question to men or wives with treating husbands

[B_Niel]

9 months ago I completed a successful TX. I am 29. We been marreid 6 years and wanted children immediately. Found out through bood donation that I'm hcv postive and treat. We got my negative quanitative and qualitative three months ago. Two questions.  My wife says dont be embarrassed no one can see us or would care anyway. This is still dificult.  The first question isn't bad, we was told to wait until 6 months to attemtp pregnancy. how many of you all would play it safer and wait ayear or even longer?? Second, the wife says my equipment seems smaller. There was nothing in the side-effect sheet with anything to explan.It doesn't seem possible and hadn't heard about  but before she mentioned it to me, I felt the same way. this has been upsetting to me. she said it didn't matter but wondered why the doctor didn't tell us.is there anyone still left here that has finished tx that this happened to? we just ask that this question isn't turned into a joke. it is not meant to be one by us.  

[najeen]

Yeah, Niel some of the people here think everyone new is revenire. Some have said I was him. Others are now pretending to be him. Others are making up names that are like his etc. People like a show and drama. I think it takes their mind off of the disease.

[ChrisDDD]

Hi.  This isn't the thread I was looking for, but thought it might be helpful anyway.

http://www.medhelp.org/forums/hepatitis/messages/45040.html

[ChrisDDD]

When I first read MyOwn's comment, I was shocked as I have always felt s/he has been very supportive on these boards.  Then when I went back and read the poster's name whom s/he was referring to, I knew exactly what s/he was talking about.  Everything dperry10 said is absolutely correct.  You probably didn't see the posting going on at that time.  This was nothing but an amazing coincidence in the order of the posts on the board.  I assure you it was not directed at you by MyOwn.  At least that's my opinion.

I'm glad northstar was able to answer your question.  I'll keep looking for that thread for you and post it if I find it.  I can easily see how you'd be offended by such a comment if it were directed at you, and admire your willingness to trust to share your concerns with us about something so personal, but I believe we're all here to support each other and do a great job.  Good luck!

[SandyBreeze]

B-Niel

I wanted to respond when I was here a couple of days ago.  I am relieved you got some answers.  I admire you for bringing this subject to the table for men and couples.  It shows a strong, secure individual to do so.  

I admire your letting negativity roll off your back.  I have been here a couple of weeks now, and have read as much as possible but rarely answer.  There seems to be a group of members that are undermining the 'support' purpose of this fine forum.  I have seen threads started and fortunately the administration eliminates them.  I have literally written down the members name to remember the players to not become involved with them in case I do decide to treat.  Being new, I do not know what has taken place before my arrival, nor do I care to know.  Actually - I DON'T want to know.  However we are constantly reminded, it appears on a daily basis, that there were problems.  I have seen various new people post and, like yourself, be accused of being someone else.  I admire that you ignored this.  I have actually seen a member tell a member... 'you must have been gone the day 'this and this' happened'... 'let me s'plain my  pain'.   This is madness, to pick at a wound (whatever it was, that new members DON'T care to know about) This leaves the wound open and hurts the person's soul/mind continuing to hold the grudge; AND UNFORTUNATELY, everyone who has to read it!  I admire that you did not allow that to affect you and leave and am quite impressed with the compassionate members answering your sensitive question and ignoring the other.  Please come back and give us your story.  A gentleman had provided links to archives regarding post treatment.  You are only nine months out, and it appears it can take up to a year to feel back to your old self.  I am assuming this is your only lingering side effect?  I hope the past nine months have been easy on you. I have not treated yet and interested in how members fare after treatment.

You are obviously an intelligent man and good writer and expressed this senstive subject in a very tasteful manner and have been offered some great advise!!!  The very best to you and your wife and your future family.  Please, please stay on and let us know how your doing.  You

[B_Niel]

I'll ask about testerone levels, my wife said in high school a friend of hers was dating a guy a couple years older that was body building and taking some illegal drugs to pump up and his girlfriend swore to my wife that it got smaller. she said thats what your talking aobut when your talking about steroids. sorry about your friend, the 'hehehe' is what bothered us most.  oh well. no harm. if you and that other person finds the information, we will look here to night. the other thing about -time-, we just want it all to be safe for our baby.  

