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itchy

rmb
I made it through 12 weeks and now its just about 6 months later and I go through itching spells that drive me crazy. Anyone out there feel like this.
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Avatar universal
says...WHERE did the weeks go?... They are followed by new months. Like now its march. Just don't ask me about the ABC's never good figure them out.
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Avatar universal
Oh the new Battlestar two part season ender looks AWESOME!!!!!!

:)  Just my way of saying hi. Everytime I see the commercial I think of you LOL
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Avatar universal
SUCH TALENT!  SUCH FINESE!  Didn't know you were a filmmaker.  Thanks for the laugh.  How goes it on the Cape?
frijole
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Avatar universal
WHERE did the weeks go? Wow it's unbelievable - everyone says it will go by fast but I just can't believe it's been 6 months already.

If not for your humor I am sure it would have gone by so MUCH slower and more miserably.

I know you won't disappear after you have your SVR results in hand but I wanted to thank you in advance just in case. You've really been responsible for making treatment a Not So Bad experience.  Thank you more than words can express.

PS Maybe I'll stop bugging you about what week I'm on now that I finally got the date from the doctor! (If we didn't throw out last years calendar it would never have been a problem LOL)
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Avatar universal
Hey there tall blond..........Are ya still out there kickin !! I ben thinkin about that stuff last night an thinkin you mad at me cause you never gotta around ta answerin my post on that there thread down below on that pcr thingy..remeber?? had to take my woman to the emegency-care last night cause she fell again!!she is off balance an they said it might be ear canal problemss!!!! I said the heck it is!!! it has to do with her balance. The womans gettin tested again for hcv too. Women dont catch it from sex anymore long as the dont do nothing crazy. They have this policy where we have to register. WHY does anyone have to check-in?? if they done saw her for the broken toe a couple months back!!!! So....Instead of getting ticked off or mess with my head, tall woman, can you tell me how the heck ya are???? Are ya goin to that board wtih the man you like goes? We cant change your mind so we might as well get a good laugh outa the whole thing an still be friends. you and me would be lost without this forum. Hey.....Be sure to post your 1 year results here when you get them if you ever stop waiitin..  I still wantta go through tx with ya but kinda gettin tired of waitin. hope ya man hides frying pan during your Riba Rage fits.  Hahahaha. Be good to yourself woman! hope everybody sx here are small. janisboard is good to.ns
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92903 tn?1309904711
Piglet? Indeed! After all I do to support improved hygene on this board? Witness my post in AZgirl's thread telling her about keeping the 'nads clean. And my recent post for Forsee about staying on top (so to speak) of the hairy butt she'll most surely develop on tx. Why, didn't I even recommend you refreeze your barfed ice cream before consuming it the second time? Piglet, indeed. I'm an asset, I tell you! The Felix Ungar of treatment.

Anyway - Strator and I are a week ahead of you. My shot 24 is on board, and I'll do a VL test this week. I'm geno 3, and cleared at week 4. I'm doing 26 and out - two more shots for me, and stick a fork in me Mama, I'm done :0)

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Avatar universal
When I first started treatment, I numbered every shot day -- in  advance -- in my datebook. It not only helps you keep track, but also visually tracks your progress. Just remember, that the shot number and shot week are different. For example, Shot 24 ends week 23 and starts week 24.

-- Jim
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108191 tn?1199599905
So you Maitake pills will work with the treatment?  I am concerned that it would be counterproductive when taking Pegasys and Ribavrin.
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Avatar universal
I just called the doctor and checked.  I began treatment with my first shot on September 23, 2005.  That means this coming Friday is my 24th shot and I will have my PCR after that.

Now...You started before me I thought - what is the date of your starting?

I've checked on the calendar several times and am SHOCKED that this is 24.

Now I'm freaking out!!!!!!!

Since I thought I was behind you...I thought I'd better bring this up quick.

I AM AT WEEK 24/48 ON FRIDAY.
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96938 tn?1189799858
I know how rigorous that you have been with tx and the significance for you to be clear at 24 weeks. But, I counted the number of Fridays, counting 9/23, until this Friday 2/24 and it 23 weeks.  Looks like shot #24 is 3/3.  Sorry to bring this up but I know you're intetrested in full disclosure.  You must be using one of your boss's calendars - the one that cheats you out of a vacation week each year.  Hang in there NYG. You just itchin' to get clear, ain't ya?
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Avatar universal
This Friday isn't the 24th that was last Friday - today's date is the 28th isn't it?  Or have I gone delusional yet once again?

I'm a wreck about this week stuff as you know but I believe that this week's date is March 3rd.  That's my 24th week if I counted right (I think so I've done it 20 times now)

Got to call the doc and have him put in a PCR for next week.

Gahhhh urghhhh blahhh!
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Avatar universal
hey we both got it right - this week on March 3rd is my 24th week.  I think that is what we were both trying to say.

