAN BE WRONG AND NOW I GUESS I'LL FIGHT IT.
Blank
163305_tn?1333672171
Colloidal silver will not help your liver, it will not get rid of hep C.

Milk thistle may help protect your liver but it will not rid you of hep C. Milk thistle has been used for centuries in Europe. The problem with supplements is you don't know how pure they are. Probably the best thing is to grow your own and make your own tea.
However, it will not get rid of this virus.

I haven't been sick for much more than 4 months and I've never take collodial silver AND because of my liver transplant ( from hep C) I take immune suppression meds.
Four months proves nothing. Your husband believing it works certainly could help.
Blank
Avatar_f_tn
PROBABLY,IF MY HUSBAND BELIEVES its working then,lol,its working.yes,i know it wont stop HCV but just talking to that lady @liver foundation gave me much hope.
yes,i do know the milk thistle wont cure the liver and do believe like many others its used as an advertising tool by the herbal industry in this country BUT its hard just finding the right milk thistle .its winter here, so as far as growing my own probably wouldnt work either.if i could grow outside than i would have it made.i appreciate all the wonderful advice on all subjects stated.
i am hoping to avoid transplant but like earlier stated inforum,the only way to know how much damage is done is to have liver biopsy done period.still waiting on a friggin phonecall from gi doctor.waiting is the hardest
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Hepatitis C Community Resources
RSS Expert Activity
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
Top Hepatitis Answerers
317787_tn?1373214989
Blank
Dee1956
DC
Avatar_f_tn
Blank
susan400
FL
766573_tn?1365170066
Blank
Idyllic
96938_tn?1189803458
Blank
FlGuy
South, FL
Avatar_m_tn
Blank
can-do-man
IN
1747881_tn?1358189534
Blank
hrsepwrguy
Greeley, CO