hep c symptoms slightly different

[cruella08]

I have hep c genotype 2 I have extreme joint pain both arms shoulder to wrist. I have red sores dominant to my right side arm some on my leg. They itch, are painful and very slow to heal. Are these symptoms? They were the symptoms that made me see a Dr. but they are unresolved. Suggestions?


This discussion is related to Hepatits.

[Marcia2202]

Hey! I'm good... busy with the grandson... :-) He's so sweet.

Hope all is well with you too.

Hugs, Marcia

[Marcia2202]

Apology accepted.

I wish you well!

Marcia

[child24angel]

Thanks Marcia !! I could not have said it better.
Hope all is well
Elaine

[shellywinters]

I sincerely apologize and wont. I guess I just really wanted to help people suffer less. I thought it would be beneficial here as all the research I have done for HIV, HBV I always ran into HCV. I know I don't have HCV but that did not stop me from wanting to help those who do. I see now It is not my place nor am I qualified now for such advise.

I got my self in a BIG mess not so long ago. I have been repeatedly tested for HIV and I don't have it, and I can't prove it, but all the things I took after researching, I cant help but think thats the reason why. I really should have had it, I mean, really! The man I fell in love with is HIV pos. We found out after we broke up and HIV and HBV do not mix!

After reading all the great things with ALA, taking it myself, along with the research of endoviruses depleting selenium levels that progressed hepatitis and other viral diseases, trying a ton of other non conventional ati-virals with my good results, I thought sharing my experience with the things I have tried would be of value but foolishly in the early posts I just recommended what worked for me, that I researched in medical journals and found they worked with HCV with out explanation in my unqualified recommendations. I see now I really had no business doing so and i regret it.

I dont regret the feeling of wanting to help so, I must be careful of doing things in the future out of "wanting to help"! I am really sorry to you all. Again I hope you can accept my apology.

Please know that my super ultra stubborn quest was only to ease suffering, gain better health while reducing the fear that comes will these infectious diseases. I have been on this quest for me, my ex and 6 other family members with HBV. That feeling of being free from HIV reducing my HBV viral load his HIV load, I wanted others have and inspired my posts here. I know I have no business here and respectfully wont return.

I was on this mission to help and got carried away with my passion to do so. I really hope that each and every one of you here well and great health. Disease and the cold fear it brings is my only enemy.

Shells

[Marcia2202]

Oh... I have just read through your other posts.

I find it totally wrong that you come to the Hepatitis C Forum and give advice to people suffering from Hepatitis C .... based on your experience with Hepatitis B.

I must inform you that even though both are liver diseases, they have nothing to do with each other. The B and C viruses are totally different and treated in a different way.

I find it unfair to newly diagnosed people with Hep C and also dangerous that you do this. It would be the same if I would allow myself to go on the Hepatitis B Forum and dish out advice on a disease I have no clue about.

This is wrong! And if you did not know this, it's okay.... but now several people have told you, so please stop it immediately.

Please do NOT give any advice on this forum anymore.... it is irresponsible to give advice on something one does not have a clue about!

[child24angel]

I totally agree !!

[shellywinters]

The research is from people who are on the expert level and have researched with the highest bestest brightest doctors in the world.

We are saying the same thing.


Good luck to you as well.

[nygirl7]

It appears that you mean well but when you are dealing with people such as Mikesimon who has been here almost ten years and dealt with transplant and the best medical teams in the world as well as hundreds and hundreds and hundreds of hours of personal research and experience in addition...well....it is just our duty to point out the discrepancies and incorrectness of some statements.  

Believe it or not for the most part these people who are on the expert level and have researched with the highest bestest brightest doctors in the world - are listened to because they know exactly what they are talking about and do not base their entire ideals on one little study from here or there.  

The collective shared intelligence of just a Willing and Mike alone is better than any doctor you could possibly ever find because not only are they brilliant but they have walked the walk and DO talk the talk.

Good luck to you and your hbv.