[northstar]

I talked to my hubby, he got kind of a sheepish little grin. So I know he was gonna tell me he had some problems. He did, same as you in fact.
He said (pardon my graphic language)
he didnt get as hard, so it was effecting the "girth" and that was why he waited so long to even attempt sex, cuz he didnt know if he could "hang in there". He is fine now , of course, but it has been a year for him.
We all learn from the questions that are asked, don't we?!

[B_Niel]

my wife and I thank you ad your husband!!! Thanks for taking our question seriously we knew this was not in our mind because you can't make this stuff up. She said it was not that bad or noticieable but enough she thought they should figure out iif the blood counts had gone wacky or missing some mineral s or something. To know other men go thru this too and gets over it helps! It was so good hearing the neg at 6 months and now have only 3 months to go for yr.  if things are good to go then we put the condums away and thats going to be a good thing in our life to start a family. My wife is a beautiful,smart lady and has been very patient. Tell your husband this has given us both piece of mind. Im going to try to stick around some and share my exprience from my tx when I can.this is a real nice place and we appreciate the kind remarks to us. oh and thanks for the one mentioning testerone becaues my wife says that only make sense and don't know why the doctor or us didn't think about that. i really don't thiink he took me seriously. glad your husband is healthy and well now.

[Kalio1]

You might want to have your testosterone levels checked.

I know steroids can cause this effect in some men, Im not sure of the connection to Interferon but I think I did read something about it, I tried to find it but so far no luck. I will post it to you if I come across it.

Regardless of the cause, I'd see a specialist about it if you and your wife both have noticed things are different.

As to waiting before getting pregnant? If it was me, I'd give it a year, but the medical recommendation is only 6 months I believe.

[Tater-ToT]

Oh That's just SILLY...
Now why would you single out that one individual... then start badgering them for an un-necessary, non-valid reason when it's been explained to you (more than once) what happened... Then say they are on permanate ignorie, yet address them on another thread, to only turn around & then badger them again???

Judging from the way you are acting, you appear to either have koro-like syndrome, or "erin" is your buddy & you were trying to set up MYOWN to be tag teamed against.... after-all ya'll did make your grand entrance more or less together!

If you are serious, then myown would be the LEAST of your concerns.. who knows what your motives are.. but they appear to more aimed at myown than they do your shaft... humm.... speaking of,  so why are you "really" trying to give (HER) the shaft... ?? I wonder!

Another thing... she's on TX, & you are not.. & if you have been on it before, then you know what that is like... so why don't you forget about her & deal with your own issue at hand... That Is...If It is really an issue & you are truely so concerned!

Just a Thought!

[B_Niel]

thanks.  and yeah you might be righ if no one else is bothered with this side.  even if a bunch of us were, what can be done. Like lonestar say maybe time. We'll keep checking back to see if anyone else has the same thing. i think you said yesterday your husband had the TX. how long has he been finishe with it. Count your blessings you don't have the problems we have. are you planning to get pregnant in the future.  I hope more people can answer. as far as the others bad behavior, Im over it. He probably is in the middle of TX and maybe some people tke to manyof the other drugs thats prescribed. thanks for your help.

[honey11]

B_Neil,,,You shouldn't take offense...Look at all the threads,,,many address the topic in hand and others chit chat. Thats just the way it is.  You probably aren't going to be calling you dr as it doesn't look like this is side of interferon.  

[B_Niel]

it is nice you taking up for your friend.  but he didn't have to say what he said or the "he heh he'  or whatever.  please, please, please, dont turn this into thread LETS TAKE UP FOR MY OWN. He needs to think before he writes or like my wife said, he should look at the subject. I know he is your friend but no matter what his post is about he is plain wrong.  please lets not talk aou this bad behavior further, Were trying to get information again. We would like to call the doctor back to show him we are not the only ones. he claims this has never been said to him before. lets drop the OTHER subject about your 'friend',  let him take his imature laughter elsewhere. this is not a funny subject and we asked that at the very first posting.

[dperry10]

I know that comment from myown was meant for the person posting above him, not you.  So do not take offence .  It was in reference to the name that person is using these days, as he likes to change his name around, this time it is scrambled.  Has nothing to do with your post.  

