non responder

Just wrote a whole Paragraph and it would not go though, oh well-I'll try again. Am pretty upset as did not respond at 12 week mark to Pegasys+Ribavirin. I am btw stage 2&3, grade 2, genotype 4a and have had hep c btw 25-35 years. I have searched and searched the Web only to find the promisng new drugs like BILN 2061 is dead in the water, and the protease inhibitors? news on them as died down as well. This is all very upseting to me. I know everone says "oh they are working on new things all the time" but as I said, all good news as seemed to die down. I have had 2 biopsies but only 2 years apart and don't know a great an indicator that would be since only 2 years apart, but did show no progression.  Anyway would love some support at this time. Emails most certainly welcome at ***@****.

Thank you so much.

Susan

[Revenire]

Hang in there. I don't know what's happening with BILN (I've read conflicting reports) but there are clinical trials going on for HCV drugs. At least your 2nd biopsy showed no further damage.

[CARUU]

I'm not really qualified to comment on hep c trials, but I wanted to say hang in there and let you know I'm thinking good thoughts for you during this difficutt time. caruu

[TravisB]

I don't know if you just got the news of non responding but if that's the case, be assured that you will feel a lot better with the passing of time.  It's a total rip-off to go through all that misery and not succeed but you will come to terms with that sooner than you think.  The progression of this disease varies from person to person so don't assume the worst.  Good luck and hang in there. Travis

[fabienne]

I am also a non responder... but my attitude is there's nothing I can do about it and it's a very slow progressing disease and in a few years, which is not a long time, there will be something that will work, or maybe my liver will never get damaged by the disease at all.... try to stay positive...

[sonata1]

Hi Susan! I stopped by to say hi and keep you company. In the same boat as you (do you want to fish?)  Off tx for a few months now, felling much better. Saw my doc two weeks ago (teaching hospital) and he is very hopeful about the biln 2061 and the protease inhibitors.  According to him they ARE coming.  So let's keep our fingers crossed together. Oh, there is a new trial coming out by next Feb/March, waiting for the protocol. For now just concentrate on feeling better and getting back to yourself.

[LvdByGod]

I HOPE SOMETHING WILL COME ALONG FOR YOU. I WILL PRAY FOR YOU. I FEEL REALLY BAD BUT, YOU NEVER KNOW WHAT WILL HAPPEN. PERHAPS SOMETHING WILL COME DOWN THE PIKE FOR NONRESPONDERS. I PRAY SO. PLEASE KEEP IN TOUCH AND LET US KNOW. SANDI

[Susan from NY]

Thank you guys for your comments and support. I have a little email group going with fellow non responders. If you would like to email me your email email addresses-you could, if your wish, become a part of our little community. We share feelings, stories, give each other support, email each other news articles on research, all that good stuff.
I am still having some bad days, but now good days tooin regards to my depression surrounding having this Hep C.. What can I say. I get scared easily from some of the news I read on the web. Am btw stage 2& 3 and have had hep c for about 30 years, maybe even longer.

Look forward to hearing from all of you either here on this forum, or via email.

God Bless all of you!

Susan

[Susan from NY]

have started email support group for Hep C non responders. We're a good bunch helping each other. if interested-pls email me your email addresses.
my email is ***@****