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488823 tn?1218370567

much concerned and need help

I have not been around for a while after failing my last trial in Miami. My liver is all scared and I'm sure much worse then 2009-2010 but now My new doctor has put me on Pegasys proclick (180) the usual Rribavirin 1200 mg a day and the new Incivek 750 mg every 8 hrs. I'm close to 70 years old and I guess this will be my last chance as he put it, so I'm very concerned with the outcome and what to expect during this 3 month although I still might be on the old medicine beyond this 3 months. I'm going on my second week on thursday and I'm not feeling too good. My urine has changed color like I never seen it before and I feel bad all over. I'm also taking pills to get this Amonia out of my system and thats one indicator I'm much worse, because I never suffered with this before. Any in-put would be helpful, and if anybody was and is in the same situation would be helpful. Thanks
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1815939 tn?1377991799
The meds can cause dry eyesand so can Hepatitis C. I had dry eyes, felt like sand in them all of the time, before treatment. My eye doctor put me on Restasis and had me take the Restasis all through treatment. This worked. It is prescription, but it works much better than the regular eye drops, especially the stuff you get over the counter. So maybe mention Restasis to your eye doctor.

Did you tell your eye doctor you keep getting styes? Treatment could be causing you to get them more often. Hopefully now that you are off treatment they will stop reappearing. Still, if you have not told your eye doctor, I would tell him/her. You may need an antibiotic if you keep getting them.

http://www.webmd.com/eye-health/understanding-sty-treatment

Glad you had your lab work drawn. Let us know the results. Wishing you SVR.
Helpful - 0
488823 tn?1218370567
I'm sure the dates got screwed up because I was not coming back from vacation until the 21 but today as most said and POOH, I went for blood work and my doctor gave me no problem when I told them I wanted to get my lab done. I know I got a viral load and Ammonia check because I did have a problem with this before.---------- One problem I never mentioned is the EYE problem. I had them checked by a specialist about a month ago and after he checked inside and behind the eye, he said all look good.I told him my eyes have been bothering me for at least 4 months and he said to water them often.Well this is not doing too good but its better then nothing. The problem with my eyes is I keep getting styes, but before this med I never had a stye before but now it seems like I get every month and they hurt, even if I put drops every day. Is this from the MED too? Man I hope this goes away too because this is not good with hurting eyes all the time. Thanks ALL  
Helpful - 0
131114 tn?1380083190
i have not been around much- but i remember seeing your posts a ways back!
congrats on finishing a hard run!!!

i am praying for you and your wife that you are healed and that you two will have some good times ahead.

hopefully you will have SVR and your liver can begin to heal. the meds are strong but your body can recover after the virus is gone- you will have so much more to work with!

you are a warrior!
Jerialice
Helpful - 0
1815939 tn?1377991799
Congratulations on finishing Tx! You had a difficult treatment and it is wonderful that you have finally completed it.

Treatment can take some time from which to recover. The drugs stay in our bodies for up to 6 months. They will be eliminated gradually and as they are eliminated the side effects from them should disappear as the days go by. Hopefully you will feel better and better each day. I know my side effects gradually disappeared, but it took months.

You mentioned going for blood work on the 26th. You should have a viral load now. You should not wait until the 26th. There is supposed to be an end of treatment viral load done right after you finish treatment, such as the day after you finish treatment. If you have not had an end of treatment viral load done yet, please have one done ASAP. This is very important. You need to know if you are UND at the end of treatment, which is now. So please get a viral load done ASAP, today or tomorrow. Call your doctor for the order if you have to, but please get one ASAP.

Hopefully you will be UND and remain that way. However, IF the virus does reappear, you will need to know if you were UND right at the end of treatment. It is the only way you will know if you had a breakthrough or if you have relapsed. Hopefully you will be UND at end of treatment and stay that way, but your doctor needs to follow protocol and get that end of treatment VL now just in case the virus reappears. IF it reappears, it COULD reappear as soon as 2 weeks after end of treatment and, without an end of treatment VL you would not know if you were UND at end of treatment or not, and therefore would not know if you had a breakthrough or a relapse. This is very important if you do need to treat again in the future.

Hopefully you will stay UND and that will all be mute, but one has to be prepared for anything.

As far as the low grade fever, it could be from the Interferon or it could be something else. I think your doctor is going to have to follow up on this and if the fever does not disappear, then the doctor should do a thorough work-up/exam with tests, to determine the cause so it can be treated.

Helpful - 0
1815939 tn?1377991799
"Now, I know that Interferon causes low grd fever, and that Interferon takes at least 3 days to clear our systems, so hopefully this sx will be gone in another couple days. "
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Interferon remains in the body for up to 6 months. Therefore any side effects from Interferon may not be gone for several months.
Helpful - 0
Avatar universal
Congrats on crossing the finish line, Bravo!
Now, I know that Interferon causes low grd fever, and that Interferon takes at least 3 days to clear our systems, so hopefully this sx will be gone in another couple days.
   Everybody is so different, for example, I would feel tired and achey after my shot, and would feel as if I had a low grd fever, but it didn't show up on the thermometer. We all have our own way of dealing with(and responding to) Interferon, as we manufacture it in our bodies, etc
Helpful - 0
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