Aa
A
A
Close
Avatar_universal
non insured heppers
My question comes at the end of this inquiry. I am moved to write to my congressman concerning my non-inusuarable state of health.  Not only do I want to send a letter, but I desire to belong to a coalition fighting to move the hearts of our congressmen so they may have enough empathy for people like me that may see the necessity of create new laws or reforming old ones in the realm of health insurances. Can you suggest where I might start to do that. I am a single mom, still raising a twelve year old son. I worked to support my family while enduring not one, but two treatments, and although I have not been checked for over two years I know my body well enough to know my hep has returned after a brief hiatus from the disease. Trying to work full time is now becoming a struggle for me.  I have no family to speak of to help me.  Working is my key to freedom.  Disability takes a long time to get.  I have no one to put a roof over our heads for the length of time that process takes, let alone the fact that I have no left over money for doctors or insurance.  I have resolved myself to the fact that this disease will take my life and in the process reduce any quality of life, not only for me but for my son as well.  It seems likely we will end up living homeless on the streets of St.Louis. Not quite the demise one wants. My son becomes then too becomes a victim. My question.  If I cannot make a difference for myslef, what can I do to make a difference for my sons generation?  A medically educated opinion/veiwpoint or map to follow is welcomed.  God Bless you all.
Cancel
6 Answers
Page 1 of 1
Avatar_universal
you would get disability before you ended up homelesss.  we all have thoughts like those.  what will happen to us if we dont get well,  if we are left alone,  if we cant work,  if we lose our mental capacity.etccc.....
   there is one site that does some activism i believe.  its the national hepatitis coalition.  they used to do a yearly march at wash. d.c. i believe.   this disease is not getting the funding it needs for research  like HIV is.  and many more people have this.  baby boomers especially.
   youve been thru so much with  and must be a very determined person to have worked thru 2 treatments.  your son is one blessed boy.
   you should really get checked to see how you are doing with your blood work.  it may not be as it seems...   will be saying a prayer for u....
Comment
Cancel
Avatar_universal
Comment
Comment
Submit Comment
Avatar_universal
There are a couple of local women who are politically active in raising the awareness of HCV.  They started a local HCV support group in Minneapolis, MN called LiverHope. At the national level they have gone to Washington several times to participate in legislative hearings and workshops surrounding the issues that people with HCV have.  Nationally the group they work with is the National Hepatitis C Advocacy Council, North Miami, FL, Andi Thomas, 954-931-8463.  Either this group or the people locally could give you more direction if your interested in getting more politically active in this area.  Address for the local organization is :   LiverHope Support Group, Helen Clark & Pat Buchanan (Co-Facilitators), Website: www.liverhope.com

Hope this helps,
Brian
Comment
Cancel
Avatar_universal
Comment
Comment
Submit Comment
Avatar_universal
Something I hadn't thought of....what will happen to me if I switch jobs mid-treatment?  Now that I have a "pre-existing condition" would I be now uninsurable?
Comment
Cancel
Avatar_universal
Comment
Comment
Submit Comment
Avatar_universal
I believe as long as you keep "continuous" coverage, you cannot be denied a new policy.  I switched insurance twice early in tx and it was scary, but all was OK.  Even if you were to lose your job, you could pick up your COBRA (that's what I was on when I began tx) and they could not deny you.  With a new job, they also cannot legally deny you as long as you have had continuous coverage.  Then, when my COBRA ran out, I went onto an individual policy and again, they could not deny me due to pre-existing because I had kept continuous coverage.  Very important to keep coverage without lapse!!  Cost me an arm and two legs, but was less than the meds would have cost.
ambush :)
Comment
Cancel
Avatar_universal
Comment
Comment
Submit Comment
Your Answer
Avatar_universal
Answer
Know how to answer? Tap here to leave your answer...
Answer
non insured heppers
Submit Answer
A
A
Recent Activity
Avatar_universal
Blank
livn_learnn commented on Salivary gland disord...
1 hr ago
Avatar_universal
Blank
Delawarewallflower is ... Comment
5 hrs ago
Avatar_universal
Blank
susan400 Just diagnosed w/Graves..st... Comment
10 hrs ago
Blank
Weight Tracker
Track your weight over time
Start Tracking Now
Top Hepatitis Answerers
446474_tn?1446351282
Blank
HectorSF
San Francisco, CA
1815939_tn?1377995399
Blank
pooh55811
317787_tn?1428318779
Blank
Dee1956
DC
Avatar_m_tn
Blank
can-do-man
IN
163305_tn?1333672171
Blank
orphanedhawk
Rural Mural, CA
683231_tn?1438659664
Blank
flyinlynn
Auburn, WA
Hepatitis C Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488_tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543_tn?1443740527
Blank
TMJ/TMJ The Connection Between Teet...
01/15 by Hamidreza Nassery , DMD, FICOI, FAGD, FICCMOBlank
Top Hepatitis Answerers
446474_tn?1446351282
Blank
HectorSF
San Francisco, CA
1815939_tn?1377995399
Blank
pooh55811
317787_tn?1428318779
Blank
Dee1956
DC
Avatar_m_tn
Blank
can-do-man
IN
163305_tn?1333672171
Blank
orphanedhawk
Rural Mural, CA
683231_tn?1438659664
Blank
flyinlynn
Auburn, WA