I'm really not the best at searching but sometimes I stumble onto something. I don't think there's any one 'to go' place.
Here's a group to refer to, there are plenty more. It's also important to check dates as ideas and research is changing rapidly.
www.hivandhepatitis.com
http://www.hepcadvocate.org/
http://hepatitis-central.com
www.hepcassoc.org
You could keep your eye on this one: http://www.aasld.org
Finding information about hep C can be frustrating, for example, US vets are 10% more likely to have hep C than the general population. Though this is related to the Vietnam era practice of innoculating men with unclean practices involving air-jet guns, the only place I find this information is on Vet sites.
Are there certain Hep C sites that are the 'go to' places for such things?
You're welcome.
I know searching can be a pain. I try to go specifically to hep C sites medical site.
And when I can't find the answer, I leave it be. Usually someone comes along who's better at finding these things out and can answer clearly.
Ahh, thanks, I did see on another website (mayoclinic) talk about some of the causes of Neutropenia and they had Hep C as a cause, I kind of just figured it applied to us, but maybe not.
The problem with this article is it is about neutropenia in general, not hep C interferon induced.
When I asked my hepatologist about why I had to take neupogen he quoted the research about bacterial infections while also saying he hasn't found that to be true.
Mikesimon and others have posted about this before including research specific to hep C.
1ofthclub; Be careful when you read these things because if it is not specific about hep C, you can not necessarily assume it applies to us.
Kind of wish I hadn't read it myself, ha....
I'm pretty sure mine were interferon related since they both went away after I stopped tx - the ulcers right away and the eczema a few years but it did go away.
I'm glad I hadn't read that I would have thought I had germs everywhere and driven myself crazy(er)!
The most common type of infections seen in neutropenic patients are caused by bacteria normally found on the skin (such as Staphylococcus aureus) or from the gastrointestinal and urinary tract. Fungal infections are also more frequent in patients with neutropenia. The infections may be limited to certain areas of the body (commonly the oral cavity, genital area, and skin) or may spread via the bloodstream to the lungs and other organs in severe, prolonged neutropenia.
http://www.medicinenet.com/neutropenia/page2.htm
I'm completely curious about this I had good neuts on tx but had horrible skin and mouth ulcer issues which I was told were autoimmune and interferon related respectively.
I didnt have any migraines on tx fortunately I'm not sure I could have stood it at all but I did drink tons of water which I do believe might have helped. (OH also never had my period in 72 weeks so perhaps it did control my hormones and that could have been it).
All guesses.........
Where did you read this?
I've had low neutrophils since I began tx and my skin issues are minimal, lung issues, non-existent.
Sometimes I get mouth sore which could be from low wbc but acidopholus take care of them, they're minor, really.
When I was short of breath, it was from the riba.
BTW: She mentions a cyst nothing about her skin or lungs~
Are your Neutrophils low? I read that it can cause skin issues, as well as mouth and lung issues.
I also get migraines, the key like NY said is to catch it early. I can tell the very second I am starting to get one, it's the same pattern everytime...at the very first sign, I take something and it will help...otherwise I am stuck with it for a few days.
PJ I started out as NYgirl now I'm nygirl7 ;-/
I have a history of migraines and am very sorry you are going through this. Either I have to catch it early enough that ibuprofen will work or go to the ER and get completely doped up and knocked out and then sleep for a day. Nothing else ever worked for me however the frequency has gone very far down since I was a kid. Maybe having less hormones now helps because I think that is a very big trigger in women.
If the headaches are true migraines there are migraine medications that can be used to relieve them. I don't know your history and if you have a history of true migraines or if they are another type of bad headache. I get migraines. I was using Cafergot but I could not use that with triple therapy so I switched to Imitrex. There are some other drugs related to Imitrex that are also available.
Here are my strategies for preventing and treating migraines:
Stay hydrated. Avoid all processed foods (too many additives), avoid meat with nitrates in it (bacon, most lunch meats and processed meats, hot dogs, etc.), avoid red wine (but we are not drinking anyway), avoid certain cheeses like Romano and some other aged cheeses, avoid sugar rushes, avoid chocolate, avoid too much salt, avoid fatigue (get enough sleep), avoid nything or any place that gives you a eadache, avoid food with MSG, avoid heat, avoid perfumes and fragrances, avoid air freshners, avoid anything scented, avoid most regular cleaning products (use natural biodegradable products and vinegar), avoid hunger, avoid flickering lights, avoid stress, avoid cigarrette smoke and pipe smoke and cigar smoke, and there are more but I cannot think of them right now.
Link to common migraine triggers:
http://www.*************.com/migraine/triggers-22175-5.html
If all of my prevention efforts fail, and sometimes they do because I have no control over some things (perfume in a theater, fragrances in the store, etc.), then I take the migraine med, lay down in a dark room with no sound, put an ice pack on my forehead and the eyes (be sure to cover the ice pack with a thin towel so it is not directly on the skin), and hope the migraine goes away. I also take a couple of tylenol because often there are a couple of types of pain going on and the tylenol will relieve the other pain while the migraine med relieves the migraine. A lot of times it does not fully go away until I just go to bed for the night. If I am up, it lingers in the background even though the worst is gone. I also sometimes rub my temples. This helps momentarily but it won't get rid of the headache just by itself. Neck rubs sometimes help but, again, they have never totally relieved any migraine I have ever had. Progressive relaxation techniques help prevent migraines but they take weeks of twice daily relaxation techniques to have an effect.
I am just sharing what I do. Different people have different migraine triggers so what I do may not be necessary for you to do or may not work for you. If you can figure out your triggers then you can avoid them.
The dark room, ice pack on the forehead, and no sound, are all common practices among migraine sufferers.
If you have true migraines and you know it for wure then most docs could prescribe an anti-migraine med (just be sure it is compatible with the Hep C meds). If you are not sure about the type of headache, then you should probably see a neurologist to get an accurate diagnosis.
I sure hope you feel better soon.
I had that problem a couple of times with my password. I had to do some sneaky stuff, log out and on again, re-sign in without allowing foxfire to put in my password, things like that. I'm not great with computers but I've figured out that if you just keeping trying to do things differently, eventually I usually stumble onto a solution.
I like your new avatar.
Dehydration? Besides drinking water, I use dry mouth products but I don't think that's what you mean. But drink more water, and even more.
You can try reducing your salt intake.
I use lotion liberally on my skin, with oatmeal as an ingredient.
Sometimes headaches will subside with compresses. Try also relaxing your neck muscles.