Aa
test came back negative
Well I got a call from ny doctor saying that my viral load is "undetected" 4 weeks post treatment, even though my liver enzymes were high 2 weeks post treatment. I very hopefull with this news, I don't know what it means but at least I stiil have a hope. I was reading a book that gave me a different perspective about this disease. It said that instead of "fighting" the disease we should surrender to it, accept it and learn from it. I know that I am a better person because of this experience. I know that there are times when you just want to give up and times when you feel depress and anxious, we all go throught that but what matters is what we are becoming in the process. You are all in my prays.
Love,
gladis
Love,
gladis
Sorry Chevy that it took me so long to get back.
I take it that you TOO are undetectable? GREAT! Yes I do remember that we were really close in the start of our treatments. I guess that's why I always look for you!
I'm still very tired. I hope that goes away soon. It''s like if I don't take a nap during the day, I won't make it to nighttime. Maybe it's such a habit now, that my body craves it. I have no trouble falling asleep either in the afternoon or at night.
My hip and back continue to be a problem and will for the rest of my life. I've been dealing with this pain since I was 15 years old. I'm almost 45 (in dec) I don't remember what it's like NOT to have pain. I'm a 45 year old in an 80 year old body. Nice huh? I do have to walk with a cane and everytime I see my reflection in a window or mirror in a store, it's like "who is that old lady"
I will not have further surgery as every surgery I have, it gets worse. Usually they end up damaging something permanently! They can replace hearts/kidneys etc but they can't fix my little ole hip! doesn't make sense....
Sorry for venting, once I get going, sometimes I can't stop. Thanks for listening.
Take care,
Sue
I take it that you TOO are undetectable? GREAT! Yes I do remember that we were really close in the start of our treatments. I guess that's why I always look for you!
I'm still very tired. I hope that goes away soon. It''s like if I don't take a nap during the day, I won't make it to nighttime. Maybe it's such a habit now, that my body craves it. I have no trouble falling asleep either in the afternoon or at night.
My hip and back continue to be a problem and will for the rest of my life. I've been dealing with this pain since I was 15 years old. I'm almost 45 (in dec) I don't remember what it's like NOT to have pain. I'm a 45 year old in an 80 year old body. Nice huh? I do have to walk with a cane and everytime I see my reflection in a window or mirror in a store, it's like "who is that old lady"
I will not have further surgery as every surgery I have, it gets worse. Usually they end up damaging something permanently! They can replace hearts/kidneys etc but they can't fix my little ole hip! doesn't make sense....
Sorry for venting, once I get going, sometimes I can't stop. Thanks for listening.
Take care,
Sue
First of all, congratulations Gladys! Great news!
I haven't been posting much at all during my treatment period, but I do read everyones post and have learned so very much from all of you.
I finished treatment 2 weeks ago. 24/weeks pegasys/riba and procrit for anemia. I just received my labs and I continue to be undetectable! I know it's too soon to yell "cure" but if you remain undetectable at 6 months, are you considered SVR (if that's the correct term) I guess what I'm asking is, at what point are you considered "cured"? Are we ever?
I must say, I had a fairly easy treatment period. I really didn't have much for sides with the exception of fatigue. Just walking up my steps had be out of breath! And I could sleep ALL day if someone would let me. But other then that, I felt pretty good. I definitely felt this was worth it for me to go ahead with treatment. I probably was one that could have waited for a while since I had normal liver functions and biospy was 0-1. But My reasoning was I wanted to get rid of this disease and I felt that other then my hip/back problem I was reasonably healthy. (no symptoms at all from the hep c)
I really don't know if that's why I was fairly side effect-free or that I was just lucky.....
Again, thank you all for your support and expertise over this last year.
Sue
I haven't been posting much at all during my treatment period, but I do read everyones post and have learned so very much from all of you.
I finished treatment 2 weeks ago. 24/weeks pegasys/riba and procrit for anemia. I just received my labs and I continue to be undetectable! I know it's too soon to yell "cure" but if you remain undetectable at 6 months, are you considered SVR (if that's the correct term) I guess what I'm asking is, at what point are you considered "cured"? Are we ever?
