hep c

[Susan252]

I tried the interferon and it did not work, so  I have no other choice but to go alternative, believe me, I have been full circle with this stuff.  I will back out of this website, and will continue to feel better with optimism.  Thank you everyone, susan

[rita863]

Susan

this forum is filled with people who want to help anyone in need!  new comers are not seen as a threat, and there are no clicks that i have experienced and i am fairly new here.  with that being said,  i think what the others where trying to tell you is that if there were alternative treatments, dont you think  people who have treated 3, 4 5  and 8 times would have tried them if they offered anything!  We do not want to spend our life on interferon and riba and whatever other drug may come along, but some of us have no choice but to keep trying treatment with the meds that are available.

I hope that you find a treatment that brings you SVR.

This forum will always be here to answer any questions that you may have, regarding tX, sides etc.  We only want to help.

But dont judge us, because you dont know us!

good luck to you

peace
rita

[Magnum]

I'm in the same boat as you, having failed four treatments. In January, or sooner, the doctor now wants to try what he's had success with in non-responders. That is a double dosing of Pegasys and the standard 1200mg Ribavirin daily. Ask your doctor if that's a possibility for you. I understand the sides will not be that much different than the traditional Pegasys and Ribavirin...

Good luck and keep fighting...

Magnum

[nygirl7]

Apparently, Jim, this person really doesn't want to hear it and is still seeking more info on LW (as asking in a thread below).  Denial is a tough nut to crack but these people like LW should be locked up and in jail because they truly make it almost impossible for someone not to have "hope" even if the hope is in something that truly doesn't exist at all.

It is just so horrendous that theses people can get away with their cures. They do as much damage as the disease does itself.

[jmjm530]

Sorry you got the the Lloyd Wright backlash instead of a welcome to the forum. Still, I think you can still get valuable information/support here if you want to give it a chance.

Depending on the state of your liver and other factors, you have a number of options, including alternative medicine, lifestyle changes (diet, weight, exercise), supplements; and treating again perhaps with some of the newer drugs that show promise even when conventional treatment failed. You can get information on all this here and then use it as a starting point to do your own research. Also, if you haven't consulted with a liver specialist (not just a Gastro) now might be a good time to find one at a major teaching hospital. They tend to be the most up to date on treatment options, should that be the direction you end up taking.

-- Jim

[Marcia2202]

I posted this on the wrong thread, so here it comes again.

If you cannot or do not want to treat with the conventional medicines and are not looking for a cure, I would advise you to check out Dr. Zhang in New York City. He has a very good protocol, which can help keep the liver in check and delay fibrosis. In some cases he was even able to revert some of the damage. He has been asked to collaborate with Mt. Sinai and John Hopkins, to help hepatologists treat people who do not respond to conventional treatment. It is NOT a cure, but is helpful.

Being an MD and also a doctor in Traditional Chinese Medicine, he practices  Integrative Modern Chinese Medicine. He specializes in viral diseases. AND he definitely does NOT advertise that his protocol is a cure.

I have a friend who speaks very highly of him. My friend was cured through conventional Peginterferon Ribavirin treatment and also treated with the TMC with Dr. Zhang. I don't think he did it simultaneously, though. But it helped him a lot. I'm not sure about all the details, as I am friends with his wife.

I would NOT go for someone like Lloyd Wright, as he is not a medical nor herbal doctor. That should already be a warning. If you want to go through alternative treatment and take the watch and wait approach I would advise you to do it properly. With someone who has the knowledge of this complex disease.

His site is dr-zhang.com

Good luck,

Marcia

[nygirl7]

Why not try infergen?

What do you mean it "did not work"? As Hector said what were your viral load pcrs?  Did it EVER work at all or did you relapse?

There are so many things that we don't have enough information on in here to understand...

Please let us know what you mean...there really ARE no other options except this sort of treatment. Please don't let anybody snow you into thinking there are herbs and stuff that might work.

Please explain more maybe we have some sort of information that could help you.

[HectorSF]

Ooops! Forgot...

Also can you post pre-treatment viral load and genotype also please?

Thanks!
Hector

[Trinity4]

I sounds like the SOC did not work for you.  Sorry to hear that.  We all face that possibility before starting tx.  Please do not feel we are driving you away simply because many disagree with Wright's methods.  We know he offers no cure for this disease and many people have been deceived by him.  But if make sense to you to try and feel better with what he has to offer than go for it.  We are looking for a cure, not a temporary fix so that is why most do not follow his practices.  I am not that familiar with his work and many natural supplements help those with hepc to feel better but again, it is not a cure.  Have you considered a clinical trial?  There are some new and promising drugs and the results have been excellent.  I wish you the best in your pursuit and hope you will let us know how things are progressing with you.  Much Luck!!!
Trinity

[HectorSF]

Can you please explain what you mean by "interferon didn't work".
Can you post your viral load numbers for weeks 4, 12, and 24.
What meds and what dosage did you take.
What does your biopsy indicate? Stage? Grade?
Any other details would be helpful.

Thanks!
Hector