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233616 tn?1312787196

lymph nodes/jaw pain

had 4 days bad lower jaw pain (at end of shot week number 4.  Am mid week 5...or is it 6...sheesh)

then it moved to back of right knee for half a day and left the jaw....
, now its like a karate kick to the left underarm.
Sounds lymphatic to me,
waiting for call back  from docs.....
monday they said "we don't want to give you antibiotics" but that was a nurse not liver people....they were all in Boston...or playing catch up....

is this normal for tx??
how safe are antibiotics?

went to dentist, he says it's not a tooth infection....though I do need work....he's not sure he should do it without antiB's as a precaution...
he said I should have done all this work done before treating....no one told me....
but even if they had I wouldn't have called, because I wanted to not "expose" my dentist to this....

still.....6 days with nodes going crazy now
  
and I'm used to spinal pain, inflammed liver/spleen///and the itch, aches. fever, joint stuff, nausea, depression, etc....
all that stuff I handled so far.....mainly cause you all had....
but this is majorly puzzling/cry uncle time for me....
12 Responses
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Avatar universal
Hi MB, thanks for the insight on the book.  i am going to go ahead and buy it.  i am not doing just alternative medicine and i figured it can't hurt.  my tx dr. actually recommended some alternative therapies to get me thru the tx.  so far it is helping me, maybe it is just mind over matter.......

hope you are feeling a little better.
Helpful - 0
264121 tn?1313029456
oh hey, I'm already on TWO A.D's.  I was on them going into tx.
Helpful - 0
233616 tn?1312787196
I think this is the irony of ribavirin....it not only ribs the virus, it riba us so bad we want to B slap everything!!! Queeen of peace...yah..........not.....I caught myself saying alright Lord, this is about enough, I don't think I wanta be Jesus anymore....is to much suffering. (of course, you never think when you pray in health "let me be more like You" that the day will come when you feel a spear in your side and as if someone has scourged the surface of your skin.....

I think the riba just used up the seratonin faster than all the faith/prayer can replace it. and seratonin loss increases pain and symptom level tremendously. So think in terms of God put chemicals in us to keep things at peace, and this tx strips an important chemical from the brain. If a small amount of an anti-dep is ever needful short term, it would be when on treatments like these.

the day may come that you need to consider this help. It's not a sin, just a substance to replace when it's missing, like blood, or thyroid medicine, or anything else.

they were concerned as to which antibodies might lessen the effects of the chemo...stuff like that..
the dentist just wanted the hepatologist to sign off or recommend, and not to be shotting in the dark
because every cleaning can start infections.
antibiotics kill off good white cells, not just germs...ergo..blood chemistry can be harmed.
Helpful - 0
264121 tn?1313029456
p.s. I'm in a lot of pain and I am taking a lot of drugs right now and unfortunately even opiates aren't taking care of my bone and joint pain, so I can identify.  Yesterday it was so bad that I was ridiculously mean to my very best friend and I told her finally to go home because I just could not be civil I was hurting so badly.  I just wanted to writhe here in agony by myself.  Also, my nerves are so on edge, like nothing I have ever felt before.  I can't even stand to have people walking around in my room sometimes.  I just feel like saying, "Can you not PLEASE just SIT DOWN!" LOL  

Every single thing just seems to get on my very last nerve, not that I'm ever the Queen of peace and light anyway, but lately its just ridiculous how uptight I am.  Oy!
Helpful - 0
264121 tn?1313029456
Why didn't they want to give you antibiotics?  Is this some special HCV secret I don't know about that you can't take antibiotics if you need them?  I took a z-pack my second? week in, fixed my problem and I still went UND...  Anyway...
Helpful - 0
233616 tn?1312787196
hi BD, you are always trying to be so helpful....and I did check out the book...but and so I must say...
I'm just alerting you to my concerns now that I read the available pages on line of the book you suggested above.

the idea that eastern medicine thinks this is just "bad heat" and/or "bad moisture" and that they are not admitting it is a virus has me stymied.

I'm not saying there may not be somethings we might learn from eastern medicine, but having had exposure to both....well anytime someone starts trying to sell a book and devotes time to theories that we are already light years in advance of will loose my vote of confidence.

this is a virus....calling it heat or weird Chi is not going to further advance a cure, just my opinion....you might want to go peruse the available pages there before you spend your money.
just trying to be helpful to you.
Helpful - 0
Avatar universal
I have had similiar problems. I think hydration could be a factor, if not at least it's one you can rule out yourself.  I had sharp large muscle pain, intermittent that moved around.   Dr. thought Neuropathy and suggested meds. I call it my "crazy" pain that makes me look like a hypochondriac. After a while on these meds that's how I am feeling. About a month ago I had such pain in my knee I thought I twisted it,  It turns out it's Arthritis.  Boom! the pain came out of nowhere one day. Now it,s in my Hip.
Sorry this was more of a whine than help.
Teri
Helpful - 0
233616 tn?1312787196
thanks, I remember your post then. week 2 and 3 were horriible, but week 4 was better, less fevers, a little energy back...and I think because the sweats were gone I just naturally cut back to a couple glasses a day. probably not smart.
But I'm thinking I may have gotten a virus.

thanks for the book tip.!!!!!!!!!

the thing about this disease is, I've gotten really sick 2 out of the last 4 times I visited my GP...and I'm convinced it's going into the viral environment that really kicked things up.....so since my hubby works with kids....well...I finally got him to agree to no more saliva for a while...there.s only so much any immune system can fight off at a time...
Helpful - 0
233616 tn?1312787196
thank you, the prayers are the best part....I can only contol so many molecules....it's He who can control the rest.
Helpful - 0
Avatar universal
hi-maybe it is the water.  I am only on week 2 and haven't felt the same symptoms as you.  I'm just wiped out and a bad rash on my tongue.  Water is key, and I know it is hard to keep up.  How are your labs?  I went for an acupuncture treatment the other day and it did help.  I know you are not a believer in that, but it might be worth a try.  Also, there is a book i am ordering today, The HepatitisC Help Book, by Robert Gish, MD and Misha Cohen.  Maybe there is some stuff in there that can help you.  Decaffeinated green tea also.   I  was ready to quit after the first shot, so I can emphathize with you.  Hope you feel better, Donna
Helpful - 0
Avatar universal
hi, cant help you but wanted you to know i hope you feel better soon. prayers going out to you.
Helpful - 0
233616 tn?1312787196
bump/

still no doc called...and my eyes are too dry to remain open, head is pounding. itch....could I be having a underhydrating event? I felt so much better in wk 4 I stopped drinking so much water...it was getting old....3 qts.........maybe I'm paying with some build up this week??

anybody?
Helpful - 0
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