[shellywinters]

I can tell no one read the material pertaining to HCV. That is all I am asking. Forget about viral load, supplements, any recommendations I have made. Educate yourself regarding the selenoenzyme glutathione peroxidase procces of the HCV.

"telling someone to take supplements immediately without having any idea of who they are or much about their condition is highly irresponsible"

"It's downright scary is what it is. I sincerely hope people have more sense than to follow this type of advice"

I wish you all well and my hart goes out you all. That was why I came here. I will pray you all look into this. I am not personally making any claims at this point now. What is the harm in just reading the science and let me repeat the word Science, SCIENCE, proof that is what I have posted. Selenium regarding the condition of HCV is not well known by most who suffer from it.

I wont post here any more. You can reply to this with such remarks as good riddance etc,
I do wish all good health and a more proactive approach of managing your health with simply expanded knowledge of cutting edge research and science, of course with the care of a qualified health physician.

[mikesimon]

It's downright scary is what it is. I sincerely hope people have more sense than to follow this type of advice.

Mike

[Trinity4]

Well said Nygirl, no need for me to respond to shellywinters et al.

[spectda]

viral load is not used to determine disease progression with hcv. It does not correlate with liver damage or how long a person has had hcv. My viral load was 7 milliion 12 years ago, and has since been as low as 400,000 and in the many millions. when I started treatment my vl was 2.6 million.

telling someone to take supplements immediately without having any idea of who they are or much about their condition is highly irresponsible. it is one thing to speak of your own experience, it is another to say take this supplement immediately. You are not their doctor, you do not know fully about their condition, you don't know if they have allergies. It's quite alarming to see someone do this.

- dave

[nygirl7]

PS Everyone should take a multivitamin but is should NOT contain IRON and we do not need extra A or K as they are stored in the liver I believe and we do not need extra to tax that organ.

[nygirl7]

If Viral load was irrelevant it would not be one of the many tests used to determine disease progression.

Viral load is completely and totally irrelevent to HCV UNTIL you have decided to treat the disease. It does not correlate to liver damage or any other thing that might affect your liver the only time it comes into play is when you treat to monitor how effectively the medications are working and how quickly you clear.

58,000 - 580,000 - 5,800,000 while they say a low viral load often means you have a better chance of success that is NOT always the case and often times those with a low VL have a harder time clearing because the immune system is already been doing its job to try and get rid of the virus on it's own so the meds are not as effective.

Supplements will not clear this disease or the flu and while everyone should make sure of course that they have proper vitamin D levels and things........(as most of 'older' america is lacking in this vitamin) seriously the best thing you can do for liver health if you should choose for some reason not to try and beat the disease is liver a liver healthy lifestyle and not drink or do drugs.

Other than that if your body hasn't cleared it in the acute stage it will never happen.

So now viral load has nothing to do with anything really and if you have a count of 1 or 10,000,000 you are just as infected.  Plus viral load goes up and down all on it's own and can vary vastly DAILY.  Means nothing.

[shellywinters]

You may think HBV and HCV are apples to oranges however that is not entirely the case.
They are both endoviruses, viruses that encode the selenoenzyme glutathione peroxidase in order to thrive in your liver. As these viruses replicate, because their genetic codes include a gene that is virtually identical to that of the human enzyme glutathione peroxidase, they rob their hosts of selenium.

Hepatitis B and C viruses all encode for this enzyme, there is abundant evidence that the a high dietary selenium intake gives a great deal of immunity against all of these types of viruses including HIV.

Here is a link to a web hosted PDF entitled “Acquired Tolerance of Hepatocellular Carcinoma Cells to Selenium Deficiency:A Selective Survival Mechanism?”

Published by Department of Molecular Biology and Genetics, Faculty of Science, Bilkent University, 06533 Ankara, Turkey with the acknowledged support from University of Pittsburgh, Pittsburgh, PA and Institute Gustave Roussy, Paris, France.

http://cancerres.aacrjournals.org/content/63/20/6707.full.pdf

This report includes in vitro and vivo studies and observations from humans with Hepatitis B and C infections. This is only one study by Bilkent University, 06533 Ankara, Turkey however they refer to supporting published medical journals regarding the same.

