Aa
is this believable?
http://www.herbalprovider.com/hepatitis.html?src=ggl&w=hepatitis&gclid=CLDerea-oqACFQk65QodeC46aw
"I take glucosamine for my arthritis" Might I suggest first, save your money and second read the study results from Harvard medical schools Glucosamine/chondroitin Arthritis Intervention Trial (called GAIT)
Let's keep this on topic, and keep an eye on the tone. It's getting personal, and bordering on nasty.
The OP was asking about one thing, and it's gone way off course. Alternative treatments are allowed to be discussed here. Perhaps a couple of people from both camps could get together and do a health page on the benefits of SOC, some alternative treatments that have been studied, what is safe, what isn't safe, pros and cons, etc. You all would know what should be included more than I would, but maybe that would save some of this repetitive fighting.
Emily
The OP was asking about one thing, and it's gone way off course. Alternative treatments are allowed to be discussed here. Perhaps a couple of people from both camps could get together and do a health page on the benefits of SOC, some alternative treatments that have been studied, what is safe, what isn't safe, pros and cons, etc. You all would know what should be included more than I would, but maybe that would save some of this repetitive fighting.
Emily
Seriously same old same old but it seems to take 39 paragraphs full of big words to say the same thing. I always find it odd that people who failed SOC but did attempt it suddenly later are so anti SOC afterwards. Perhaps it's not in the medication itself but rather in the outcome of the treatment.
New people do not be fooled by this approach and listen to the doctor if they think you need treatment do the treatment! Should there be things that would enable us to forgo treatment...we all would have taken the easy way out don't you think?
Personally, I don't like unicorns much - I find them scarier than treatment because they DONT EXIST!
New people do not be fooled by this approach and listen to the doctor if they think you need treatment do the treatment! Should there be things that would enable us to forgo treatment...we all would have taken the easy way out don't you think?
Personally, I don't like unicorns much - I find them scarier than treatment because they DONT EXIST!
I take glucosamine for my arthritis. It's a natural supplement suggested by my doctor. He handed me an article to read. No clincal trials persay. However, what is known about the properties of glucosamine suggest that it would be a good thing to take and experiences of those taking it seem to suggest it would be worth trying. And so I do. I'm my own clinical trial. Either it helps me or it doesn't.
I would be very interested in knowing what supplements those with HCV have taken and why. I would bet my right arm that there aren't many clinical trials that supported the decision but enough research to make them decide they'd be their own clinical trial and see if it worked for THEM.
The fact that we can't even discuss this here without it turning into a SOC vs alternative discussion EVERY SINGLE TIME and now devolving into people being accused of being "afraid of SOC" for doing so is ridiculous.
I would be very interested in knowing what supplements those with HCV have taken and why. I would bet my right arm that there aren't many clinical trials that supported the decision but enough research to make them decide they'd be their own clinical trial and see if it worked for THEM.
The fact that we can't even discuss this here without it turning into a SOC vs alternative discussion EVERY SINGLE TIME and now devolving into people being accused of being "afraid of SOC" for doing so is ridiculous.
Wow. Now people who have gone through SOC and are unable to do so again are "afraid of SOC" if they explore other means to try and keep themselves alive longer. Maybe HR was afraid of SOC and pandering to those who are "afraid of SOC" when he came up with his supplements list? Perhaps those many posters on here who went searching out his supplements list were "afraid of SOC". And what do you say about the many people who do supplements between treatments in an effort to stay alive longer? Those people are misguided fools?
How many things on HR's list had clinical trials to back them up? I certainly never saw HR or his proponents take the kind of battering that others take on here for suggesting similar approaches. We don't have the same kind of clinical trials to go on for supplements that we do for interferon and ribavirin and the PI's at the moment and I'm not sure that I could point to a clinical trials for all of the foods we eat that are supposed to provide the benefits that we believe they do. We go on a certain amount of research though that seems to back it up or makes it seem like it might just be a benefit and we give it a try.
As for supplements not keeping someone from Grade 3 getting to cirrhosis .... well, doing absolutely nothing at all will not keep someone from getting to cirrhosis either. So people do what they can. And frankly, if I was Grade 3, I'd be researching whatever natural products are out there that would appear to have some benefit and I would be taking them until I could either do SOC again. It is someone's right to choose to do supplements or not however and I fail to understand why someone would constantly attack those who are doing their best to maintain their health and live longer in whatever means they can and would like to discuss that and share knowledge with others who are also on the same search to find those things aside from SOC that will prolong their lives. But no .. not on THIS forum. We can only discuss SOC here. And Gold Bond for the side effects from SOC. But certainly not what supplements people have decided to use and why. We certainly discuss treatment options on here til the cows come home. But not everybody can do treatment and some people are between treatment. Those people have the RIGHT and the NECESSITY to discuss alternatives.
