thank u again....I am working hard to keep it together...hope john Hopkins can help my lil guy....and yes u r right...I do and will need the support that this forum offers.....
So sorry to hear He does have chronic hep c. Remember that having a 15,000,000 viral load doesn't mean that he has advanced Hepatitis C. Viral loads can go up and down on a daily bases. Remember he is very young and it's a good thing you do know he has it so it can be monitored. Remember that hepatitis C treatment is on the fast track. Try to stay calm.
Many people are cured every day of Hepatitis C. Sounds like there in good hands with Grandma. Keep us informed. I know people on this forum will give you much needed support and information.
well..found out he does have it for sure...viral load 15,000,000...we go to johns Hopkins next week for further workup...I am devastated beyond belief ...I cried and cried when the pediatrician called with the final report.....I am so angry at my daughter for her lack of responsibility and getting this disease...not to mention passing it to her child...the youngest is neg so far...but the pediatrician wants it rechecked...heart broken...love my grand children so much...I am in disbelief.....
Boston Children's Hospital
Sorry....wrong reference. Please see...
children's hospital.org/
I looked up treatment of children after the above post. It appears that there are centers that specialize in treatment of children with liver disease. It isn't recommended that children under 3. Triple treatment isn't approved for treatment in children. The current treatment approved for children is Peg and ribavirin. There is lots to consider before treating someone so young. I personally would not unless it was life threatening. Remember people can live with hepatitis C. It is important that it's progression is monitored by ongoing testing. It will be important to get your grand children Hepatitis A&B
vaccines if they do have chronic Hepatitis C. Getting Hepatitis A or B while having Hepatitis C can produce a deadly outcome.
childrenshospital.com
hi and welcome, a pediatric hepatologist should be sought out. there are trials and tx for kids age 2-17. best to you
There are precautions you can take that won't harm your grandchildren if your grandson's tests come back positive for HCV. Don't let them share toothbrushes, and be extra vigilant about keeping cuts and abrasions etc clean and covered.
If there are other things to look out for, I'm sure someone else with more experience about living with HCV infected children will jump on board.
Best of luck.
thank u for your words of confidence.....I certainly hope what u r saying holds true for my grandson....and my grand daughter..her tests have not come back at all yet....the doc expects hers tomorrow...you have lifted some burden...and I will hang in there and hope for the best....I will let you know when the pending labs come in.....I appreciate your kind words....fingers crossed.....
Hi and welcome to the forum. Your grandson has tested positive but the additional testing being done will confirm if he has hepatitis C. I would assume that the test being done is to see if he has a viral load. If he doesn't have a viral load.....he doesn't have hepatitis C. 30 percent clear the hepatitis C virus on their own and still test positive even tho they don't have it.
I just have a friend tell me her daughter tested positive for hep c but later testing revealed she didn't have a viral load. So even tho she will test positive for the rest of her life.....she doesn't have hepatitis C.
Your grandson is very young and it's my understanding that current treatment isn't available for someone that young. The good thing is he is young and most likely has little or no damage due to hepatitis C. And that would be the case if he even has it. Remember that Hepatitis C research is moving very fast and there is lists of good reason to feel that easier and better treatments are right around the corner. So hang in there and know there is a solution to your grandsons possible Hepatitis C.......it's curable.
Best to you