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The only thing Lloyd Wright has cured is his own poverty.
http://www.usatoday.com/news/health/spotlighthealth/2003-09-05-naomi-judd_x.htm
bandman54
first post .....mispelled word should be had, not hated.
I'm on your side.
read article as I suggested.
bandman54
Sorry the sarcasm...
Come on, get real. How are you going to cure a complicated virus like hep c with milk thistle. I have heard that many people use it for other reasons, but not for cure.
I'm not against herbs and alternative med, on the contrary. But one has to be realistic.
"Dr. Bruce and his team at St. Louis are compassionate healers on the cutting edge of medicine," Judd says. "To have a resource like them to tell people to go consult is a gift."
My conclusion: It is obvious that the ST. Louis medical team had cutting edge milk thistle::::-)
this will be my last post on this board.
bandman54
Marcia
*giggle*
But anyhow, you may want to open your mind and see another side to the coin. Anyone who suffers from post tx sx and thought Lloyd was a wacko may change there mind after this. I like him alot after seeing this video. Type of guy that I find interesting and some of you might too. As I said, I am on interferon and I wouldn't talk anyone out of it if thats what they choose to do, but I also would understand a person has the right to want to try to live with the virus and try use natural products by use of alternative medicine and ya know what, so what?? llyod is getting rich selling his products, well good for him. Should only pharma and conventional medical doctors make money?
http://www.youtube.com/watch?v=tDOUb76lz2M&feature=user
Lloyd Wright reminds me of the few 12step people who I've met in my past, and they're trying to make money off a program that is given away for free. Just my 2 cents.
As hard as it may seem to others there are people who have had real trouble with interferon and i am one of them.. Back when i used the medicine 7 years ago ( interferon combo therapy) it was really not well known and my doc left me with very little alternatives. My viral load was under 1 million and alt was 62 not real bad now i know i could have done other things to stave it off or hold it in stasis like diet, exercise and proper vita managment until a better cure comes along.Not that i need lloyd wright to tell me something i already have know for years. It changed me forever and i do not want to discourage anyone from trying it to which they may be free of this disease. Please do not ridicule anyone who has had problems with a particular medicine. IT only shows your lack of compasion. Not everyone responds to drugs the same way as others. I made some real bad moves in my life during and after the treatment (tx). My own family and close friends saw a real personality change for the worse and to this day i am still recovering.I suffered some real problems with my eye sight, hair,teeth,skin,thyroid and my overall quality of life was dimminished to name a few (personally). Thank God the brain can form new connections with brain exercises. Gods Design. They have only researched 1% of all the natural herbs in the rain forests and many many cures for many diseases have come from there. Who knows what the future holds in medicine.( I understand some have no choice and this drug is there only hope to ridding themselves of this disease). To them i say i hope it works for you and God Speed. After all this is not about money but about peoples lives and there right to have all the info. poss. to make the best educated descions of there life.I want to see all the info be it pro or con and make my own choices. Maybe if my doc back then would have explained the sides a little more i might have chosen a diff. path. Hind sight 20/20 well now 20/ 24
D
That said, I just watched the video in question and find it unimpressive, uninformed and irresponsible among other adjectives.
One of his main points is the blanket statement that you're better off living with Hepatitis C than living with the after effects of interferon. Of course, what he fails to acknowledge is the per cent of those with signficant liver damage who go on to cirrhosis and liver failure.
There are responsible alternative medicine practitioners out there like Dr. Misha Cohen and Dr. Zhang. They also acknowledge the dangers of interferon, but they also acknowledge the dangers of Hepatitis C which Lloyd Wright fails to.
My personal take is to stay away from interferon as long as possible, and investigate alternative methods of wellness by all means. But if you take that approach -- often called "Watch and Wait" -- make sure you watch your liver damage on a regular basis with doctor visits and periodic biopsies. Once liver damage becomes significant, it's time to stop watching and start treating.
-- Jim
Interferon sucks however I am SO GRATEFUL I was able to take it to "cure" me of the hep. At stage 3 milk thistle wouldn't cut it.
