Aa
out of luck
I was told 20yrs ago I had hep C,then a specialist told me couple yrs later that the report was wrong it was just showing positive because @ 15yrs old had mono & my liver & spleen came out from under my rib cage (swollen )then @ 17 myself & 5 friends had partied together,we all smoked,drank after each other and when one of them called the rest of us couple wks later to say he has something called hepatitis, I am the only one out of the bunch to go get the gammaglobin shot to prevent catching it,then I was the only one who caught it,but I was very sick my liver & spleen came out from under rib cage again but I got well but they did tell me back then I would never be able to give blood so the Doctor said that's why it was showing positive not to worry now jump forward I am 50 now,the last 10yrs I've been on a steady decline, but 1yr since I've been told definitely have hep C,their are days I can't even get out of bed for few days, having to use clinic so they will not give me the meds to maybe save me,so I noticed my urine has strong amonia is this part of the decline?& my skin on hands,legs covered rash (they just call me in steroid cream)I sweat even in my sleep like completely soaked waterfills my ears,are these things all hep c progressing? The health dept doesn't tell me much. Thx sorry so long 1st time telling my story.
These are questions for the doctor. Just don't panic. End stage is 4. Have you had a MELD test?
I haven't been able to get you off of my mind. I am concerned for you. I know what it's like as you describe symptoms from liver disease. Do you have anyone who can speak for you? You need better care.
recently i was diagnosed with end stage liver failure due to hepc. Is this what they call stage 4? What do they mean by reactive hepc? I will be seeing a hepitologist in March/15 and would like to prepare for the worst case scenario.
More info would be needed before I would suggest you have cirrhosis. Being cirrhotic myself I would agree that some of your symptoms might not be related at all to Hep C. Some very well could be. I am sure they done a CBC on you? I would be interested in knowing some of those numbers also. There are several ways to get all the meds for free. If your close to a teaching hospital there are even trials.
You need answers and the best way is to get into a doctor who understands Hep C and treating it.
No need to feel it's the "end". For most people treating now there odds are on their side... Good luck to you and welcome here.
You need answers and the best way is to get into a doctor who understands Hep C and treating it.
No need to feel it's the "end". For most people treating now there odds are on their side... Good luck to you and welcome here.
So sorry about your situation. I see you live in Mobile, AL. Do you have decent health insurance? Alabama is ranked pretty low for low income or public heath assistance medical care. Have you tried to reachout locally for help? Do you have a relative or friend who can help?
If this is your situation and a member who lives in your area sees this. They may be able to advise you of a non profit agency in Mobile who may be able to help you to try and get the best possible treatment available for your situation.
Best wishes.
If this is your situation and a member who lives in your area sees this. They may be able to advise you of a non profit agency in Mobile who may be able to help you to try and get the best possible treatment available for your situation.
Best wishes.
Hi and sorry for what you are going thru.
Have you had any bloodwork done that you can share?
Are you certain that you have Hep C? If so, did they tell you what type?
This would look like 1a, 1b, 2a and so on. It may also appear as a # such
as 3 million or 500,000.
That would help us to help you.
Some of your symptoms may not be related to Hep C.
Hopefully we can help you get to the bottom of it.
........Kim
Have you had any bloodwork done that you can share?
Are you certain that you have Hep C? If so, did they tell you what type?
This would look like 1a, 1b, 2a and so on. It may also appear as a # such
as 3 million or 500,000.
That would help us to help you.
Some of your symptoms may not be related to Hep C.
Hopefully we can help you get to the bottom of it.
........Kim
You sound like it has progressed to the point of cirrhosis, varices and portal hypertension along with severe anemia. Has anyone done labs on you? Is your urine the color of dark tea and stools black? Are you nauseous with very little appetite? Do you have confusion? Do you have a Gastro or a hepatologist? If not you need one. You need labs and a MELD test. You need and ultrasound and an endoscopy referral too. The clinic is just your regular primary care physician? If so ask them to refer you out to a Hepa or gastro doc. Your ammonia levels sound high and if you get any sicker you need to go to the ER. Be your own advocate. The clinic doesn't know beans about HCV. They are just a referral system and only treat colds, flu and minor issues. Get on the phone and get that referral to a specialist. What city/area? Maybe someone here can recommend a specialist that your PCP can refer you out to.
Be quick. Time is of the essence.
Be quick. Time is of the essence.
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