[B_Niel]

thanks, man. If you can find it, it woul be appreciated. theres something theyre not telling us.  if we stay silent they think it will go away.  how would tthe researches and doctors feel if it was them or their wife.  I don't know if myOwn is treating but don't think he would have interrupted this posting if he it was happening to him. thnks for your help and lets try to make some sense of this.  

[ChrisDDD]

I tried to find the thread for you and couldn't, but I know I've read on this forum somewhere that men recently were talking about this very issue, even a different consistency of this part of their body, like softer or even mushy.  If I find it, I'll post it for you.  I do think it's a side effect of treatment and I would wait a year to try to have a baby.  I wasn't myself for six months after this last treatment, and some days still feel I'm on treatment!  These drugs can take a long time to clear your body.  Good luck!

[B_Niel]

clarification.The doctors said NO, not "NOT" (like above) that it was NOT side from tX but just stress. HE DOESN'T UNDERSTAND THIS HAPPNED BECAUSE OF TX!  The wife and I can see ED due to stress about 1 yr test or other thing in our life. But hat is NOT the problem.I've never had that problem. We don't think the shrinkage is in lenght but seems to be girth. Please do not be afraid to reply. We think this needs to be out in the open. If this has HAPPEND... does it go back to normal

[honey11]

Hi there and no need for embarrasment! That is the beauty of this forum to ask everyone what they are going through during tx or feeling so this should be interesting for the males to respond here.  My husband and I finished tx 2 years ago and have not noticed that but then many list symptoms of interferon that some get and others don't.  Honestly,,,I have not heard or read of this ever so we shall see,,,,if anyone else has noticed this.  I would definitely wait a year before having a baby because just for me,,,,,seemed like it took a good year for me to start feeling my oldself!  Congratulations on 9 months post and hope you guys have a baby in near future!!  Life is really good after going through the tx so enjoy!

[B_Niel]

thank you both.  (as far as myOwn I prefer to keep her/him there on the IGNORE button permanently)
we been using condoms and decided to still do that until 15 month. i get my 1 yr in 3 months. we really want 1 of our own and hope to be able to have more. the other thing, i hope your right about time.it is very odd and never mentioned. the doctr said not it was stress but there is something else going on. because we been doing well in our lives.  maybe I am more stressed about 1 yr then I think but still that would have nothing to do with shrinkage. hopefully men will answer if any lingered here post treatment.  thanks again. my wife said that it wasn't that big a deal. later

[northstar]

You know my hubby an I treated around the same time.
Come to think of it, I do recall him sayin some stuff about that "right after tx"
I will have to ask him when he gets home from work. You got me curious now. He finished tx in April. I finished in August (6 months)
I know all my muscles had atrophied, even though I had a very physical job. I am only just starting to feel some what normal,...........my hubby would debate that though Hehehehehehehe

[northstar]

No docs here, just patients. I would guess wiating a while for the pregnanacy is a wise decision. You had some POWERFUL drugs going through your system, and it can take some time for them to leave your body. I think I agree with your wife. I would probably wait a year. I would not want to take any chances of "problems".

That took alot of courage to post the other question, that is a very senstive topic for any man. I would wait and see what the guys here have to say about that.
Heck,....who would know better than another man.

I hope it all works out for you.

[Lonestar823]

I'm really sorry.  We were talking to erin__.... Sometimes we get bored with the forum and post silly things.  The comments weren't made towards you or your quite serious question.  
I'm a female and so I can't respond adequately. I will tell you I don't think you are being too cautious in waiting a year instead of the six months to start your baby.  Why take a chance?  As to the shrinkage, all I can say is that I wouldn't be surprised after the shock of all that poison we've subjected our bodies to.  Just wait until your body heals and I'll bet the old blood flows just fine

[Lonestar823]

Nah, He's just bored.  I am too.  

[B_Niel]

I don't know if that has anything to do with my question or if you are just making fun of me.  I wondered if this was coming. Forgert about i. I'm out a here.  That was a honest question and your remarks are rude.

[Myown]

Is that what one would call a scramble? hehehe

How do you think of these things?