You can find plenty of herbs and people who advise taking them but be CAREFUL some of these things have not been studied and care have the REVERSE effect that you want. Milk thistle is fine IF YOU ARE NOT ON TREATMENT however it is NOT going to cure you at all
You know me, I am of the belief that if you are stage 0 - tx now and get it over with, so if I was a closed minded person as some might think I am (not you) - I would then be totally against Lloyd W, but I am not. As far as the point that maybe someones health could be at risk if they follow his advice and not tx- yes maybe,but - well, think of it this way,,, there are many docs that laugh at alternative tx for hep and tell people that they MUST tx right now and then the person comes to find out that though this conventional doc wants this virus erradicated as soon as possible, he knows nothing about txing hepc with SOC - he lowers the riba, instead of using procrit,,,,he is txing a g3 for 24 weeks, yet only does his first PCR at week 12. He tells the patient after txing over 36 weeks daily infergen to leave their meds home while on vacation in Florida - hey, vacation is vacation, take a break from those meds, we will resume tx when you get back to the rat race,,,,,,,
See what I mean? So here these doctors (some) are soooooooo against these Alternative meds cause they won't help and yet they have no idea how to treat with SOC - yet they do! Why? I guess they don't realize that the disease can kill the patient? No, that can't be it - they know that.... I guess they are too busy to go to conferences to learn more or maybe tell a person to see a specialist? Why wouldn't they take the time to learn more about hepc and how it is tx - correctly? Would it be that they are doing just what everyone accuses Llyod Wright of doing? They say Llyod is in it for the money - that he knows he can't cure people with his Alternative tx plan....well doesn't that sound like some of these conventional doctors too? They know they can't cure people if they lower riba instead of giving procrit. Can't say they never heard of procrit. I think it becomes too much work for the doctors who don't really care when they have to customize a tx plan, they either are inexperienced or just don't want the extra work - by giving procrit and all of that..So as far as I am concerned the doctors that know squat about hepc and still take on patients are in it for the money and thats it - yet to some,,Llyod is the only one in it for money and other 'snake oil' salesman as some would say. People will tell people - oh your doc doesn't know what he is doing - go to a Hepatologist, but they forget that some of these regular GI doctors are in the 'SOC snake oil business' cause if SOC is not used properly, it is not going to do any better than gargling with salt water everyday thinking you are killing the hepc virus or using Collidal Silver or whatever. So SOC is snakeoil in a way sorta, if its not used properly. It becomes useless.
So ya know what I mean Jim, I agree with you, llyod isn't 100% accurate on it all, but I really don't sense that he is looking to rip people off and not want to see people well and he is not a doctor. There are a few ways you can look at that. But these 'doctors' that should know better than to take on a disease that they no nothing about - even though their title is "GI," they are the ones that are the guilty ones as far as I am concerned. But as I said once before, the mistakes that these GI's make, don't show up for years down the road- the only thing that is seen is that the person failed tx and they have that 50% saftey net that is their excuse,,,,but I wonder how much lower the odds would be if every patient was under proper medical care. If they caused someones tx failure due to poor tx - it may take years until that person gets very sick or even dies from this disease, but still ,if you took a pencil and traced it all back you would land in a room where a patient might have been asking a question before his failed tx or relapse..."hey doc, I heard about this procrit stuff on a forum and instead of lowering my riba, could you give me that drug?" No, don't listen to everything you read on forums - they are not doctors:)
And Jim, your "Wait and Watch" approach I only recommend for picking out a husband or for a man his wife.. lol
But never would use "wait and watch" for tx. lol
See ya later.
MO
What I did say was that his statements were “unimpressive, uninformed and irresponsible among other adjectives." I’ll also add another adjective – “dangerous”.
He’s dangerous because he doesn't suggest montioring for liver damage via biopsy; doesn't suggest SOC as an alternative to those with significant liver damage, or those that don't respond to alternative treatments, like for example Dr. Cohen or Dr. Zhang appear to. This is not a tangential issue as you seem to suggest, but a core issue.
As to what you said about the many doctors who seem to do patients a disservice with shoddy preparation and treatment, and appear to be in it for the money -- I don’t see how the two relate. Those doctors and practices are certainly critizicized here enough, and hopefully people will seek out the best medical care available from the hepatologist population, while at the same time keeping their doctors honest by looking over their shoulders.
-- Jim
And again, without a doubt, monitoring liver damage should be something that he should be recommending. This was the first time I had heard him talk and I was expecting to see a guy with horns and I didn't. He was sincere IMO, but sometimes people can be sincerely wrong too - I agree.. Some of what he said IMO was right but he didn't give the entire picture. But I had that happen to me with doctors too, so its six of one and a half dozen of the other.
I believe it all comes down to the patient. They have to educate themselves because there are way too many choices to make with this disease and tx. To me we have to learn a little of this and a little of that from everyone and then do what we think is best. And Jim, you were and are someone whose opinion and advice I did learn from and will always hold in high regard.
Gotta run,
MO