Find a dr, clinic clincal trial anything and take care of you. They will help you. Get busy and do not delay. Keep away from anything more than 4 500 mg tylenol per day (2grams). My hepatologist says contrary to rumor this is the only acceptable otc meds that are safe to take. Good luck
I have stabbing pain in the backs of my thighs and constant aching shooting all the way down to my ankles-just on the back sides of both legs. Its been going on for 3 days now and I'm getting completely frustrated. I am not going through any treatment at this time, but I couldn't come to any other diagnosis on my own besides my Hep C. what can I do to relieve the pain for now so I'm not in tears?
I lean toward nygirl on this issue. Many physical problems experienced by people with HCV are often attributed by doctors as being causes by some 'other' unknown reason, when in fact HCV often does cause a strange, and wide-ranging array of physical and psychological symptoms. Rheumatologists routinely screen for HCV when someone complains of unspecified joint or skeletal pains, for example. Dermatologists often look for HCV when persistent rashes cause ongoing problems. Opthomologists look for HCV when severe dry eye, or sjogren's syndrome issues, that have no identifiable origin, present in a patient. Depression and anxiety are also typical extrahepatic manifestations of HCV in those that are symptomatic. Chronic fatigue, and memory problems are similar sx.
I would look very seriously at the HCV connection for issues like persistent muscular pain, joint pain, bone pain, etc. Of course, look for other causes...but always be suspicious of HCV! I developed leg cramps after my early years with HCV infection. They correlate to nothing...not exercise, diet, temperature, etc. They come and go, and became even worse after therapy. So I assume that the auto-immune or blood/hormonal changes provoked by HCV, and also tx, are probably responsible. By the way, leg pain, and calf cramps seems to be a subject frequently raised by those with HCV, from my anecdotal reading. Nothing scientific...but I can sure corroborate from a personal standpoint.
I personally believe that the connection of physical and behavioral symptoms with HCV is grossly under-estimated by the medical community, even with their newer attitudes on HCV related SX. How many with long term HCV have you met without teeth and dental problems? I know very few. How about dry skin, dry eye? Overall I bet the HCV numbers are WAY above norm for the general population.
DoubleDose
Extrahepatic Manifestations
Complications that do not involve the liver develop in 1 to 2 percent of people with hepatitis C; the most common is cryoglobulinemia, which is marked by
skin rashes, such as purpura, vasculitis, or urticaria
joint and muscle aches
kidney disease
neuropathy
cryoglobulins, rheumatoid factor, and low-complement levels in serum
http://digestive.niddk.nih.gov/ddiseases/pubs/chronichepc/
OR......
it could be related to the fact that you're now playing the TRUMPET.... LOL
I remember reading a recent post where you were talking about oral ulcers being hell for a trumpet player and how the xylocaine helped...LOL
Similar has been reported by others, but it turned out to be a temporary side effect of the interferon which some say has an anti-inflammatory effect. Hopefully, in your case the pain will stay gone.
-- Jim
This is very interesting and relevant to me.
About 2 years ago (before I was diagnosed) I started having intense pain in my thigh joint (ball and socket?)... it actually felt like someone was sicking a long needle right on the tip of that ball and pushing... it was not steady but sudden shooting pain that would actually make me cry out... owww!
Anyway, I have used that joint a lot for the past 30 years playing the drums so I thought it was related to just overuse... but... and here is the weird part...
Ever since I started tx, that pain has gradually diminished to the point to where it rarely occurs.
Coincidence? I dunno.
hmmm.
bandman
If somebody posted a question asking whether BACK PAIN can be connected to Hepatitis C, I would say yes....because many people who have Hep C are also insulin resistant.....and insulin resistance causes Degenerative Joint Disease. Then I would back what I said with a bunch of studies/articles proving it.
But somebody who's been biking for 10 years and complains of thigh pain ONLY with activity like walking or biking, it makes more sense that it would be caused by a mechanical problem and not HCV.
If it was caused by HCV, then he would have the pain at other times, don't you think? Not just with activity.
I based my guess on the information he provided. You say thigh pain can be caused by HCV, what are you basing it on? How does HCV cause thigh pain only with activity?
Did you bike for 10 years?
"can cause some people to tilt toward a "treat" versus "watch and wait" mode."
Good point.
The person asks COULD THIS BE CONNECTED TO HEP C.
Just like Rocker said so eloquently the answer is YES. Simple clear cut yes.
I wish I knew all my adult life that MY leg pains were not in fact caused by herniations and ruptured discs and sciatica and that all the money I wasted on ortho's and PT and MRIs was just that a waste. But I didn't know I even had hep.
"The problem with reassuring somebody that the symptoms they're having are caused by Hep C is that they may believe it and not look for other alternatives or seek treatment. " & "The other point is that attributing too much to HCV can cause some people to tilt toward a "treat" versus "watch and wait" mode. thinking that ____ and ________ will go away as soon as I treat which may actually be the case. "
If someone is perhaps experiencing physical side effects of hepC indeed they SHOULD be looking in to treating - or at least ruling it OUT rather than let it run rampant in their body until it's too late rather than ignore it and assuming it's just old age pains.
Maybe I look at it backwards because I do find that it was debilitating to me but - really the simple answer to the question "Possibility of a hepatitis c connection?" is YES IT MOST CAN BE.
It's up to the person to do WHAT he wants with that information.
corr: "..may actually NOT be the case
The other point is that attributing too much to HCV can cause some people to tilt toward a "treat" versus "watch and wait" mode. thinking that ____ and ________ will go away as soon as I treat which may actually be the case.
I think u should send "CO" a check for dx and/or "Rocker" your weight set :) Yeah, if he's been biking for ten years he's due for something. I've been biking for ten weeks this time around and already hv issues incl IB syndrome. At a certain age if you dont want aches and pains then u hv to stay in bed
The problem with reassuring somebody that the symptoms they're having are caused by Hep C is that they may believe it and not look for other alternatives or seek treatment.
"May be lots of reasons for muscular pain that have nothing to do with Hep C."
I totally agree.....polymyalgia rheumatica....sciatica....osteoarthritis.....to name a few.
My guess?
Iliotibial band syndrome.....an overuse condition in which inflammation results when a band of a tendon rubs over the outer bone of the knee, causing thigh pain. Although iliotibial band syndrome may be caused by direct injury to the knee, it is most often caused by the stress of long-term overuse, such as sometimes occurs in sports training.
Mind you....it's just a guess... based on the information he provided....biking for 10 years and the pain worsens with activity.
Huh? May be lots of reasons for muscular pain that have nothing to do with Hep C. I had problems with leg pain on statin drugs, for example. Or when I squated even less than 300 lb :)
Unless youve been weight training, doing squats with a 300 lb barbell,hep c just may be your problem.