I am on week 24/48 my 24th shot is on Friday.

Right?
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Avatar universal
If your 24th shot is this Friday (March 3rd) then you're currently on week 23. Week 24 will be the week of 3/3-3/7. Your week 24 PCR therefore should be on Thursday, March 9 or on Friday March, 10th, before the 25th shot. All my best wishes for you being non-detectible as I'm sure you will.

-- Jim
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Avatar universal
I meant to say that week 24 will be the week of 3/3-3/10.
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96938 tn?1189799858

I'm brain dead today.  Working on a project plan at work today and kept on thinking today was 2/23 (obviously several tasks are now late) Saturday is March 3, Shot 24 is March 3.  Sorry to add to your ummm freakin'.
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86075 tn?1238115091
The way I look at it (and I'll be busy putting on my flack jacket to guard me from the slings and arrows, ha ha!)is that mushrooms are just food, I live in Los Angeles and I can go to a gazillion restaurants and have these shrooms on my salad...mushrooms are an excellent source of vitamins and minerals and there have been some experts that say when you are undergoing chemo therapy, or just having a liver impairing disease itself, a person can suffer from some vitamin and mineral deficiencies, and that's where our bodies can get into trouble so it's good to have a really good diet...

I know many...Califa is a member here who did ate them during treatment and thought she had positive results...so I mean it's just a food like tomatoes, are tomatoes bad to eat during treatment? you know what I mean....

but of course, you can consult some real experts and not just me...ha ha! the only thing I mean to say is that sometimes when you ask a doc about mushrooms they'll automatically say no, cause they don't know what they are and the concept freaks them out, see what you can come up with...be well...
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Avatar universal
Hi Jim,

How are you doing?  Hope all is well.

We were looking for you, please see SOS for Ellen below we need you.

Thanks

Bob
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Avatar universal
Jim - thank you yes March 4 is my 24th shot. Amazing how much difficulty I've had tracking that all along! I was SURE that Goof just told me something else. I am so BRAIN DEAD it's scary!

FL - don't worry I wasn't sure WHAT the date even was until I just looked on the computer. :)  Brain fog is an understatement.

Foreseegood - I have an absolute aversion to mushrooms. To tell you the truth even though in my youngER days I was a complete drug fiend...if my friends were doing "shrooms" I had to find something else I just couldn't make myself gag a fungus down. Now that makes NO sense I drink milk and eat raisins and used to eat bologna sandwiches when I was a kid...there is nothing better than a hot dog at Yankee stadium - I love McDonalds...but mushrooms? Unless they CURE this thing and cause SVR I don't know if I can get one in.

Logical nope. Sensible nope. Insane? Yup.
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Avatar universal
Hi Bob,

Thanks for asking, I'm doing fine.

With treatment winding down, trying to slowly get back to my former life, so haven't been around as much.

Not sure which thread you're referring to (Ellen?) but I haven't read a lot of them.

Hope this finds you well.

-- Jim
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Avatar universal
One other thing that REALLY aggravates my itch is wearing STOCKINGS.  My hips are now literally red and bloody from the material ripping on my skin all day long. I keep putting peroxide on them because it started as the little white bumps...which I itched and they turned red...and then kept itching and they got more inflamed and bigger.....

Now I've covered the area in bandaids and it's helped a bit. At night I put on the GODSEND lotion.  

If you have a REALLY bad itch somewhere - try using Hydrocortizone .1% on that area just like you would for a child with chickenpox.

That, in effect, is exactly what I consider these stupid things they itch so much!

And don't forget the water that helps with everything.
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Avatar universal
I've tried every available anit-itch cream and every Aveeno lotion........so far nothing has worked to stop the itch.  Just went out and bought the Gold Bond on the advice of people here.  Will let you know.
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Avatar universal
Found the thread.

A little confused because first it says "early bridging fibrosis" and later it says "primary biliary cirrhosis".

But assuming the latter dx is correct (cirrhosis) then the treatment equation becomes more complicated, and and a second (or third) opinion makes sense. Preferably, it would be at a large, teaching hospital where all options can be explored.

-- Jim
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Avatar universal
PBC is a disease not merely a reference to the liver architecture. It is a disease all its own and requires special consideration. Mike
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119874 tn?1189755829
There seems to be consensus on the Gold Bond and itching.  I found 3 things that seemed to really help my dry skin.  1. Humidifier (I learned that from you guys), 2. Aveda Caribbean Therapy body creme, and 3. Burt's Bee's vitamin E body and bath oil or Burt's Bee's baby oil--rub directly onto skin or put in bath water.  You can get the Aveda at lots of hair salons and Burt's is available at lots of pharmacies (i got it at Walgreens).  The lotion and oils smell great too.
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