A few more links, one from the Journal of Hepatology, the official journal of the European Association for the study of the liver

http://www.springerlink.com/content/e68n43309373n18n/

http://www.jhep-elsevier.com/article/S0168-8278(02)00060-0/abstract

The above link is why I referred a solid multivitamin as nutrients are depleted or not absorbed adequately with persons with liver disease as we have.

Labeling Selenium as a “Natural Therapy” or “Supplement” as it’s a trace mineral the human body needs may not be accurate. It aids in the prevention of cirrhosis as published in the above referenced links.

nygirl7
And of course, I could not agree with you more, “Please seek help from a qualified medical expert”. If Viral load was irrelevant it would not be one of the many tests used to determine disease progression. Is it not part (key word part, acknowledging there are other serious factors to consider than just viral load ) of the intention of the medication it reduce the infection?

Trinity4, GSDgirl, Boobert
Please after reading the above linked material and let me know if it was of any value especially as if was from doctor’s research physicians from around the world. Forget all about me and even my advice. The above data is a starting point to research and discuss with you doctor.

[Trinity4]

Don't care what supplements did for your HBV.  You are comparing apples to oranges when referring to HCV and HBV.  Supplements are not going to cure HCV and reducing the viral load with HCV does not reduce or stop the virus from damaging the liver.  People with HCV who have had consistenly low viral loads have also ended up with cirrhosis.  Didn't your research teach you that?

Trinity

[GSDgirl]

I did not shut down your advice.  Porphyria (trin, the whole name) Is a real side effect of having HCV.  The "cure" is phlebotomy's to lower the ferritin.

I will now shut down your advice, supplements will not cure/fix all problems especially HCV related problems.  Viral load fluctuates naturally on its own.

cruella, please see a dermatologist at the least, and a good hepatologist would be a very good idea.

Denise....with no viral load thanks to prescriptions

[Boobert]

If I were you I would see a Dermatologist.

[Boobert]

Your telling someone that could have cirrhosis to take selenium for 30 days and to let you know how she's doing. Don't you think that's bad advive? She needs a professional Doctor to DX her and prescribe what is needed.

[nygirl7]

Oy vey more commercials from another expert not into conventional medicine and real CURES.

Please seek help from a qualified medical expert, none of us know your medical history nor can see what these 'red sores' are. While we here can relate our specific experiences with HCV none of us can dispense actual medical advice without the caveat 'be seen by a qualified heptologist'.

To play a doctor on tv is one thing but to play one on the internet is just plain wrong.

PS NO supplement will cure HCV or get rid of the symptoms if that indeed is the case.  The ONLY FDA approved medications that can do that are ribavirin and interferon.

BTW - viral load is an indicator of SQUAT and has no relevance to how your liver is doing with damage. And in addition HBV is NOT HCV.

[shellywinters]

Ok, you shouldn't be so fast to shut down my advise. I am talking from experience Had a viral load of over 10 million and now 252. Yes it was HBV but all that I have researched and tried was shown to work with HCV.

I have tried everything natural and have researched a lifetime of things to try. I never took any prescriptions.

I know you all mean well. I'm not going anywhere and from now on will post the actual medical journals supporting my advise.

Nice to meet you all.

[Trinity4]

"shellywinters posted like she is a doctor writing a presciption :) "

Yes indeed, advising people to take the same supplements for anything from coccobacillus to cirrhosis.  That is so not good advice.

Trin

[GSDgirl]

If the red sores are actually blisters see a dermatologist that is versed in infectious diseases.  Porphyria (PCT) happens to a few of us with HCV and there is not a vitamin or supplement that will help or fix it.

Denise

[Boobert]

I agree with babs and copyman, You need to seek an actual MD not one that plays one on a internet forum. I take supplements but would never give someone such bad advice.You need to see another Doctor what you describe doesn't sound to be HCV related, but again I'm no Doctor. Good Luck.