starting tripple meds soon

Question

Hello ALL,
 I will be starting the triple meds soon ( 4 to 6 weeks ) and would like any advice as to any items to be better prepared for such as lotion for itching and so on. 

I am stage 4 cirrhosis genotype 1a.  Like many of you I have already completed 2, 48 week full term attempts with other meds and this time I will be adding Incivek

pooh55811 · Accepted Answer

Buy at least 1 container/box of Benadryl caps. or tabs. for the itching and buy some hydrocortisone cream for the rash. If you stay on top of it, hopefully you can keep it under control.

Here are a few other items:
Tylenol for headaches.
Loperimide for diarrhea
Hemorrhoid cream for hemorrhoids
Prep. H suppositories
Huggies (or other brand name, unscented, with aloe) baby wipes
Keri lotion or equivalent

I am finding the rectal problems/pain/diarrhea come and go. I am not exactly sure if anything I am doing is affecting it. I take loperimide at the first hint of loose stools because I have found that the rectal pain is much worse if there are too many loose stools going through in a short amount of time. The loperimde does help. 

Also I stocked up on high fat foods such as Greek yogurt, whipping cream, ice cream, eggnog, brats, peanut butter, avocados, etc. I always eat some food with the pills as well as drink something. 

Hope that helps. Good luck.

gene53 · Answer

That is so nice of you. This is really a big help and I really appreciate your list and will be taking note.

thanks Gene

gene53 · Answer

Thanks Chris, Good luck to you as well

gene53 · Answer

Thanks Billy,
I think pure water most of the time and starting early is a good idea, and from what I have been reading here the 12 wks of incivek does sound like the hardest part but I do remember doing the last 2 med treatments was no picnic either. O well, gotta try. Lots of support at this forum and I sure appreciate it. I will be stocking up on some items recommended by other people here as well.

Good Luck to you too

Advocate1955 · Answer

Over the counter:
Eucerin cream for rash
Eucerin body wash for rash
Tea tree oil for blistery parts of rash
Baneol cream for anal discomfort
Alcohol free baby wipes to help with anal discomfort
Ginger tea or sugared ginger or raw ginger for nausea
Mints or gum to help with dry mouth
Plastic utensils to help with dry mouth
Water

Prescriptions:
Hydroxyzine  HCL for itching			.  
Triamcinolone for itching
Lidocaine ointment for anal discomfort

Fat snacks:
peanut butter 
almond butter
cheese
cream cheese
nuts (brazil, cashew, almonds)
avocados
ice cream		

Advocate 1955

BigDaddy_59 · Answer

I am right there with you Gene. Starting my 4th Tx and taking eltrombopag to try a raise/stabilize my platelets.

Good luck and thank's for asking the question and thanks family for all the great response!!! You guys (or y'all) rock!

Printing out the supplies list and will be stocking up.

Chris

working dog · Answer

i would drink water ....pure water most of the time....maybe start soon before tx....i wouldn't trust much else...power aid does't sound right to me...i did drink a little gator aid and i mean a little...the incivek can be nasty...get a soft toothbrush...my burning and yellow baby poop left around the end of week 3...but lots of other sx..you'll feel much better after the incivek.....good luck....billy

gene53 · Answer

Hopefully your liver is not as bad as mine. Possibly you may get by with only doing 2 meds.
Good luck on the tx

gene53 · Answer

I will be doing the same treatment as you.
From what I have read here it sounds like the rectal issue effects some worse then others, as well as rash and other side effects.

Thanks again for the info and Best of Luck to you!!!!

pooh55811 · Answer

The insurance company should cover the third med if it is indicated (if you are Genotype 1). If they decline they have to give you a reason. Sometimes they just need more information.

If for some reason the insurance co. does not pay, you should be able to get help through the drug company. Vertex will cover the entire cost of Incivek if you have no insurance to pay for it. Also, some companies will help with co-pays too, even if the insurance pays for most of it. .

pooh55811 · Answer

I have been on triple med therapy (Pegasys, Ribavirin and Incivek) for 7 weeks. Tomorrow I start my eigth week. 

I don't see that you said which medications you will be on. I assume either Incivek or Victrelis. I think the rectal issues are mainly with Incivek. Both drugs have several similar side effects and they each have their own peculiar side effects. 

I am also Genotype 1. My starting viral load was 14,400,000 and dropped to <43 at 4 weeks (still detected but <43) so I am hopeful. 

Good luck on your treatment.

Goodlaugh · Answer

Wow,  I haven't seen a list like this. I was just diagnosed with hcv will have biopsy soon and start tx in January. don't know if ins will cover the third med. Hope so. I must have gotten it via transfusion in 73. So its had a long time to do it's thing.

gene53 · Answer

Wow, very informative, I knew this would be a good place to ask questions.
I really appreciate everyone's response's. Best advice usually does come from people who have been there done that. 

If you don't mind my asking, are you still on the med's? If so how far along?

Thank you very much for the info!!! It really helps

gene53 · Answer

thanks for the advice, I drink lots and lots of power aid ( I hope that's good for me ) and you can be sure there will be lots of business for Netflix.
Most likely John Wayne marathon

gene53 · Answer

Thanks for the info, I will for sure have similar items on hand.
really appreciate it

gene53 · Answer

Very much appreciated advice. I will be stocking up soon.
thanks a lot

gene53 · Answer

Sherry,
Thanks a lot for the advice. Sounds like this will be pretty intense regarding skin rash and anal burning 

Best of luck to you too!

Gene

scoleman · Answer

I stocked up on lotions, soaps, and laundry detergent without fragrances or dyes.  I like Ceravue and Cetaphil lotions, Cetaphil body wash and Tide Free and Clear.  

I stocked up on snacks that I could grab and go for my afternoon 20 gm of fat and Incivek.  You can search the forum for more suggestions but I had packages of peanut butter crackers, nuts, and Kind bars.  

Make sure you wash all your clothes, sheets and towels before treatment with the dye and fragrance free detergent.  

Above all stay hydrated by taking water with you everywhere.  

Good luck, Sherry

hrsepwrguy · Answer

Get some name brand hypoallergenic baby wipes and tucks pads, most likely you will get the anal burning and you need to keep the area spotlessly clean, don't leave any residue, if any is left it really irritates the skin, then use the tucks to sooth the burn and itch, if you stay on top of it from the start it is tolerable and managable and as b said drink lots of water. Also use hypoallergenic skin products (lotion,soap ect) to try and avoid the rash, both these symtoms are very common with the use of incivek.

JasmineT · Answer

You may want to read through this thread. 

http://www.medhelp.org/posts/Hepatitis-C/Items-I-need-at-home-to-rescue-cue-me-while-on-tx/show/1619415#post_7363311

brianmo · Answer

Good luck to you and I admire your decision to treat again. I am sure others who are doing Incivek with jump in. I am doing Victrelis. My advice, lots of water and Netflicks.

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