I must say, I had a fairly easy treatment period. I really didn't have much for sides with the exception of fatigue. Just walking up my steps had be out of breath! And I could sleep ALL day if someone would let me. But other then that, I felt pretty good. I definitely felt this was worth it for me to go ahead with treatment. I probably was one that could have waited for a while since I had normal liver functions and biospy was 0-1. But My reasoning was I wanted to get rid of this disease and I felt that other then my hip/back problem I was reasonably healthy. (no symptoms at all from the hep c)
I really don't know if that's why I was fairly side effect-free or that I was just lucky.....
Again, thank you all for your support and expertise over this last year.
Sue
I met the doctor that wrote that personal story. He really is suprisingly negative about having written it. But he added to me that, just because we surrender, doesn't mean we have to like it! Joni
Hey!!!!! Congrats!!!!!!! I guess I read your post w/ the way you meant it. I don't know anything about the 12 step programs...but I do know about surrendering.
I have totally surrendered this virus to GOD! I DID relapse and I will not back down from it! I will continue for as long and as many tx it takes for me to get this awful virus outta ME! I'm like you....God has reason for the things that happen in our lives. Like I've said before, if I never had this virus I would have missed out on meeting soooooooooo many wonderful people...meaning EVERYBODY here.
This virus has changed the way I look at sickness. I have always been a humble person, but this virus has made me more so. I thought because I had changed my lifestyle many many years ago....God would heal my body w/ the first try! Boy was I wrong!
But w/ the new trial I start in Oct. I look at it this way, I don't know WHY...I relapsed, nor do the doctors....I was EVR and undectable thoughout tx. Then 4 months post...my 1st post blood test..it showed I had relapsed. Like rev_____ said....it up-set me a little, but not enough to give up. I have never felt like "poor me". You GO SCOTT!!!!!!
God has a reason that I relapsed.....maybe it's because I AM NOT ONE TO GIVE UP....and that I would have the strenght to go on and KEEP FIGHTING. Maybe with my trial study I will be helping others, who weren't strong enough to go on. Maybe w/ my new meds...they WILL WORK, and the people who gave up, will learn that there IS HOPE!!!!! And do the new meds.
I don't have the answers, but I KNOW IN MY HEART....GOD DOES!!!!! I want to wish you the best in your "clearing" this time! You have been and will remain to be in my prayers.
With GOD ALL THINGS ARE POSSIBLE!!!!! Much love @ Many prayers, Cindee
ps I guess lately I have talked more about God, but it's because he has BLESSED me so much in the recent wks. He has answered prayers in ways that I had no idea, that some of my personal problems would turn out so wonderful! My daughter who was on crack is w/ us now and she's been clean for awhile now. I just can't help praising him and I give him all the glory!
I love you all!!!!! Cindee
I have totally surrendered this virus to GOD! I DID relapse and I will not back down from it! I will continue for as long and as many tx it takes for me to get this awful virus outta ME! I'm like you....God has reason for the things that happen in our lives. Like I've said before, if I never had this virus I would have missed out on meeting soooooooooo many wonderful people...meaning EVERYBODY here.
This virus has changed the way I look at sickness. I have always been a humble person, but this virus has made me more so. I thought because I had changed my lifestyle many many years ago....God would heal my body w/ the first try! Boy was I wrong!
But w/ the new trial I start in Oct. I look at it this way, I don't know WHY...I relapsed, nor do the doctors....I was EVR and undectable thoughout tx. Then 4 months post...my 1st post blood test..it showed I had relapsed. Like rev_____ said....it up-set me a little, but not enough to give up. I have never felt like "poor me". You GO SCOTT!!!!!!
God has a reason that I relapsed.....maybe it's because I AM NOT ONE TO GIVE UP....and that I would have the strenght to go on and KEEP FIGHTING. Maybe with my trial study I will be helping others, who weren't strong enough to go on. Maybe w/ my new meds...they WILL WORK, and the people who gave up, will learn that there IS HOPE!!!!! And do the new meds.
I don't have the answers, but I KNOW IN MY HEART....GOD DOES!!!!! I want to wish you the best in your "clearing" this time! You have been and will remain to be in my prayers.
With GOD ALL THINGS ARE POSSIBLE!!!!! Much love @ Many prayers, Cindee
ps I guess lately I have talked more about God, but it's because he has BLESSED me so much in the recent wks. He has answered prayers in ways that I had no idea, that some of my personal problems would turn out so wonderful! My daughter who was on crack is w/ us now and she's been clean for awhile now. I just can't help praising him and I give him all the glory!
