I hve autoimmune hepatitis. I am in stage 1. How fast does this progress before you need a transplant? I know it is different for everyone, but would like a general idea. I was diagnosed in april this year, and my enzymes were in the 1400's,it went down and as soon as I got down to 5mg of predinisone it shot right back up again to the 900's, 2 weeks ago. Thank you.
I don't know much about auto immune hepatitis, but I thought it was treated with a two year regiment of steroids . If you decrease the steroids and symptoms come back, the dose needs to be increased. It needs to be treated.
If you are not being treated by a hepatologist, you need to. Do not leave this to a GI or a GP.
My sister-in-law developed auto-immune hepatitis and it really threw her for a loop. I know at one time they decreased the steroid and she was symptomatic again. She hated the weight gain and the chipmonk cheeks that steroids give you, but I am happy to say that several years later, she is back to her good old self - liver enzymes at bay, weight back to normal and no steroids.
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