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1718002 tn?1327386656

new to the forum

Hi, I have had hep c since 1998. My Dr. says now is the time for me to have the traetment w/telaprevir as I am
geno type 1. Just wondering if anyone is having this new treatment along w/pegasys & ribavirin or has had the treatment and what I should expect. Look forward to hearing about it. Thanks, B
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Avatar universal
Just started the treatment with Incivek on July 2nd.  The first day was brutal with fever of 103.6 and severe aches/pains.  Has anybody else had the high fever?  Yesterday and today are much better as far as the aches and pains and fever....but eating all that fat is rough on my stomach!
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1718002 tn?1327386656
Once again you folks are an incredible source of info & support. Do you like my picture of my labs? Rolex is 7, Zary is 11. Anyway...thanks Wil! I have another vocabulary to earn. (and I thought we used a lot of acronyms in real estate! Elpasolady, it sounds like you're having exactly the treatment my Dr. is suggesting so I'm very interested in ow you are doing. Keep that great smile on your face :-)
Is there an easy way to reply to numerous senders (like yourselves) that I am missing? I hate to repeat myself...Its a beautiful day here in NH....yippee!
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1686556 tn?1309210617
Hi there:  Side effects from treatment can be managed.   I needed Lexapro and the thing that helped me the most to drink a gallon of water a day.   Water is a must.  

Good Luck and the odds are so much better.   I was acute 1b and only had to go thru 24 weeks instead of 48 becasue I was a rapid responder.  
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1717054 tn?1316712653
oh wow...thanks Will.  YES, that helps!!
Have a great day!
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Avatar universal
To:Epasolady and B161: If you go to the  bottom of this page here and click on "Common Hepc acronyms" there are many often used terms there.

Hope that helps

Will
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1717054 tn?1316712653
Hi...I  feel your pain as far as all the terminology and abbreviations go. I can figure some out, but others simply escape me) I just joined this forum as well. I will start tx
( treatment) very soon.  I too, will be on Incivek ( yes, that is the brand name for telaprevir) as well as Pegusys (interferon) and Copegus ( which is the ribavirin)
If you read too much about what to expect in treatment ( tx) you may want to change your mind, like I have considered. (LOL) It's not pretty, in many cases.
Everyone is different, but I believe that the healthier  you go into tx, the better it will be
( at least that is what I am hoping for)  Positive attitude will account for much.  I hope you can keep up at work, but be prepared for days that you won't be able to.  I assume you will tell your boss or whoever, that you will be going through this so that they understand.
I have had hep C since 1978 and was diagnosed in 1996.  I feel great and have put off tx for years and years.  Now that the success rate is double with the addition of Incivek, I decided it is time. Much like your Dr. suggested to you.  I also chose this time because I am presently not working and will be able to rest when needed.
Do your research and make your decision. Remember that it is always better to seek tx before much damage is done and when you feel good and strong.
Good luck, and if you go ahead with it, we are here for each other.
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1718002 tn?1327386656
I should definately read your journal- Folks here really know their stuff about meds, appreviations & terminolgy. I feel silly not knowing more about specifics. So the procrit is to help w/the anemia? It sounds like you're doing the same treatment my Dr. is talking about but I don't know the lingo-he says telaprevir  (same as Inciveck?abbreviated as TX?), pegasys & ribavirin. Also said that the viral load gets checked at 4 weeks and would have to be under 1000 to continue. Am I beginning to understand all this? I can't help butwonder if I'll be able to keep up my usually crazy pace at work. ny thoughts? Really appreciate any & all info.
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789911 tn?1368636783
I am on soc and Inciveck.  IN week 7.  I have had pretty severe anemia. 8.5 Hgb.  Lots of nausea.  I am on procrit and as of today I have had 3 doses.  Today I actually felt like I had some energy for the first time in a long time.  Did some laundry, cooked dinner, put lots of stuff away.  For a couple of hours I almost felt like I wasnt on treatment.  I have a moderate rash all over my trunk and top of my legs.  I have a journal and you can read what has been going on since I started.  Undect. at week 4!   Good luck to you!    PS  Lots of brain fog due to anemia.   I hope that some of that  will go away when I get off the inciveck at week 12!
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Avatar universal

Hi B...you say your Dr. says it is time for you to treat. Have you hada biopsy  to detemine liver damage(fibrosis) and is that how the determination was made.

Many people here have treated with Tela(Inciveck) in trials and some are just starting now that they have been approved.

As far as what to expect ..side effects vary from person to person...some have just mild flu-like symptoms and others more severe side effects.and you don"t know until you get going how it will affect you.

Others may chime in with their experience  on the new drugs.

Good luck  and welcome...

Will
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