I love you all!!!!! Cindee
You didn't upset me re: the use of the word "surrender". I just interpreted it differently. I guess if it helps to believe that some of us get sick because we carry negative toxins around, then that's your belief. I'm not angry I have this virus. I know perfectly well how and why I got it and I certainly cannot change something in the past so there is no reason to be angry about it. I know for sure, however, I didn't get it because I was carrying around negative toxins.
I am sorry if I made anyone upset with my comment but I didn't mean "surrender" as "give up and let yourself be kill by the disease" , I meant surrender as letting go of all the anger that this disease brings to all of us. I've been reading about spontaneous healing and alternative medicine and what I understand is that sometimes we get sick because we carry negative feeling within ourselves. Anger is a toxin that according to some people is process by the liver. This might not make sense to all of you but in my case I can tell you that I have been carrying a lot of anger since I remember. I don't know how I got infected all I know is that there were times when anger took over me and made me do and say things that were hurtful to me, and to others. This disease has thought me the importance of taking care of yoursef and of the ones you love.
I still have 5 more month before declaring myself Hep C free, but I know, even if I don't understand why, that we all have a purpose in life and everything that happens to us is not an accident or bad luck, it was all plan in order to give us the oppornunity to grow as humans, but most of all as spirits.
gladis
I still have 5 more month before declaring myself Hep C free, but I know, even if I don't understand why, that we all have a purpose in life and everything that happens to us is not an accident or bad luck, it was all plan in order to give us the oppornunity to grow as humans, but most of all as spirits.
gladis
Surrender NO EFFING WAY. If I have to be a guinea pig to try a new method of tx I willingly volunteer Until I, like REV actually die will I surrender to HCv or Another bout with cancer or any other disease or virus Hell no I wont go
DARYL
DARYL
it sounds like something from the 12 steps, which I personally find difficult to accept, whatever works for you...
Great news on your test results! Praying for your svr. It sure does feel good to let that anger go, doesn't it? That sense of inner peace is priceless.
Now....get out there and celebrate the great news! Maybe toast a few lemonades...have a nice dinner out...you deserve it!
Peace and happiness.
Gail
Now....get out there and celebrate the great news! Maybe toast a few lemonades...have a nice dinner out...you deserve it!
Peace and happiness.
Gail
Thanks for pointing out the other side of the coin. I just saw the word "surrender" and said, Uh-huh. Not me. I'll never give up in my quest to be cured. I think it is refreshing that you are both so positive and now thinking back on it, you are both probably correct re: your interpretation of the word "surrender". It's all in "interpretation".
I also saw the "surrender" comment in a positive way. I am always a bit alarmed when people talk about "dragons" and how they are going to fight it etc, partly because I can't imagine how awful they will feel if they "fail", which, after all, about half of them will. I felt differently about my hepatitis. I was diagosed with non-A, non-B 16 years before I did tx, so knew I was living with it. It had become part of me, I guess, not a dragon, not a parasite, but me. I was even ambivalent about doing the treatment, thinking I might be destroying a part of myself. Weird, eh? I know this isn't the way most people think, and I am not advocating it, just pointing out how we are all different. I went into tx in a very "positive" way, but prepared psychologically for it to not work. I was never angry about having it, nor at the person who "infected" me. Just philosophical. Anyway, it worked for me. and no-one could be happier at being cured than I am!
Gladys; Congratulations, great news:)
Furbacat: With that spirit you will attain SVR, very best of luck to you:). It's interesting how we can all perceive the same message differently. I read Glady's post to mean surrender to the fact that you are infected with HCV and let go of the anger, why me stuff, etc., and instead go forward and do what you need to do for your present and future good health?
Furbacat: With that spirit you will attain SVR, very best of luck to you:). It's interesting how we can all perceive the same message differently. I read Glady's post to mean surrender to the fact that you are infected with HCV and let go of the anger, why me stuff, etc., and instead go forward and do what you need to do for your present and future good health?
Surrender to this disease? Not a @#$%@#$ing chance! I agree to accept that I have it and I have definitely learned from it, but I will never, ever surrender to it. I will go down fighting tooth and nail if I don't clear this first time.
Anyway, and more importantly, I am very happy that you got good results. That is such a relief for you. Great news!
Anyway, and more importantly, I am very happy that you got good results. That is such a relief for you. Great news!
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