Some people don't want to roll the interferon dice just yet. These same people who attack anyone who brings up anything to do with supplements would be the same ones who tell people to wait for the PI's. And why is that? Because the chances of cure will be higher with the PI's and possibility of shortened treatment duration - because SOC is no picnic and the odds of cure for Gen 1's below 50%. Some people think 45% odds of cure on SOC are odds worth trying - and I was one of them - and there are others that have come on here and determined for themselves that those odds are just not worth putting themselves through SOC. There are some VERY educated people here who are choosing the watch and wait approach and waiting for PI's that have decided that putting themselves through SOC at THIS point in history with the side effects of SOC being what they can be and the odds for cure being what they are does not make sense for them. I suppose those people are "afraid of SOC" also? Or are they making educated decisions on what is best for them?
And in the meantime, those who wait for a more effective treatment or those where treatment has failed them .. or even those who would prefer not to roll the SOC dice because the statistics say that they stand a chance of outliving their HCV rather than it outliving them would rather avoid treatment entirely for their own reasons.....can count on being attacked and ridiculed on this forum if they want to discuss supplements that may just be helpful to them. It's okay to talk about Vitamin D .. but let's not get a little too far past that. It makes some people's heads hurt.
How many things on HR's list had clinical trials to back them up? I certainly never saw HR or his proponents take the kind of battering that others take on here for suggesting similar approaches. We don't have the same kind of clinical trials to go on for supplements that we do for interferon and ribavirin and the PI's at the moment and I'm not sure that I could point to a clinical trials for all of the foods we eat that are supposed to provide the benefits that we believe they do. We go on a certain amount of research though that seems to back it up or makes it seem like it might just be a benefit and we give it a try.
As for supplements not keeping someone from Grade 3 getting to cirrhosis .... well, doing absolutely nothing at all will not keep someone from getting to cirrhosis either. So people do what they can. And frankly, if I was Grade 3, I'd be researching whatever natural products are out there that would appear to have some benefit and I would be taking them until I could either do SOC again. It is someone's right to choose to do supplements or not however and I fail to understand why someone would constantly attack those who are doing their best to maintain their health and live longer in whatever means they can and would like to discuss that and share knowledge with others who are also on the same search to find those things aside from SOC that will prolong their lives. But no .. not on THIS forum. We can only discuss SOC here. And Gold Bond for the side effects from SOC. But certainly not what supplements people have decided to use and why. We certainly discuss treatment options on here til the cows come home. But not everybody can do treatment and some people are between treatment. Those people have the RIGHT and the NECESSITY to discuss alternatives.
Some people don't want to roll the interferon dice just yet. These same people who attack anyone who brings up anything to do with supplements would be the same ones who tell people to wait for the PI's. And why is that? Because the chances of cure will be higher with the PI's and possibility of shortened treatment duration - because SOC is no picnic and the odds of cure for Gen 1's below 50%. Some people think 45% odds of cure on SOC are odds worth trying - and I was one of them - and there are others that have come on here and determined for themselves that those odds are just not worth putting themselves through SOC. There are some VERY educated people here who are choosing the watch and wait approach and waiting for PI's that have decided that putting themselves through SOC at THIS point in history with the side effects of SOC being what they can be and the odds for cure being what they are does not make sense for them. I suppose those people are "afraid of SOC" also? Or are they making educated decisions on what is best for them?
And in the meantime, those who wait for a more effective treatment or those where treatment has failed them .. or even those who would prefer not to roll the SOC dice because the statistics say that they stand a chance of outliving their HCV rather than it outliving them would rather avoid treatment entirely for their own reasons.....can count on being attacked and ridiculed on this forum if they want to discuss supplements that may just be helpful to them. It's okay to talk about Vitamin D .. but let's not get a little too far past that. It makes some people's heads hurt.
Merrybe,
"trish,
I'm implying that it is insulting to dismiss out of hand that which has been shown to have merit just because it's a natural. I'm implying that calling people duped and deceived because they have concluded based on their research differently does not make them the "duped educated", itself an oxymoron."
I have no idea whatsoever why you've addressed this to me. I've taken my fair share of battering on this forum for supporting the right of people to explore alternatives and to discuss them here without being continuously attacked for doing so. I've gone back through my post and nowhere do I see that kind of comment attributed to me. I'm trying to find where I've used the word "duped" or alluded to the educated being duped and I'm not finding it. Care to point that out for me please?
"trish,
I'm implying that it is insulting to dismiss out of hand that which has been shown to have merit just because it's a natural. I'm implying that calling people duped and deceived because they have concluded based on their research differently does not make them the "duped educated", itself an oxymoron."
I have no idea whatsoever why you've addressed this to me. I've taken my fair share of battering on this forum for supporting the right of people to explore alternatives and to discuss them here without being continuously attacked for doing so. I've gone back through my post and nowhere do I see that kind of comment attributed to me. I'm trying to find where I've used the word "duped" or alluded to the educated being duped and I'm not finding it. Care to point that out for me please?
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